Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Good luck Angel!!! Dawn BPD/DS 4/27/00 Dr. Hess, Bowling Green, OH 267 to 165 size 22 to size 10 no more high blood pressure, sore feet, or dieting!! www.duodenalswitch.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Good luck Angel!!! Dawn BPD/DS 4/27/00 Dr. Hess, Bowling Green, OH 267 to 165 size 22 to size 10 no more high blood pressure, sore feet, or dieting!! www.duodenalswitch.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Good luck Angel!!! Dawn BPD/DS 4/27/00 Dr. Hess, Bowling Green, OH 267 to 165 size 22 to size 10 no more high blood pressure, sore feet, or dieting!! www.duodenalswitch.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Thanks Dawn, I need all the luck I can get! Angel --- dwkteach@... wrote: > Good luck Angel!!! > > Dawn > BPD/DS > 4/27/00 > Dr. Hess, Bowling Green, OH > 267 to 165 > size 22 to size 10 > no more high blood pressure, sore feet, or dieting!! > www.duodenalswitch.com > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Thanks Dawn, I need all the luck I can get! Angel --- dwkteach@... wrote: > Good luck Angel!!! > > Dawn > BPD/DS > 4/27/00 > Dr. Hess, Bowling Green, OH > 267 to 165 > size 22 to size 10 > no more high blood pressure, sore feet, or dieting!! > www.duodenalswitch.com > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Thanks Dawn, I need all the luck I can get! Angel --- dwkteach@... wrote: > Good luck Angel!!! > > Dawn > BPD/DS > 4/27/00 > Dr. Hess, Bowling Green, OH > 267 to 165 > size 22 to size 10 > no more high blood pressure, sore feet, or dieting!! > www.duodenalswitch.com > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Hi Tim!! I am glad to hear that you are seeing positive effects of Provigil!! The first week I was taking Provigil, i didn't sleep a lot. If I take 2 tablets at 200mg, then I have a hard time falling asleep. The first week I was taking only one tablet, and I SAID I couldn't sleep, but I also didn't go to bed. I just wanted to read and do other stuff. There is a fine line there. Experiment with the dosage a little. If I am having a rough week, I take 1.5 tablets and still sleep well. And also, even if I don't fall asleep for a long time one night, I play Gameboy, or solitaire in bed. It makes me a little more tired. But even if I don't fall asleep one night, I am overall STILL less fatigued. For a whole week I probably slept only three hours per night. OK I was pushing it!!! (bad !) but I felt the same! So now I try to sleep more and I feel better. But if I don't sleep much for one night, I don't panic. The next day won't be any worse than many other days before Provigil. I have a few Ambien at home, just in case I need them. I haven't tried them yet. I am afraid of nightmares!! Anything that messes with my sleep causes me to have nightmares. Last night I was dreaming that my in-laws made my dog pull a moving truck. How funny, we were talking about them taking my dogs for runs with their bike, which is actuall a trike (two wheels on front) and they have a harness for the dogs, to pull the bike. My dog is a Lab, and full of energy, and in my dream he was pulling a moving truck!! Gee!! Last night I went to bed after midnight, so today I took 2 Provigil. I am not very tired, but not motivated to get work done. Oh well, take care, Hi All, I want to thank everyone that responded to my post. The provigil has really helped with the fatigue and with the brain fog ( to a lesser degree) but I didn't like the side effects I had from it so I asked to cut it in half, so now I just take half a pill everyday. The first day I took provigil I couldn't get to sleep and I was very nervous and had dry mouth. I've had success in the past with other medications and then after a while they lose there affect. I hope this last for a while but I will take whatever I get. Thanks again. Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Hi Tim!! I am glad to hear that you are seeing positive effects of Provigil!! The first week I was taking Provigil, i didn't sleep a lot. If I take 2 tablets at 200mg, then I have a hard time falling asleep. The first week I was taking only one tablet, and I SAID I couldn't sleep, but I also didn't go to bed. I just wanted to read and do other stuff. There is a fine line there. Experiment with the dosage a little. If I am having a rough week, I take 1.5 tablets and still sleep well. And also, even if I don't fall asleep for a long time one night, I play Gameboy, or solitaire in bed. It makes me a little more tired. But even if I don't fall asleep one night, I am overall STILL less fatigued. For a whole week I probably slept only three hours per night. OK I was pushing it!!! (bad !) but I felt the same! So now I try to sleep more and I feel better. But if I don't sleep much for one night, I don't panic. The next day won't be any worse than many other days before Provigil. I have a few Ambien at home, just in case I need them. I haven't tried them yet. I am afraid of nightmares!! Anything that messes with my sleep causes me to have nightmares. Last night I was dreaming that my in-laws made my dog pull a moving truck. How funny, we were talking about them taking my dogs for runs with their bike, which is actuall a trike (two wheels on front) and they have a harness for the dogs, to pull the bike. My dog is a Lab, and full of energy, and in my dream he was pulling a moving truck!! Gee!! Last night I went to bed after midnight, so today I took 2 Provigil. I am not very tired, but not motivated to get work done. Oh well, take care, Hi All, I want to thank everyone that responded to my post. The provigil has really helped with the fatigue and with the brain fog ( to a lesser degree) but I didn't like the side effects I had from it so I asked to cut it in half, so now I just take half a pill everyday. The first day I took provigil I couldn't get to sleep and I was very nervous and had dry mouth. I've had success in the past with other medications and then after a while they lose there affect. I hope this last for a while but I will take whatever I get. Thanks again. Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 This is wonderful news about Alyssa progress, how proud you all must be! It is stories like these that keep me going. Lynda Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Hi ! I'm glad you posted your great news to the group; it gives so many of us great hope. You are to be commended for all the hours of time, labor (not just with your baby!), and love you have put in with Alyssa....it really shows. I hope you will continue on with our group as an alum (!) to offer guidance to parents on the whole diet/ABA modes of treatment. I know how diligent you have been with both, and your hard work has really paid off! I'm interested in your feelings now about how you will address the whole idea of autism with Alyssa in the future...and now, for that matter? Thanks for all of your input and congrats again on your happy news. (Hope to get that playdate rescheduled soon too!!) --- -- Expect a miracle! > I just wanted to share some interesting news re: my 5y.o. daughter alyssa. > some of you may recall that she was diagnosed w/PDD-NOS 1 1/2 yrs ago. during > the past year, we modified our diet, eliminatig wheat,gluten,dairy,casein,egg > and soy (alyssa and younger sister gabi are both allergic) and doing an > intense regimen of ABA therapy in addition to preschool, communication station, > speech therapy and a dance class.... well, we just finished alyssa's > reevaluation with dr. anan at beaumont and she has concluded that alyssa no > longer meets > the diagnostic criteria for any autism spectrum (or other) disorder. she > still has areas of deficits which we will continue to address in her ABA > program, > though, so we aren't changing our plans for her yet. > > and... gabi is doing great on a " clean " diet and sophie has plumped up to 11 > lbs. now i just want to lose 20 lbs.... > > lauren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Regarding the change/elimination of the PDD label: I'm not totally sure how I feel about it. Having the diagnosis and all the interventions that come with it had actually become a comfortable place for me since we got it and got used to it! I'm not totally lost, though, because the interventions for Alyssa (now just ABA based, because she graduated from all speech therapies this summer) remain the same. Our behavioral intervention plan has always been one where our plan--not hope-- (hope is a little to passive for me, I like to have something I can actively work on) is that even the ABA and shadow at school are phased out by the end of this school year. Wish us luck--I'm hoping we're not in lala land. lauren by the way stephanie, any day next week (tues-fri) after 2:30 is good, same for the week after. take your pick! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 , What a great thing to share, I have a 3yr old whom we are thinking of trying this GF/CF diet on but i have so many concerns. Noah's diet is so limited now and he has never really had bowl trouble or stomach trouble (That we know of) and most of his allergie tests came back negative. What is ABA? progress I just wanted to share some interesting news re: my 5y.o. daughter alyssa. some of you may recall that she was diagnosed w/PDD-NOS 1 1/2 yrs ago. during the past year, we modified our diet, eliminatig wheat,gluten,dairy,casein,egg and soy (alyssa and younger sister gabi are both allergic) and doing an intense regimen of ABA therapy in addition to preschool, communication station, speech therapy and a dance class.... well, we just finished alyssa's reevaluation with dr. anan at beaumont and she has concluded that alyssa no longer meets the diagnostic criteria for any autism spectrum (or other) disorder. she still has areas of deficits which we will continue to address in her ABA program, though, so we aren't changing our plans for her yet. and... gabi is doing great on a "clean" diet and sophie has plumped up to 11 lbs. now i just want to lose 20 lbs.... lauren Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 , That is great news! Thanks for sharing this-it really goes to show how with hard work and persistence positive things can happen for our kids. Debbie -----Original Message-----From: Lsnirsch@... Sent: Thursday, August 28, 2003 8:54 PMTo: EverydayMiraclesAutism Subject: progressI just wanted to share some interesting news re: my 5y.o. daughter alyssa. some of you may recall that she was diagnosed w/PDD-NOS 1 1/2 yrs ago. during the past year, we modified our diet, eliminatig wheat,gluten,dairy,casein,egg and soy (alyssa and younger sister gabi are both allergic) and doing an intense regimen of ABA therapy in addition to preschool, communication station, speech therapy and a dance class.... well, we just finished alyssa's reevaluation with dr. anan at beaumont and she has concluded that alyssa no longer meets the diagnostic criteria for any autism spectrum (or other) disorder. she still has areas of deficits which we will continue to address in her ABA program, though, so we aren't changing our plans for her yet. and... gabi is doing great on a "clean" diet and sophie has plumped up to 11 lbs. now i just want to lose 20 lbs.... lauren Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Colin, I'm curious: what do you believe caused the " damage " ? I, too, am a huge believer that autism is neuro-biological and related to immune system disorder. I also believe that individuals with autism usually benefit greatly from sensory 'diets' as well 'non-toxic' diets. I believe that many types of autism are probably lifelong and pervasive, and many are not. Many children, if 'damaged' by external forces and not only as the result of genetics, can be helped...if proper and early intervention is given for that child's symptoms. I do not believe " that nothing short of a miracle can reverse it " . Certainly, miracles would be helpful (and cheaper!) but I have met and talked to many people whose children and teenagers no longer meet any criteria (DSM-IV-R, medical, social, behavioral) for autism. Many skeptics will say that these cases probably weren't ever autism to begin with, but I believe in my heart, that these cases are stories of recovery. If autism is truly a neuro-biological issue with medical interventions available, than why can't there be a cure? Look at all the other medical illnesses that have " cures " associated with them....and if not cures, then at least periods of remission where they are considered symptom-free!? I know we've had a rather heated on-line debate recently about accepting autism, and that this is just a part of who our children are, etc etc., and I don't intend to stir up any more heat with this topic. Everyone is entitled to their own opinions, and everyone's opinions on-line will be respected. Everyone lives a different life and walks a different path, and we can't judge anyone else's views about autism, about treatments for it, or about the possibility of living without it. But just imagine if medical research put in 1/10th of the money they put in for curing cancer into finding a cure for autism...what then? *****************************Expect a miracle!******************************* > Autism is a life-long, pervasive, neuro-biological, immune system disorder. ....... > The damage is done, and nothing short of a miracle can reverse it. Quote Link to comment Share on other sites More sharing options...
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