Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 I started the south beach diet three days ago. I skipped over phase 1. I used to do Atkins and found that when I reintroduced carbs my progress slowed so much that I practically had to stay on Phase 1. South Beach is much healthier. I am doing Vegetarian South Beach this time and I am skipping phase 1. I have lost 7 lbs in three days on the diet. I see no need for anyone to go through phase 1. Here is my meals for yesterday. Breakfast: sm. apple cup of apple/spice tea Lunch: boco spicy chicken patty topped with grilled onions,portabella muchroom with a slice of tomato, a dollop of lgt. sour cream and some salsa. Side of mixed frozen veggies. cup of mint tea Snack: sm. apple Dinner: 2 slices high fiber low calorie wheat bread toasted. Filled with raw spinach leaves, tom.,cucumber, grilled jalapenos with some lgt. may. Side of mixed frozen veggies saute'd with olive oil spray and lemon pepper sesoning. That was yesterdays. I'll post todays either later or tomorrow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Barb, I'm forwarding your response on to the group-- you can reply directly there, and everyone in the group can read and glean info and share their experiences. I'm no where near an "expert" on sarcoidosis, but have been dealing with it for the last 17 yrs, and have had to learn as much as I can--because my MD's think that pred is the only treatment for sarcoidosis. Once it gets into systemic and multiple systems-- the pred is not the answer. As soon as you lower the dose-- the problems come back, and your immune system goes into overdrive, then the sarc starts showing in other organs. I agree with you, I too believe that so much of autoimmune disease is caused by dietary issues. For us, they know that Vitamin D is not utilized correctly-- but some of us have too much, some to little, and the connection as to what it actually does is not yet determined. The other part of that issue is that the granulomas produce their own form of Vitamin C-- which activates the Vit D--and then we end up with kidney and gallstones. Weil, MD states that when the body is deficient in any Vitamin or Mineral, that our bodies compensate by putting extra deposits of the Vitamin (ie. calcium) in places it doesn't belong. Like the extra storage of calcium in the form of kidney stones--or granulomas thru our bodies, because our system thinks it won't have enough, so it grabs on. (Hope that made sense.) There is a diet that is extreme, but it's called the GERSON THERAPY-- and advocates healing thru vegetable juices and coffee enemas, along with Thyroid supplement and vitamins and minerals supplements. It has been around since the 1950's-- and was first developed when chemotherapy was being tested as the answer to cancers-- and the money went to the chemotherapy and drug companies--instead of diet research. The sad part is-- the diet has a better cure rate than the chemo drugs. There are clinics in the states, and in Mexico and around the world. I'm researching them currently, and who knows-- maybe I'll point myself in the direction of Mexico. As far as the way to post-- all the emails come thru the group--and then we all get them. You can email any of the moderators or owners (Darlene, Kim, Rose, Debbie and Myself) directly-- and we will try to answer asap. We too are sick with this-- so it sometimes takes us a day or two before we answer. Take care, and hope to see you soon, Tracie NS Coowner/moderator Tracie, Since I got your email, you must be talking to me. I am not used to the format yet. So, I will respond. I was on Neurontin for years. My Doctor just switched me to Lyrica. I am not sure if I like it better. I also take Topamax and I use a Duragesic patch for pain. I still have some pain but it is tolerable. and some-most days I may not have pain. It is getting increasingly more difficult to walk. I take prednisone. They have just had to reduce it considerably due to some problems that I am having. I have had some serious infections. I see someone at UIC and I am sure he will put that back up when I see him again in July. I have taken some other meds in the past and had some side effects to them so they haven't tried a lot of the things that I have read about here. In retrospect, I think mine started probably in 1986 but it isn't documented that far back.I was a nurse in ICU and I was having a terrible time remembering names of people. I thought I had Alzheimers. My doctor sent me to have a comlete neuro-psych eval. They found nothing wrong. The next year I moved out of ICU because I no longer felt comfortable there. Everyone thought I was crazy for moving but I felt something was wrong in my head. In my mind I knew the names of medications, symptoms, doctors, etc. but I always felt like I wasn't going to be able to express it. I thought perhaps I had suffered a minor stroke in the speech area of the brain. They kept telling me I was fine. In 1992 suddenly I had a very serious Asthma attack. I had never had Asthma, allergies or the like. Was in the hospital. When tested I had a borderline abnormal pulmonary function test. And no reason for it. Nothing showed up on CXR. In 1993 I had Shingles in the facial nerve. I was in the hospital for that also. I was told it is a very unusual place to have Shingles. I developed Encephalitis from that. In 1997 I started to have severe nosebleeds. They cauterized a couple of "bleeders" and the put an end