Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Hi, Donna, Oh my gosh, your son sound like he is celiac (like mine). Did he get tested? My son's improvement was also immediate and marked. I'm so glad you found out the problem. Lots of celiacs become dairy allergic or lactose intolerant after all the damage done to their intestines by the gluten. Their bodies simply cannot handle the milk protein. My dude is also dairy allergic, but we were hoping he would grow out of it - maybe not, after reading your post! LOL We use the Food For Life Buthanese Red Rice Bread, and love it. We do order Kinnikinnick sometimes, but he prefers the red rice. The absolute BEST gluten free bread is the Bob's Red Mill GF wonderful bread mix, but you have to make it yourself, and who has time for that?? LOL We have 3 bags of it ready to be made, and let me tell you, they've been sitting there for a few months. On CeliacKids (another group I am on), they've been talking about Crunch Toons - they are similar to goldfish, shaped like Loony Toons characters, and gluten free. The regular flavor is also dairy free. We haven't found them yet here, but they are supposed to be in all Target, Walmart, CVS (east coast), Safeway (west coast), etc. AND, lastly, we found an Oreo cookie that is gluten free! It's made by MiDel, and it looks *exactly* like an Oreo, and it is GF and dairy free. Of course, Jake prefers to eat all the cream out of the middle - next time I'll just buy him a box of cream filling! LOL Welcome to the group! Heidi, mom to Cal, 6.5, and Jake, 4, celiac, allergic to dairy, pollen, dust mites Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Hi Heidi, I really don't Know 100% if Shane is Celiac or not. We never had him formally tested, it was strictly a clinical thing with his Pediatrician, but here is some background on Shane. Shane has been sick since birth, and his life was so different compared to kids that he's gone to school with since nursery school, and the weird part is, to look at him he looks so healthy, and that's the part I could never understand. I would always think he had the flu, or picked up a bug, because he didn't have a fever, or look like he was sick, but would have cramping, sharp pains, the diarrhea so bad that once he was home from school for over a week because he had no control, it would just leek all over, rashes, hives, and vomiting all the time. When he would get a cold he would get a fever right away, a bronchitis cough with all this junk, was always on antibiotics, and we were always at the ER because of the asthma until we got equipment to have at home. Bronchitis was always a given, and he's had pneumonia, and pleurisy. He was averaging 46 days absent per school year. We always new he was lactose intolerant, had asthma, and allergies, but in my gut I knew there was something else. I was constantly taking him to Doctors. I became so disgusted that I posted an e-mail to a group I belonged to, and that's when I found Anne who responded that he sounded like a poster child for Celiac. With her help as my mentor, a new pediatrician, and a Celiac diet he's a different child. The diarrhea stopped, so did the vomiting, rashes, and hives. He got his first cold a week ago Friday, and got through it himself, the first time in his life, and hasn't had any problems with asthma since he's been on the gluten-free diet. In looking back, because I lacked the knowledge, I should have probably had him have a blood test or something, but I just wanted him to get better. In 9 1/2 years he's trick or treated twice, because he was always vomiting.I just didn't know enough at the time, and now it's going so well. He's been gluten-free since May. I just can't stand the thought of him being how he was to do the tests now, and who knows, he's only 9 1/2, and medicine is always advancing, maybe there will be a test in the future where I don't have to make him sick in order to do it. Thanks for listening.Donna Re: Donna Hi, Donna,Oh my gosh, your son sound like he is celiac (like mine). Did he get tested? My son's improvement was also immediate and marked. I'm so glad you found out the problem.Lots of celiacs become dairy allergic or lactose intolerant after all the damage done to their intestines by the gluten. Their bodies simply cannot handle the milk protein. My dude is also dairy allergic, but we were hoping he would grow out of it - maybe not, after reading your post! LOLWe use the Food For Life Buthanese Red Rice Bread, and love it. We do order Kinnikinnick sometimes, but he prefers the red rice. The absolute BEST gluten free bread is the Bob's Red Mill