Re: Hi Everyone

[Guest guest]

Phyllis, Yes, EG is considered to be an auto-immune disorder. Sorry I

can't offer help on the other issue...

Take care,

-Joy

>

>Reply-To: eosinophilic gastroenteritis (AT) onelist (DOT) com

>To: " zeos " eosinophilic gastroenteritis (AT) onelist (DOT) com>

>Subject: [eosinophilic gastroenteritis] Hi everyone

>Date: Mon, 2 Aug 1999 08:44:22 -0400

>

>Hope your summers are going well. Ours has been sooooooooo hectic. I am

>watching 6 kids besides my girls. I have another month to go. I wonder if

>I will have any sanity by the end.

>

>Anyway, medically I have been concentrating on AJ's hearing loss. Her EG

>is in control. She eats nothing, is on no meds and is very happy with just

>the Neocate. I was wondering if EG is considered an autoimmune type

>problem. I don't know much about autoimmune diseases and someone asked me

>that. There is a link between them and hearing loss.

>

>Also, AJ is having a potty issue. She wants to wear undies to bed. SHe

>drinks right thru the night. It is just not happening. Even when we wake

>her, it is not enough. She is taking too much in and we need to sleep too.

> This is very upsetting to her. Anyone dealing with any of

>this??????????? She has been potty trained since 18 months and is fine

>for naps, if she naps. It is not like we are trying to get her dry thru

>the night, i just want to help her self esteem.

>

>THanks for listening.

>

>Phyllis--mom to

>

>AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing loss

>Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies

>

[Guest guest]

Hi Phyllis.

This is Shana's mother in Milwaukee. Shana has been hospitalized with

her son, Yissie for over a week now but should be returning home

tomorrow, hopefully with good news. I'm getting together a suitcase of

" pure " rice cereal, noodles, etc. to send with a traveler to Israel but

I'm having trouble finding the pop rice. According to Miriam that's most

important. I've contacted most of the health food stores here and no one

has ever heard of it. Do you get yours through the internet, and, if so,

how long does it take to receive it.

Hope AJ concurs her most recent difficulties. I know Miriam loves to

talk with her.

Enough babbling...I try just to monitor the list to increase my knowlege

of the disease and to help the kids all I can from the states. It's very

difficult having those you love being sick so far away.

Best wishes to all,

Diane Graham Pagenkop

On Mon, 2 Aug 1999 08:44:22 -0400 " phyllis m. zuckerman-frieze "

pmzf@...> writes:

>Hope your summers are going well. Ours has been sooooooooo hectic. I

>am watching 6 kids besides my girls. I have another month to go. I

>wonder if I will have any sanity by the end.

>

>Anyway, medically I have been concentrating on AJ's hearing loss. Her

>EG is in control. She eats nothing, is on no meds and is very happy

>with just the Neocate. I was wondering if EG is considered an

>autoimmune type problem. I don't know much about autoimmune diseases

>and someone asked me that. There is a link between them and hearing

>loss.

>

>Also, AJ is having a potty issue. She wants to wear undies to bed.

>SHe drinks right thru the night. It is just not happening. Even when

>we wake her, it is not enough. She is taking too much in and we need

>to sleep too. This is very upsetting to her. Anyone dealing with any

>of this??????????? She has been potty trained since 18 months and is

>fine for naps, if she naps. It is not like we are trying to get her

>dry thru the night, i just want to help her self esteem.

>

>THanks for listening.

>

>Phyllis--mom to

>

>AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing

>loss

>Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies

>

___________________________________________________________________

Get the Internet just the way you want it.

Free software, free e-mail, and free Internet access for a month!

Try Juno Web: http://dl.www.juno.com/dynoget/tagj.

[Guest guest]

Hi Phyllis.

