Introduction

May 25, 1998

In a message dated 98-05-24 12:23:12 EDT, you write:

<<

Her doctor has her on a non-dairy diet for a minimum of 4 weeks to see if

there is any improvement. The gastro said that eosinophils in the stomach

can indicate a milk allergy, also the lymphocytes in the small intestines

can indicate a wheat allergy and we are going to do an antigluten antibody

test in July to rule out wheat allergy.

I was intrigued by the term " eosinophilic gastroenteritis " because this

sounds (in terminology) like what was found on the biopsy. I guess I am here

to find out as much as I possibly can. >>

Hi Mel:

Welcome to this loop.

Clayton is allergic to milk, all daity products, wheat, egg and soy. His

biopsy at 3 months showed a flattened small bowel (blunted villi) and the

seconf showed a high eosinophil count.

He is now on Neocate One +. He was on NEocate Infant formula since 6 months of

age and was just switched last month.

I know that folloiwng a milk free diet is also har. I have learned to read

labels very carefully and have taken to shopping at organic andhealth food

store. If you like I have alist of terms used on products to indicate dairy.

Also - If anyone has not sent an introduction to the lsit please send one.

Thanks

Love,

Sharon

May 26, 1998

thanks Dawn, I will do a search on it. I know what apena is since he was a

preemie and have had other preemies and was on a monitor for a while but that

was mainly for the reflux because he did not have many apnea spells but my

daughter on the other hand was on the monitor till she was almost 2. what I

was really wondering is if ther was a differerence in preemie apnea and sleep

apnea and what it is? sorry for not making my question more clear earlier. any

how thanks everyone take care

angela and the munchkins

May 26, 1998

Hi ,

had apnea episodes and was on a monitor until 16 months when thank

God he stopped doing it. I had read a lot on apnea, and remembered hearing

when the apnea monitor is not enough they used something called, and I am

trying hard to remember the exact name, CPAP, continuous pressure air ???.

Sorry, that is all I can remember. Maybe you can do a search about this.

Dawn

----------

>

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] introduction

> Date: Tuesday, May 26, 1998 3:24 PM

>

> Hi everyone My name is angela and I have 5 living children and 1 sweet

angel.

> our youngest is the reason we are here. his name is and he is

16

> months old. He is a former 34 wkr and has been DX with Reflux( which he

had

> the fundo for but still refluxed so was put back on meds) Hirshprungs(

wich

> he had a colostomy put in at 2 weeks/36weeks gestation, has had his pull

> through and his take down in feb.)he is failure to thrive( g-button, 24hr

> feeds at 50 cc an hr on neocate with MCT oil ) he also take some table

foods

> and breastfeeds a little( poor suck), he is developmentally delayed, has

> hypotonia,chronic anemia, is boarderline MR, and has a milk protien

allergy.he

> asperates when he drinks from a cup and has alot of oromoter problems.

and he

> is the sweetest little boy in the world!!!hmm I think that about covers

our

> little guy. I Want to thank Sharon for making this list it is really

great!! I

> hope everyone is doing well. we go for a sleep study soon because Chris

keeps

> waking up about 6 or 7 times a night choking. he has had several blue

spell

> scares in the last couple of months that we thought was being caused by

reflux

> as he is too old to have apnea anymore but now the Dr seems to think he

may

> have sleep apnea does anyone know anything about it? if so could you

please

> let me know . Thanks in advance!! well I guess I better get going I am

eager

> to meet all of you!! take care

> angela and the munchkins

>

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May 26, 1998

was a 32 weeker so I kinda understand. From what I understand

though, they are generally on till 6 months, was on monitor until 16

months. Does he apnea during waking hours or just while sleeping?

