RE: cross contamination was bagels anyone?

[Guest guest]

-

So how do you guarantee that the diet is being followed 100% correctly?

Is your child in school? In the past two years we have given a slice

of bread exactly one time (two months ago) and that was to test to see what

would happen and this was a very controlled situation. At first she rejected

it because it looked so odd to her (it was Wonderbread.) I felt like I was

giving her poison when we did it. She has no idea where it even came from -

I gave it to her in the backyard so she wouldn't make a connection with the

kitchen or the bag. So we too believe we follow the diet 100% at home. Its

the outside influences I worry about revolving around food accidents that no

one catches, cross contamination, hidden ingredients, sloppy supervision at

school that I will never know about. Is it better to make lengthy demands to

the school or is it better to simply request honesty so at least I am aware

of food accidents? Is it better to acknowledge that there might be cross

contamination at a restaurant (even though we warn them about the diet) and

only go once a week or is it better not to go at all and sacrifice that

valuable experience? Or is it better to simply delude myself into thinking

that there is absolutely no cross contamination at say a Mcs etc.? I'd

love to know what the rest of you think about this. How many of you on the

diet go out to eat? Do you truly think there is no contamination or do you

feel it isn't significant enough to worry about in small doses?

Barb

<<

I am. I figure that if I'm going to do it, I might as well go 100%. Why

take the chance that it could effect them?

>>

[Guest guest]

Jenn-

Two kids and a baby on the way you have it tough. We have another Mom on

the list in the same situation. I admire your honesty regarding the diet.

Now can I ask what happened after ate the food in the hospital. Did

you see any changes? I hope he is okay btw.

Barb

<<

Barb,

I totally agree with you and I have taken a similar attitude. ended up

in the hospital last week and they were not totally able to provide a gfcf

meal. What was I suppose to do? I ordered a hamburger and let him have the

french fries. Life does have that way of being that way sometimes. I have

another son that is also on the diet and I am 5 months pregnant. I can't be

there every minute of every day.

I also have not used serenaid. I just let is pass as well. I do however

make a note of the way he acts so that if I am ever questioned as to why he

is on the diet I have a little journal.

As far as worry, I tend to worry more about him coming home on the bus. I

just can't worry about all of the other stuff. I use the Serenity prayer a

lot and I think it helps especially the part about the Wisdom to know the

difference.

I think you have a great attitude about the diet. I know I have been

criticized for not striving for 110% but those people are not living my life

either.

Jenn

>>

[Guest guest]

Barb,

I used the approach that gluten and casein will cause brain damage to my son

and that I appreciate all of their efforts towards the cause. I also tell

them " horror " stories of how my sons behavior rapidly declines when he gets

either g or c. For you, I would consider either serenaid, or the enzyme

from Kirkman labs for when your child gets home from school. I would not

consider you to be insulting if you insist on gfcf, it is akin to insist

that your child gets enough OT, ST or whatever else is in the IEP.

What is the infamous Terry letter? How do I get a copy?

Jenn

Re: cross contamination was bagels anyone?

We are 100% gfcf at home but that is the only situation that I feel

confident about. For those of you who believe your child is completely gfcf

at school - how do you know? I am going to bring the infamous Terry

letter to attach to 's IEP at our annual review in early October but I

still question what I am missing - what the teachers are missing even with

their good intentions. I think I've mentioned that my little sneak has put

her hand on pizza in the classroom and licked the grease off, and how I

caught her on video tape licking an uncooked piece of ziti. For those who

believe the diet only works at 100% and is working for your child, have you

secured guarantees of some sort? How do you hold the schools accountable or

responsible for food accidents? I want to deal with this at 's IEP but

I don't know how to approach this issue without being insulting or

alienating

the school staff. They know has been on the diet for two years and

for

me to suddenly make a big deal out of food accidents I am afraid will make

me

appear suspicious of them (which I suppose I am.)

Barb

Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of every

month.

http://www.egroups.com/community/MosaicMoms

[Guest guest]

Barb,

I totally agree with you and I have taken a similar attitude. ended up

in the hospital last week and they were not totally able to provide a gfcf

meal. What was I suppose to do? I ordered a hamburger and let him have the

french fries. Life does have that way of being that way sometimes. I have

another son that is also on the diet and I am 5 months pregnant. I can't be

there every minute of every day.