GF wonderful bread mix, but you have to make it yourself, and who has time for that?? LOL We have 3 bags of it ready to be made, and let me tell you, they've been sitting there for a few months. <sigh>On CeliacKids (another group I am on), they've been talking about Crunch Toons - they are similar to goldfish, shaped like Loony Toons characters, and gluten free. The regular flavor is also dairy free. We haven't found them yet here, but they are supposed to be in all Target, Walmart, CVS (east coast), Safeway (west coast), etc.AND, lastly, we found an Oreo cookie that is gluten free! It's made by MiDel, and it looks *exactly* like an Oreo, and it is GF and dairy free. Of course, Jake prefers to eat all the cream out of the middle - next time I'll just buy him a box of cream filling! LOLWelcome to the group!Heidi, mom to Cal, 6.5, and Jake, 4, celiac, allergic to dairy, pollen, dust mites Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Hi Heidi, I really don't Know 100% if Shane is Celiac or not. We never had him formally tested, it was strictly a clinical thing with his Pediatrician, but here is some background on Shane. Shane has been sick since birth, and his life was so different compared to kids that he's gone to school with since nursery school, and the weird part is, to look at him he looks so healthy, and that's the part I could never understand. I would always think he had the flu, or picked up a bug, because he didn't have a fever, or look like he was sick, but would have cramping, sharp pains, the diarrhea so bad that once he was home from school for over a week because he had no control, it would just leek all over, rashes, hives, and vomiting all the time. When he would get a cold he would get a fever right away, a bronchitis cough with all this junk, was always on antibiotics, and we were always at the ER because of the asthma until we got equipment to have at home. Bronchitis was always a given, and he's had pneumonia, and pleurisy. He was averaging 46 days absent per school year. We always new he was lactose intolerant, had asthma, and allergies, but in my gut I knew there was something else. I was constantly taking him to Doctors. I became so disgusted that I posted an e-mail to a group I belonged to, and that's when I found Anne who responded that he sounded like a poster child for Celiac. With her help as my mentor, a new pediatrician, and a Celiac diet he's a different child. The diarrhea stopped, so did the vomiting, rashes, and hives. He got his first cold a week ago Friday, and got through it himself, the first time in his life, and hasn't had any problems with asthma since he's been on the gluten-free diet. In looking back, because I lacked the knowledge, I should have probably had him have a blood test or something, but I just wanted him to get better. In 9 1/2 years he's trick or treated twice, because he was always vomiting.I just didn't know enough at the time, and now it's going so well. He's been gluten-free since May. I just can't stand the thought of him being how he was to do the tests now, and who knows, he's only 9 1/2, and medicine is always advancing, maybe there will be a test in the future where I don't have to make him sick in order to do it. Thanks for listening.Donna Re: Donna Hi, Donna,Oh my gosh, your son sound like he is celiac (like mine). Did he get tested? My son's improvement was also immediate and marked. I'm so glad you found out the problem.Lots of celiacs become dairy allergic or lactose intolerant after all the damage done to their intestines by the gluten. Their bodies simply cannot handle the milk protein. My dude is also dairy allergic, but we were hoping he would grow out of it - maybe not, after reading your post! LOLWe use the Food For Life Buthanese Red Rice Bread, and love it. We do order Kinnikinnick sometimes, but he prefers the red rice. The absolute BEST gluten free bread is the Bob's Red Mill GF wonderful bread mix, but you have to make it yourself, and who has time for that?? LOL We have 3 bags of it ready to be made, and let me tell you, they've been sitting there for a few months. <sigh>On CeliacKids (another group I am on), they've been talking about Crunch Toons - they are similar to goldfish, shaped like Loony Toons characters, and gluten free. The regular flavor is also dairy free. We haven't found them yet here, but they are supposed to be in all Target, Walmart, CVS (east coast), Safeway (west coast), etc.AND, lastly, we found an Oreo cookie that is gluten free! It's made by MiDel, and it looks *exactly* like an Oreo, and it is GF and dairy free. Of course, Jake prefers to eat