Disney World

[Guest guest]

Barb-

Ask about 's desert at the Crystal Palace.

Barb ºoº

<< Dear JoAnne,

How did you arrange meals at Disney? I was there several years back with my

older daughters but we didn't have to deal with this issue. Do you tell them

in advance? Is it certain restaurants? I'm very curious about how this is

handled.

Thanks Again!

Barb S.

>>

[Guest guest]

Dear JoAnne,

How did you arrange meals at Disney? I was there several years back with my older daughters but we didn't have to deal with this issue. Do you tell them in advance? Is it certain restaurants? I'm very curious about how this is handled.

Thanks Again!

Barb S.

[Guest guest]

Barb, when I called to make Priority Seating arrangements at the various

restaurants I asked for the # of the special chef and almost all the restaurants

had such a #. If they didn't have a special chef to call, they noted

the restrictions in their computer. I initially tried to call a couple

of special chefs a couple of days before the PS as advised but such wasn't

too productive as I'd either get a voicemail, or some such thing.

I instead asked to speak to the special chef upon our arrival at a restaurant.

I think the key is to call ahead though because a couple of restaurants

said they just ran out of gf, etc. pancake mix and I think had I called

in advance they would have had more in stock. So next time I would

go more out of my way to talk with the special chef in advance, to make

sure they have the ingredients in. There is a list, MosaicDisney (AT) e

started by my Disney mentor Barb Strate (the owner of this list as well)

and we're all happy to chat in further detail.

JoAnne

Sellix wrote:

Dear

JoAnne, How did you

arrange meals at Disney? I was there several years back with my older

daughters but we didn't have to deal with this issue. Do you tell

them in advance? Is it certain restaurants? I'm very curious

about how this is handled. Thanks

Again! Barb S.

Mosaic meets the 2nd Thursday morning and the 3rd Wednesday evening

of every month.

http://www.egroups.com/community/MosaicMoms

[Guest guest]

if you call Disney reservations 800 # ,,,they will give you all you all the

info on the meal schedules and reservations, also ......at the same time you

can make special diet request and do it for all the days you will be there,

for as many restaurants as you want and if you go into epcot just walk in ask

to speak to the chef and THEY WILL BE VERY UNDERSTANDING. ex. we walked

into the German place no reservations and it was buffet the chef came spoke

to us and made my son a plate with a grilled chicken breast with fresh fries.

He loved it..

Also as a foot note TGI Fridays is very accomodating as a whole.

Good luck.....

[Guest guest]

Just wondered if anyone has tried to go to DisneyWorld on this diet and if so, how did you handle it?

Marla

To: BTVC-SCD Sent: Wednesday, September 23, 2009 4:49:27 PMSubject: Re: tough day, big d, Pecanbread advice

My diagnosis is Crohn's disease, so this year I had my first three surgeries for tricky fistulas. It hasn't been fun. I think staying positive and thinking healing thoughts is important, that's why I'm excited about SCD. Yeah, I'm slowing down on foods. just chicken and jello and cheesecake today, I think some soup for dinner. There's a lot of really tasty things you can do on SCD, I just need to be patient. Pecan bread has helped make sense of things, and I got a new Cookbook, Healing Foods, COoking for Celiacs, COlitis, Crohn's, and IBS. It has some pretty amazing recipes in it, I'd recommend it to any one. I'm looking forward to these fistulas healing, as I've read SCD does pretty well. It'll just take time. I'll definitely be making my own buffalo wings from now on, a month or so down the road. I'll give y'all the recipe!!jonathan>> Hi , Ya gotta stay away from *any* processed food. Later on, when> your gut has healed some, you can make your own buffalo wings. Sorry you're> having a rotten day. It gets better - especially if you stay away from the> illegals! Make sure the cream you are using for yogurt is only cream - no> carageenan or other thickeners.> > The Electrolyte Drink is for dehydration. I drank it daily when I worked> outdoors for my job. It saved me from heat exhaustion often. My dehydration> issues seem to be diminishing, not sure why. I recently installed a Multi> Pure Water Filter and also started LDN (Low Dose Naltrexone). > > Welcome to the conversation. What is your diagnosis?> > Carol> > CD 21 yrs SCD 5 yrs>