----------

>

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: introduction

> Date: Tuesday, May 26, 1998 4:10 PM

>

> thanks Dawn, I will do a search on it. I know what apena is since he was

a

> preemie and have had other preemies and was on a monitor for a while but

that

> was mainly for the reflux because he did not have many apnea spells but

my

> daughter on the other hand was on the monitor till she was almost 2. what

I

> was really wondering is if ther was a differerence in preemie apnea and

sleep

> apnea and what it is? sorry for not making my question more clear

earlier. any

> how thanks everyone take care

> angela and the munchkins

>

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>

May 26, 1998

only seems to do this at night lately when he was younger it didnt

really matter what time of day it was.

angela and the munchkins

May 27, 1998

In a message dated 98-05-26 16:33:14 EDT, you write:

<< we go for a sleep study soon because keeps

waking up about 6 or 7 times a night choking. he has had several blue spell

scares in the last couple of months that we thought was being caused by

reflux

as he is too old to have apnea anymore but now the Dr seems to think he may

have sleep apnea does anyone know anything about it? if so could you please

let me know . >>

Hi :

I am glad that you have joined us. Clayton also wakes up a lot at night, not

chokcing by screaming - we think do to reflux. During his sleep study in

December, he had no real apnea episodes (so he was discharged from his monitor

then) but refluxed ALL NIGHT. Kids of any age can have apnea - but they can

be for different reasons - such as obstructive apnea (tonsils and adenoids)

for central apnea (Brain). They can tell by the sleep study what type of apnea

he is having.

I have noticed that a lot of kids with milk protein allergies and eosinophil

gastro are preemies. Does anyone know of this correlation?

Sharon

May 27, 1998

Hi ,

used to wake up several times a night with choking and gagging. We

thought it was caused by the reflux. Last October he had a bad spell one

night and we ended up taking him to the emergency room. He was treated for

asthma that night. He continued to have these spells until January when he

again ended up in the hospital. This time the docs decided to set him up with

a treatment plan. He receives nebulizer treatment daily and no longer coughs,

chokes or gags at night.

I know this is diffferent from the apnea but you may want to ask the doc about

it.

Jen

May 28, 1998

Your son sounds so very much like who is also 31 months. What foods

have you found him to tolerate?

Dawn

----------

> From: Jenericm@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] introduction

> Date: Wednesday, May 27, 1998 8:20 PM

>

> My name is and I have a 31 month old son with Eosinophilic

> Esophagitis. was diagnosed about a year ago. He has severe food

> allergies and asthma.

>

> was diagnosed at Children's Hopspital of Philadelphia. He

currently

> is doing pretty good but remains on a very restricted diet. He was on a

NG

> tube with Neocate 1 Plus in Nov, Dec and Jan. Currently he is off the

> Neocate. We have introduced new foods very slowly into his diet. This

food

> challenge has been very helpful in identifying foods that he is allergic

to.

>

> Sharon, thanks for pulling this list together

>

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May 28, 1998

I just read your list and realize your son does have eosinophilic

esophagitis. Please call your doc immediately and find out WHY they do

not have him on fluticasone. It has been proven in two separate studies

to work. It is an inhaler and the kids just swallow in stead of inhale.

We had two of our five on the prednisone for two months, then weaned,

because the FLovent (fluticasone) has been proven to work. Our kids are

followed at Walter if your doc wants to call them about this. THey

are also publishing their findings on our kids soon.

SJHarlow@...

http://www.c4isr.com/harlow

May 29, 1998

In a message dated 98-05-28 17:35:39 EDT, you write:

<< I just read your list and realize your son does have eosinophilic

esophagitis. Please call your doc immediately and find out WHY they do

not have him on fluticasone. It has been proven in two separate studies

to work. It is an inhaler and the kids just swallow in stead of inhale. >>

This list is just a wonderful source of information! My son also has had

confirmed eosinophilia in his esophageal biopsies. Can you give me the cites

on those two studies you are referring to? He is already on Vanceril inhaler

for his asthma, I wonder how something like fluticasone for the GI tract and

an inhaled steroid for the Respiratory tract would be managed concurrently in

terms of dosages.

BTW, who do you see at Walter ? A pediatric gastroenterologist or a peds

allergist?

Lynda (whose husband just retired from Navy in November, 1997)

May 29, 1998

BTW, who do you see at Walter ? A pediatric gastroenterologist or a

peds

allergist?

I am really interested in this too being hubby is active Army!