all the cream out of the middle - next time I'll just buy him a box of cream filling! LOLWelcome to the group!Heidi, mom to Cal, 6.5, and Jake, 4, celiac, allergic to dairy, pollen, dust mites Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Hi Heidi, I really don't Know 100% if Shane is Celiac or not. We never had him formally tested, it was strictly a clinical thing with his Pediatrician, but here is some background on Shane. Shane has been sick since birth, and his life was so different compared to kids that he's gone to school with since nursery school, and the weird part is, to look at him he looks so healthy, and that's the part I could never understand. I would always think he had the flu, or picked up a bug, because he didn't have a fever, or look like he was sick, but would have cramping, sharp pains, the diarrhea so bad that once he was home from school for over a week because he had no control, it would just leek all over, rashes, hives, and vomiting all the time. When he would get a cold he would get a fever right away, a bronchitis cough with all this junk, was always on antibiotics, and we were always at the ER because of the asthma until we got equipment to have at home. Bronchitis was always a given, and he's had pneumonia, and pleurisy. He was averaging 46 days absent per school year. We always new he was lactose intolerant, had asthma, and allergies, but in my gut I knew there was something else. I was constantly taking him to Doctors. I became so disgusted that I posted an e-mail to a group I belonged to, and that's when I found Anne who responded that he sounded like a poster child for Celiac. With her help as my mentor, a new pediatrician, and a Celiac diet he's a different child. The diarrhea stopped, so did the vomiting, rashes, and hives. He got his first cold a week ago Friday, and got through it himself, the first time in his life, and hasn't had any problems with asthma since he's been on the gluten-free diet. In looking back, because I lacked the knowledge, I should have probably had him have a blood test or something, but I just wanted him to get better. In 9 1/2 years he's trick or treated twice, because he was always vomiting.I just didn't know enough at the time, and now it's going so well. He's been gluten-free since May. I just can't stand the thought of him being how he was to do the tests now, and who knows, he's only 9 1/2, and medicine is always advancing, maybe there will be a test in the future where I don't have to make him sick in order to do it. Thanks for listening.Donna Re: Donna Hi, Donna,Oh my gosh, your son sound like he is celiac (like mine). Did he get tested? My son's improvement was also immediate and marked. I'm so glad you found out the problem.Lots of celiacs become dairy allergic or lactose intolerant after all the damage done to their intestines by the gluten. Their bodies simply cannot handle the milk protein. My dude is also dairy allergic, but we were hoping he would grow out of it - maybe not, after reading your post! LOLWe use the Food For Life Buthanese Red Rice Bread, and love it. We do order Kinnikinnick sometimes, but he prefers the red rice. The absolute BEST gluten free bread is the Bob's Red Mill GF wonderful bread mix, but you have to make it yourself, and who has time for that?? LOL We have 3 bags of it ready to be made, and let me tell you, they've been sitting there for a few months. <sigh>On CeliacKids (another group I am on), they've been talking about Crunch Toons - they are similar to goldfish, shaped like Loony Toons characters, and gluten free. The regular flavor is also dairy free. We haven't found them yet here, but they are supposed to be in all Target, Walmart, CVS (east coast), Safeway (west coast), etc.AND, lastly, we found an Oreo cookie that is gluten free! It's made by MiDel, and it looks *exactly* like an Oreo, and it is GF and dairy free. Of course, Jake prefers to eat all the cream out of the middle - next time I'll just buy him a box of cream filling! LOLWelcome to the group!Heidi, mom to Cal, 6.5, and Jake, 4, celiac, allergic to dairy, pollen, dust mites Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 OK, well, that just gave me goosebumps. Couldn't you just SCREAM at the doctors?!?!? Yes, he definitely DOES sound like a poster child for celiac! My Jake was very sick all the time as well, on antibiotics constantly, asthma, eczema, unexplained rashes, constipation/diarrhea, failure to thrive, and it got so bad it was even affecting his development. This was at age 2-1/2. We, like you, took the situation into our OWN hands and put him on a gluten free