> From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf> Of flandersjonathan@ ...> > > tough day so far, two severe d movements and I'm three weeks into this diet.> I'm back to jello and chicken, but it's not all bad. That cheesecake is> pretty tasty. I'm wondering if it's because I used cream instead of milk for> yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it> was all legal. Live and learn.> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was> wondering what the purpose of the Electrolyte drink was. Is this just

fluid> intake for kids, or is it something I've missed in the book that's really> beneficial to the diet? Just wondering. IF you don't know, just say hello,> it's nice to talk to somebody. > > jonathan>

[Guest guest]

Marla,

We have taken our boys to Disney several times in the past 4 years and I can tell you this...there is nearly nothing to eat there, but you can bring food in, they will just look through your bag at the gate. Other than fresh fruit (not much of that) and bottled water you are pretty much out of luck. Even when gluten/casein free it was a bit of a problem...very little selection and something my son ate that was supposedly okay had him tripping out by the end of the day. Your best bet is to eat before you go, take snacks and thermoses a-plenty and have a plan for what you are going to eat directly after.

Chrissy

mama to 3 boys on SCD 4 months

Subject: Re: Disney WorldTo: BTVC-SCD Date: Friday, September 25, 2009, 11:17 AM

Just wondered if anyone has tried to go to DisneyWorld on this diet and if so, how did you handle it?

Marla

From: "flandersjonathan@ ymail.com" <flandersjonathan@ ymail.com>To: BTVC-SCD@yahoogroup s.comSent: Wednesday, September 23, 2009 4:49:27 PMSubject: Re: tough day, big d, Pecanbread advice

My diagnosis is Crohn's disease, so this year I had my first three surgeries for tricky fistulas. It hasn't been fun. I think staying positive and thinking healing thoughts is important, that's why I'm excited about SCD. Yeah, I'm slowing down on foods. just chicken and jello and cheesecake today, I think some soup for dinner. There's a lot of really tasty things you can do on SCD, I just need to be patient. Pecan bread has helped make sense of things, and I got a new Cookbook, Healing Foods, COoking for Celiacs, COlitis, Crohn's, and IBS. It has some pretty amazing recipes in it, I'd recommend it to any one. I'm looking forward to these fistulas healing, as I've read SCD does pretty well. It'll just take time. I'll definitely be making my own buffalo wings from now on, a month or so down the road. I'll give y'all the recipe!!jonathan>> Hi , Ya gotta stay away from *any* processed food. Later on, when> your gut has healed some, you can make your own buffalo wings. Sorry you're> having a rotten day. It gets better - especially if you stay away from the> illegals! Make sure the cream you are using for yogurt is only cream - no> carageenan or other thickeners.> > The Electrolyte Drink is for dehydration. I drank it daily when I worked> outdoors for my job. It saved me from heat exhaustion often. My dehydration> issues seem to be diminishing, not sure why. I recently installed a Multi> Pure Water Filter and also started LDN (Low Dose Naltrexone). > > Welcome to the

conversation. What is your diagnosis?> > Carol> > CD 21 yrs SCD 5 yrs> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf> Of flandersjonathan@ ...> > > tough day so far, two severe d movements and I'm three weeks into this diet.> I'm back to jello and chicken, but it's not all bad. That cheesecake is> pretty tasty. I'm wondering if it's because I used cream instead of milk for> yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it> was all legal. Live and learn.> > Anyways, I'm trying

to follow the stages on Pecanbread.com, and I was> wondering what the purpose of the Electrolyte drink was. Is this just fluid> intake for kids, or is it something I've missed in the book that's really> beneficial to the diet? Just wondering. IF you don't know, just say hello,> it's nice to talk to somebody. > > jonathan>

[Guest guest]

That really bums me out. When I called Disney, they made it sound like they are so accomodating and we all know they are the epitome of making you feel comfortable at all costs. So I guess I was really hoping it would work to actually not have to cook while on vacation.

I really wanted to go cheap and stay at a in park hotel and the cheaper ones don't have a kitchenette. So here's the next question- where did you stay? Obviously somewhere with a kitchen. but where?

We are trying to go as cheap as possible and are driving and not flying so that will help. But the food thing has me stressed (well, it always has me stressed!!!).

