Guest guest Posted August 17, 1998 Report Share Posted August 17, 1998 Hello All IM Jane. Mom to 14 months and 2 1/2. had Milk and Soy protein intolerance as a baby and screamed 24/7 we thought she was bad till Ben came. He had milk and soy intolerance so bad he was on TPN for months and it affected his liver function. He is still G-tube fed most of his calories, but does fair with some baby foods. He is on PeptaminJR., currently. I am not sure Hess tolerating it to well. Ben is very suceptable to infection and gets sick about every time he goes out. He is on the Medicaid waiver aged and disabled. We get 16 respit care hours a week. My time is up. Glad to join such a great bunch of people. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1998 Report Share Posted August 17, 1998 Jane, Welcome and I hope you find we can be of some help and comfort. Traci Mom to Luke EG (6yrs) and (9yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 1998 Report Share Posted August 18, 1998 In a message dated 98-08-17 11:30:44 EDT, you write: << He is on PeptaminJR., currently. I am not sure Hess tolerating it to well. >> Just a short note that peptaminJr. does contain whey - actually enzymatically hydrolyzed whey protein - which is a milk product - this may be why he is not doing great. It also contains soy oil. Maybe you should ask about trying either neocate 1+ or vivenex pediatric. love, sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1998 Report Share Posted November 16, 1998 Hi Kate, a big wellcome.I am on Prozac, and I have bad rls, so I tried 8 weeks without Prozac, because it might increase the symptoms.Everything was the same as far as the rls was concerned, so in my case Prozac could be taken again, and that was good, my life without Prozac was hell, and with it I feel just fine, not manic( the first 2 weeks I was manicish),just fine. the other meds I have no experience with, on Sinemet now, but it is wearing out..Marleen, 52,Holland Kate Fitzgerald wrote: > > > Hi everyone, this is my first day on the list. I have had rls since I was a kid, but > just realized recently how much it interferes with my sleep. My doctor > prescribed Sinemet and it worked like a miracle drug at first, then I suffered the > augmentation effect and the Sinemet only works for an hour or two at night. > > I left a message for my doctor and he called in a new prescription for me, > Amitriptylene (not sure of spelling). His nurse called and told me I could go pick > it up, but I'm very leery of this drug and I don't think I want to even try it. For one > thing, a doctor put me on Prozac after my divorce and it made me manic. The > same thing happened with Wellbutrin. Well, I've finally paid off all the debts I > incurred while manic, so I don't want to take a chance on another > antidepressant. I called the nurse back and told her about my misgivings, but I > haven't heard back from my doctor or his nurse. And the other thing is that I've > heard this drug actually makes RLS worse! > > I would like to try Permax, since the dopamine helped for awhile at least. I > know it is expensive, so maybe my insurance company won't let him prescribe > it, I don't know. I also read an article about a nutritional supplement, NADH, > that supposedly stimulates your natural production of dopamine. Has anyone > tried this or heard about it? > > Also, I took L-tryptophan when it was legal, and I was symptom free for several > years. I know you can't buy it over the counter, but can I get a prescription for > it? It worked so well. > > Thanks for being here, I'm looking forward to getting to know you all. > > Kate > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1998 Report Share Posted November 16, 1998 Thanks for your response Maureen. I know that antidepressants are wonderful for people who have the actual illness, of depression, but I just don't think that's my problem. I had many other health problems while on Prozac and Wellbutrin, including severe headaches and excessive menstral bleeding (while on Prozac, I had non-stop bleeding for 3 months, but I was too " happy " to care). I now think that I've never had the illness of depression, because anti-depressants messed me up so badly. And I'm not unhappy, I never had symptoms of unhappiness. I just get very tired and confused, I suspect it's because RLS keeps me from getting enough deep sleep. I hope I can find soething that helps. Kathleen R. Fitzgerald University of Minnesota Extension Service Professional Education and Conference Planning 405 Coffey Hall 1420 Eckles Avenue St. , MN 55108 1- " Courage is the price that life exacts for granting peace. " -- Amelia Earhart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1998 Report Share Posted November 16, 1998 Hi Kate Welcome to the group. You came to the right place. Amitryptiline (Elavil and others) is a tricyclic antidepressant and has a bad reputation in RLS patients, as do most antidepressants of any type. If they are needed for treating clinical depression, that's one thing, but their use to treat RLS is frequently diastrous. As an aside, you mentioned Wellbutrin. For those who don't realize it, the currently heavily advertised smoking cessation aid, Zyban, is the same as Wellbutrin. It is fraught with side effects for RLS and non-RLS patients. It is a mystery to me how the FDA could approve a drug with such a rotten track record for use as an aid for cessation of smoking. I think you are wise to resist taking the Elavil. Tryptophan is not available OTC or on Rx in the U.S. There is a drug company on the Web that claims that if the Rx is written so that compounding by the pharmacist