diet, and voila! *All* symptoms disappeared, and his development went BING! He caught up 1 year of development in 5 weeks, and I am not exaggerating. He is now considered gifted. Well, thanks, doc. We never had him formally diagnosed, and at this point, I never will. I have my answer, and I would *never* put him back on gluten to run some test. He had one blood test, and it was positive, but that was it. To run a true celiac panel you need 5 different blood tests and then the biopsy. Forget it. I'm with you - the proof is in the pudding. I am soooooo glad you figured out your son's condition. What a wonderful mom you are! Glad to have another mom of a celiac on board here. I just today got my annual gluten free list of candy from the celiac support group I'm a member of, so if you want me to get it to you, let me know. Love, Heidi, mom to Cal, 6.5 and Jake, 4, celiac, allergic to dairy, pollen, dust mites > Hi Heidi, > I really don't Know 100% if Shane is Celiac or not. We never had him formally tested, it was strictly a clinical thing with his Pediatrician, but here is some background on Shane. > Shane has been sick since birth, and his life was so different compared to kids that he's gone to school with since nursery school, and the weird part is, to look at him he looks so healthy, and that's the part I could never understand. I would always think he had the flu, or picked up a bug, because he didn't have a fever, or look like he was sick, but would have cramping, sharp pains, the diarrhea so bad that once he was home from school for over a week because he had no control, it would just leek all over, rashes, hives, and vomiting all the time. When he would get a cold he would get a fever right away, a bronchitis cough with all this junk, was always on antibiotics, and we were always at the ER because of the asthma until we got equipment to have at home. Bronchitis was always a given, and he's had pneumonia, and pleurisy. He was averaging 46 days absent per school year. We always new he was lactose intolerant, had asthma, and allergies, but in my gut I knew there was something else. I was constantly taking him to Doctors. I became so disgusted that I posted an e-mail to a group I belonged to, and that's when I found Anne who responded that he sounded like a poster child for Celiac. With her help as my mentor, a new pediatrician, and a Celiac diet he's a different child. The diarrhea stopped, so did the vomiting, rashes, and hives. He got his first cold a week ago Friday, and got through it himself, the first time in his life, and hasn't had any problems with asthma since he's been on the gluten-free diet. In looking back, because I lacked the knowledge, I should have probably had him have a blood test or something, but I just wanted him to get better. In 9 1/2 years he's trick or treated twice, because he was always vomiting.I just didn't know enough at the time, and now it's going so well. He's been gluten-free since May. I just can't stand the thought of him being how he was to do the tests now, and who knows, he's only 9 1/2, and medicine is always advancing, maybe there will be a test in the future where I don't have to make him sick in order to do it. > Thanks for listening. > Donna > > Re: Donna > > > Hi, Donna, > > Oh my gosh, your son sound like he is celiac (like mine). Did he get > tested? My son's improvement was also immediate and marked. I'm so > glad you found out the problem. > > Lots of celiacs become dairy allergic or lactose intolerant after all > the damage done to their intestines by the gluten. Their bodies simply > cannot handle the milk protein. My dude is also dairy allergic, but we > were hoping he would grow out of it - maybe not, after reading your > post! LOL > > We use the Food For Life Buthanese Red Rice Bread, and love it. We do > order Kinnikinnick sometimes, but he prefers the red rice. The absolute > BEST gluten free bread is the Bob's Red Mill GF wonderful bread mix, but > you have to make it yourself, and who has time for that?? LOL We have > 3 bags of it ready to be made, and let me tell you, they've been sitting > there for a few months. > > On CeliacKids (another group I am on), they've been talking about Crunch > Toons - they are similar to goldfish, shaped like Loony Toons > characters, and gluten free. The regular flavor is also dairy free. We > haven't found them yet here, but they are supposed to be in all Target, > Walmart, CVS (east coast), Safeway (west coast), etc. > > AND, lastly, we found an Oreo cookie that is gluten free! It's made by > MiDel, and it looks *exactly* like an Oreo, and it is GF and dairy