Anyway, let me know of any tips.

Marla

To: BTVC-SCD Sent: Friday, September 25, 2009 11:31:12 AMSubject: Re: Disney World

Marla,

We have taken our boys to Disney several times in the past 4 years and I can tell you this...there is nearly nothing to eat there, but you can bring food in, they will just look through your bag at the gate. Other than fresh fruit (not much of that) and bottled water you are pretty much out of luck. Even when gluten/casein free it was a bit of a problem...very little selection and something my son ate that was supposedly okay had him tripping out by the end of the day. Your best bet is to eat before you go, take snacks and thermoses a-plenty and have a plan for what you are going to eat directly after.

Chrissy

mama to 3 boys on SCD 4 months

From: Dusty Pruett <dustman8625@ sbcglobal. net>Subject: Re: Disney WorldTo: BTVC-SCD@yahoogroup s.comDate: Friday, September 25, 2009, 11:17 AM

Just wondered if anyone has tried to go to DisneyWorld on this diet and if so, how did you handle it?

Marla

From: "flandersjonathan@ ymail.com" <flandersjonathan@ ymail.com>To: BTVC-SCD@yahoogroup s.comSent: Wednesday, September 23, 2009 4:49:27 PMSubject: Re: tough day, big d, Pecanbread advice

My diagnosis is Crohn's disease, so this year I had my first three surgeries for tricky fistulas. It hasn't been fun. I think staying positive and thinking healing thoughts is important, that's why I'm excited about SCD. Yeah, I'm slowing down on foods. just chicken and jello and cheesecake today, I think some soup for dinner. There's a lot of really tasty things you can do on SCD, I just need to be patient. Pecan bread has helped make sense of things, and I got a new Cookbook, Healing Foods, COoking for Celiacs, COlitis, Crohn's, and IBS. It has some pretty amazing recipes in it, I'd recommend it to any one. I'm looking forward to these fistulas healing, as I've read SCD does pretty well. It'll just take time. I'll definitely be making my own buffalo wings from now on, a month or so down the road. I'll give y'all the recipe!!jonathan>> Hi , Ya gotta stay away from *any* processed food. Later on, when> your gut has healed some, you can make your own buffalo wings. Sorry you're> having a rotten day. It gets better - especially if you stay away from the> illegals! Make sure the cream you are using for yogurt is only cream - no> carageenan or other thickeners.> > The Electrolyte Drink is for dehydration. I drank it daily when I worked> outdoors for my job. It saved me from heat exhaustion often. My dehydration> issues seem to be diminishing, not sure why. I recently installed a Multi> Pure Water Filter and also started LDN (Low Dose Naltrexone). > > Welcome to the conversation. What is your diagnosis?>

> Carol> > CD 21 yrs SCD 5 yrs> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf> Of flandersjonathan@ ...> > > tough day so far, two severe d movements and I'm three weeks into this diet.> I'm back to jello and chicken, but it's not all bad. That cheesecake is> pretty tasty. I'm wondering if it's because I used cream instead of milk for> yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it> was all legal. Live and learn.> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was> wondering

what the purpose of the Electrolyte drink was. Is this just fluid> intake for kids, or is it something I've missed in the book that's really> beneficial to the diet? Just wondering. IF you don't know, just say hello,> it's nice to talk to somebody. > > jonathan>

[Guest guest]

