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In a message dated 5/3/00 11:42:39 AM Central Daylight Time,

wolfhybrid2000@... writes:

<< Would it be rude of me to ask? >>

Kathy:

I do NOT think it would rude to ask him more or less privately. I believe he

would respond positively esp since you have CMT also. Personally, I would not

be affronted if someone would ask out of genuine interest, not morbid

curiosity. Do his hands & fingers seem to be affected?

just my ideas,

CMTer Bud in TX

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In a message dated 5/3/00 11:42:39 AM Central Daylight Time,

wolfhybrid2000@... writes:

<< Would it be rude of me to ask? >>

Kathy:

I do NOT think it would rude to ask him more or less privately. I believe he

would respond positively esp since you have CMT also. Personally, I would not

be affronted if someone would ask out of genuine interest, not morbid

curiosity. Do his hands & fingers seem to be affected?

just my ideas,

CMTer Bud in TX

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In a message dated 03/05/00 09:42:41 a.m. Pacific Daylight Time,

wolfhybrid2000@... writes:

<< Other than some of my family, I've never met anyone with

CMT. There's a man who owns a store in my town, and he walks like he

may have CMT. Would it be rude of me to ask? Any suggestions on how

to enter that situation?

Thanks Kathy

>>

I have a neighbor that I think has CMT. He has Drop foot really bad. I wanna

help him get some braces but i am not into talking to strangers.. LOL Just

you guys.

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In a message dated 5/3/00 9:42:42 AM Pacific Daylight Time,

wolfhybrid2000@... writes:

<< Other than some of my family, I've never met anyone with

CMT. There's a man who owns a store in my town, and he walks like he

may have CMT. Would it be rude of me to ask? Any suggestions on how

to enter that situation?

Thanks Kathy >>

************

Moonglow21@... writes:

Hi Kathy,

I have approached several people that have appeared to have foot drop. Both

male and female. I greet them first and then I simply state that I noticed

that they have a limp and ask them if they have an injury. Usually they say

what has happened or what they have. I then tell them that I have

Charcot-Marie-Tooth disease a type of Muscular Dystrophy, and that I have

what's called foot drop and wear an AFO and wondered if they were familiar

with AFO's...

I am constantly approached by people asking my injury or disability and I

don't really mind.... After all, how are they going to learn if they don't

ask.... the same way with me asking someone else, I'm not only curious, but,

I'd like to know if maybe I could help them like others have helped me.

I have never gotten a bad response from anyone I've approached. I have found

that most of them said they had Polio.

Jeanie

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In a message dated 5/3/00 9:42:42 AM Pacific Daylight Time,

wolfhybrid2000@... writes:

<< Other than some of my family, I've never met anyone with

CMT. There's a man who owns a store in my town, and he walks like he

may have CMT. Would it be rude of me to ask? Any suggestions on how

to enter that situation?

Thanks Kathy >>

************

Moonglow21@... writes:

Hi Kathy,

I have approached several people that have appeared to have foot drop. Both

male and female. I greet them first and then I simply state that I noticed

that they have a limp and ask them if they have an injury. Usually they say

what has happened or what they have. I then tell them that I have

Charcot-Marie-Tooth disease a type of Muscular Dystrophy, and that I have

what's called foot drop and wear an AFO and wondered if they were familiar

with AFO's...

I am constantly approached by people asking my injury or disability and I

don't really mind.... After all, how are they going to learn if they don't

ask.... the same way with me asking someone else, I'm not only curious, but,

I'd like to know if maybe I could help them like others have helped me.

I have never gotten a bad response from anyone I've approached. I have found

that most of them said they had Polio.

Jeanie

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In a message dated 5/3/00 9:42:42 AM Pacific Daylight Time,

wolfhybrid2000@... writes:

<< Other than some of my family, I've never met anyone with

CMT. There's a man who owns a store in my town, and he walks like he

may have CMT. Would it be rude of me to ask? Any suggestions on how

to enter that situation?

Thanks Kathy >>

************

Moonglow21@... writes:

Hi Kathy,

I have approached several people that have appeared to have foot drop. Both

male and female. I greet them first and then I simply state that I noticed

that they have a limp and ask them if they have an injury. Usually they say

what has happened or what they have. I then tell them that I have

Charcot-Marie-Tooth disease a type of Muscular Dystrophy, and that I have

what's called foot drop and wear an AFO and wondered if they were familiar

with AFO's...

I am constantly approached by people asking my injury or disability and I

don't really mind.... After all, how are they going to learn if they don't

ask.... the same way with me asking someone else, I'm not only curious, but,

I'd like to know if maybe I could help them like others have helped me.

I have never gotten a bad response from anyone I've approached. I have found

that most of them said they had Polio.

Jeanie

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  • 2 years later...