free. > Of course, Jake prefers to eat all the cream out of the middle - next > time I'll just buy him a box of cream filling! LOL > > Welcome to the group! > > Heidi, mom to Cal, 6.5, and Jake, 4, celiac, allergic to dairy, pollen, > dust mites > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 OK, well, that just gave me goosebumps. Couldn't you just SCREAM at the doctors?!?!? Yes, he definitely DOES sound like a poster child for celiac! My Jake was very sick all the time as well, on antibiotics constantly, asthma, eczema, unexplained rashes, constipation/diarrhea, failure to thrive, and it got so bad it was even affecting his development. This was at age 2-1/2. We, like you, took the situation into our OWN hands and put him on a gluten free diet, and voila! *All* symptoms disappeared, and his development went BING! He caught up 1 year of development in 5 weeks, and I am not exaggerating. He is now considered gifted. Well, thanks, doc. We never had him formally diagnosed, and at this point, I never will. I have my answer, and I would *never* put him back on gluten to run some test. He had one blood test, and it was positive, but that was it. To run a true celiac panel you need 5 different blood tests and then the biopsy. Forget it. I'm with you - the proof is in the pudding. I am soooooo glad you figured out your son's condition. What a wonderful mom you are! Glad to have another mom of a celiac on board here. I just today got my annual gluten free list of candy from the celiac support group I'm a member of, so if you want me to get it to you, let me know. Love, Heidi, mom to Cal, 6.5 and Jake, 4, celiac, allergic to dairy, pollen, dust mites > Hi Heidi, > I really don't Know 100% if Shane is Celiac or not. We never had him formally tested, it was strictly a clinical thing with his Pediatrician, but here is some background on Shane. > Shane has been sick since birth, and his life was so different compared to kids that he's gone to school with since nursery school, and the weird part is, to look at him he looks so healthy, and that's the part I could never understand. I would always think he had the flu, or picked up a bug, because he didn't have a fever, or look like he was sick, but would have cramping, sharp pains, the diarrhea so bad that once he was home from school for over a week because he had no control, it would just leek all over, rashes, hives, and vomiting all the time. When he would get a cold he would get a fever right away, a bronchitis cough with all this junk, was always on antibiotics, and we were always at the ER because of the asthma until we got equipment to have at home. Bronchitis was always a given, and he's had pneumonia, and pleurisy. He was averaging 46 days absent per school year. We always new he was lactose intolerant, had asthma, and allergies, but in my gut I knew there was something else. I was constantly taking him to Doctors. I became so disgusted that I posted an e-mail to a group I belonged to, and that's when I found Anne who responded that he sounded like a poster child for Celiac. With her help as my mentor, a new pediatrician, and a Celiac diet he's a different child. The diarrhea stopped, so did the vomiting, rashes, and hives. He got his first cold a week ago Friday, and got through it himself, the first time in his life, and hasn't had any problems with asthma since he's been on the gluten-free diet. In looking back, because I lacked the knowledge, I should have probably had him have a blood test or something, but I just wanted him to get better. In 9 1/2 years he's trick or treated twice, because he was always vomiting.I just didn't know enough at the time, and now it's going so well. He's been gluten-free since May. I just can't stand the thought of him being how he was to do the tests now, and who knows, he's only 9 1/2, and medicine is always advancing, maybe there will be a test in the future where I don't have to make him sick in order to do it. > Thanks for listening. > Donna > > Re: Donna > > > Hi, Donna, > > Oh my gosh, your son sound like he is celiac (like mine). Did he get > tested? My son's improvement was also immediate and marked. I'm so > glad you found out the problem. > > Lots of celiacs become dairy allergic or lactose intolerant after all > the damage done to their intestines by the gluten. Their bodies simply > cannot handle the milk protein. My dude is also dairy allergic, but we > were hoping he would grow out of it - maybe not, after reading your > post! LOL > > We use the Food For Life Buthanese Red Rice Bread, and love it. We do > order Kinnikinnick sometimes, but he prefers the