This is Shana's mother in Milwaukee. Shana has been hospitalized with

her son, Yissie for over a week now but should be returning home

tomorrow, hopefully with good news. I'm getting together a suitcase of

" pure " rice cereal, noodles, etc. to send with a traveler to Israel but

I'm having trouble finding the pop rice. According to Miriam that's most

important. I've contacted most of the health food stores here and no one

has ever heard of it. Do you get yours through the internet, and, if so,

how long does it take to receive it.

Hope AJ concurs her most recent difficulties. I know Miriam loves to

talk with her.

Enough babbling...I try just to monitor the list to increase my knowlege

of the disease and to help the kids all I can from the states. It's very

difficult having those you love being sick so far away.

Best wishes to all,

Diane Graham Pagenkop

On Mon, 2 Aug 1999 08:44:22 -0400 " phyllis m. zuckerman-frieze "

pmzf@...> writes:

>Hope your summers are going well. Ours has been sooooooooo hectic. I

>am watching 6 kids besides my girls. I have another month to go. I

>wonder if I will have any sanity by the end.

>

>Anyway, medically I have been concentrating on AJ's hearing loss. Her

>EG is in control. She eats nothing, is on no meds and is very happy

>with just the Neocate. I was wondering if EG is considered an

>autoimmune type problem. I don't know much about autoimmune diseases

>and someone asked me that. There is a link between them and hearing

>loss.

>

>Also, AJ is having a potty issue. She wants to wear undies to bed.

>SHe drinks right thru the night. It is just not happening. Even when

>we wake her, it is not enough. She is taking too much in and we need

>to sleep too. This is very upsetting to her. Anyone dealing with any

>of this??????????? She has been potty trained since 18 months and is

>fine for naps, if she naps. It is not like we are trying to get her

>dry thru the night, i just want to help her self esteem.

>

>THanks for listening.

>

>Phyllis--mom to

>

>AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing

>loss

>Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies

>

___________________________________________________________________

Get the Internet just the way you want it.

Free software, free e-mail, and free Internet access for a month!

Try Juno Web: http://dl.www.juno.com/dynoget/tagj.

[Guest guest]

Joy-

That does help. Knowing EG is an autoimmune disorder gives the audiologist

more to work with. Thanks. Phyllis

[Guest guest]

Kat, it is so good to finally hear from you. CONGRATULATIONS on soooo many

things. First of all, being Flare free for 1 year!!! LOve to hear that and

pray for it to stay that way!! Oh that is such great news. I plan to be

the next!! Hope your knee is healing and you are back good as new. Wish I

could help you attach that picture of your little peanut...but...well, not an

expert on computers. LOL Hope you figure it out soon, would love to see

him!!Aren't they the best.

Does your family live in California? Where? I know you have already told

me, but this brain fog is even foggier. LOL Hope they are close to me and

we could meet some day. I live in the central valley, close to Sacramento.

I saw Riverdance and it is Wonderful.!! You will have such a great time.

Have a real Happy Birthday...you have soo much to celebrate.

I too am getting anxious to plant. Love those wildflowers. Be sure to send

a picture when they are all in bloom.

Good to have you back Kat, and don't wait so long between posts. YOu made my

day with all of your wonderful news.

Sending lots of Birthday hugs

[Guest guest]

Kat, it is so good to finally hear from you. CONGRATULATIONS on soooo many

things. First of all, being Flare free for 1 year!!! LOve to hear that and

pray for it to stay that way!! Oh that is such great news. I plan to be

the next!! Hope your knee is healing and you are back good as new. Wish I

could help you attach that picture of your little peanut...but...well, not an

expert on computers. LOL Hope you figure it out soon, would love to see

him!!Aren't they the best.

Does your family live in California? Where? I know you have already told

me, but this brain fog is even foggier. LOL Hope they are close to me and

we could meet some day. I live in the central valley, close to Sacramento.

I saw Riverdance and it is Wonderful.!! You will have such a great time.

Have a real Happy Birthday...you have soo much to celebrate.

I too am getting anxious to plant. Love those wildflowers. Be sure to send

a picture when they are all in bloom.

Good to have you back Kat, and don't wait so long between posts. YOu made my

day with all of your wonderful news.