Dawn

----------

> From: RRA4U@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: introduction

> Date: Friday, May 29, 1998 7:21 AM

>

> In a message dated 98-05-28 17:35:39 EDT, you write:

>

> << I just read your list and realize your son does have eosinophilic

> esophagitis. Please call your doc immediately and find out WHY they do

> not have him on fluticasone. It has been proven in two separate studies

> to work. It is an inhaler and the kids just swallow in stead of inhale.

>>

>

> This list is just a wonderful source of information! My son also has had

> confirmed eosinophilia in his esophageal biopsies. Can you give me the

cites

> on those two studies you are referring to? He is already on Vanceril

inhaler

> for his asthma, I wonder how something like fluticasone for the GI tract

and

> an inhaled steroid for the Respiratory tract would be managed

concurrently in

> terms of dosages.

>

> BTW, who do you see at Walter ? A pediatric gastroenterologist or a

peds

> allergist?

>

> Lynda (whose husband just retired from Navy in November, 1997)

>

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>

May 29, 1998

Man oh man. I cant believe you are military and got that treatment. We

are all seen in both clinics. Both the allergy clinic and the peds GI

clinic are doing the report. Primarily, however, the kids are followed

by the Peds GIs there. THey have one other kid too with eosinophilic

esophagitis besides my 5. He too is on the Flovent inhaler and was

successfully treated WITHOUT oral prednisone.

SJHarlow@...

http://www.c4isr.com/harlow

May 29, 1998

To Lynda:

Two of my five are also asthmatics. There is no problem mixing the

bronchodilators with the fluticasone even if they were inhaled.

However, the fluticasone is SWALLOWED so it would hav no effect on the

respiratory tract (it only works where it is directly absorbed)

SJHarlow@...

http://www.c4isr.com/harlow

June 1, 1998

Hi,

I have a question about the fluticasone. If I remember right you were

saying this is being used on eosinophilic esophogitis(sp?), do you know if

this would possibly work on eosinophilic gastroenteritis? Would it be

effective once it got down that far(to the intestines, etc) ?

Also, I have a question for group. Everyone, I think, knows my strong

feeling about finally weaning off the Prednisone after a year. Well

I wrote last week of our lovely trip to the ENT. She gives him ear drops

and guess what they are, Prednisone! Has anyone ever used these? Our

pharmacist assures me that VERY little actually gets to the bloodstream but

I am thinking my poor baby is addicted to Prednisone and here we are trying

to get him off( and believe me, we notice the behavior change during these

weaning periods), and they are putting it in his ear. Am I over-reacting?

Dawn

----------

> From: SJHarlow@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: introduction

> Date: Friday, May 29, 1998 12:43 PM

>

> From: SJHarlow@...

>

> To Lynda:

>

> Two of my five are also asthmatics. There is no problem mixing the

> bronchodilators with the fluticasone even if they were inhaled.

> However, the fluticasone is SWALLOWED so it would hav no effect on the

> respiratory tract (it only works where it is directly absorbed)

>

> SJHarlow@...

> http://www.c4isr.com/harlow

>

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December 5, 2000

Michele,

I sure hope so. Right now he isn't acting mature at all! LOL He has been really trying lately and I am worn out. I guess I am just imagining having a baby right now and wondering how I would deal with it. Thanks for the reassurances. I am sure I will need more as time goes by. LOL

Wendi http://www.lactivist.com

"When individuals have been born gently, welcomed kindly into the community, breastfed for many years, they do not become greedy people. They come from a place of fullness and balance with all our relations."

Jeannine Parvati Baker

-----Original Message-----From: ~ Michele ~ Sent: Tuesday, December 05, 2000 3:40 PMTo: breastfeeding (AT) eSubject: Re: Introduction

I am laughing so hard right now Wendi because that was my exact fear too! When I got pregnant with Rowan, Keely was nursing at least 3-5 times through the night and I kept saying "I can't nurse two through the night!" In our case, over the pregnancy Keely really cut down on her nursing, so much that by the time Rowan was born she was only nursing before bed every other night. Yes, her nursing did pick up when he was born, about two weeks after she realized "hey, that baby gets mum mums all the time! I want more too!" lol But, she only picked up to 3-5 times a day, that I could handle. Keely also learned to let daddy comfort her more, she actually cuddles him through the night now, not me!