red rice. The absolute > BEST gluten free bread is the Bob's Red Mill GF wonderful bread mix, but > you have to make it yourself, and who has time for that?? LOL We have > 3 bags of it ready to be made, and let me tell you, they've been sitting > there for a few months. > > On CeliacKids (another group I am on), they've been talking about Crunch > Toons - they are similar to goldfish, shaped like Loony Toons > characters, and gluten free. The regular flavor is also dairy free. We > haven't found them yet here, but they are supposed to be in all Target, > Walmart, CVS (east coast), Safeway (west coast), etc. > > AND, lastly, we found an Oreo cookie that is gluten free! It's made by > MiDel, and it looks *exactly* like an Oreo, and it is GF and dairy free. > Of course, Jake prefers to eat all the cream out of the middle - next > time I'll just buy him a box of cream filling! LOL > > Welcome to the group! > > Heidi, mom to Cal, 6.5, and Jake, 4, celiac, allergic to dairy, pollen, > dust mites > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 OK, well, that just gave me goosebumps. Couldn't you just SCREAM at the doctors?!?!? Yes, he definitely DOES sound like a poster child for celiac! My Jake was very sick all the time as well, on antibiotics constantly, asthma, eczema, unexplained rashes, constipation/diarrhea, failure to thrive, and it got so bad it was even affecting his development. This was at age 2-1/2. We, like you, took the situation into our OWN hands and put him on a gluten free diet, and voila! *All* symptoms disappeared, and his development went BING! He caught up 1 year of development in 5 weeks, and I am not exaggerating. He is now considered gifted. Well, thanks, doc. We never had him formally diagnosed, and at this point, I never will. I have my answer, and I would *never* put him back on gluten to run some test. He had one blood test, and it was positive, but that was it. To run a true celiac panel you need 5 different blood tests and then the biopsy. Forget it. I'm with you - the proof is in the pudding. I am soooooo glad you figured out your son's condition. What a wonderful mom you are! Glad to have another mom of a celiac on board here. I just today got my annual gluten free list of candy from the celiac support group I'm a member of, so if you want me to get it to you, let me know. Love, Heidi, mom to Cal, 6.5 and Jake, 4, celiac, allergic to dairy, pollen, dust mites > Hi Heidi, > I really don't Know 100% if Shane is Celiac or not. We never had him formally tested, it was strictly a clinical thing with his Pediatrician, but here is some background on Shane. > Shane has been sick since birth, and his life was so different compared to kids that he's gone to school with since nursery school, and the weird part is, to look at him he looks so healthy, and that's the part I could never understand. I would always think he had the flu, or picked up a bug, because he didn't have a fever, or look like he was sick, but would have cramping, sharp pains, the diarrhea so bad that once he was home from school for over a week because he had no control, it would just leek all over, rashes, hives, and vomiting all the time. When he would get a cold he would get a fever right away, a bronchitis cough with all this junk, was always on antibiotics, and we were always at the ER because of the asthma until we got equipment to have at home. Bronchitis was always a given, and he's had pneumonia, and pleurisy. He was averaging 46 days absent per school year. We always new he was lactose intolerant, had asthma, and allergies, but in my gut I knew there was something else. I was constantly taking him to Doctors. I became so disgusted that I posted an e-mail to a group I belonged to, and that's when I found Anne who responded that he sounded like a poster child for Celiac. With her help as my mentor, a new pediatrician, and a Celiac diet he's a different child. The diarrhea stopped, so did the vomiting, rashes, and hives. He got his first cold a week ago Friday, and got through it himself, the first time in his life, and hasn't had any problems with asthma since he's been on the gluten-free diet. In looking back, because I lacked the knowledge, I should have probably had him have a blood test or something, but I just wanted him to get better. In 9 1/2 years he's trick or treated twice, because he was always vomiting.I just didn't know enough at the time, and now it's going so well. He's been gluten-free since May. I just can't stand the thought of him being how he was to do the tests now, and who knows, he's only 9 1/2, and medicine is always advancing, maybe