to that. It was about 1995-97 that I was having something akin to restless leg syndrome with numbness and tingling in my feet. I didn't even mention it to my doctor for a couple of years. He sent me to a neurologist at the same clinic where he is. (I go to a clinic of about 120 doctors) the neurologist diagnosed me with Sarcoid but none of the tests confirmed it. Except the ACE. I was sent to UIC and Northwestern for workups and they worked me up for everything. They biopsied peripheral nerves and found the sarcoid. Somewhere in this time I have developed diabetes (probably due to the prednisone). I have read through a lot of the messages posted here and I don't believe my Sarcoid is as bad as many in the group. Mine seems to be limited to the peripheral nerves. I have Asthma but except for flareups in the winter it isn't too bad. Otherwise no Sarcoid lung involvement. My memory is affected more and more now, but that may be medication related. I am on lots of meds all told. I am having some jerking problems. he doen't know if it is a seizure type thing or myoclonus. We are doing a 24 hour EEG next week so we shall see. If it turns out to be Seizures, then I guess it could be entering the CNS. Let's hope not. I have very good doctors and get good referrals. they have not tried a lot of the medications I see here. That may be because I didn't tolerate a lot of those that they did try. I am going to discuss some of them the next time I go to UIC. Also I saw in one of the postings here about a clinical trial at Northwestern. My Doctor is looking into that also. So that is my story and obviously I am sleep impaired. You seem to be an expert on Sarcoid. For years I tried not to learn about it. Now I need to. I can tell a difference when I don't drink enough water. And I don't always. Thanks for that. I will remember the refined sugars also. I believe our diets have so much to do with this. I sometimes feel I need a thourough cleansing of toxins and then have someone direct my diet for my immune system. (can you tell I have been watching too much late night TV) I believe a lot of the autoammune problems are food related. This email is way too long. Thanks for writing. Barb J. statpdq@... tiodaat@... wrote: Hi,Several of our members are wheelchair bound, and many are on "scooters". The neuropathy that you're talking about is one of the biggest problems we all face. Many of us are on Neurontin for the nerve pain. It does seem to help. What meds do they have you on?One of the major causes of the neuropathy for me-- was related to dehydration and to high blood sugars. So by drinking more--even when I think I've been doing well getting the fluids down-- and by cutting out the refined sugars-- my neuropathy has improved.Also, with the combination of Plaquenil, Methotrexate and Remicade--my body and bone pain has decreased significantly. I've even been able to give up my oxygen during the day time. BTW, another huge problem with the neuropathy is that we don't clear the air from our lungs due to damage from the sarcoidosis. We get what is termed "air trapping." This happens when the air we breath in doesn't cross the lung sacs to be picked up by the red blood cells. The RBC's then take the oxygen to the extremities, and keep the hands and feet functioning. For us, a portion of each breathe in gets stuck in the lungs, and turns to carbon dioxide. Then the RBC's oxygen is used up by the organs, and we get the "hyperventilation" effect of our hands and feet being numb. Try to exhale as far as you can, then slowly inhale-- and after consciously doing this for awhile, see if it helps your neuropathy. I've written on this subject many times, and in our ARCHIVES and LINKS you will find both the past posts, as well as other sites to explain this in detail. If you want, you can take the information to your MD's-- and see if they will address the issue with you. It may be as easy as getting you into a Pulmonary Rehab class-- or they may need to put you on supplemental oxygen so that you can continue ot move around as much as possible.As far as the balance issues-- that really needs to be addressed with "gait training" so tha tyou can stay safe and not injure yourself by falling.Hope this helps, and welcome to the family.Tracie NS Co-owner/moderator __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Barb, I'm forwarding your response on to the group-- you can reply directly there, and everyone in the group can read and glean info and share their experiences. I'm no where near an "expert" on sarcoidosis, but have been dealing with it for the last 17 yrs, and have had to learn as much as I can--because my MD's think that pred is the only treatment for sarcoidosis. Once it gets into systemic and multiple systems-- the pred is not the answer. As soon as you lower the dose-- the problems come back, and your immune system goes into overdrive, then the sarc starts showing in other organs. I agree with you, I too believe that so much of autoimmune disease is caused by dietary issues. For us, they know that Vitamin D is not utilized correctly-- but some of us have too much, some to little, and the connection as to what it actually does is not yet determined. The other part of that issue is that the granulomas produce their own form of Vitamin C-- which activates the Vit D--and then we end up with kidney and gallstones. Weil, MD states that when the body is deficient in any Vitamin or Mineral, that our bodies