Good morning All,

I have also noticed this, but never thought anything much of it. Could

you please either post to the group or reply to me as well.

Thanks

Question?

I don't post , much. But , I want to know why? chiarians, should not

go ever 70 miles per hr, while , driving?I heard of this before , but

I still haven't foud out , why!

I have notice with myself. That , when i do over 70, I feel like ,

I'm going to pass out and get , real stress. Can't breath, good! Any

input on this would be helpful .

Help section: http://www.yahoogroups.com/help/

NOTE: NCC refers to posts with No Chiari Content

To Unsubscribe Yourself:

chiari-unsubscribe

WACMA Home: Http://www.wacma.com

WACMA Online Group: http://groups.yahoo.com/group/chiari/

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Good morning All,

I have also noticed this, but never thought anything much of it. Could

you please either post to the group or reply to me as well.

Thanks

Question?

I don't post , much. But , I want to know why? chiarians, should not

go ever 70 miles per hr, while , driving?I heard of this before , but

I still haven't foud out , why!

I have notice with myself. That , when i do over 70, I feel like ,

I'm going to pass out and get , real stress. Can't breath, good! Any

input on this would be helpful .

Help section: http://www.yahoogroups.com/help/

NOTE: NCC refers to posts with No Chiari Content

To Unsubscribe Yourself:

chiari-unsubscribe

WACMA Home: Http://www.wacma.com

WACMA Online Group: http://groups.yahoo.com/group/chiari/

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Good morning All,

I have also noticed this, but never thought anything much of it. Could

you please either post to the group or reply to me as well.

Thanks

Question?

I don't post , much. But , I want to know why? chiarians, should not

go ever 70 miles per hr, while , driving?I heard of this before , but

I still haven't foud out , why!

I have notice with myself. That , when i do over 70, I feel like ,

I'm going to pass out and get , real stress. Can't breath, good! Any

input on this would be helpful .

Help section: http://www.yahoogroups.com/help/

NOTE: NCC refers to posts with No Chiari Content

To Unsubscribe Yourself:

chiari-unsubscribe

WACMA Home: Http://www.wacma.com

WACMA Online Group: http://groups.yahoo.com/group/chiari/

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sal.cosham@... >Writes: I have also noticed this, but never

thought anything much of it.

livewire19566@... > Writes: when i do over 70, I feel like, I'm going

to pass out and get , real stress. Can't breath, good!

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

I have a similar problems and I don't have to be moving at the speed of 70

MPH in an auto.

1. Crowds moving towards me makes me dizzy, sick to my stomach,etc

2. I used to work for an auditing company. We did inventories for various

companies. One day at a women's clothing store the clothes were displayed

on rods suspended from the ceiling with wires. The rods would move when

touched making them sway back and forth. I became sick to my stomach, dizzy

and so disoriented that I did not know where I was or what I was doing. I

had to go home.

I have an appointment with my neurologist tomorrow and plan to discuss this

with him. I will let you know what explanation he has.

Charlotte in MO

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sal.cosham@... >Writes: I have also noticed this, but never

thought anything much of it.

livewire19566@... > Writes: when i do over 70, I feel like, I'm going

to pass out and get , real stress. Can't breath, good!

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

I have a similar problems and I don't have to be moving at the speed of 70

MPH in an auto.

1. Crowds moving towards me makes me dizzy, sick to my stomach,etc

2. I used to work for an auditing company. We did inventories for various

companies. One day at a women's clothing store the clothes were displayed

on rods suspended from the ceiling with wires. The rods would move when

touched making them sway back and forth. I became sick to my stomach, dizzy

and so disoriented that I did not know where I was or what I was doing. I

had to go home.

I have an appointment with my neurologist tomorrow and plan to discuss this

with him. I will let you know what explanation he has.

Charlotte in MO

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sal.cosham@... >Writes: I have also noticed this, but never

thought anything much of it.

livewire19566@... > Writes: when i do over 70, I feel like, I'm going

to pass out and get , real stress. Can't breath, good!

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

I have a similar problems and I don't have to be moving at the speed of 70

MPH in an auto.

1. Crowds moving towards me makes me dizzy, sick to my stomach,etc

2. I used to work for an auditing company. We did inventories for various

companies. One day at a women's clothing store the clothes were displayed

on rods suspended from the ceiling with wires. The rods would move when

touched making them sway back and forth. I became sick to my stomach, dizzy

and so disoriented that I did not know where I was or what I was doing. I

had to go home.

I have an appointment with my neurologist tomorrow and plan to discuss this

with him. I will let you know what explanation he has.

Charlotte in MO

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  • 1 year later...

Goodness Dawn-Marie! I think God gave you some of mine!! In fact, he

gave you all of mine!!!! I am smaller now then before I had kids! It is

so embarrasing.