Misty took her daughter and they were veryaccommodating.I'm sure she'll comment later. That really bums me out. When I called Disney, they made it sound like they are so accomodating and we all know they are the epitome of making you feel comfortable at all costs. So I guess I was really hoping it would work to actually not have to cook while on vacation. I really wanted to go cheap and stay at a in park hotel and the cheaper ones don't have a kitchenette. So here's the next question- where did you stay? Obviously somewhere with a kitchen. but where?We are trying to go as cheap as possible and are driving and not flying so that will help. But the food thing has me stressed (well, it always has me stressed!!!).Anyway, let me know of any tips.Marla To: BTVC-SCD Sent: Friday, September 25, 2009 11:31:12 AMSubject: Re: Disney WorldMarla,We have taken our boys to Disney several times in the past 4 years and I can tell you this...there is nearly nothing to eat there, but you can bring food in, they will just look through your bag at the gate. Other than fresh fruit (not much of that) and bottled water you are pretty much out of luck. Even when gluten/casein free it was a bit of a problem...very little selection and something my son ate that was supposedly okay had him tripping out by the end of the day. Your best bet is to eat before you go, take snacks and thermoses a-plenty and have a plan for what you are going to eat directly after. :)Chrissymama to 3 boys on SCD 4 monthsFrom: Dusty Pruett <dustman8625@ sbcglobal. net>Subject: Re: Disney WorldTo: BTVC-SCD@yahoogroup s.comDate: Friday, September 25, 2009, 11:17 AM Just wondered if anyone has tried to go to DisneyWorld on this diet and if so, how did you handle it?Marla From: "flandersjonathan@ ymail.com" <flandersjonathan@ ymail.com>To: BTVC-SCD@yahoogroup s.comSent: Wednesday, September 23, 2009 4:49:27 PMSubject: Re: tough day, big d, Pecanbread advice My diagnosis is Crohn's disease, so this year I had my first three surgeries for tricky fistulas. It hasn't been fun. I think staying positive and thinking healing thoughts is important, that's why I'm excited about SCD. Yeah, I'm slowing down on foods. just chicken and jello and cheesecake today, I think some soup for dinner. There's a lot of really tasty things you can do on SCD, I just need to be patient. Pecan bread has helped make sense of things, and I got a new Cookbook, Healing Foods, COoking for Celiacs, COlitis, Crohn's, and IBS. It has some pretty amazing recipes in it, I'd recommend it to any one. I'm looking forward to these fistulas healing, as I've read SCD does pretty well. It'll just take time. I'll definitely be making my own buffalo wings from now on, a month or so down the road. I'll give y'all the recipe!!jonathan>> Hi , Ya gotta stay away from *any* processed food. Later on, when> your gut has healed some, you can make your own buffalo wings. Sorry you're> having a rotten day. It gets better - especially if you stay away from the> illegals! Make sure the cream you are using for yogurt is only cream - no> carageenan or other thickeners.> > The Electrolyte Drink is for dehydration. I drank it daily when I worked> outdoors for my job. It saved me from heat exhaustion often. My dehydration> issues seem to be diminishing, not sure why. I recently installed a Multi> Pure Water Filter and also started LDN (Low Dose Naltrexone). > > Welcome to the conversation. What is your diagnosis?> > Carol> > CD 21 yrs SCD 5 yrs> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf> Of flandersjonathan@ ...> > > tough day so far, two severe d movements and I'm three weeks into this diet.> I'm back to jello and chicken, but it's not all bad. That cheesecake is> pretty tasty. I'm wondering if it's because I used cream instead of milk for> yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it> was all legal. Live and learn.> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was> wondering what the purpose of the Electrolyte drink was. Is this just fluid> intake for kids, or is it something I've missed in the book that's really> beneficial to the diet? Just wondering. IF you don't know, just say hello,> it's nice to talk to somebody. > > jonathan>

[Guest guest]

Strange - I went to Disney World when I was only gluten and dairy free and they

were extremely acommodating to me. I've also been to Disneyland and had the same

great experience. I ate really well and all the managers were very familiar with

what was gluten free and dairy free. Each restaurant has a notebook with

ingredients listed for each item, so you can look through it yourself. I do

think that SCD would be quite a bit harder though.

If you stay at a Disney resort and call ahead and talk to the head chef, they

will prepare for you and make just about anything you need that is possible for

them to get ahold of. Of course, this is more expensive...

Liz

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

Strange - I went to Disney World when I was only gluten and dairy free and they

were extremely acommodating to me. I've also been to Disneyland and had the same

great experience. I ate really well and all the managers were very familiar with

what was gluten free and dairy free. Each restaurant has a notebook with

ingredients listed for each item, so you can look through it yourself. I do

think that SCD would be quite a bit harder though.

If you stay at a Disney resort and call ahead and talk to the head chef, they

will prepare for you and make just about anything you need that is possible for

them to get ahold of. Of course, this is more expensive...

Liz

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

Strange - I went to Disney World when I was only gluten and dairy free and they

were extremely acommodating to me. I've also been to Disneyland and had the same

great experience. I ate really well and all the managers were very familiar with

what was gluten free and dairy free. Each restaurant has a notebook with

ingredients listed for each item, so you can look through it yourself. I do

think that SCD would be quite a bit harder though.