I also have not used serenaid. I just let is pass as well. I do however

make a note of the way he acts so that if I am ever questioned as to why he

is on the diet I have a little journal.

As far as worry, I tend to worry more about him coming home on the bus. I

just can't worry about all of the other stuff. I use the Serenity prayer a

lot and I think it helps especially the part about the Wisdom to know the

difference.

I think you have a great attitude about the diet. I know I have been

criticized for not striving for 110% but those people are not living my life

either.

Jenn

Re: cross contamination was bagels anyone?

Jenn-

I'm uncomfortable with using Serenaid etc and choose instead to let the

food accidents pass. We've have never really seen long term problems from

food accidents. Regarding whether the child is truly gfcf outside of the

home I have done what you suggest, my line is usually " she has a severe

allergy blah blah blah " and I even have gone so far as to warn people that

gluten and casein could be life threatening to . I think that because

this diet is so difficult and complicated it is nearly impossible to have

all

the bases covered, at least in my world. Beyond the food we have to worry

about art supplies like glue or play dough. We have to worry about the kids

chewing on board books and what these books are made of. We have to worry

about another child dropping a crumb of wonderbread next to our children at

lunch. Don't get me wrong - we've been on the diet longer than most on this

list and have no intention of stopping. But for my family life gets in the

way sometimes.

Barb

PS wrote a great IEP add on regarding the diet and maybe she'll post

it again.

<< Barb,

I used the approach that gluten and casein will cause brain damage to my son

and that I appreciate all of their efforts towards the cause. I also tell

them " horror " stories of how my sons behavior rapidly declines when he gets

either g or c. For you, I would consider either serenaid, or the enzyme

from Kirkman labs for when your child gets home from school. I would not

consider you to be insulting if you insist on gfcf, it is akin to insist

that your child gets enough OT, ST or whatever else is in the IEP.

What is the infamous Terry letter? How do I get a copy?

Jenn

>>

Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of every

month.

http://www.egroups.com/community/MosaicMoms

[Guest guest]

In a message dated 9/19/00 4:45:34 PM Eastern Daylight Time,

ezzieklein@... writes:

<< One thing I'm going to bring up at back to school nite

tomorrow, when we're in the class room, is " Is

everyone on the diet? and if not you should

definately consider this " Then hopefully no food

accidents.

>>

Go, Ezzie!

[Guest guest]

I'm not doing the diet 100%, but I'm trying to get

better at it. We still eat out but I know what foods

really bother Kenny. If he eats pizza he's up all

night. He had Steak and Ale's roasted potatoes, up

all night again, ice cream, cheerios affect his

behaviors, he'll start stimming more. So I definately

stay away from those things. BUT I definately believe

that the gfcf diet works on him and my whole family is

believing this. Plus my mother can explain his autism

easier by saying his immune system has been damaged by

antibiotics, vaccines and he has a food intolerance

that affects his behaviors.

Ezzie

p.s.

One thing I'm going to bring up at back to school nite

tomorrow, when we're in the class room, is " Is

everyone on the diet? and if not you should

definately consider this " Then hopefully no food

accidents.

--- BarbStrate@... wrote:

> -

> So how do you guarantee that the diet is being

> followed 100% correctly?

> Is your child in school? In the past two years we

> have given a slice

> of bread exactly one time (two months ago) and that

> was to test to see what

> would happen and this was a very controlled

> situation. At first she rejected

> it because it looked so odd to her (it was

> Wonderbread.) I felt like I was

> giving her poison when we did it. She has no idea

> where it even came from -

> I gave it to her in the backyard so she wouldn't

> make a connection with the

> kitchen or the bag. So we too believe we follow the

> diet 100% at home. Its

> the outside influences I worry about revolving

> around food accidents that no

> one catches, cross contamination, hidden

> ingredients, sloppy supervision at

> school that I will never know about. Is it better

> to make lengthy demands to

> the school or is it better to simply request honesty

> so at least I am aware

> of food accidents? Is it better to acknowledge that

> there might be cross

> contamination at a restaurant (even though we warn

> them about the diet) and

> only go once a week or is it better not to go at all

> and sacrifice that

> valuable experience? Or is it better to simply

> delude myself into thinking

> that there is absolutely no cross contamination at

> say a Mcs etc.? I'd

> love to know what the rest of you think about this.

