Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi! I have taken a couple of pix of Iris's ears, she has bilateral atresia (with small opening, stenosis...) and unilateral microtia on her right side, grade 1 I think...She had a skin tag about the size of a large pea in front of the right microtic ear, but the doctors removed it when she was 2 weeks old... They also said that her microtia is so mild they would not pursue reconstruction, in fact, they never even mentioned it, I had to ask about it, they also never told me the terms microtia or atresia and never did genetic testing on her, although there are two other kids on my mom's side with birth defects involving the ear (i don't know the details), Would you kindly look at her pictures and tell me if you agree about the reconstruction? I think I need a new doctor, but the only craniofacial surgeon in this area doesn't accept medicaid, my husband is a nursing student and the kids are on medicaid for now...I am thinking that by the time she is 4 or 5 she will be on a regular insurance plan, so there is hope... I am also worried because the doctors never mentioned using a bone conducting hearing aid, she has had hearing tests done and the people who performed the tests were concerned but the ENT just blew it off, should I be taking her to an audiologist or is this who performs the hearing test??? thanx for any advice! Amy p.s. If I could afford it I'd be going to NY for that meeting with Dr. J and Dr. Brent!!! normal left ear: http://photo.msn.s8.com/MS8zLzAvMS8xMDMwLzE1NS8zMi9rQWNpU2p1Y3NaOXZnZGp4U2NYVDJn/19f14a9d80a61430f8d34737e9090e24/clbk=HcZNnT9kkUjlZQ!vIW6YJEHWzVc6vTjUmnzCLZwITPDKADcdU8KAEIyqcGQg1ULsrnOkSKwiiRA$/jpg.jpg microtic right ear: http://photo.msn.s8.com/MS8zLzAvMS8xMDMwLzE1NS8zMi94MldzUmFHOUpaMFpLTGVFUnFUY1ZR/19ad4ef29ff438ddce311d6e4dd7d384/clbk=HcZNnT9kkUjlZQ!vIW6YJEHWzVc6vTjUgTba0rBjISSXaQVYepQOtQjYosuGhHlatVC3LKUoOaw$/jpg.jpg front view: http://photo.msn.s8.com/MS8zLzAvMS8xMDMwLzE1NS8zMi9oTkRGeHotTXFkeFMtMGZuWjRUOF9R/758896cb2555d11f572193b74d07a05c/clbk=HcZNnT9kkUjlZQ!vIW6YJEHWzVc6vTjULOZD4ah1uhh5uy5ZphDXucLgFgTdCg*lBv*7EE1jPzc$/jpg.jpg another, not as good for comparison: http://photo.msn.s8.com/MS8zLzAvMS8xMDMwLzE1NS8zMi9weldzUEhnaXhsWmM1RzRYR09KTWh3/02ea3441d0b83bf0da79c03919286c7a/clbk=HcZNnT9kkUjlZQ!vIW6YJEHWzVc6vTjUH*ZDF0EfqRLKMOzKHUsS2Vo2OwQEw2rOlBY9DWHv*NU$/jpg.jpg ~**amy**~>^..^< Quote Link to comment Share on other sites More sharing options...
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