Sending lots of Birthday hugs

[Guest guest]

Marilyn, what did the dr have to say? Please let me know, I care. Love, Judy

[Guest guest]

Marilyn, what did the dr have to say? Please let me know, I care. Love, Judy

[Guest guest]

In a message dated 04/24/2001 12:16:14 PM Central Daylight Time,

Lu1953@... writes:

<< s soon as I can I will be back. I will try

to stay caught up

Lu, just take care of yourself! My prayers are with you! Love, Judy

[Guest guest]

Hi Aldo, great to hear from you. It's good to hear that you and are

both doing so well. Any chance of you coming along to a meeting some time?

It'd be nice to catch up.

Esther - do you happen to know whether is planning to attend next

week's meeting? And do you know whether she only comes when she's invited,

or if she just shows up if she feels like it?

See you on Tuesday.

Take care,

.

[Guest guest]

Hey ,

Okay rub that CheeseBurger in...LOL Now I want one.

I did call it an early night last night. I was so tired.

Great that Gloria T. is coming. I can't wait to see and meet everyone. I

wonder when Heidi will get her puter fixed. I miss her....

I hope you had a great day today. I'll try to get back with you in a little

while.

Hope your feet are better today!

Love u

Lu

> ???? Yes, My CB was delicious!!!! I ate

> every bit of it. Rich is asleep in the chair too. But it is almost 10:30

>

[Guest guest]

Okay ,

If you don't quit bugging about the DR. I will make me an appt. soon I

promise. Now I want a cheese burger.

Love,

Lu

> . Not a word about DR. LOL sorry, now I'm being mean.

>

>

[Guest guest]

Hi Tammy:

Welcome to the group. If you need some information or

if there's anything I can help you with, please feel

free to e-mail me. I've had cea for quite some

time now and have been through two Vbeam laser

treatments for mine.

I'll try to help you all I can. If you just need

someone to talk to, I'm here.

Barb S.

__________________________________________________

[Guest guest]

,

The abdominal cerclage involves your Dr. either making an abdominal

incision or doing the surgery laproscopically and tightening your

cervix at a much higher point, using a polymer suture. This provides

greater support for the cervix during pregnancy. Once you've had the

ab cerclage it is necessary to deliver your baby via a C-Section. I

don't really know much about the other types of Cerclage because my

ab was placed before I had experienced any loses due to the fact that

I had 2 cervixes and had surgery to remove one and the septum that

went through my uterus and vagina. My Dr. knew I had an IC even

before we started to try. That's why I went directly to the ab

cerclage.

I had my ab cerclage placed pre-pregnancy on 3/15/02. I got pregnant

in June of last year. I gave birth to my full-term baby boy on

2/11/03. My ab cerclage is a true blessing and has allowed me to

enjoy my Miracle Son and actually dream of more babies in the future!

Hope this helps.

Always,

Kara

> Hi everyone!

>

> I'm so greatful that I found this site.

> I'm ttc#2 1st found of clomid 50mg.

> I lost my first baby in March at 21.5 wks.

> The concenses was cervical failure (plus bicornate uterus)and have

> discussed with perinatalogist having cerclage this time.

> The problem is that I didn't know there are two types.

> This has not been discussed with me. My reg. gyn did

> mention that there is a procedure where they remove a

> muscle from your thigh and wrap it around your cervix

> but they don't do it much anymore.

> As of yet I haven't found a good description of how

> an abdominal cerclage is done.

> Can you please explain the difference to me.

> Now I feel that I have more questions for the docs

> and again I'm worried about the outcome.

> The peri doc said that the cerclage gives 95%

> chance of having a survivalble term baby.

> After seeing your experiences I wonder how true that is.

> I appreciate all of your help.

> W, 37, ttc#2

> My Angel * * March-22-2003* 21.5 wks

[Guest guest]

Thanks Kara for responding.

I finally found a few good explainations online

eventhough I had a rough idea about the difference.

