Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hi Jacque! Welcome to the list. Wow! Dr. Sudan must be swamped if you're having to wait until the end of Oct. Do you have an insurance that will allow you to travel out of state? If so, you should be able to get in with one of the other DS surgeons before Oct. If not, I'll be praying that Dr. Sudan will have a cancellation and be able to get you in sooner (not sure I want to pray that you have a diseased gallbladder though. *LOL*) Hang in there! Regards, Dorian BPD/DS 02/06/01 Dr. Elariny United Healthcare Options PPO Approved in less than 24 hours -60 pounds at last count Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hi Jacque! Welcome to the list. Wow! Dr. Sudan must be swamped if you're having to wait until the end of Oct. Do you have an insurance that will allow you to travel out of state? If so, you should be able to get in with one of the other DS surgeons before Oct. If not, I'll be praying that Dr. Sudan will have a cancellation and be able to get you in sooner (not sure I want to pray that you have a diseased gallbladder though. *LOL*) Hang in there! Regards, Dorian BPD/DS 02/06/01 Dr. Elariny United Healthcare Options PPO Approved in less than 24 hours -60 pounds at last count Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hi Jacque! Welcome to the list. Wow! Dr. Sudan must be swamped if you're having to wait until the end of Oct. Do you have an insurance that will allow you to travel out of state? If so, you should be able to get in with one of the other DS surgeons before Oct. If not, I'll be praying that Dr. Sudan will have a cancellation and be able to get you in sooner (not sure I want to pray that you have a diseased gallbladder though. *LOL*) Hang in there! Regards, Dorian BPD/DS 02/06/01 Dr. Elariny United Healthcare Options PPO Approved in less than 24 hours -60 pounds at last count Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Jacque: Welcome to the list. We are full of information - among other things. Feel free to ask any questions you might have and if we don't know the answer we'll make something up. Seriously, hang around a while and you'll find many of your questions answered. We have a pretty broad range of experience here. It sounds like you have all the qualifications (co-morbidities) necessary for the surgeon to tell your insurance company that yes, you really do need the surgery. That is a big part of the battle. You didn't mention your insurance. Do you feel it is likely to fund the surgery? That they often say they won't pay for treatment for obesity is not an impediment as morbid obesity is something entirely different. Again, stick around for a while and you'll learn plenty. And maybe we'll learn something from you. Regards. Joe Frost, old gentleman, not old fartSan , TX, 60 years oldSurgery 11/29/00 by Dr. Welker Lateral Gastrectomy with Duodenal Switch340 starting weight, currently 250http://www.duodenalswitch.com/Patients/Joe/joe.html Newbie > Hi, my name is Jacque, and I have an appointment Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the BPD. I have > been overweight for much of my life, but the past 5-6 years I am > putting it on something fierce. Monday I had the dubious distinction > of passing the 300 lb mark -- 303 to be exact. Tuesday I had an > ultrasound on my gallbladder and am waiting for the results. I hope > and pray they tell me it needs to come out so my initial consult can > be bumped up. I don't know how I'm going to be able to get through > another summer feeling as awful as I do.> > I am married, no children, 2 chows, and 3 cats. I am a secretary at > a university, but wish to join my husband in working from home as a > computer consultant. I also have fibromyalgia, osteoarthritis, > hypertension, unexplained skin rash on my arms and chest, IBS, sleep > apnea, & restless legs syndrome.> > Monday evening I attended an informative session at UNMC in Omaha > with Dr. Sudan and a plastic surgeon. I think it made me feel like > yes, this is really going to happen. I have two friends who have had > the surgery and they are doing great. One has even gone off any > diabetic medication. They are reclaiming their lives and I want to > do the same!> > Thanks,> > Jacque> > > > ----------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Jacque, Hi my name is Angel and I too am working on having the DS. This is an awesome group and I know you'll get a lot of good hints and tips from everyone. I hope you have an easy time of getting approved for the surgery as that's seems to be the biggest hurdle for most people. I noticed in your post that you mentioned restless leg syndrome. What is that? I have trouble with my legs and that is the perfect name for how they feel sometimes. Could you describe how this syndrome makes your legs feel and what can be done about it? I hope I haven't over stepped my bounds by asking and if you'd rather reply privately, that's ok (or not at all if you'd rather). My e-mail address is angelquilt1@... Thanks and I wish you all the best, Angel --- Jacquelyn R Keller jinxs@...