Guest guest Posted January 8, 1999 Report Share Posted January 8, 1999 Hi all, I had a bit of a fright tonight and ended up at the emergency room. I had really bad pain, I thought I had torn my band loose, after doing some house work. I have had my band done for over a year now and never had such pain, nearly as bad as the surgery. When I got to the hospital I was rushed in, do you know what happened? 3 BIG burps and guess what, no more pain. I felt like a big fool, but the pain was really bad. Has anyone else had the same experience? I thought I was going to die. Any feedback would make me feel less of a twit. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 Vicki: Two weeks before my dad's death, he was hospitalized. Something you said prompted a memory for me....I sat by his bedside for 12 hours the first day -- not only did he not ever stop moving around (he couldn't communicate at all and his eyes would dart back and forth constantly) -- he would touch his head - very frequently and gently. It was so awful to watch. He would turn his head back and forth and his hands would move his covers down and I would pull them back up. He would also move his legs constantly. He was so restless, it was unbelievable. Beverly G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 Bev, That does bring back the memories. Even before we got Mom in the hospital she was moving her head back and forth while sitting up and talking. Then when she was in the hospital and laying down she got such mattes in the back of her hair from moving her head back and forth. Her legs kept moving so much and her covers would just keep coming off. Everything is just so restless. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 This also happened to my best friend Bissell. It was horrific. I can still see it so vividly that it sends shivers. I often wonder how much she was aware of at that time. God Bless her and all CJD, CDC, etc. victims and their family and friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 Vicky, my husband did not show any signs of pain after 2 spinal taps(both negative) or after the brain biopsy. It seemed that he was not even aware of the big cut in his head. But, towards the end, he did scream when I tried to move him in bed. A physical therapist was here with us and tough me how to slowly massage his legs - his muscles were so contracted, he would be almost in a fetal position. But, he would respond well when I strechted his arms and legs very gently. Even his fingers looked very contracted. Those are terrible images to remember - after 7 months are so vivid in my mind. Ana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 They tied my brothers hands down so he couldn't yank out the feeding tube or ventilator. It was horrible. Every chance he got, he tried to yank it out. Another reason to make a living will NOW!!!!!!!!!!! He was only 35, and hadn't made one, so his wife became power of attorney, and had to make those decisions. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 In a message dated 2/25/99 11:53:01 AM Central Standard Time, lisa.a.rice@... writes: << Sometimes I wished I had just put a gun to his head, I know that sounds terrible but it would have been the humane thing to do.I just feel guilty for letting him SUFFER so BAD. >> , Please don't feel that you were alone in those feelings. Anyone who has been there understands. Many times during the year my mother-in-law was in the hospital, my husband expressed the wish to " just put the pillow over her head and end it. " I was always there to talk him out of it, but I understood his feelings. Finally, after she had been comatose for almost a year, the feeding tube was removed with my father-in-law's permission and she was released from her CJD prison. Yvette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 They also tied down my fathers hands as his constant jerking scratched up his chest. It has been 20 years so it is hard to remember why they did not put a shirt on him. I guess it was the feeding tubes also.When I read dad's autopsy report it stated he had bladder stones,urinary cystitis, acute and chronic. Yes I think he had pain.I have read about the blindness in so many patients, my father never went blind and he died about a year and a half after diagnosis.Is it more common for them to go blind?When my dad was near death I spoke to him,he could not talk, but he looked at me and tried so hard and mouthed a word I said.He was demented at the time, but sometimes he looked at me and smiled as he jerked,he seemed to know something.Sometimes I wished I had just put a gun to his head, I know that sounds terrible but it would have been the humane thing to do.I just feel guilty for letting him SUFFER so BAD. Re: Pain > > >They tied my brothers hands down so he couldn't yank out the feeding >tube or ventilator. It was horrible. Every chance he got, he tried to >yank it out. Another reason to make a living will NOW!!!!!!!!!!! He >was only 35, and hadn't made one, so his wife became power of attorney, >and had to make those decisions. > Annette > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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