I guess what scares me is the thought that I may

have to suffer another loss before they'd consider

doing it abdominally. Of course, the complications

of abd. scare me too. I'm not sure what my docs will

recommend when the time comes. More and more decisions!

I was in nearly the same situation in May.

They thought I had a huge fibroid on top of my uterus

and scheduled surgery for June. I was agonizing over

what could happen with that surgery and thankfully it

disappeared before they did it. Specialist said that

a bicornate uterus can show an effect like a fibroid

on x-rays and he believes that's what they saw. Shewww!!

It's one thing or another with me all the time!!!

But thanks for sharing with me. I'm so happy that

things worked out for you. Congrats on that baby boy.

I miss mine terriblily. He lived for 2 hrs on his own

and I cherish that time. We want so much for another but

it's very scary. I had all the faith in the world with

the first one and I hope I'll be as strong this time.

I'll keep everyone updated on what happens with me.

Thanks again,

W,37, ttc#2, round 1 clomid

* * 3-22-03 * 21.5 wks

[Guest guest]

Thanks Kara for responding.

I finally found a few good explainations online

eventhough I had a rough idea about the difference.

I guess what scares me is the thought that I may

have to suffer another loss before they'd consider

doing it abdominally. Of course, the complications

of abd. scare me too. I'm not sure what my docs will

recommend when the time comes. More and more decisions!

I was in nearly the same situation in May.

They thought I had a huge fibroid on top of my uterus

and scheduled surgery for June. I was agonizing over

what could happen with that surgery and thankfully it

disappeared before they did it. Specialist said that

a bicornate uterus can show an effect like a fibroid

on x-rays and he believes that's what they saw. Shewww!!

It's one thing or another with me all the time!!!

But thanks for sharing with me. I'm so happy that

things worked out for you. Congrats on that baby boy.

I miss mine terriblily. He lived for 2 hrs on his own

and I cherish that time. We want so much for another but

it's very scary. I had all the faith in the world with

the first one and I hope I'll be as strong this time.

I'll keep everyone updated on what happens with me.

Thanks again,

W,37, ttc#2, round 1 clomid

* * 3-22-03 * 21.5 wks

[Guest guest]

Hi ,

So sorry for your loss.

I feel the same about the idea of suffering another loss. I´ll schedule an

appointment with my doctor and will ask him about the ab cerclage. Let´s

wait to see what he is going to tell. I´ve lost my son at 24

weeks, last February and a again lost another baby at 11 weeks, four weeks

ago. Too many losses for just one year! In this second loss, I already knew

that I had IC and my cerclage was scheduled to the 12th week of pregnancy.

But, I started dilating earlier, on 9th week, and ended having an infection

which caused miscarriage. I just can´t stand any more losses, so I would

like to go the safer way, ie, the ab cerclage. I´m also worried about the

complications of this surgery, but, participating in this group I´ve seen

so many successful stories, that gives me more hope. Let´s see if my doc

will agree with me.

I hope things end fine for all of us, and we all have our miracle babies.

Love,

Ianda

" dzpunkie "

dzpunkie@...> To:

Abbyloopers

cc:

03/09/2003 16:13 Subject: Re: Hi

everyone

Please respond to

Abbyloopers

Thanks Kara for responding.

I finally found a few good explainations online

eventhough I had a rough idea about the difference.

I guess what scares me is the thought that I may

have to suffer another loss before they'd consider

doing it abdominally. Of course, the complications

of abd. scare me too. I'm not sure what my docs will

recommend when the time comes. More and more decisions!

I was in nearly the same situation in May.

They thought I had a huge fibroid on top of my uterus

and scheduled surgery for June. I was agonizing over

what could happen with that surgery and thankfully it

disappeared before they did it. Specialist said that

a bicornate uterus can show an effect like a fibroid

on x-rays and he believes that's what they saw. Shewww!!

It's one thing or another with me all the time!!!

But thanks for sharing with me. I'm so happy that

things worked out for you. Congrats on that baby boy.