If you stay at a Disney resort and call ahead and talk to the head chef, they

will prepare for you and make just about anything you need that is possible for

them to get ahold of. Of course, this is more expensive...

Liz

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

Marla,

I am sorry to sound so down on Disney...they weren't UNACCOMMODATING...they are

just a little limited in what they could do for us at a price we could stomach,

no pun intended. There is a restaurant called Liberty Inn that was

accommodating but SOOOOO expensive that we literally could not afford it. We

are debt free and do not use credit cards at all and the amount our dinner would

have been for two adults and two children was absolutely outrageous and would

have used up all our cash...and we brought a lot. We only spent one night in a

hotel so we didn't get a kitchenette...we just ate out of our cooler and then

ate at the park in the tomorrowland restaurant...a meal that was frankly pretty

awful. We were just GFCF at the time...how would you eat there and not get

marinated meats? I would have trouble trusting them. SCD is much harder to be

accommodating of, imo. If you have the money...get a kitchenette and eat at the

Liberty Inn.

Chrissy

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

Marla,

I am sorry to sound so down on Disney...they weren't UNACCOMMODATING...they are

just a little limited in what they could do for us at a price we could stomach,

no pun intended. There is a restaurant called Liberty Inn that was

accommodating but SOOOOO expensive that we literally could not afford it. We

are debt free and do not use credit cards at all and the amount our dinner would

have been for two adults and two children was absolutely outrageous and would

have used up all our cash...and we brought a lot. We only spent one night in a

hotel so we didn't get a kitchenette...we just ate out of our cooler and then

ate at the park in the tomorrowland restaurant...a meal that was frankly pretty

awful. We were just GFCF at the time...how would you eat there and not get

marinated meats? I would have trouble trusting them. SCD is much harder to be

accommodating of, imo. If you have the money...get a kitchenette and eat at the

Liberty Inn.

Chrissy

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

Marla,

I am sorry to sound so down on Disney...they weren't UNACCOMMODATING...they are

just a little limited in what they could do for us at a price we could stomach,

no pun intended. There is a restaurant called Liberty Inn that was

accommodating but SOOOOO expensive that we literally could not afford it. We

are debt free and do not use credit cards at all and the amount our dinner would

have been for two adults and two children was absolutely outrageous and would

have used up all our cash...and we brought a lot. We only spent one night in a

hotel so we didn't get a kitchenette...we just ate out of our cooler and then

ate at the park in the tomorrowland restaurant...a meal that was frankly pretty

awful. We were just GFCF at the time...how would you eat there and not get

marinated meats? I would have trouble trusting them. SCD is much harder to be

accommodating of, imo. If you have the money...get a kitchenette and eat at the

Liberty Inn.

Chrissy

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

they are awesome!!!! it's the only place I've eaten out at (except for a wedding

i was in ) LOL but still bought mostly my one - but at Disney yes you can bring

stuff no glass jars - but they were so accomadting I was intro and a smidge of

stage 1 and they actually cooked my carrots for 4 hours as I did the park and

then i had steak and carrots with dinner like a real person in the family -

hasn't happened since - so spoiled didn't want to leave - just call and email if

needed speak to them ahead of time explaining everything and then speak to each

chef as you arrive to each place- I think you'll have a great time!!

eileen 20 months scd

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

they are awesome!!!! it's the only place I've eaten out at (except for a wedding

i was in ) LOL but still bought mostly my one - but at Disney yes you can bring

stuff no glass jars - but they were so accomadting I was intro and a smidge of

stage 1 and they actually cooked my carrots for 4 hours as I did the park and

then i had steak and carrots with dinner like a real person in the family -

hasn't happened since - so spoiled didn't want to leave - just call and email if

needed speak to them ahead of time explaining everything and then speak to each

chef as you arrive to each place- I think you'll have a great time!!

