Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Kimber, The thing is that my GI is insistent that I do not have chronic pancreatitis. He's done 2 MRCPs and a CT scan and they say that the pancreas is totally normal. He did two ERCPs but he was only able to get to the bile duct. He couldn't get to the pancreas because I've had a gastric bypass. He insists the pancreas is healthy and that it is not the cause of the acute attacks. I suppose when the biliary surgeon does surgery later this month or early nov, he'll be able to get a good look at the pancreas, bile ducts, ect. My GI is insistent that there are adhesions causing my problems and that the surgeon will be easily able to get rid of the adhesions in surgery. The surgeon they are sending me to trained at s Hopkins, so perhaps he will be aware that you can have an attack without the enzymes being elevated. My appt with him is on Oct 21st, two weeks from today. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Kimber, The thing is that my GI is insistent that I do not have chronic pancreatitis. He's done 2 MRCPs and a CT scan and they say that the pancreas is totally normal. He did two ERCPs but he was only able to get to the bile duct. He couldn't get to the pancreas because I've had a gastric bypass. He insists the pancreas is healthy and that it is not the cause of the acute attacks. I suppose when the biliary surgeon does surgery later this month or early nov, he'll be able to get a good look at the pancreas, bile ducts, ect. My GI is insistent that there are adhesions causing my problems and that the surgeon will be easily able to get rid of the adhesions in surgery. The surgeon they are sending me to trained at s Hopkins, so perhaps he will be aware that you can have an attack without the enzymes being elevated. My appt with him is on Oct 21st, two weeks from today. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Kimber, The thing is that my GI is insistent that I do not have chronic pancreatitis. He's done 2 MRCPs and a CT scan and they say that the pancreas is totally normal. He did two ERCPs but he was only able to get to the bile duct. He couldn't get to the pancreas because I've had a gastric bypass. He insists the pancreas is healthy and that it is not the cause of the acute attacks. I suppose when the biliary surgeon does surgery later this month or early nov, he'll be able to get a good look at the pancreas, bile ducts, ect. My GI is insistent that there are adhesions causing my problems and that the surgeon will be easily able to get rid of the adhesions in surgery. The surgeon they are sending me to trained at s Hopkins, so perhaps he will be aware that you can have an attack without the enzymes being elevated. My appt with him is on Oct 21st, two weeks from today. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 , I just don't know how he can be sure if he hasn't been able to actually look at the pancreas and ducts in a ERCP. For the first 7 years or so, nothing was visibly wrong with my pancreas either. It took about that long to show up in my ERCP's and that's when I was officially diagnosed with chronic pancreatitis, but they are now sure I had it much longer as the damage is so extensive and I have the birth defect that caused the whole thing. So these days I take everything my doctors tell me with a grain of salt. I'd get a second opinion from someone who does not know your GI. Sorry, just my personal opnion of things. Sorry for the grousiing. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 , I just don't know how he can be sure if he hasn't been able to actually look at the pancreas and ducts in a ERCP. For the first 7 years or so, nothing was visibly wrong with my pancreas either. It took about that long to show up in my ERCP's and that's when I was officially diagnosed with chronic pancreatitis, but they are now sure I had it much longer as the damage is so extensive and I have the birth defect that caused the whole thing. So these days I take everything my doctors tell me with a grain of salt. I'd get a second opinion from someone who does not know your GI. Sorry, just my personal opnion of things. Sorry for the grousiing. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 , I just don't know how he can be sure if he hasn't been able to actually look at the pancreas and ducts in a ERCP. For the first 7 years or so, nothing was visibly wrong with my pancreas either. It took about that long to show up in my ERCP's and that's when I was officially diagnosed with chronic pancreatitis, but they are now sure I had it much longer as the damage is so extensive and I have the birth defect that caused the whole thing. So these days I take everything my doctors tell me with a grain of salt. I'd get a second opinion from someone who does not know your GI. Sorry, just my personal opnion of things. Sorry for the grousiing. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Kimber, I'm sure there is a possibility that my GI is wrong and I really do have chronic panc. However, he is supposed to be the best in the state when it comes to panc stuff. He's who everyone sends their patients to. Because of my gastric bypass, no doctor will be able to get to my pancreas through ERCP. My surgeon says he was amazed that my GI could get to my bile duct through ERCP. My surgeon didn't expect him to get nearly that far and said that my GI is obviously very talented at ERCP. According to my surgeon, my GI is the one that taught all the other GIs in the area how to do ERCP. Back in 2000, I went to two different GIs prior to going to this one. They both did an ERCP with sphincterotomy and pronounced me cured and then ignored my continued pain. In comparison my current GI is leaps and bounds better than the previous two. My GI did tell me he wouldn't hesitate to send me to ISU if he really felt the pancreas were at the root of the problem. When the biliary surgeon they are sending me to does the surgery he should be able to get a good look at the pancreas as well as all the ducts. Hopefully, at that time, he will be able to tell if it has turned to chronic panc. I guess regardless of whether it is chronic panc or actually recurring acute panc the treatment at this point would be the same with the exception of probably having me begin enzymes with my meals. Anyway, I guess I should have answers after surgery as to whether it really has turned to chronic panc, or there were adhesions obstructing the flow of bile and being pulled/twisted, or the bile duct/sphincter of oddi isn't functioning properly. For now, I'm doing well since coming home from the hosp Friday. Gotta get my butt in the shower for my second day to work in a row. Wish me luck. The last time I made it to work two days in a row I ended up having a friend bring me to the ER with a bad attack! Hope this finds you and everyone else having a good day! W Re: W. , I just don't know how he can be sure if he hasn't been able to actually look at the pancreas and ducts in a ERCP. For the first 7 years or so, nothing was visibly wrong with my pancreas either. It took about that long to show up in my ERCP's and that's when I was officially diagnosed with chronic pancreatitis, but they are now sure I had it much longer as the damage is so extensive and I have the birth defect that caused the whole thing. So these days I take everything my doctors tell me with a grain of salt. I'd get a second opinion from someone who does not know your GI. Sorry, just my personal opnion of things. Sorry for the grousiing. Kimber -- Kimber Vallejo, CA hominid2@... PANCREATITIS Association, Intl. Online e-mail group To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Kimber, I'm sure there is a possibility that my GI is wrong and I really do have chronic panc. However, he is supposed to be the best in the state when it comes to panc stuff. He's who everyone sends their patients to. Because of my gastric bypass, no doctor will be able to get to my pancreas through ERCP. My surgeon says he was amazed that my GI could get to my bile duct through ERCP. My surgeon didn't expect him to get nearly that far and said that my GI is obviously very talented at ERCP. According to my surgeon, my GI is the one that taught all the other GIs in the area how to do ERCP. Back in 2000, I went to two different GIs prior to going to this one. They both did an ERCP with sphincterotomy and pronounced me cured and then ignored my continued pain. In comparison my current GI is leaps and bounds better than the previous two. My GI did tell me he wouldn't hesitate to send me to ISU if he really felt the pancreas were at the root of the problem. When the biliary surgeon they are sending me to does the surgery he should be able to get a good look at the pancreas as well as all the ducts. Hopefully, at that time, he will be able to tell if it has turned to chronic panc. I guess regardless of whether it is chronic panc or actually recurring acute panc the treatment at this point would be the same with the exception of probably having me begin enzymes with my meals. Anyway, I guess I should have answers after surgery as to whether it really has turned to chronic panc, or there were adhesions obstructing the flow of bile and being pulled/twisted, or the bile duct/sphincter of oddi isn't functioning properly. For now, I'm doing well since coming home from the hosp Friday. Gotta get my butt in the shower for my second day to work in a row. Wish me luck. The last time I made it to work two days in a row I ended up having a friend bring me to the ER with a bad attack! Hope this finds you and everyone else having a good day! W Re: W. , I just don't know how he can be sure if he hasn't been able to actually look at the pancreas and ducts in a ERCP. For the first 7 years or so, nothing was visibly wrong with my pancreas either. It took about that long to show up in my ERCP's and that's when I was officially diagnosed with chronic pancreatitis, but they are now sure I had it much longer as the damage is so extensive and I have the birth defect that caused the whole thing. So these days I take everything my doctors tell me with a grain of salt. I'd get a second opinion from someone who does not know your GI. Sorry, just my personal opnion of things. Sorry for the grousiing. Kimber -- Kimber Vallejo, CA hominid2@... PANCREATITIS Association, Intl. Online e-mail group To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Kimber, I'm sure there is a possibility that my GI is wrong and I really do have chronic panc. However, he is supposed to be the