compensate by putting extra deposits of the Vitamin (ie. calcium) in places it doesn't belong. Like the extra storage of calcium in the form of kidney stones--or granulomas thru our bodies, because our system thinks it won't have enough, so it grabs on. (Hope that made sense.) There is a diet that is extreme, but it's called the GERSON THERAPY-- and advocates healing thru vegetable juices and coffee enemas, along with Thyroid supplement and vitamins and minerals supplements. It has been around since the 1950's-- and was first developed when chemotherapy was being tested as the answer to cancers-- and the money went to the chemotherapy and drug companies--instead of diet research. The sad part is-- the diet has a better cure rate than the chemo drugs. There are clinics in the states, and in Mexico and around the world. I'm researching them currently, and who knows-- maybe I'll point myself in the direction of Mexico. As far as the way to post-- all the emails come thru the group--and then we all get them. You can email any of the moderators or owners (Darlene, Kim, Rose, Debbie and Myself) directly-- and we will try to answer asap. We too are sick with this-- so it sometimes takes us a day or two before we answer. Take care, and hope to see you soon, Tracie NS Coowner/moderator Tracie, Since I got your email, you must be talking to me. I am not used to the format yet. So, I will respond. I was on Neurontin for years. My Doctor just switched me to Lyrica. I am not sure if I like it better. I also take Topamax and I use a Duragesic patch for pain. I still have some pain but it is tolerable. and some-most days I may not have pain. It is getting increasingly more difficult to walk. I take prednisone. They have just had to reduce it considerably due to some problems that I am having. I have had some serious infections. I see someone at UIC and I am sure he will put that back up when I see him again in July. I have taken some other meds in the past and had some side effects to them so they haven't tried a lot of the things that I have read about here. In retrospect, I think mine started probably in 1986 but it isn't documented that far back.I was a nurse in ICU and I was having a terrible time remembering names of people. I thought I had Alzheimers. My doctor sent me to have a comlete neuro-psych eval. They found nothing wrong. The next year I moved out of ICU because I no longer felt comfortable there. Everyone thought I was crazy for moving but I felt something was wrong in my head. In my mind I knew the names of medications, symptoms, doctors, etc. but I always felt like I wasn't going to be able to express it. I thought perhaps I had suffered a minor stroke in the speech area of the brain. They kept telling me I was fine. In 1992 suddenly I had a very serious Asthma attack. I had never had Asthma, allergies or the like. Was in the hospital. When tested I had a borderline abnormal pulmonary function test. And no reason for it. Nothing showed up on CXR. In 1993 I had Shingles in the facial nerve. I was in the hospital for that also. I was told it is a very unusual place to have Shingles. I developed Encephalitis from that. In 1997 I started to have severe nosebleeds. They cauterized a couple of "bleeders" and the put an end to that. It was about 1995-97 that I was having something akin to restless leg syndrome with numbness and tingling in my feet. I didn't even mention it to my doctor for a couple of years. He sent me to a neurologist at the same clinic where he is. (I go to a clinic of about 120 doctors) the neurologist diagnosed me with Sarcoid but none of the tests confirmed it. Except the ACE. I was sent to UIC and Northwestern for workups and they worked me up for everything. They biopsied peripheral nerves and found the sarcoid. Somewhere in this time I have developed diabetes (probably due to the prednisone). I have read through a lot of the messages posted here and I don't believe my Sarcoid is as bad as many in the group. Mine seems to be limited to the peripheral nerves. I have Asthma but except for flareups in the winter it isn't too bad. Otherwise no Sarcoid lung involvement. My memory is affected more and more now, but that may be medication related. I am on lots of meds all told. I am having some jerking problems. he doen't know if it is a seizure type thing or myoclonus. We are doing a 24 hour EEG next week so we shall see. If it turns out to be Seizures, then I guess it could be entering the CNS. Let's hope not. I have very good doctors and get good referrals. they have not tried a lot of the medications I see here. That may be because I didn't tolerate a lot of those that they did try. I am going to discuss some of them the next time I go to UIC. Also I saw in one of the postings here about a clinical trial at Northwestern. My Doctor is looking into that also. So that is my story and obviously I am sleep impaired. You seem to be an expert on Sarcoid. For years I tried not to learn about it. Now I need to. I can tell a difference when I don't drink enough water. And I don't always. Thanks for that. I will remember the refined sugars also. I believe our diets have so much to do with this. I sometimes feel I need a thourough cleansing of toxins and then have someone direct my diet for my immune system. (can you tell I have been watching too much late night TV) I believe a lot of the autoammune problems are food related. This email is way too long. Thanks for writing. Barb