is required, e.g. making capsules or mixing with another substance, then the FDA does not have jurisdiction. It claims that its trytophan is free of the contaminant that caused it to be withdrawn by the FDA. It also sells veterinary products including trytophan. Personally, I wouldn't touch it. NADH is another naturally occurring substance in the body that the commercial drug houses have latched onto, in my opinion, to make money. I know of no creditable evidence that NADH significantly elevates dopamine in the central nervous system. It is related to Vitamin B3, niacin, and deficiencies of B3 are very rare in non-alcoholics who eat a healthy diet. It is touted as a treatment for Parkinson's disease. Until some acceptable evidence of its efficacy is produced, I think it is a waste of money. It probably will not hurt you. Instead of Permax, may I suggest Mirapex, which is also a dopamine-active drug, but which has fewer side effects than Permax. It is marginally less expensive. I don't want to believe that a reputable insurance company would refuse to agree to its use. There are many more expensive drugs out there that are approved by insurance companies every day. Dr. Levin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1998 Report Share Posted November 16, 1998 Thanks for your response Dr. Levin., may I print your letter and show it to my doctor? He is a good doctor and a good person, I don't think he would be offended. He has been a bit frustrated with overload at his current clinic, so he has tried to handle problems over the phone where possible. I appreciate his willingness to do this, but this time it's not going to work out. I just think it would be a bad idea for me to take Elavil, so I won't. Kathleen R. Fitzgerald University of Minnesota Extension Service Professional Education and Conference Planning 405 Coffey Hall 1420 Eckles Avenue St. , MN 55108 1- " Courage is the price that life exacts for granting peace. " -- Amelia Earhart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 Kate: Another thing I learned thru all this trial and error medicine thing is to always ask for samples of medicines from your doctor. This way you can test a drug before having to pay a lot of money for something that ends up in the trash. Also, if I get a prescription for a drug that I have not taken before and the doctor gives me a prescription to 30 tablets, I have the pharmacist give me only enough for a week or less. I pay less and get to test the drug before committing my life savings. It has taken me 45 years to figure this out. Thought I would pass it on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 Pam, my doctor is usually good about giving samples, but he is so swamped that I rarely get in to see him. He ends up prescribing over the phone through his nurses, so I never even talk to him much less see him. I agree, that is the best way to try new meds. I once had a doc give me a sampler of several different allergy meds to try and told me to pic the one I liked best and he would write a prescription. I thought that was fantastic! As far as cost, though, they all cost me $9. Insurance picks up the difference. Kathleen R. Fitzgerald University of Minnesota Extension Service Professional Education and Conference Planning 405 Coffey Hall 1420 Eckles Avenue St. , MN 55108 1- " Courage is the price that life exacts for granting peace. " -- Amelia Earhart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 In a message dated 11/16/98 9:39:53 AM Eastern Standard Time, kfitzgerald@... writes: << >> Yo, Kate, I don't know about anyone else in the group but those amytriptilines(sp) made my RLS/PLMS worse. Keep a close watch. Ed-Cyberphilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 1998 Report Share Posted November 18, 1998 > Yo, Kate, Thanks for the feedback Ed-Cyberphilly, your experience seems to be the norm. I'm opting not to take the elavil. > I don't know about anyone else in the group but those amytriptilines(sp) made > my RLS/PLMS worse. Keep a close watch. > > Ed-Cyberphilly Kathleen R. Fitzgerald University of Minnesota Extension Service Professional Education and Conference Planning 405 Coffey Hall 1420 Eckles Avenue St. , MN 55108 1- " Courage is the price that life exacts for granting peace. " -- Amelia Earhart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 1998 Report Share Posted November 28, 1998 Tricyclics like Elavil, may increase PLMs and possibly RLs symptoms. I'd think changing the dose or schedule of sinemet is one way to go or using another dopaminergic medication like permax Dr. Levin any comments Pamela > > > Hi everyone, this is my first day on the list. I have had rls since I was a kid, but > just realized recently how much it interferes with my sleep. My doctor > prescribed Sinemet and it worked like a miracle drug at first, then I suffered the > augmentation effect and the Sinemet only works for an hour or two at night. > > I left a message for my doctor and he called in a new prescription for me, > Amitriptylene (not sure of spelling). His nurse called and told me I could go pick > it up, but I'm very leery of this drug and I don't think I want to even try it. For one > thing, a doctor put me on Prozac after my divorce and it made me manic. The > same thing happened with Wellbutrin. Well, I've finally paid off all the debts I > incurred while manic, so I don't want to take a chance on another > antidepressant. I called the nurse back and told her about my misgivings, but I > haven't heard back from my doctor or his nurse. And the other thing is that I've > heard this drug actually makes RLS worse! > > I would like