I'm glad none of my fears about tandem nursing came to pass, everything has worked out and we've been fortunate. I am glad I've had the experience. I think you will be surprised how much Zaid will grow and mature over the next few months, I know I was surprised.

Michele

Michele,

I have to say this is what is worrying me. <My toddler is three today and still nursing at least twice a day, morning and bedtime>

Zaid is three also but he nurses at least 5-8 times per day and sometime many more. He nurses to sleep most night and still wakes occasionally in the night (like last night). He adamantly refuses to have his dad comfort him in the night so I am concerned about having two that will be nursing constantly. I have also heard so many times that the toddler picks up nursing after the baby gets here. That scares me! LOL Any tandem nursers out there that have a high needs older nursling?

Wendi http://www.lactivist.com Give the Gift of Life Breastfeed!http://www.lactivist.com

December 7, 2000

Lesli,

Welcome to the list. My body definitely seemed to start cycling before I

got my period back. I didn't get my period until 10 months postpartum with

my first and seven with my second.

Wendi

http://www.lactivist.com

" When individuals have been born gently, welcomed kindly into the

community,

breastfed for many years, they do not become greedy people. They come

from a place of fullness and balance with all our relations. "

Jeannine Parvati Baker

introduction

Hello everyone. I am new to the group and would like to introduce

myself. My name is Lesli and I have a 14 week old daughter named

. We are having a very positive experience breastfeeding,

although we had some difficulties at first. I have a

question...although I am not having regular periods, I am having

regular times (when I should be having a period) that my breasts are

extremly tender. Is anyone else experiencing this? I had a period

for a day in October and nothing since...

Give the Gift of Life Breastfeed!

http://www.lactivist.com

February 2, 2001

Welcome Risa. I'm Dawn, mum to 3yo former nurser of 18 months - Ibrahim

Jerry, 19 month old former nurser of 6 months - Elijah Iman, and my 5 month

old current nurser - Ethan Adnan.

I want to nurse Ethan for years, too, but we're having supply issues right

now and he's been getting more formula than I'd like to admit to. I haven't

given up, and we're fighting back - but I don't know how much longer we have

in us.

Welcome to the group!

When the tasks seem many, and the rewards are few - remember that the mighty

oak was once a nut like you!

****************

Dawn, All About Babies

http://www.All-About-Babies.com

Loving Mum to:

Ethan Adnan (8-25-00, 35-weeker, s/p-VSD w/AR, ASD, CHF, PH

Elijah Iman (7-2-99, Developmentally Delayed), Ibrahim Jerry (9-10-97,

systolic murmur - healthy!)

Introduction

> Hi, I'm Risa, mommy to born January 7, 2000. We are loving our

> breastfeeding relationship. She nurses anywhere from 6 to 8 times a

> day. She sleeps through the night some nights and other nights she

> doesn't. Right now she is getting 2 teeth in, an eye tooth and a

> molar. She has 8 teeth. My husband is Mike and we have been married 3

> years in May. I plan to nurse til she is about 3 or whenever

> she decides to stop :)

>

> Risa

>

> Give the Gift of Life Breastfeed!

> http://www.lactivist.com

>

February 2, 2001

Thanks for the welcome Dawn :)

Risa

Dawn M Cowan wrote:

Welcome Risa. I'm Dawn, mum to 3yo former

nurser of 18 months - Ibrahim

Jerry, 19 month old former nurser of 6 months - Elijah Iman, and

my 5 month

old current nurser - Ethan Adnan.

I want to nurse Ethan for years, too, but we're having supply issues

right

now and he's been getting more formula than I'd like to admit to.

I haven't

given up, and we're fighting back - but I don't know how much longer

we have

in us.

Welcome to the group!

When the tasks seem many, and the rewards are few - remember that

the mighty

oak was once a nut like you!