best in the state when it comes to panc stuff. He's who everyone sends their patients to. Because of my gastric bypass, no doctor will be able to get to my pancreas through ERCP. My surgeon says he was amazed that my GI could get to my bile duct through ERCP. My surgeon didn't expect him to get nearly that far and said that my GI is obviously very talented at ERCP. According to my surgeon, my GI is the one that taught all the other GIs in the area how to do ERCP. Back in 2000, I went to two different GIs prior to going to this one. They both did an ERCP with sphincterotomy and pronounced me cured and then ignored my continued pain. In comparison my current GI is leaps and bounds better than the previous two. My GI did tell me he wouldn't hesitate to send me to ISU if he really felt the pancreas were at the root of the problem. When the biliary surgeon they are sending me to does the surgery he should be able to get a good look at the pancreas as well as all the ducts. Hopefully, at that time, he will be able to tell if it has turned to chronic panc. I guess regardless of whether it is chronic panc or actually recurring acute panc the treatment at this point would be the same with the exception of probably having me begin enzymes with my meals. Anyway, I guess I should have answers after surgery as to whether it really has turned to chronic panc, or there were adhesions obstructing the flow of bile and being pulled/twisted, or the bile duct/sphincter of oddi isn't functioning properly. For now, I'm doing well since coming home from the hosp Friday. Gotta get my butt in the shower for my second day to work in a row. Wish me luck. The last time I made it to work two days in a row I ended up having a friend bring me to the ER with a bad attack! Hope this finds you and everyone else having a good day! W Re: W. , I just don't know how he can be sure if he hasn't been able to actually look at the pancreas and ducts in a ERCP. For the first 7 years or so, nothing was visibly wrong with my pancreas either. It took about that long to show up in my ERCP's and that's when I was officially diagnosed with chronic pancreatitis, but they are now sure I had it much longer as the damage is so extensive and I have the birth defect that caused the whole thing. So these days I take everything my doctors tell me with a grain of salt. I'd get a second opinion from someone who does not know your GI. Sorry, just my personal opnion of things. Sorry for the grousiing. Kimber -- Kimber Vallejo, CA hominid2@... PANCREATITIS Association, Intl. Online e-mail group To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 , hope you were able to stay at work with no problems. I'm just worried that this doctor is deliberately ignoring the pancreas option, I guess. I've seen too many people on this board that this has happened to them. If I were you, when you speak with the biliary doctor, tell him you want him to do a little look/see of the pancreas while he's in there and see if it looks okay or diseased/damaged. Better to let him know before hand that you want him to really look at your pancreas while he's there to look for adhesions, etc. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 , hope you were able to stay at work with no problems. I'm just worried that this doctor is deliberately ignoring the pancreas option, I guess. I've seen too many people on this board that this has happened to them. If I were you, when you speak with the biliary doctor, tell him you want him to do a little look/see of the pancreas while he's in there and see if it looks okay or diseased/damaged. Better to let him know before hand that you want him to really look at your pancreas while he's there to look for adhesions, etc. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 , hope you were able to stay at work with no problems. I'm just worried that this doctor is deliberately ignoring the pancreas option, I guess. I've seen too many people on this board that this has happened to them. If I were you, when you speak with the biliary doctor, tell him you want him to do a little look/see of the pancreas while he's in there and see if it looks okay or diseased/damaged. Better to let him know before hand that you want him to really look at your pancreas while he's there to look for adhesions, etc. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Kimber, I will make sure I tel the biliary surgeon that I'd like for him to take a good look at the pancreas when he does the surgery since no one can get to the panc through ERCP on me. My saga does sound familiar to many of you who do have a chronic panc diagnosis so I do think there's a chance mine is cronic but just not bad enough yet to show changes to the panc on ct scan or mrcp. Take care, W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 >>>MARY W. wrote: I feel like a kid on Christmas morning when I see 70 something. I always say "I am so proud of ME" I know, stupid right? NOT AT ALL!!!! We're proud of you, too! Seeing those wonderful readings is proof-positive that you're doing everything right! And if that wasn't enough, see a 3 lb loss on the scale must've been!! Keep on doin' what you're doin', because it sure is working for you! hugs, janet Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.