J. statpdq@... tiodaat@... wrote: Hi,Several of our members are wheelchair bound, and many are on "scooters". The neuropathy that you're talking about is one of the biggest problems we all face. Many of us are on Neurontin for the nerve pain. It does seem to help. What meds do they have you on?One of the major causes of the neuropathy for me-- was related to dehydration and to high blood sugars. So by drinking more--even when I think I've been doing well getting the fluids down-- and by cutting out the refined sugars-- my neuropathy has improved.Also, with the combination of Plaquenil, Methotrexate and Remicade--my body and bone pain has decreased significantly. I've even been able to give up my oxygen during the day time. BTW, another huge problem with the neuropathy is that we don't clear the air from our lungs due to damage from the sarcoidosis. We get what is termed "air trapping." This happens when the air we breath in doesn't cross the lung sacs to be picked up by the red blood cells. The RBC's then take the oxygen to the extremities, and keep the hands and feet functioning. For us, a portion of each breathe in gets stuck in the lungs, and turns to carbon dioxide. Then the RBC's oxygen is used up by the organs, and we get the "hyperventilation" effect of our hands and feet being numb. Try to exhale as far as you can, then slowly inhale-- and after consciously doing this for awhile, see if it helps your neuropathy. I've written on this subject many times, and in our ARCHIVES and LINKS you will find both the past posts, as well as other sites to explain this in detail. If you want, you can take the information to your MD's-- and see if they will address the issue with you. It may be as easy as getting you into a Pulmonary Rehab class-- or they may need to put you on supplemental oxygen so that you can continue ot move around as much as possible.As far as the balance issues-- that really needs to be addressed with "gait training" so tha tyou can stay safe and not injure yourself by falling.Hope this helps, and welcome to the family.Tracie NS Co-owner/moderator __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Barb, I'm forwarding your response on to the group-- you can reply directly there, and everyone in the group can read and glean info and share their experiences. I'm no where near an "expert" on sarcoidosis, but have been dealing with it for the last 17 yrs, and have had to learn as much as I can--because my MD's think that pred is the only treatment for sarcoidosis. Once it gets into systemic and multiple systems-- the pred is not the answer. As soon as you lower the dose-- the problems come back, and your immune system goes into overdrive, then the sarc starts showing in other organs. I agree with you, I too believe that so much of autoimmune disease is caused by dietary issues. For us, they know that Vitamin D is not utilized correctly-- but some of us have too much, some to little, and the connection as to what it actually does is not yet determined. The other part of that issue is that the granulomas produce their own form of Vitamin C-- which activates the Vit D--and then we end up with kidney and gallstones. Weil, MD states that when the body is deficient in any Vitamin or Mineral, that our bodies compensate by putting extra deposits of the Vitamin (ie. calcium) in places it doesn't belong. Like the extra storage of calcium in the form of kidney stones--or granulomas thru our bodies, because our system thinks it won't have enough, so it grabs on. (Hope that made sense.) There is a diet that is extreme, but it's called the GERSON THERAPY-- and advocates healing thru vegetable juices and coffee enemas, along with Thyroid supplement and vitamins and minerals supplements. It has been around since the 1950's-- and was first developed when chemotherapy was being tested as the answer to cancers-- and the money went to the chemotherapy and drug companies--instead of diet research. The sad part is-- the diet has a better cure rate than the chemo drugs. There are clinics in the states, and in Mexico and around the world. I'm researching them currently, and who knows-- maybe I'll point myself in the direction of Mexico. As far as the way to post-- all the emails come thru the group--and then we all get them. You can email any of the moderators or owners (Darlene, Kim, Rose, Debbie and Myself) directly-- and we will try to answer asap. We too are sick with this-- so it sometimes takes us a day or two before we answer. Take care, and hope to see you soon, Tracie NS Coowner/moderator Tracie, Since I got your email, you must be talking to me. I am not used to the format yet. So, I will respond. I was on Neurontin for years. My Doctor just switched me to Lyrica. I am not sure if I like it better. I also take Topamax and I use a Duragesic patch for pain. I still have some pain but it is tolerable. and some-most days I may not have pain. It is getting increasingly more difficult to walk. I take prednisone. They have just had to reduce it considerably due to some problems that I am having. I have had some serious infections. I see someone at UIC and I am sure he will put that back up when I see him again in July. I have taken some other meds in the past and had some side effects to them so they haven't tried a lot of the things that I have read about here. In retrospect, I think mine started probably in 1986 but it isn't documented that far back.I was a nurse in ICU and I was having