I miss mine terriblily. He lived for 2 hrs on his own

and I cherish that time. We want so much for another but

it's very scary. I had all the faith in the world with

the first one and I hope I'll be as strong this time.

I'll keep everyone updated on what happens with me.

Thanks again,

W,37, ttc#2, round 1 clomid

* * 3-22-03 * 21.5 wks

[Guest guest]

I'm so sorry about your loss! I completely understand it being one

thing after another with Dr's. I went through 8 years of surgery to

correct my reproductive abnormalities. At first they thought I had a

bicornate uterus because I had 2 cervix and that is very common.

Turned out that I had 2 cervix and a septum through my uterus and

vagina which is incredibly abnormal! Anyway along with all of this I

had severe pain, which they THINK was because blood was backing up

monthly causing me the pain. Anyway the only way they saw to get rid

of the pain was by removing the septum. When they went in to remove

the septum they realized that one of the cervix would have to be

removed, making the other incompetent. The physical pain went away

after the surgery but then the emotional pain set in when they told

me I would probably never have kids! I know what it's like to go to

the Dr's and have every Dr. come in to take a look because your case

is so " rare " ! I used to joke that my GYN was my best friend. I saw

him more often then some of my friends!

My pre-pregnancy ab cerclage surgery was very uneventful. I was back

to work 1 week after I had it done. I had been through so many

surgeries before that though I guess I knew what to expect. I cried

before the surgery and almost cancelled so many times but I realized

that if I wanted to have a baby then I had to have this done. All of

the stress and worry was worth it though because 3 months after I had

the cerclage placed, I was pregnant and I carried to term!

> Thanks Kara for responding.

> I finally found a few good explainations online

> eventhough I had a rough idea about the difference.

> I guess what scares me is the thought that I may

> have to suffer another loss before they'd consider

> doing it abdominally. Of course, the complications

> of abd. scare me too. I'm not sure what my docs will

> recommend when the time comes. More and more decisions!

> I was in nearly the same situation in May.

> They thought I had a huge fibroid on top of my uterus

> and scheduled surgery for June. I was agonizing over

> what could happen with that surgery and thankfully it

> disappeared before they did it. Specialist said that

> a bicornate uterus can show an effect like a fibroid

> on x-rays and he believes that's what they saw. Shewww!!

> It's one thing or another with me all the time!!!

> But thanks for sharing with me. I'm so happy that

> things worked out for you. Congrats on that baby boy.

> I miss mine terriblily. He lived for 2 hrs on his own

> and I cherish that time. We want so much for another but

> it's very scary. I had all the faith in the world with

> the first one and I hope I'll be as strong this time.

> I'll keep everyone updated on what happens with me.

> Thanks again,

> W,37, ttc#2, round 1 clomid

> * * 3-22-03 * 21.5 wks

[Guest guest]

HI W

The vaginal cerclage does have generally a very high success rate (worldwide

average is around 80% I beleive) and of course it is dependant on the different

docs and how high etc they can get it, plus the type they use. A Mc

is generally the weaker of the vaginal cerclages and is placed lower, and

a Shirodkar is placed higher. Some doctors are even doing modified abdominal

cerclages grom the vagina but cutting up through the vagina wall to get the

stitch placed high. The abdominal is done through and incision in the abdomen

and a mersilene band is placed right around the top of the cervix where it

enters the uterus. It does necessitate a ceaser at birth. The risks for an

abdominal is generally bleeding (although most docs will tell you with the

new procedures, they haven't had much blood loss in many many years) as well

as uterine rupture, but that is VERY rare. With a vaginal there is also

the risk of nipping the sack although this is less if it's done preventatively

before the cervix starts to change. There is also the risk of infection which

I believe is a lot lower with the abdominal although I don't have stats on

that.

Best of luck with whatever route you go. Have you signed up to Making_miracles

or Incompetentcervix at yahoo??? They both have many ladies with vaginal

cerclages as well and they might give you more hope in terms of a vaginal???