there will be a test in the future where I don't have to make him sick in order to do it. > Thanks for listening. > Donna > > Re: Donna > > > Hi, Donna, > > Oh my gosh, your son sound like he is celiac (like mine). Did he get > tested? My son's improvement was also immediate and marked. I'm so > glad you found out the problem. > > Lots of celiacs become dairy allergic or lactose intolerant after all > the damage done to their intestines by the gluten. Their bodies simply > cannot handle the milk protein. My dude is also dairy allergic, but we > were hoping he would grow out of it - maybe not, after reading your > post! LOL > > We use the Food For Life Buthanese Red Rice Bread, and love it. We do > order Kinnikinnick sometimes, but he prefers the red rice. The absolute > BEST gluten free bread is the Bob's Red Mill GF wonderful bread mix, but > you have to make it yourself, and who has time for that?? LOL We have > 3 bags of it ready to be made, and let me tell you, they've been sitting > there for a few months. > > On CeliacKids (another group I am on), they've been talking about Crunch > Toons - they are similar to goldfish, shaped like Loony Toons > characters, and gluten free. The regular flavor is also dairy free. We > haven't found them yet here, but they are supposed to be in all Target, > Walmart, CVS (east coast), Safeway (west coast), etc. > > AND, lastly, we found an Oreo cookie that is gluten free! It's made by > MiDel, and it looks *exactly* like an Oreo, and it is GF and dairy free. > Of course, Jake prefers to eat all the cream out of the middle - next > time I'll just buy him a box of cream filling! LOL > > Welcome to the group! > > Heidi, mom to Cal, 6.5, and Jake, 4, celiac, allergic to dairy, pollen, > dust mites > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Heidi, I'm still paying off Doctor, and hospital bills when they didn't do anything for him. Yes it's aggravating to say the least. I'm so glad your son is doing better, and that you understand where I'm coming from. Also, the fact that you never had Jake formally tested like I didn't with Shane. It seems the testing to have proof of the "Gold Standard" biopsy is so important, but I can't see putting him through that, and making him sick on top of it to do it. I'd love a copy of that candy list! What is that bread? I've never heard of Red Rice Bread, and where do you get it? Thank you for the welcome, as far as the wonderful part, most of the time I feel inadequate, but I imagine the longer he's on the diet the better I'll get with it. Donna - Winona, MN Mom to Lori - no allergies, - no allergies,Shane - allergic to wheat, dairy, & soy,Grandma to Mia - no allergies. Re: Donna> > > Hi, Donna,> > Oh my gosh, your son sound like he is celiac (like mine). Did he get > tested? My son's improvement was also immediate and marked. I'm so > glad you found out the problem.> > Lots of celiacs become dairy allergic or lactose intolerant after all > the damage done to their intestines by the gluten. Their bodiessimply > cannot handle the milk protein. My dude is also dairy allergic,but we > were hoping he would grow out of it - maybe not, after reading your > post! LOL> > We use the Food For Life Buthanese Red Rice Bread, and love it. We do > order Kinnikinnick sometimes, but he prefers the red rice. Theabsolute > BEST gluten free bread is the Bob's Red Mill GF wonderful breadmix, but > you have to make it yourself, and who has time for that?? LOL Wehave > 3 bags of it ready to be made, and let me tell you, they've beensitting > there for a few months. <sigh>> > On CeliacKids (another group I am on), they've been talking aboutCrunch > Toons - they are similar to goldfish, shaped like Loony Toons > characters, and gluten free. The regular flavor is also dairyfree. We > haven't found them yet here, but they are supposed to be in allTarget, > Walmart, CVS (east coast), Safeway (west coast), etc.> > AND, lastly, we found an Oreo cookie that is gluten free! It'smade by > MiDel, and it looks *exactly* like an Oreo, and it is GF and dairyfree. > Of course, Jake prefers to eat all the cream out of the middle - next > time I'll just buy him a box of cream filling! LOL> > Welcome to the group!