> wrote: > Hi, my name is Jacque, and I have an appointment > Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the > BPD. I have > been overweight for much of my life, but the past > 5-6 years I am > putting it on something fierce. Monday I had the > dubious distinction > of passing the 300 lb mark -- 303 to be exact. > Tuesday I had an > ultrasound on my gallbladder and am waiting for the > results. I hope > and pray they tell me it needs to come out so my > initial consult can > be bumped up. I don't know how I'm going to be able > to get through > another summer feeling as awful as I do. > > I am married, no children, 2 chows, and 3 cats. I > am a secretary at > a university, but wish to join my husband in working > from home as a > computer consultant. I also have fibromyalgia, > osteoarthritis, > hypertension, unexplained skin rash on my arms and > chest, IBS, sleep > apnea, & restless legs syndrome. > > Monday evening I attended an informative session at > UNMC in Omaha > with Dr. Sudan and a plastic surgeon. I think it > made me feel like > yes, this is really going to happen. I have two > friends who have had > the surgery and they are doing great. One has even > gone off any > diabetic medication. They are reclaiming their > lives and I want to > do the same! > > Thanks, > > Jacque > > > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Jacque, Hi my name is Angel and I too am working on having the DS. This is an awesome group and I know you'll get a lot of good hints and tips from everyone. I hope you have an easy time of getting approved for the surgery as that's seems to be the biggest hurdle for most people. I noticed in your post that you mentioned restless leg syndrome. What is that? I have trouble with my legs and that is the perfect name for how they feel sometimes. Could you describe how this syndrome makes your legs feel and what can be done about it? I hope I haven't over stepped my bounds by asking and if you'd rather reply privately, that's ok (or not at all if you'd rather). My e-mail address is angelquilt1@... Thanks and I wish you all the best, Angel --- Jacquelyn R Keller jinxs@...> wrote: > Hi, my name is Jacque, and I have an appointment > Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the > BPD. I have > been overweight for much of my life, but the past > 5-6 years I am > putting it on something fierce. Monday I had the > dubious distinction > of passing the 300 lb mark -- 303 to be exact. > Tuesday I had an > ultrasound on my gallbladder and am waiting for the > results. I hope > and pray they tell me it needs to come out so my > initial consult can > be bumped up. I don't know how I'm going to be able > to get through > another summer feeling as awful as I do. > > I am married, no children, 2 chows, and 3 cats. I > am a secretary at > a university, but wish to join my husband in working > from home as a > computer consultant. I also have fibromyalgia, > osteoarthritis, > hypertension, unexplained skin rash on my arms and > chest, IBS, sleep > apnea, & restless legs syndrome. > > Monday evening I attended an informative session at > UNMC in Omaha > with Dr. Sudan and a plastic surgeon. I think it > made me feel like > yes, this is really going to happen. I have two > friends who have had > the surgery and they are doing great. One has even > gone off any > diabetic medication. They are reclaiming their > lives and I want to > do the same! > > Thanks, > > Jacque > > > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Jacque, Hi my name is Angel and I too am working on having the DS. This is an awesome group and I know you'll get a lot of good hints and tips from everyone. I hope you have an easy time of getting approved for the surgery as that's seems to be the biggest hurdle for most people. I noticed in your post that you mentioned restless leg syndrome. What is that? I have trouble with my legs and that is the perfect name for how they feel sometimes. Could you describe how this syndrome makes your legs feel and what can be done about it? I hope I haven't over stepped my bounds by asking and if you'd rather reply privately, that's ok (or not at all if you'd rather). My e-mail address is angelquilt1@... Thanks and I wish you all the best, Angel --- Jacquelyn R Keller jinxs@...