Guest guest Posted June 15, 1998 Report Share Posted June 15, 1998 The reflux now is complaints of wet burps. No heartburn pain. The asthma is the thing that my son is most affected by. He complains of wheezing, about once daily. He takes a lot of medicines daily (Vanceril, Singulair, Intal, Serevent and about once a day he sitll needs albuterol.) It is under good enough control for him to go to school daily and play normally but it requires a lot of vigilance on my part to make sure his status isn't going downhill. The anaphylaxis issue is one always looming over our heads. It requires a lot of vigilance but with the exception of dietary avoidance it doesn't have any impact on his day to day activities. The esophagitis symptoms have been minimal but the histiologically he got real bad (Barret's metaplasia) and so he had a Nissen for that a couple of years ago. He is still pain-free but I wonder what his biopsies would show now (he's due for a scope sometime soon.) I know he has reflux despite the Nissen. The asthma has been kind of cyclic. For over a year I actually thought he was growing out of the asthma. Then he acquired quite a few environmental allergies and since them it has been hard to keep him of steroids for any extended period of time. School attendance has been affected by asthma but not by much else. Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 1998 Report Share Posted June 15, 1998 In a message dated 98-06-15 10:14:32 EDT, you write: << To parents of children of all ages: Are there many other parents dealing with severe asthma? What other health issues are you dealing with? >> Clayton has not been diagnosedwith asthma (too young)but reactive airway with some thickening of the lungs. He also has some mild neuro problems and developmental delays. He also has severe problems pooping even while on lactolose 2 times a day. Love, Sharon Jake (4-16-93) - nda Cole (3-30-97) - nda, resolved refuxer Clayton (3-30-97) - EG, severe food allergies, etc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 1998 Report Share Posted June 29, 1998 How much did your son weigh at 18 months? andrea.allred@... ---------- > > To: eosinophilic gastroenteritis (AT) onelist (DOT) com > Subject: [eosinophilic gastroenteritis] questions > Date: Sunday, June 28, 1998 4:53 PM > > > > Dawn, > > I'm sorry that it has taken me so long to answer your questions. You asked > about 's history with this disease. He did have it from birth, but it > wasn't diagnosed for a long time. We noticed it mostly when we tried > giving him solid foods. We would back off for a while, thinking that he > just wasn't ready, but each time we tried he would get very sick. He > couldn't keep anything that wasn't completely pureed down at all. He > vomited constantly and had obvious stomach pain. He cried constantly every > time we tried to feed him. He started having, what we thought were croup > attacks, but the episodes became more and more frequent. By the time he > was about a year, he would have difficulty breathing every time we fed him. > > He had his first ph probe at 14 months. He had the probe in only a couple > of hours when while I was feeding him he had difficulty breathing. He > quickly went into respiratory arrest at the hospital. They had to call a > code and I still relive those moments over and over. The probe was > removed during the excitement and the doctors were always afraid to try > again. In retrospect, he obviously was reacting to what he was eating. He > then had an endoscopy, which showed severe esophagitis, but noone ever said > anything about EG. We tried medications then, but they had no impact > whatsoever on his symptoms. > > At home he was still having difficulty breathing every time he ate and we > were constantly rushing him the ER when he would turn blue. Nobody seemed > to know what was going on so the doctors decided that his breathing > difficulties were a result of reflux spilling onto the vocal cords and he > had a Nissen fundoplication done. He did stop vomiting, but he was > retching constantly, had severe stomach pain and was still being > hospitalized for breathing difficulties. He coughed constantly and we were > giving him treatments around the clock. He still needs inhaled steroids > every day for his asthma. He was losing weight and weighed at 18 months > the same as he weighed at 9 months. > > At that time, Cisapride was still experimental and we waited months to be > able to try it. did terribly on it. He had severe mood swings and it > didn't help his symptoms. After many doctors and even more theories we > wound up at s Hopkins when was 3 1/2. He was very sick and had > constant stomach pain. He always had positive stools because he was > bleeding from his digestive tract. This was the first time someone > mentioned eosinophilic gastroenteritis. We started on Neocate, which also > was experimental at the time. We eliminated all other foods except