Your right! Your sister will not be seen at the alter!! LOL, that is so

funny. Good luck with whichever dress she chooses.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

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Such a pretty mental image to start my day with! Aaahh! :)

s.

I would be more than happy to share the magnitude of my twins as dh

refers to them, but my hips are insisting they won't let part of the

twins go unless they can go too, then my saddlebags legs started

chiming in and my backseat booty started hollering and before you know

it my ever flapping arms are joining in and you know once those babies

start...well, it's all down hill from there! :) Hahaha. But I am

more than happy to share.

---

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LOL! That's a great answer!

s.

You ladies are too funny :) Here's one for ya. My sister has two boys

the youngest being 6. He asked his Mom how many stomaches do you have

and she pointed and said this one is mine (the top) and this one is

yours and your brothers (that bottom pouch you can't get rid of after

a c-section). She maybe could loose 10lbs,but never the pouch.

KK

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HAHAHAHAHA! I am constantly showing the kids " their " stretch-marks!

>

> You ladies are too funny :) Here's one for ya. My sister has two

boys

> the youngest being 6. He asked his Mom how many stomaches do you

have

> and she pointed and said this one is mine (the top) and this one

is

> yours and your brothers (that bottom pouch you can't get rid of

after

> a c-section). She maybe could loose 10lbs,but never the pouch.

> KK

>

>

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Hey! I'm here for ya babe! :)

> Such a pretty mental image to start my day with! Aaahh! :)

> s.

>

>

> I would be more than happy to share the magnitude of my twins as dh

> refers to them, but my hips are insisting they won't let part of the

> twins go unless they can go too, then my saddlebags legs started

> chiming in and my backseat booty started hollering and before you know

> it my ever flapping arms are joining in and you know once those babies

> start...well, it's all down hill from there! :) Hahaha. But I am

> more than happy to share.

>

>

>

> ---

>

>

>

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If you break the cookie before you eat it, all the calories fall out :)

s.

God always knows when you need to let loose once in awhile and just

laugh, and I tell you lauging as hard as I was last night, I felt like

a bowl of jello wiggling away which got me laughing even harder. I

think I would have lost a few pounds last night if it hadn't been for

the cookies on the way to bed, that I happened to be dunking, for

maximum calorie burning of course, in my glass of irish

cream...hahahaha! 115 here I come...after this sip! heheh! and one

and two and three and four...

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Is that before or after dunking it in the irish cream??

> If you break the cookie before you eat it, all the calories fall out :)

> s.

>

> God always knows when you need to let loose once in awhile and just

> laugh, and I tell you lauging as hard as I was last night, I felt like

> a bowl of jello wiggling away which got me laughing even harder. I

> think I would have lost a few pounds last night if it hadn't been for

> the cookies on the way to bed, that I happened to be dunking, for

> maximum calorie burning of course, in my glass of irish

> cream...hahahaha! 115 here I come...after this sip! heheh! and one

> and two and three and four...

>

>

>

>

>

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Is that before or after dunking it in the irish cream??

> If you break the cookie before you eat it, all the calories fall out :)

> s.

>

> God always knows when you need to let loose once in awhile and just

> laugh, and I tell you lauging as hard as I was last night, I felt like

> a bowl of jello wiggling away which got me laughing even harder. I

> think I would have lost a few pounds last night if it hadn't been for

> the cookies on the way to bed, that I happened to be dunking, for

> maximum calorie burning of course, in my glass of irish

> cream...hahahaha! 115 here I come...after this sip! heheh! and one

> and two and three and four...

>

>

>

>

>

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Dunk it first so the IC calories fall out too! I really hate this new yahoo

survey bar they have here on all our messages.

s.

Is that before or after dunking it in the irish cream??

> If you break the cookie before you eat it, all the calories fall out :)

> s.

>

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Dunk it first so the IC calories fall out too! I really hate this new yahoo

survey bar they have here on all our messages.

s.

Is that before or after dunking it in the irish cream??

> If you break the cookie before you eat it, all the calories fall out :)

> s.

>

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Fabulous...I'm dunking away. :)

What new survey bar? bear with me, i'm a little slow sometimes!

> > If you break the cookie before you eat it, all the calories fall

out :)

> > s.

> >

>

>

>

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Fabulous...I'm dunking away. :)

What new survey bar? bear with me, i'm a little slow sometimes!

> > If you break the cookie before you eat it, all the calories fall

out :)

> > s.

> >

>

>

>

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does it not show up on your end? every mail coming or going here has this

Yahoo! Groups Survey thing across the top of it. I didn't delete it from this

so maybe you can see it.

s.

Re: Question?

Fabulous...I'm dunking away. :)

What new survey bar? bear with me, i'm a little slow sometimes!

> > If you break the cookie before you eat it, all the calories fall

out :)

> > s.

> >

>

>

>

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