eileen 20 months scd

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

they are awesome!!!! it's the only place I've eaten out at (except for a wedding

i was in ) LOL but still bought mostly my one - but at Disney yes you can bring

stuff no glass jars - but they were so accomadting I was intro and a smidge of

stage 1 and they actually cooked my carrots for 4 hours as I did the park and

then i had steak and carrots with dinner like a real person in the family -

hasn't happened since - so spoiled didn't want to leave - just call and email if

needed speak to them ahead of time explaining everything and then speak to each

chef as you arrive to each place- I think you'll have a great time!!

eileen 20 months scd

> >

> > Hi , Ya gotta stay away from *any* processed food. Later on, when

> > your gut has healed some, you can make your own buffalo wings. Sorry you're

> > having a rotten day. It gets better - especially if you stay away from the

> > illegals! Make sure the cream you are using for yogurt is only cream - no

> > carageenan or other thickeners.

> >

> > The Electrolyte Drink is for dehydration. I drank it daily when I worked

> > outdoors for my job. It saved me from heat exhaustion often. My dehydration

> > issues seem to be diminishing, not sure why. I recently installed a Multi

> > Pure Water Filter and also started LDN (Low Dose Naltrexone).

> >

> > Welcome to the conversation. What is your diagnosis?

> >

> > Carol

> >

> > CD 21 yrs SCD 5 yrs

> >

> > From: BTVC-SCD@yahoogroup s.com [mailto:BTVC-SCD@yahoogroup s.com] On Behalf

> > Of flandersjonathan@ ...

> >

> >

> > tough day so far, two severe d movements and I'm three weeks into this diet.

> > I'm back to jello and chicken, but it's not all bad. That cheesecake is

> > pretty tasty. I'm wondering if it's because I used cream instead of milk for

> > yogurt? Or it could be I had buffalo wings yesterday, and I'm not sure if it

> > was all legal. Live and learn.

> >

> > Anyways, I'm trying to follow the stages on Pecanbread.com, and I was

> > wondering what the purpose of the Electrolyte drink was. Is this just fluid

> > intake for kids, or is it something I've missed in the book that's really

> > beneficial to the diet? Just wondering. IF you don't know, just say hello,

> > it's nice to talk to somebody.

> >

> > jonathan

> >

>

[Guest guest]

Disney was soooo accommodating. I ate out 3 times in the 5 days I was there. I

ate once at the Rainforest cafe. The kitchen manager came out and talked to me.

I got bacon wrapped fresh shrimp and plain steamed veggies. Another day we went

and had lunch with the Princesses in the around the world place. The actual chef

came out and talked to me. One other time, I ate at a burger place. The kitchen

manager had them clean the grill and cook me a fresh hamburger patty no

seasonings. I did not react in Disney. I had been on the diet for about 8

months.

What I did the rest of the time:

I cooked about 4 pounds of chicken breasts and froze them in individual baggies.

I boiled 2 dozen eggs. Honey. And some homemade salad dressing.

I packed all that in one of those pyrex carrying cases with every single frozen

pack I could fit in there. I called ahead and had a fridge put in the room. I

packed it in my bag that was checked in (can't bring any of that onboard). This

was all in the bag for about 8 hours and when I got to the hotel it was all

still frozen rock hard. I brought a small icechest lunchbox thing to carry my

food in at Disney. The eggs were even frozen. Each day I started out with a

chicken breast, an egg or 2, and some frest fruit. I packed my bag with a couple

chicken breasts, a couple eggs and my salad dressing. I would order a plain

salad and put the chicken and/or eggs on it. For dinner, the same thing. At the

time, I was tolerating raw fruits and veggies better than now.

Eileen also went and I think she stayed in a hotel that offered food and I think

they actually prepared food for her. The place I stayed in had a common food

area that didn't prepare anything. It wasn't that bad.

Preparation is the key. If you can call ahead to the restaurants you want to eat

at and let them know your exact restrictions, they will work with you. If you

are super sensitive, you might have issues or if the person doesn't understand

your request. Make sure you talk directly to the kitchen manager or chef. When

you say gluten and they aren't sure what that is, talk to someone else. If you

talk to them ahead of time, it will make things much easier. I didn't, but I was

lucky. I felt so special having the chef come out and talk to me. Instead of

embarassment, I was happy they went out of their way to help.

Look in the documents of the group. There is a document you can print out to

bring with you and give to the kitchen staff.

