Reply: [MosaicMoms] Data base

May 3, 2000

In a message dated 5/3/00 10:58:18 PM Eastern Daylight Time,

BarbStrate@... writes:

> I would like to start keeping data on ABA instructors, services, schools,

> doctors, stores etc in the Bergen County area specifically geared for the

> newly diagnosed or the newly biomedically converted. I believe the Wayne

> group keeps this sort of info. As I was telling the other day,

rumor

> has it that a doctor in my pediatrician's group will split up the MMR if

> requested and if this is true the information should be available to

parents

> joing Mosaic in the months to come. This is just an example of the

> information that I'd like to see in print.

> Does anyone have ideas or feelings about this? In addition, for some

> issues (like teachers) I'd like to see a sort of rating system so that we

> can

> begin to have some control over the services provided to us, especially

the

> cost. And when a family is newly diagnosed I'd like to provide them with

a

> list of names so they can get a home program going immediately. Cosac

> SHOULD be doing this but they aren't. Perhaps this can be a companion to

a

> biomedical information packet? We could ask Valley Child Dev. Ctr and

> Hackensack Hospital and early intervention ctrs to distribute to the

> families. I know Dr. Holahan ( dev. ped) would love to have this sort of

> info available for his patients. (I guess as long as he isn't rated) Am

I

> treading on dangerious ground here? Any opinions?

> Barb

>

Barb:

... " The newly biomedically converted " ...I like this. Hey, it's not autism

anymore- now we're a religion !! LOL

Yes, I think all of the above ideas are excellent, and since you proposed

them, you can head the Committee! Just kidding- I'm sure we'll all chime

in on this. We definitely need to start some sort of ABA data base

(Coordinators and Therapists: good/ bad, expensive/cheap, timely/cancels too

often, etc.) and a Doctor data base as well. Maybe I'll bring a big note pad

to the next MOSAIC meetings, and have everyone give some input to this...

Thanks for getting this idea off the ground.

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