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In a message dated 4/25/00 5:09:12 AM Pacific Daylight Time,

gingerale1996@... writes:

<< ,

I understand your fear. When I approached my children's pediatrician about

my concerns for my daughter, I didn't expect her to say both my children

appeared to have very poor muscle tone! I felt like I got hit in the stomach

with a bowling ball. I want so much for my children to be able to do things

I never could do. (like sports!) Question: My son has GERD (reflux) could

this be connected to CMT in any way?

- my prayers are with you.

April >>

Boy do I know how that bowling ball feels. I don't know about GERD but I

would not think right off that it would have anything to do with CMT. To many

other non CMT kids have it.

How old are your children?

jenny

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In a message dated 4/25/00 12:22:11 PM Pacific Daylight Time,

gingerale1996@... writes:

<< How old are your children?

jenny

My daughter is two and my son is just seven months old. How old was your

child when you decided to have him tested. I don't know when or if I should

have my daughter tested. Any thoughts?

April >>

My son Spencer was in a motorcycle accident. (The neighbor kid ran him over).

He was 7. He was Dxed in the ER by my ortho. Then my son Adam was dxed 1 week

later. He was 4. A year after my boys my daughter was dxed. My 15 year old

is fine. No CMT in her says my ortho. So out of 5, I have 1 kid left he is 3.

If your kids have it it will show up. started at 3 I was just ignoring

it. I am not the type to get the dx done soon. I sit and freight about it

until they show signs.

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In a message dated 4/25/00 12:35:24 PM Pacific Daylight Time, rmax@...

writes:

<< - my prayers are with you.

>

I don't know if its related to CMT or not, but I have GERD. I

never had it before until about 8 months after being diagnosed with CMT.

>Becky M.

>>

Thanks Becky,

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------Original Message------

How old are your children?

jenny

My daughter is two and my son is just seven months old. How old was your

child when you decided to have him tested. I don't know when or if I should

have my daughter tested. Any thoughts?

April

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Re: kids

>In a message dated 4/25/00 5:09:12 AM Pacific Daylight Time,

>gingerale1996@... writes:

>

Question: My son has GERD (reflux) could

> this be connected to CMT in any way?

>

> - my prayers are with you.

>

I don't know if its related to CMT or not, but I have GERD. I

never had it before until about 8 months after being diagnosed with CMT.

>Becky M.

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  • 10 months later...
Guest guest

Oh, Lord, isn't that just the truth! No matter how many times you ask if

they have to go to the bathroom BEFORE you put the snowsuit on, you know

darned well...I emphathize with the poor teacher! LOL, Judy O

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Oh, Lord, isn't that just the truth! No matter how many times you ask if

they have to go to the bathroom BEFORE you put the snowsuit on, you know

darned well...I emphathize with the poor teacher! LOL, Judy O

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  • 4 years later...

Kathleen you never know what is going to come out of the mouth of babes thats for sure. I bet the guy was laughing when you left,

I thought maybe you guys did something to Kays car so you could keep her down there for a while.

Glad it was warmer down there, didn't get out of the 40's here and damp cold. Suppose to take my husband to the VA tomorrow morning but going to call and cancel cause it will be too cold and damp for him to get out so early in the am. have to leave here by 630 and he don't move to fast in the mornings anyway, just an annual check so will reschedule for later. hopefully be warmer tomorrow.

Hugs,

Jackie

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> Kathleen you never know what is going to come out of the mouth of babes thats

for sure. I bet the guy was laughing when you left,

I hope he didn't understand what she said. She still doesn't have her front

teeth. She lisps

a lot for that reason. LOL. I think any 6 year old with oversized glasses looks

cute. I hope

he did too. He has a 5 year old, so I'm sure he's used to such shenanigans. :)

> I thought maybe you guys did something to Kays car so you could keep her down

there for a while.

Why didn't I think of that while she was here? You gotta give us these ideas

when we can

do something about them. Don't wait so long next time! :)

> Suppose to take my husband to the VA tomorrow morning but going to call and

cancel cause it

> will be too cold and damp for him to get out so early in the am. have to leave

here by 630 and he don't move to fast in the mornings anyway, just an annual

check so will

> reschedule for later. hopefully be warmer tomorrow.

> Hugs,

> Jackie

I do hope you have better weather tomorrow. Cold weather isn't fun for people

with

arthritis.

Kathleen

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