Misty Kimble

CD - no meds

SCD - 20 months

>

> Just wondered if anyone has tried to go to DisneyWorld on this diet and if so,

how did you handle it?

> Marla

[Guest guest]

Disney was soooo accommodating. I ate out 3 times in the 5 days I was there. I

ate once at the Rainforest cafe. The kitchen manager came out and talked to me.

I got bacon wrapped fresh shrimp and plain steamed veggies. Another day we went

and had lunch with the Princesses in the around the world place. The actual chef

came out and talked to me. One other time, I ate at a burger place. The kitchen

manager had them clean the grill and cook me a fresh hamburger patty no

seasonings. I did not react in Disney. I had been on the diet for about 8

months.

What I did the rest of the time:

I cooked about 4 pounds of chicken breasts and froze them in individual baggies.

I boiled 2 dozen eggs. Honey. And some homemade salad dressing.

I packed all that in one of those pyrex carrying cases with every single frozen

pack I could fit in there. I called ahead and had a fridge put in the room. I

packed it in my bag that was checked in (can't bring any of that onboard). This

was all in the bag for about 8 hours and when I got to the hotel it was all

still frozen rock hard. I brought a small icechest lunchbox thing to carry my

food in at Disney. The eggs were even frozen. Each day I started out with a

chicken breast, an egg or 2, and some frest fruit. I packed my bag with a couple

chicken breasts, a couple eggs and my salad dressing. I would order a plain

salad and put the chicken and/or eggs on it. For dinner, the same thing. At the

time, I was tolerating raw fruits and veggies better than now.

Eileen also went and I think she stayed in a hotel that offered food and I think

they actually prepared food for her. The place I stayed in had a common food

area that didn't prepare anything. It wasn't that bad.

Preparation is the key. If you can call ahead to the restaurants you want to eat

at and let them know your exact restrictions, they will work with you. If you

are super sensitive, you might have issues or if the person doesn't understand

your request. Make sure you talk directly to the kitchen manager or chef. When

you say gluten and they aren't sure what that is, talk to someone else. If you

talk to them ahead of time, it will make things much easier. I didn't, but I was

lucky. I felt so special having the chef come out and talk to me. Instead of

embarassment, I was happy they went out of their way to help.

Look in the documents of the group. There is a document you can print out to

bring with you and give to the kitchen staff.

Misty Kimble

CD - no meds

SCD - 20 months

>

> Just wondered if anyone has tried to go to DisneyWorld on this diet and if so,

how did you handle it?

> Marla

[Guest guest]

Disney was soooo accommodating. I ate out 3 times in the 5 days I was there. I

ate once at the Rainforest cafe. The kitchen manager came out and talked to me.

I got bacon wrapped fresh shrimp and plain steamed veggies. Another day we went

and had lunch with the Princesses in the around the world place. The actual chef

came out and talked to me. One other time, I ate at a burger place. The kitchen

manager had them clean the grill and cook me a fresh hamburger patty no

seasonings. I did not react in Disney. I had been on the diet for about 8

months.

What I did the rest of the time:

I cooked about 4 pounds of chicken breasts and froze them in individual baggies.

I boiled 2 dozen eggs. Honey. And some homemade salad dressing.

I packed all that in one of those pyrex carrying cases with every single frozen

pack I could fit in there. I called ahead and had a fridge put in the room. I

packed it in my bag that was checked in (can't bring any of that onboard). This

was all in the bag for about 8 hours and when I got to the hotel it was all

still frozen rock hard. I brought a small icechest lunchbox thing to carry my

food in at Disney. The eggs were even frozen. Each day I started out with a

chicken breast, an egg or 2, and some frest fruit. I packed my bag with a couple

chicken breasts, a couple eggs and my salad dressing. I would order a plain

salad and put the chicken and/or eggs on it. For dinner, the same thing. At the

time, I was tolerating raw fruits and veggies better than now.

Eileen also went and I think she stayed in a hotel that offered food and I think

they actually prepared food for her. The place I stayed in had a common food

area that didn't prepare anything. It wasn't that bad.