> wrote: > Hi, my name is Jacque, and I have an appointment > Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the > BPD. I have > been overweight for much of my life, but the past > 5-6 years I am > putting it on something fierce. Monday I had the > dubious distinction > of passing the 300 lb mark -- 303 to be exact. > Tuesday I had an > ultrasound on my gallbladder and am waiting for the > results. I hope > and pray they tell me it needs to come out so my > initial consult can > be bumped up. I don't know how I'm going to be able > to get through > another summer feeling as awful as I do. > > I am married, no children, 2 chows, and 3 cats. I > am a secretary at > a university, but wish to join my husband in working > from home as a > computer consultant. I also have fibromyalgia, > osteoarthritis, > hypertension, unexplained skin rash on my arms and > chest, IBS, sleep > apnea, & restless legs syndrome. > > Monday evening I attended an informative session at > UNMC in Omaha > with Dr. Sudan and a plastic surgeon. I think it > made me feel like > yes, this is really going to happen. I have two > friends who have had > the surgery and they are doing great. One has even > gone off any > diabetic medication. They are reclaiming their > lives and I want to > do the same! > > Thanks, > > Jacque > > > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hello All, I have been lurking for quite a while and I have really enjoyed reading all of your posts. I have a question and if anyone can help out I would really appreciate it. I have an initial consultation in 2 weeks with who is Dr. Macura's nutritionist. I would like to get any feedback on (up until now she has been very nice and prompt and has really worked with me) but I would like to know what to expect from the initial consultation with her, and what the next step is? if you do not want to email the group back you can email me privately at raina28@... again thanks for all of your help ww, Lisbeth __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hello All, I have been lurking for quite a while and I have really enjoyed reading all of your posts. I have a question and if anyone can help out I would really appreciate it. I have an initial consultation in 2 weeks with who is Dr. Macura's nutritionist. I would like to get any feedback on (up until now she has been very nice and prompt and has really worked with me) but I would like to know what to expect from the initial consultation with her, and what the next step is? if you do not want to email the group back you can email me privately at raina28@... again thanks for all of your help ww, Lisbeth __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Just wanted to say welcome to the group Jacque. I understand what you mean about summer. I've had the air conditioner on already! --- Jacquelyn R Keller jinxs@...> wrote: > Hi, my name is Jacque, and I have an appointment > Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the > BPD. I have > been overweight for much of my life, but the past > 5-6 years I am > putting it on something fierce. Monday I had the > dubious distinction > of passing the 300 lb mark -- 303 to be exact. > Tuesday I had an > ultrasound on my gallbladder and am waiting for the > results. I hope > and pray they tell me it needs to come out so my > initial consult can > be bumped up. I don't know how I'm going to be able > to get through > another summer feeling as awful as I do. > > I am married, no children, 2 chows, and 3 cats. I > am a secretary at > a university, but wish to join my husband in working > from home as a > computer consultant. I also have fibromyalgia, > osteoarthritis, > hypertension, unexplained skin rash on my arms and > chest, IBS, sleep > apnea, & restless legs syndrome. > > Monday evening I attended an informative session at > UNMC in Omaha > with Dr. Sudan and a plastic surgeon. I think it > made me feel like > yes, this is really going to happen. I have two > friends who have had > the surgery and they are doing great. One has even > gone off any > diabetic medication. They are reclaiming their > lives and I want to > do the same! > > Thanks, > > Jacque > > > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Just wanted to say welcome to the group Jacque. I understand what you mean about summer. I've had the air conditioner on already! --- Jacquelyn R Keller jinxs@...