(no subject)

[Guest guest]

Amy,

You asked about 's pancreatitis. When he first developed the

pancreatitis, everyone thought that it must somehow be related.

Unfortunately, his pancreatitis is considered ideopathic, which means the

doctors have no idea what causes it and they can do nothing to prevent it.

They have decided to treat the two conditions completely separate. He

spent almost sixty days in the hospital last year alone with the

pancreatitis. He has a medi-port in his chest now for IV access which has

made his life much easier. Of course, that is in addition to his Nissen

scar and his Mic-key button.

Our experience has been that he seems to be much more tolerant of foods

now, than when he was as a baby. Dr. once said to us that he has

never seen an adult with this disease. (Of course, he added that he had

never seen a child quite like either). His particular condition seems

to be unique.

The one thing that has shown much improvement is his eczema. When he was

little, he was a total disaster. Now we seem to be able to keep the

outbreaks under control as soon as they appear. When we started on the

Neocate and he wasn't reacting to everything he ate, his eczema and his

asthma seemed to get easier to control.

Another big problem for before we started the Neocate was bleeding

from the digestive tract. Every stool we tested came back positive for

blood. He was always anemic. Now he only has positive stools associated

with his pancreatitis. So I geuss I would have to say that his EG has

certainly improved with age, at least for us.

Suzanne