Preparation is the key. If you can call ahead to the restaurants you want to eat

at and let them know your exact restrictions, they will work with you. If you

are super sensitive, you might have issues or if the person doesn't understand

your request. Make sure you talk directly to the kitchen manager or chef. When

you say gluten and they aren't sure what that is, talk to someone else. If you

talk to them ahead of time, it will make things much easier. I didn't, but I was

lucky. I felt so special having the chef come out and talk to me. Instead of

embarassment, I was happy they went out of their way to help.

Look in the documents of the group. There is a document you can print out to

bring with you and give to the kitchen staff.

Misty Kimble

CD - no meds

SCD - 20 months

>

> Just wondered if anyone has tried to go to DisneyWorld on this diet and if so,

how did you handle it?

> Marla

[Guest guest]

I've been to Disney World many many years ago when my diet was MUCH

more limited than SCD is. We had rented a condo so had a kitchen,

and as we were staying with the in-laws in Sarasota, I prepared

whatever it was I would need there, brought it with us in a

cooler. Then each day I would load my lunch and snack stuff into my

large purse. I think I was on legumes in those days for my protein

and would take a frozen container out just as we left and by the time

I needed it, it was thawed. I augmented my bare necessities with

fruit and things I could have when I could find them. It took

pre-planning but worked out pretty well.

[Guest guest]

I've been to Disney World many many years ago when my diet was MUCH

more limited than SCD is. We had rented a condo so had a kitchen,

and as we were staying with the in-laws in Sarasota, I prepared

whatever it was I would need there, brought it with us in a

cooler. Then each day I would load my lunch and snack stuff into my

large purse. I think I was on legumes in those days for my protein

and would take a frozen container out just as we left and by the time

I needed it, it was thawed. I augmented my bare necessities with

fruit and things I could have when I could find them. It took

pre-planning but worked out pretty well.

[Guest guest]

Even way back when I only had to cope with hypoglycemia I couldn't

get anything but some fruit at Disney World or land. You just have

to know that. The visit I mentioned in the other note, my MIL had

found a new condo place that was renting the units very cheaply as a

come-on hoping we would buy one. It was really nice, and of course

had a full kitchen. I don't know if there's anything like this now,

but surely in the area there would be a variety of accommodations.

If that doesn't work, three years ago this time we had to make a mad

dash from the Seattle area to south TX for a deathbed visit to my

brother. Between the IBS requiring a bathroom and my diet requiring

a frig and freezer, we rented an RV. It was the only way. We didn't

have enough rental time with the RV to stay at RV parks so we stayed

at motels. All but one of them had small frigs and microwaves in

the rooms. So we ate breakfasts and dinners from the RV supplies,

and lunch as we went. Now, an RV and motels, too, is expensive!

but we had no choice then. I'm wondering if with a few coolers, you

could manage for a few days in a motel this way? You'd need to be

able to shop, but there's usually some place if you look.

[Guest guest]

Even way back when I only had to cope with hypoglycemia I couldn't

get anything but some fruit at Disney World or land. You just have

to know that. The visit I mentioned in the other note, my MIL had

found a new condo place that was renting the units very cheaply as a

come-on hoping we would buy one. It was really nice, and of course

had a full kitchen. I don't know if there's anything like this now,

but surely in the area there would be a variety of accommodations.

If that doesn't work, three years ago this time we had to make a mad

dash from the Seattle area to south TX for a deathbed visit to my

brother. Between the IBS requiring a bathroom and my diet requiring

a frig and freezer, we rented an RV. It was the only way. We didn't

have enough rental time with the RV to stay at RV parks so we stayed

at motels. All but one of them had small frigs and microwaves in

the rooms. So we ate breakfasts and dinners from the RV supplies,

and lunch as we went. Now, an RV and motels, too, is expensive!

but we had no choice then. I'm wondering if with a few coolers, you

could manage for a few days in a motel this way? You'd need to be

able to shop, but there's usually some place if you look.

[Guest guest]

I took along cheese, nuts, hard boiled eggs, avocado, and lots of scd cookies. I had a smoothie in the morning before leaving, and the rest of the day I kept snacking. I was hungry but energetic because of the protein snacks. At ight back in the hotel room, I microwave my prepared meals. Yum! I checked in with the airline a box of my foods, all frozen in advance. In the hotel I had a microwave and fridge, and I brought my blender.

I also remember not having a bm the entire time because of the atmosphere change. Horrid.

Enjoy!