> > Heidi, mom to Cal, 6.5, and Jake, 4, celiac, allergic to dairy,pollen, > dust mites> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Hi Donna! Just noticed you're from MN! We are also from MN. We're in Oakdale which is just outside St. . Welcome to the group! It's an awesome group and I've been with it for a year this month. It's helped us out more than I could have hoped for and everyone is so friendly! I know that I will always get an answer to my questions! Take care and talk to you again soon. Missy Mom to Josie 22 months-allergic to milk, eggs, peanuts and beef Oakdale, MN Alyssa, Thanks! It worked. Donna - Winona, MN Mom to Lori - no allergies, - no allergies, Shane - allergic to wheat, dairy, & soy, Grandma to Mia - no allergies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Hi Missy, Thanks for the welcome! I'm in Winona, which is about forty minutes from LaCrosse, WI. Is Oakdale before St. , or just outside of it to the north? Have you always lived in MN? I haven't, been here about six years. My husband Tom was transferred here. All of our family is back in IL. I definitely agree about everyone being nice, and making you feel welcome. Donna - MN Mom to Lori - no allergies, - no allergies,Shane - allergic to wheat, dairy, & soy,Grandma to Mia - no allergies. Re: Donna Hi Donna! Just noticed you're from MN! We are also from MN. We're in Oakdale which is just outside St. . Welcome to the group! It's an awesome group and I've been with it for a year this month. It's helped us out more than I could have hoped for and everyone is so friendly! I know that I will always get an answer to my questions!Take care and talk to you again soon.MissyMom to Josie 22 months-allergic to milk, eggs, peanuts and beefOakdale, MN Alyssa,Thanks! It worked. Donna - Winona, MNMom to Lori - no allergies, - no allergies,Shane - allergic to wheat, dairy, & soy,Grandma to Mia - no allergies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 Hi Donna, I have lived in MN all my life and don't have any plans to leave. Love it here. Not too fond of all the snow but oh well. Oakdale is North-NorthWest of St.. We are closer to the Hudson, WI border than St. is. Oops...gotta run! Take care! Missy, MN Mom to Josie, 22 months. Allergic to milk, eggs, beef and peanuts. Hi Missy, Thanks for the welcome! I'm in Winona, which is about forty minutes from LaCrosse, WI. Is Oakdale before St. , or just outside of it to the north? Have you always lived in MN? I haven't, been here about six years. My husband Tom was transferred here. All of our family is back in IL. I definitely agree about everyone being nice, and making you feel welcome. Donna - MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 Donna, I understand that you were thrown into this. I was to. Everything happened so fast and I really didn’t have time to ask questions or understand what was being done. It is hard. Yes, it is true about blood clots. I was on SBR at home for four weeks. when I went to the hospital I was on blood thinners. It sounds like you have a strong stitch in. that is great. I still would not be walking around to much until you are out of the grey zone regardless if the doc says you can. I am not trying to be mean but you are so close to the end. I want this to be successful for you and it will. You are sooo close. Take it easy and keep posting. God bless, Taryn I'm new to this board today > > Hi everyone, > > I found this board yesterday while surfing the web for information on > my rescue cerclage that was placed exactly 2 weeks ago. I went in to > see my doctor at 21wks 2 days because of strange CM with light > streaks of blood in it, and after the quickest look inside me, she > told me I had to stay there (at the hospital where her office is). I > was dilated 2 cms and my amniotic sac was bulging out of my cervix. > The surgery was successful, and I am off work for the rest of my > pregnancy and on modified bedrest. Just hoping & praying for a few > more weeks at a time....... > > Glad to have found this board, > Donna > 23wks 2 days (and counting) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Thank you so much. It is pretty cool to finally see " my baby " be born. Just goes to show that no one should ever give up on their dreams. They really can come true. And I hope that by not giving up on my dreams, I have taught my kids that they can do anything, too. Thanks again. Carol Donna wrote: > Oh, Carol!! I am so VERY excited for you! Ever since I joined > this terrific group (summer, 2004), you've been working on your books > and hoping to have one published. To finally see your long term goal > come to pass is an incredible accomplishment. I am so happy for you! > Many congratulations! > > CYH (consider yourself hugged) > Donna > > H -- Internal Virus Database is out-of-date. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.14.12/220 - Release Date: 01/03/2006 Quote Link to comment Share on other sites More sharing options...
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