> How many of you on the

> diet go out to eat? Do you truly think there is no

> contamination or do you

> feel it isn't significant enough to worry about in

> small doses?

> Barb

>

>

>

> In a message dated 9/19/00 5:16:00 AM,

> lisa@... writes:

>

> <<

> I am. I figure that if I'm going to do it, I might

> as well go 100%. Why

> take the chance that it could effect them?

>

>

> >>

>

>

__________________________________________________

[Guest guest]

It is hard to guarantee 100%, we have had our share of accidents

since starting the diet in May. I really hadn't noticed any changes

in after each accident until this past weekend. We got him

popcorn at the Sesame Street Live show, forgetting about butter!

He's been very spacey since then, so I think it did affect him. I am

finding it very hard to eat out, the choices are so limited that we

really only go to Mcs. I'm hesitant to go to a regular

restaurant and order a regular hamburger, hotdog or fries without

knowing if they're gfcf.

On another note, I have just realized how much 's gross motor

skills have improved since May. A month ago he couldn't climb on or

balance at all on his bicycle (with training wheels). Now he is

climbing on and trying to pedal, and sticking with it without giving

up. This is a big accomplishment because he has always had low

muscle tone and motor planning problems. He's also climbing more at

the park and hanging on the monkey bars, something he never tried. I

am wondering if this is related to the diet? I think I read

something about this in Karyn Seroussi's book, but would like to know

if anyone else has seen motor improvements in their child since

starting the diet.

[Guest guest]

Barb, ,

I guess I can answer two posts with one. was in the hospital last week

because he swallowed a quarter and it got lodged in his esophagus. He had

to have endoscopy to have it removed. Before they took the x-rays to see

the blockage they did a number of tests on him and were considering a spinal

tap. He was in very bad shape and they scared the you know what out of me.

Any way the point is that they were not able to provide GFCF meals for

and after him throwing up for 12+ hours he was famished. The only thing

close was a hamburger and french fries. The ff were contaminated and

contained gluten. He has not stopped falling down, and he had a real hard

time at OT & ST on Monday. For example yesterday I was holding his hand

walking with him and he fell 4 times in a space of a block. Nothing tripped

him he just fell down. It think that between OT and this diet his gross

motor skills have improved greatly.

Jenn

[Guest guest]

After what happened when I removed the last products that had possible cross

contamination, we are now 100% at my house. I'd be happy to answer e-mails

privately on the details.

Carmelina

cross contamination was bagels anyone?

>

>I have to admit that cross contamination is an issue I've been thinking

>about. I'm curious, how many of you are 100% sure that your kids are

>completely gfcf?

>Barb

>

>

>

><<

>I can pretty much guarantee you this guy isn't going to buy all new

dedicated

>equipment

>for us! I don't know how worried I am about cross contamination dare I

admit

>that!

>I'll have to think on this....

>JoAnne

> >>

>

>

>Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of

every month.

>http://www.egroups.com/community/MosaicMoms

>

>

[Guest guest]

We managed to get a full time aid to assure my daughter does not sneak

anything into her mouth other than what we send.

Carmelina

Re: cross contamination was bagels anyone?

>

> We are 100% gfcf at home but that is the only situation that I feel

>confident about. For those of you who believe your child is completely

gfcf

>at school - how do you know? I am going to bring the infamous Terry

>letter to attach to 's IEP at our annual review in early October but I

>still question what I am missing - what the teachers are missing even with

>their good intentions. I think I've mentioned that my little sneak has put

>her hand on pizza in the classroom and licked the grease off, and how I

>caught her on video tape licking an uncooked piece of ziti. For those who

>believe the diet only works at 100% and is working for your child, have you

>secured guarantees of some sort? How do you hold the schools accountable

or

>responsible for food accidents? I want to deal with this at 's IEP

but

>I don't know how to approach this issue without being insulting or

alienating

>the school staff. They know has been on the diet for two years and

for

>me to suddenly make a big deal out of food accidents I am afraid will make

me

>appear suspicious of them (which I suppose I am.)

>Barb

>

>Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening of

every month.

>http://www.egroups.com/community/MosaicMoms

>

>