> wrote: > Hi, my name is Jacque, and I have an appointment > Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the > BPD. I have > been overweight for much of my life, but the past > 5-6 years I am > putting it on something fierce. Monday I had the > dubious distinction > of passing the 300 lb mark -- 303 to be exact. > Tuesday I had an > ultrasound on my gallbladder and am waiting for the > results. I hope > and pray they tell me it needs to come out so my > initial consult can > be bumped up. I don't know how I'm going to be able > to get through > another summer feeling as awful as I do. > > I am married, no children, 2 chows, and 3 cats. I > am a secretary at > a university, but wish to join my husband in working > from home as a > computer consultant. I also have fibromyalgia, > osteoarthritis, > hypertension, unexplained skin rash on my arms and > chest, IBS, sleep > apnea, & restless legs syndrome. > > Monday evening I attended an informative session at > UNMC in Omaha > with Dr. Sudan and a plastic surgeon. I think it > made me feel like > yes, this is really going to happen. I have two > friends who have had > the surgery and they are doing great. One has even > gone off any > diabetic medication. They are reclaiming their > lives and I want to > do the same! > > Thanks, > > Jacque > > > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 Hi, Dolores. As usual, I am very sorry to hear you have reason to join our group but let me bid you a very hearty welcome. Unless we have someone in our group who is from Las Vegas I can recommend a very easy method of finding a good local doc. Contact the head of the Gastroenterology section at UNLV Medical School and ask who is the best doc in the area for hepatobiliary problems. That approach usually works pretty well. To answer your questions, yes, Chronic Pancreatitis is a progressive disease. If your lipase levels are still going through the roof then you are still in the early stages of the disease and may have a long time of a pretty normal life. Make sure your doc has you on enzymes and gives you a prescription for pain meds for the breakthrough sub-clinical (or even full clinical) acute attacks. Once your pancreas has been damaged to a certain point it remains inflamed and causes you incessant pain. High serum amylase and/or lipase levels indicate an attack of Acute Pancreatitis. We have been taught that recurring acute attacks will cause progressive damage to the pancreas and lead to Chronic Pancreatitis. Usually a good GI doc will seek the cause of the recurrent attacks to see if there is any way to slow or stop the progression of the disease. I hope you can find a good doc. It can make all the difference in the world. I have a great one here in Houston. He's the head of Gastroenterology at the hospital. The staff stops whatever they are doing to respond to his requests. Once the ER staff sees who my GI doc is I have instant credibility. Hopefully by going through the top GI doc at UNLV you can find a similar Gastroenterologist. Best of luck to you. Chuck At 05:59 AM 5/18/2002 +0000, you wrote: >Hi, just newly diagnosed with CP, but I'm pretty sure I've had for >sometime. High lipase off and on since 1997 with continuous pain >which I attributed to kidney problems. I live in Las Vegas, Nevada >and was wondering how to I find a specialist for this disease? From >what I have been reading not every gastro dr. has experience treating >this disease. Can anyone answer some questions or direct me to info. > >1. Is CP progressive? >2. Why constant pain? is my pancreas being destroyed because of high >lipase levels? > >Any info would be appreciated. > > >Dolores > >Lola567@... > > > Chuck Sullivan " When in command, Take charge. When faced with a decision, do what is right. Nothing else matters. " - Gen. Norman Schwarzkopf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 Dolores, I am sure you will get many responses to your questions from people that have CP a lot longer than I have. I was diagnosed in January 2002 with CP with 2 prior (known) acute attacks. Yes mam, CP is progressive, but in everyone it is different. There are many reasons for the pain. That is something for a doctor to try and find (if he/she can). Sometimes a medical procedure can give you some relief for the pain, others have to take pain meds their whole life. I know there are some wonderful people in here that will give you some real direction and some very good advice. This place has really helped me keep my sanity and the wealth of knowledge here is unbelievable. So welcome to our world and here is a great big hug! Take care and ask allot of questions, Joy, El Paso,TX newbie Hi, just newly diagnosed with CP, but I'm pretty sure I've had for sometime. High lipase off and on since 1997 with continuous pain which I attributed to kidney problems. I live in Las Vegas, Nevada and was wondering how to I find a specialist for this disease? From what I have been reading not every gastro dr. has experience treating this disease. Can anyone answer some questions or direct me to info. 1. Is CP progressive? 