Best of luck

Shona

dzpunkie wrote:

Hi everyone!

I'm so greatful that I found this site.

I'm ttc#2 1st found of clomid 50mg.

I lost my first baby in March at 21.5 wks.

The concenses was cervical failure (plus bicornate uterus)and have

discussed with perinatalogist having cerclage this time.

The problem is that I didn't know there are two types.

This has not been discussed with me. My reg. gyn did

mention that there is a procedure where they remove a

muscle from your thigh and wrap it around your cervix

but they don't do it much anymore.

As of yet I haven't found a good description of how

an abdominal cerclage is done.

Can you please explain the difference to me.

Now I feel that I have more questions for the docs

and again I'm worried about the outcome.

The peri doc said that the cerclage gives 95%

chance of having a survivalble term baby.

After seeing your experiences I wonder how true that is.

I appreciate all of your help.

W, 37, ttc#2

My Angel * * March-22-2003* 21.5 wks

[Guest guest]

i have the no sex restriction, no heavy lifting, no excerise for on e

month after surgery & that is about it, however i am out of work for

the rest of pg

> Hello to everyone,

> I am so grateful to have found others that are going through the

same situation I am. You are all verry wonderful people. I was

wondering what the doctors have told you about restrictions and what

you can and can't do. My doctor really is not knowledgeable on the

ab cerclage. She is just doing my 2 week check ups until we get

close to the due date. She only put a no sex restriction on us. The

doctor whom done the cerclage is 3 hrs away. I haven't only seen

him/her once since the operation. They never did say anything about

restrictions only to take it easy for the month after the cerclage

was placed.

> There were 2 doctors that put my Ab Cerclage in around the 12 week

of pregnancy. I have been feeling great only sometimes I get

stabbing feeling in the vagina area and am very tired.

> Thanks again,

>

[Guest guest]

Angeleyes,

I am on mountain time in South Dakota USA, and love to chat. I have msn

and yahoo.

Helen

[alldiabeticinternational] HI EVERYONE

I just joined this diabetic club Is there any chats at all and

What time??? I have been diabetic for 47 years now but my

bloodsugars are not in control I live in Ont Canada and am on

eastern time.I belong to a lot of diabetic clubs.I just want some

friends to chat with. I am married June 6 34 years.and I got

diabetes at the age of 9 years old. A lot of changes since then.I

have 1 daughter who is 23 and I have 1 grandaughter who is 10 months

old on the 28 of May.I just love her to bitsI had 4 misscarriges

before my daughter. She is really special to us.she looks after me

when I have a low I go down to 1.9 sometimes and she is always there

to help mw ever since she was a little girl.

thanks for listening

angeleyes282002caca

[Guest guest]

oh i am so sorry to hear you have to go through those tests also. will be sending blessings out to you..

hugs and Blessings and a pain free day

[Guest guest]

I had the biopsy of my granulomas on Monday, now next week I've got to

have a colonoscopy and endoscopy.. Sounds like lots of fun, huh..

Maybe this will give you the "end" advantage? Girl, know we're thinking of you-- I know that this is hard-- not knowing is even harder.

Hang in there, drink that magic potion--and smile pretty!

Hugs back,

Crazy Tracie

[Guest guest]

I had the biopsy of my granulomas on Monday, now next week I've got to

have a colonoscopy and endoscopy.. Sounds like lots of fun, huh..

Maybe this will give you the "end" advantage? Girl, know we're thinking of you-- I know that this is hard-- not knowing is even harder.

Hang in there, drink that magic potion--and smile pretty!

Hugs back,

Crazy Tracie

[Guest guest]

I had the biopsy of my granulomas on Monday, now next week I've got to

have a colonoscopy and endoscopy.. Sounds like lots of fun, huh..

Maybe this will give you the "end" advantage? Girl, know we're thinking of you-- I know that this is hard-- not knowing is even harder.

Hang in there, drink that magic potion--and smile pretty!

Hugs back,

Crazy Tracie