Zevex and updates

[Guest guest]

In a message dated 98-06-30 17:00:50 EDT, you write:

<< There were subtle

suggestions that their esophagitis is back. >>

=-( That's too bad, I am sorry to hear that. I hate oral prednisone therapy

for my son, it makes him stop growing completely and lowers his immune

resistance. Do your children have problems while on it.

I can't believe you have to deal with this with five children. I think you're

the one who needs the cyberhugs!

I hope the biopsies come back better than you fear.

That picture of Kody on you website is great. I hope the gash didn't affect

his beautiful smile.

Lynda

[Guest guest]

Two of our kids had their repeat EGDs yesterday. There were subtle

suggestions that their esophagitis is back. If this bears out on the

biopsies, I don't think there are going to be any other options than

back on prednisone therapy. Very disappointing to say the least.

On a VERY GOOD NOTE, however, we did get our Zevex Enteralite today

(after changing home health care companies -- we fought the other one

for 7 months,this one got it in 3 days). My question to all you veterans

is HOW DO YOU GET ALL THE AIR OUT OF THE BAG??? If you turn the whole

pack upside down,the formula obviously fills the top of the bag,

leavning nothing in the bottom,then the " NO FOOD " alarm goes off. There

must be an easy solution to this??

So far, I love this pump,it is lighter and smaller. We have the

backpack for Kody, they are getting the fanny pack for him. Is the fanny

pack small enough for a 28-lb 3/yo?

CYberhugs for Kody, as if his life was not hard enough. He fell this

morning and gashed his head open -- 6 STITCHES!!!! I think our kids

should be exempt from these " normal " childhood things. I know KOdy has

been through enough without this!

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

What you do is depress the little button and then push all the air out.

Then it is like a suction cup. Did your stuff come with a video??? You

can call me if you need someone to talk you through it. My number is

I am in Utah. If you can't get me there you can call my

cellular phone .

Hope I can help,

----------

> From: SJHarlow@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Zevex and updates

> Date: Tuesday, June 30, 1998 1:57 PM

>

> From: SJHarlow@...

>

>

> Two of our kids had their repeat EGDs yesterday. There were subtle

> suggestions that their esophagitis is back. If this bears out on the

> biopsies, I don't think there are going to be any other options than

> back on prednisone therapy. Very disappointing to say the least.

>

> On a VERY GOOD NOTE, however, we did get our Zevex Enteralite today

> (after changing home health care companies -- we fought the other one

> for 7 months,this one got it in 3 days). My question to all you veterans

> is HOW DO YOU GET ALL THE AIR OUT OF THE BAG??? If you turn the whole

> pack upside down,the formula obviously fills the top of the bag,

> leavning nothing in the bottom,then the " NO FOOD " alarm goes off. There

> must be an easy solution to this??

>

> So far, I love this pump,it is lighter and smaller. We have the

> backpack for Kody, they are getting the fanny pack for him. Is the fanny

> pack small enough for a 28-lb 3/yo?

>

> CYberhugs for Kody, as if his life was not hard enough. He fell this

> morning and gashed his head open -- 6 STITCHES!!!! I think our kids

> should be exempt from these " normal " childhood things. I know KOdy has

> been through enough without this!

>

> SJHarlow@...

> http://www.c4isr.com/harlow

>

>

> ------------------------------------------------------------------------

>