for > apple and grape. > > The results were absolutely amazing. We always thought was a quiet > little boy who would always be an observer. He blossomed shortly after > starting on Neocate. He started to gain weight and grow and best of all, > for the first time in his life, he seemed to be pain-free. When we went > back to Hopkins 3 months later his eos were gone for the first time ever. > We didn't have any luck with trying to reintroduce foods because he would > seem to become reactive to any food we gave him and his eos returned. He > did well on just the formula for about 4 more years and we have just > recently been able to successfully add some foods into 's diet. He now > is eating 11 foods. He definitely is doing MUCH better now that he's > older. I would guess that he is starting to outgrow some of his symptoms. > > I'm sorry this is so long, but it was as brief as I could possibly be to > answer your questions. I hope this helps. > > Suzanne > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1998 Report Share Posted July 1, 1998 ---------- To: eosinophilic gastroenteritis (AT) onelist (DOT) com Subject: [eosinophilic gastroenteritis] Re: questions Date: Monday, June 29, 1998 8:45 PM How much did your son weigh at 18 months? andrea.allred@... gained weight beautifully while being breastfed exclusively. He was 21 pounds at 9 months and had some gains, but he lost any weight he had gained and weighed 21 pounds at 18 months. Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 There's a formula to calculate the points. The American points are calculated at: points = (calories/50) + (fat grams/12) - (fiber grams/5). However, you can only subtract up to 4 points, for the fiber. So, if you know the fats, calories, and fiber for your food list, you can calculate any recipe.... -Elissa QUESTIONS I have some questions. I hve the complete food guide, but I am not a boxed and canned type eater. I cook a lot, so how do I find out how many points are in things like an egg, a potatoe, a TBSp oof sugar, and brown sugar. I am not a member online , and don't go to meetings, I am just doing this on my own, so I don't know who to turn to. Is there another book I can get? Love, Kimra Kai Partida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 That;s the thing, I can't go to meetings at all. I don't hav ea car, and I do have two kids that my husband won't watch so meeitngs are out. I am going to try to get one somewhere else because I also need the getting started book. Love, Kimra Kai Partida QUESTIONSDate: Wed, 30 Jul 2003 14:14:17 -0500I have some questions. I hve the complete food guide, but I am not a boxed and canned type eater. I cook a lot, so how do I find out how many points are in things like an egg, a potatoe, a TBSp oof sugar, and brown sugar. I am not a member online , and don't go to meetings, I am just doing this on my own, so I don't know who to turn to. Is there another book I can get?Love, Kimra Kai Partida_________________________________________________________________STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 Huh? I'm not a math major, I'll admit, but this doesn't add up to me! Sharon M California ----Original Message Follows---- There's a formula to calculate the points. The American points are calculated at: points = (calories/50) + (fat grams/12) - (fiber grams/5). However, you can only subtract up to 4 points, for the fiber. _________________________________________________________________ Tired of spam? Get advanced junk mail protection with MSN 8. http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 If you could get to a WW center ONCE you could join, and say you can't stay for the meeting, and get all the stuff. But don't you get a points counter with WW online? They do have the electronic points calculator and you could probably walk into any WW center when they are open and buy one. I still want a points calculator to download into my handheld! Sharon M ----Original Message Follows---- Reply-To: Weight_Watchers_Member_Support_Group To: Weight_Watchers_Member_Support_Group > Subject: Re: QUESTIONS Date: Thu, 31 Jul 2003 08:08:22 -0500 That;s the thing, I can't go to meetings at all. I don't hav ea car, and I do have two kids that my husband won't watch so meeitngs are out. I am going to try to get one somewhere else because I also need the getting started book. Love, Kimra Kai Partida QUESTIONS Date: Wed, 30 Jul 2003 14:14:17 -0500 I have some questions. I hve the complete food guide, but I am not a boxed and canned type eater. I cook a lot, so how do I find out how many points are in things like an egg, a potatoe, a TBSp oof sugar, and brown sugar. I am not a member online , and don't go to meetings, I am just doing this on my own, so I don't know who to turn to. Is there another book I can get? Love, Kimra Kai Partida _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
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