2. Why constant pain? is my pancreas being destroyed because of high lipase levels? Any info would be appreciated. Dolores Lola567@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 Dolores, I am sure you will get many responses to your questions from people that have CP a lot longer than I have. I was diagnosed in January 2002 with CP with 2 prior (known) acute attacks. Yes mam, CP is progressive, but in everyone it is different. There are many reasons for the pain. That is something for a doctor to try and find (if he/she can). Sometimes a medical procedure can give you some relief for the pain, others have to take pain meds their whole life. I know there are some wonderful people in here that will give you some real direction and some very good advice. This place has really helped me keep my sanity and the wealth of knowledge here is unbelievable. So welcome to our world and here is a great big hug! Take care and ask allot of questions, Joy, El Paso,TX newbie Hi, just newly diagnosed with CP, but I'm pretty sure I've had for sometime. High lipase off and on since 1997 with continuous pain which I attributed to kidney problems. I live in Las Vegas, Nevada and was wondering how to I find a specialist for this disease? From what I have been reading not every gastro dr. has experience treating this disease. Can anyone answer some questions or direct me to info. 1. Is CP progressive? 2. Why constant pain? is my pancreas being destroyed because of high lipase levels? Any info would be appreciated. Dolores Lola567@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 Dolores, I am sure you will get many responses to your questions from people that have CP a lot longer than I have. I was diagnosed in January 2002 with CP with 2 prior (known) acute attacks. Yes mam, CP is progressive, but in everyone it is different. There are many reasons for the pain. That is something for a doctor to try and find (if he/she can). Sometimes a medical procedure can give you some relief for the pain, others have to take pain meds their whole life. I know there are some wonderful people in here that will give you some real direction and some very good advice. This place has really helped me keep my sanity and the wealth of knowledge here is unbelievable. So welcome to our world and here is a great big hug! Take care and ask allot of questions, Joy, El Paso,TX newbie Hi, just newly diagnosed with CP, but I'm pretty sure I've had for sometime. High lipase off and on since 1997 with continuous pain which I attributed to kidney problems. I live in Las Vegas, Nevada and was wondering how to I find a specialist for this disease? From what I have been reading not every gastro dr. has experience treating this disease. Can anyone answer some questions or direct me to info. 1. Is CP progressive? 2. Why constant pain? is my pancreas being destroyed because of high lipase levels? Any info would be appreciated. Dolores Lola567@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Dolores, I'm sure that someone else has answered your questions, so I wanted to welcome you to the group. I've been catching up on my emails as I wasn't able to check them all last week due to big work load and then was out of town Saturday and recovering from Sat. on Sun. So, I'm very behind in my messages. Hope you find this group as wonderful and informative as I have. I don't know where I'd be without them. Sorry to see you got CP, but glad you found us. Looking forward to hearing more from you. Kimber -- Kimber hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 WELCOME ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 , Welcome to the group I have two kids with CF and one that does not have CF. This is a great group. Where do you live? We are in Iowa. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Hi Deb, We live in Tampa Florida. I'm glad to be part of this group. It sounds like you guys know your stuff, and we have so many questions!!! Thanks for being here. , grandmother to Taygan born 1-26-02, diagnosed w/CF 6/17/02 gdattig5@... wrote: , Welcome to the group I have two kids with CF and one that does not have CF. This is a great group. Where do you live? We are in Iowa. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Thanks!!! Looking forward to meeting all of you!! Tysidtan2@... wrote: WELCOME ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Thanks!!! Looking forward to meeting all of you!! Tysidtan2@... wrote: WELCOME ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Thanks!!! Looking forward to meeting all of you!! Tysidtan2@... wrote: WELCOME ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Hi , I'm rather new to this group too, been here since April. My son is 4 months old, he was diagnosed at 3 weeks because my husband asked the doctors to see if he was a carrier. (My husband lost a sister in 1970 to cf). The doctor had the unfortunate task of informing us that Adam has cf. So within a month he started the enzymes and the cpt (I call it clapping). He weighed 5#11 at birth and had reflux, spent a month in NICU. He now weighs 10#6.5, so I'd say we are doing okay. I spent a couple of weeks crying each time I openned the book they gave us to read about cf. It really helps being part of this list. I only post something about every week or so. But it really helps to read what the others are posting. I can only imagine what my mother-in-law is going through, having lost one of her children and now to know that the same disease is affecting her youngest grandson. There are a couple of other Grandmas on this list too. You'll get to know them well. Again, Welcome. While we can't physically hold each other's hands, I'd say this list does a pretty good imitation of that! Crystal mom to Adam 4 mo wcf, le 2 1/2 yr nocf > > Hello everyone. > > My name is , and my 5 month old grandaughter was just diagnosed with CF. We are just getting over the shock of the news, and now we would like to get to know other people who have these special children. I am thankful to find this group, and I am looking forward to sharing information, and support. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Hi , I'm rather new to this group too, been here since April. My son is 4 months old, he was diagnosed at 3 weeks because my husband asked the doctors to see if he was a carrier. (My husband lost a sister in 1970 to cf). The doctor had the unfortunate task of informing us that Adam has cf. So within a month he started the enzymes and the cpt (I call it clapping). He weighed 5#11 at birth and had reflux, spent a month in NICU. He now weighs 10#6.5, so I'd say we are doing okay. I spent a couple of weeks crying each time I openned the book they gave us to read about cf. It really helps being part of this list. I only post something about every week or so. But it really helps to read what the others are posting. I can only imagine what my mother-in-law is going through, having lost one of her children and now to know that the same disease is affecting her youngest grandson. There are a couple of other Grandmas on this list too. You'll get to know them well. Again, Welcome. While we can't physically hold each other's hands, I'd say this list does a pretty good imitation of that! Crystal mom to Adam 4 mo wcf, le 2 1/2 yr nocf > > Hello everyone. > > My name is , and my 5 month old grandaughter was just diagnosed with CF. We are just getting over the shock of the news, and now we would like to get to know other people who have these special children. I am thankful to find this group, and I am looking forward to sharing information, and support. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Hi , I'm rather new to this group too, been here since April. My son is 4 months old, he was diagnosed at 3 weeks because my husband asked the doctors to see if he was a carrier. (My husband lost a sister in 1970 to cf). The doctor had the unfortunate task of informing us that Adam has cf. So within a month he started the enzymes and the cpt (I call it clapping). He weighed 5#11 at birth and had reflux, spent a month in NICU. He now weighs 10#6.5, so I'd say we are doing okay. I spent a couple of weeks crying each time I openned the book they gave us to read about cf. It really helps being part of this list. I only post something about every week or so. But it really helps to read what the others are posting. I can only imagine what my mother-in-law is going through, having lost one of her children and now to know that the same disease is affecting her youngest grandson. There are a couple of other Grandmas on this list too. You'll get to know them well. Again, Welcome. While we can't physically hold each other's hands, I'd say this list does a pretty good imitation of that! Crystal mom to Adam 4 mo wcf, le 2 1/2 yr nocf > > Hello everyone. > > My name is , and my 5 month old grandaughter was just diagnosed with CF. We are just getting over the shock of the news, and now we would like to get to know other people who have these special children. I am thankful to find this group, and I am looking forward to sharing information, and support. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
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