a terrible time remembering names of people. I thought I had Alzheimers. My doctor sent me to have a comlete neuro-psych eval. They found nothing wrong. The next year I moved out of ICU because I no longer felt comfortable there. Everyone thought I was crazy for moving but I felt something was wrong in my head. In my mind I knew the names of medications, symptoms, doctors, etc. but I always felt like I wasn't going to be able to express it. I thought perhaps I had suffered a minor stroke in the speech area of the brain. They kept telling me I was fine. In 1992 suddenly I had a very serious Asthma attack. I had never had Asthma, allergies or the like. Was in the hospital. When tested I had a borderline abnormal pulmonary function test. And no reason for it. Nothing showed up on CXR. In 1993 I had Shingles in the facial nerve. I was in the hospital for that also. I was told it is a very unusual place to have Shingles. I developed Encephalitis from that. In 1997 I started to have severe nosebleeds. They cauterized a couple of "bleeders" and the put an end to that. It was about 1995-97 that I was having something akin to restless leg syndrome with numbness and tingling in my feet. I didn't even mention it to my doctor for a couple of years. He sent me to a neurologist at the same clinic where he is. (I go to a clinic of about 120 doctors) the neurologist diagnosed me with Sarcoid but none of the tests confirmed it. Except the ACE. I was sent to UIC and Northwestern for workups and they worked me up for everything. They biopsied peripheral nerves and found the sarcoid. Somewhere in this time I have developed diabetes (probably due to the prednisone). I have read through a lot of the messages posted here and I don't believe my Sarcoid is as bad as many in the group. Mine seems to be limited to the peripheral nerves. I have Asthma but except for flareups in the winter it isn't too bad. Otherwise no Sarcoid lung involvement. My memory is affected more and more now, but that may be medication related. I am on lots of meds all told. I am having some jerking problems. he doen't know if it is a seizure type thing or myoclonus. We are doing a 24 hour EEG next week so we shall see. If it turns out to be Seizures, then I guess it could be entering the CNS. Let's hope not. I have very good doctors and get good referrals. they have not tried a lot of the medications I see here. That may be because I didn't tolerate a lot of those that they did try. I am going to discuss some of them the next time I go to UIC. Also I saw in one of the postings here about a clinical trial at Northwestern. My Doctor is looking into that also. So that is my story and obviously I am sleep impaired. You seem to be an expert on Sarcoid. For years I tried not to learn about it. Now I need to. I can tell a difference when I don't drink enough water. And I don't always. Thanks for that. I will remember the refined sugars also. I believe our diets have so much to do with this. I sometimes feel I need a thourough cleansing of toxins and then have someone direct my diet for my immune system. (can you tell I have been watching too much late night TV) I believe a lot of the autoammune problems are food related. This email is way too long. Thanks for writing. Barb J. statpdq@... tiodaat@... wrote: Hi,Several of our members are wheelchair bound, and many are on "scooters". The neuropathy that you're talking about is one of the biggest problems we all face. Many of us are on Neurontin for the nerve pain. It does seem to help. What meds do they have you on?One of the major causes of the neuropathy for me-- was related to dehydration and to high blood sugars. So by drinking more--even when I think I've been doing well getting the fluids down-- and by cutting out the refined sugars-- my neuropathy has improved.Also, with the combination of Plaquenil, Methotrexate and Remicade--my body and bone pain has decreased significantly. I've even been able to give up my oxygen during the day time. BTW, another huge problem with the neuropathy is that we don't clear the air from our lungs due to damage from the sarcoidosis. We get what is termed "air trapping." This happens when the air we breath in doesn't cross the lung sacs to be picked up by the red blood cells. The RBC's then take the oxygen to the extremities, and keep the hands and feet functioning. For us, a portion of each breathe in gets stuck in the lungs, and turns to carbon dioxide. Then the RBC's oxygen is used up by the organs, and we get the "hyperventilation" effect of our hands and feet being numb. Try to exhale as far as you can, then slowly inhale-- and after consciously doing this for awhile, see if it helps your neuropathy. I've written on this subject many times, and in our ARCHIVES and LINKS you will find both the past posts, as well as other sites to explain this in detail. If you want, you can take the information to your MD's-- and see if they will address the issue with you. It may be as easy as getting you into a Pulmonary Rehab class-- or they may need to put you on supplemental oxygen so that you can continue ot move around as much as possible.As far as the balance issues-- that really needs to be addressed with "gait training" so tha tyou can stay safe and not injure yourself by falling.Hope this helps, and welcome to the family.Tracie NS Co-owner/moderator __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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