****************

Dawn, All About Babies

http://www.All-About-Babies.com

Loving Mum to:

Ethan Adnan (8-25-00, 35-weeker, s/p-VSD w/AR, ASD, CHF, PH

Elijah Iman (7-2-99, Developmentally Delayed), Ibrahim Jerry (9-10-97,

systolic murmur - healthy!)

Introduction

> Hi, I'm Risa, mommy to born January 7, 2000. We are loving

our

> breastfeeding relationship. She nurses anywhere from 6 to 8 times

a

> day. She sleeps through the night some nights and other nights

she

> doesn't. Right now she is getting 2 teeth in, an eye tooth and

a

> molar. She has 8 teeth. My husband is Mike and we have been married

3

> years in May. I plan to nurse til she is about 3 or whenever

> she decides to stop :)

>

Risa

>

> Give the Gift of Life Breastfeed!

> http://www.lactivist.com

>

Give the Gift of Life Breastfeed!

http://www.lactivist.com

November 7, 2002

Welcome to the group i look forward to getting

to know you!!

suzanne

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

November 7, 2002

Welcome to the group i look forward to getting

to know you!!

suzanne

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

August 9, 2003

Welcome to another Wisconsin-ite! , I am from Milwaukee, but now live in (and LOVE) North Carolina! Welcome to this fabulous group! This a fun, informative, supportive group!!

Welcome to EVERYONE! We are glad you're here!!!

Cindy in NC

September 1, 2003

NAME: Shirley Pennell LOCATION: Wake Forest, NCOCCUPATION: Office SupervisorMEMBER TYPE: Lifetime MemberMY INTEREST IN THIS GROUP: To be motivatedHOW LONG HAVE YOU BEEN A WW MEMBER: 27 years WHAT ARE YOUR GOALS: To reach my goal weight. Once again. I am 37 pounds away from my goal weight.So far I have lost 38 pounds ( I am half way to my goal weight)FAVORITE 1 POINT SNACK: Fat Free Chocolate Ice Cream BarFAVORITE 2 POINT SNACK: Lays Bake Potato ChipsFAVORITE 3 POINT SNACK: 1 TBS Peanut Butter on 6 Saltine CrackersOTHER INTERESTS: Walking on my treadmill 3-5 days a week (30 minutes)MY WEB SITE: NoneADDITIONAL COMMENTS: I am trying very hard to reach my lifetime goal weight. I know through Weight Watchers ..staying focused and staying motivated that I can do this. I will not give up!!!

March 4, 2006

Kim,

very glad to have you join us! I've been on this eating plan for about 3

weeks now and was also put on by my dr

Let me tell you - it is SO worth it! Just in 3 weeks i've seen some MAJOR

differences in how i feel and the things i crave and even in how MUCH i eat!

My BIGGEST pitfall was staying up after the kids and my husband were in bed

and snacking - i don't do that anymore AT ALL, i actually go to bed at a

normal time and wake up at a normal time, thus actually SLEEPING enough

finally! I also was NEVER known to walk away from any food on my plate, now

i pick smaller portions at home and if we eat out (which is VERY easy on

this plan!!) i usually take about 1/2 of what they bring me home in a doggie

bag!

I lost 8 lbs the first 2 weeks, but my 3rd week only lost about .5 lbs, so

DO NOT BE DISCOURAGED! .5lbs is .5lbs that i'll never see again and the

trend of the scale is going down and that is what i'm looking for....anyway,

enough blabbering, there are so many great people here who have lost a ton

of weight and are just great sounding boards and have wonderful ideas,

suggestions, and are totallly motivating - you are taking the first step.

Introduction

>

> Hello,

>

> I wanted to introduce myself and tell my story.........lol. I am 41 y/o

> female with two young kids and started this plan Thursday night by orders

of my

> doctor. Said that I needed to get this weight off immediately, due to

heart

> problem called Pulmonary Hypertension. It is mild at this point and not

> causing any symptoms, but, he did say if it progresses to moderate...I

would have

> about 2 years to live. Real scary to say the least.

>

> Look forward to reading everyone's emails daily to keep me motivated.

>

> Kim D.

>

March 4, 2006