to try Permax, since the dopamine helped for awhile at least. I > know it is expensive, so maybe my insurance company won't let him prescribe > it, I don't know. I also read an article about a nutritional supplement, NADH, > that supposedly stimulates your natural production of dopamine. Has anyone > tried this or heard about it? > > Also, I took L-tryptophan when it was legal, and I was symptom free for several > years. I know you can't buy it over the counter, but can I get a prescription for > it? It worked so well. > > Thanks for being here, I'm looking forward to getting to know you all. > > Kate > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 1999 Report Share Posted May 18, 1999 /// Steve,,,I think Marina is trying to say ....Are you single ?????????? /// Hey Steve, First think you have to learn about this list: DON'T BELIEVE EVERYTHING THAT IS SAID !!! LOL PS: Thank you ! Grrrrrrrrrrrrrrrrrrrrrrr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 1999 Report Share Posted October 6, 1999 Thanks for the copliment --- karinc karinc@...> wrote: > Sue, > I am only on your list for about a week. > I have been on the net for about 4 yrs now and I > belong to newsgroups and a > few email groups and I have to tell you how nice > this group is. You run a > nice list and I just wanted to reinforce this. I am > learning and I am > abstinent from Carbos.... > , Jax. Florida > > > > ------------------------------------------------------------------------ > Forget the rest We are the best. BIG AND BEAUTIFUL > BUT LOSING!!!!!! > > ===== Sue List Manager 310/260.5/180 Goal for Challenge 2 250 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 In a message dated 10/7/99 2:25:26 AM Eastern Daylight Time, HELLRAAZR@... writes: << Peace in Him Kem >> Hello and welcome to the list, Kem!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 Kem Welcome to the list Hugs, Penny 173/158/130 Goal for Oct 31st is-----150!!!!! Visit me at: http://www.geocities.com/shadcat708/The__Home.html " >The__Hom http://www.geocities.com/shadcat708/The__Home.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 Hi Kem Don't know anything about those drugs you mentioned but wanted to welcome you anyway. Bev in Selah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 In a message dated 10/22/1999 1:54:37 PM Eastern Daylight Time, OGOofWa@... writes: << How low is TOO low for your blood sugar to be? >> Normal blood sugars should be between 70-120. Yours seem just great!! Exactly where you want to be. It is not the sugar that helps keep your sugars normal when your Hypo, it is just eating, anything. As a matter of fact Sugar isn't at all what you should eat if your Hypo, Some hypo is a pre diabetic stage. You need to get checked if you really think this is true. You will not faint dead away, you will have symptoms, like cold sweats and a quiseyness in your tummy, amoung other things. Don't worry about it, This WOL is for both Hypo and Diabetes. I have Type II also and my levels have been in the norm since a month after I started!! The best time to check for your sugar levels is before each meal if they are normal then you are fine. Also CHecking for Ketosis, check in the evenings is the best time. Animal fat is not going to give you a stroke!! LOL You should be taking vitamins and you will start feeling better at the end of the first week or even the beginning of the 2nd week!! good luck in this way of life!!! Hugs Penny---Ohio 173/157/130 Goal for Oct 31st-----155 !!!!!!!!Go Braves!!!!!!!!! List Co-Moderator---ICQ#51429926 http://members.xoom.com/Shadcat708/LC.html http://www.geocities.com/shadcat708/The__Home.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 Oh Penny, You have definitely helped to put my mind at ease.. I'm tellin ya, I am a major worry wart. I am a bit stressed because Ron (DH) took his glucometer to work with him this a.m. (how DARE he...lol) and I have no way of checking my sugar level. (worry worry worry) To be truthful, my guess is that there is absolutely nothing medically wrong with me as far as my blood sugars go..my problem lies with the fact that I have poisoned my body for so long with low-fat/high carbo foods for such a long time that it is simply going to take my body a little while to adjust. My blood sugar was 91 when I woke up this morning before I ate anything at all (which is normal?) so I think I can relax in the assertion that I am not going to go into a coma by this evening. (I'm trying to convince myself here, OK?) BTW..I ate a chef's salad for lunch today, and I probably ate a little too much romaine. I ate first, checked the carbo content afterwards and found out there is 2 g. per 2 leaves. OOPS! I guess I better start double checking before I eat. How long after I eat too many carbs will it throw me out of ketosis if it's going to? I must close this post by saying that I am sorry if I seem crabby these next few days. (weeks? years?) I am in some major sugar withdrawal. The strange thing is..although my body acts like it's in withdrawal, I have NO desire to eat sugar. I am such a B**** that I have given my kids the last few days off of school (we homeschool) because I have no patience at all and I don't want to snap at them and hurt their little egos. (not saying that I won't snap at them over their bedrooms being disgusting, I just won't snap at them as far as their education is concerned) Still hanging! (and hagging) Shari 186/???/135ish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 Shari, Being moody and b****y is all part of the withdrawl from carbs. You'll get better!! < > That is totally up to the individual. Hugs Penny---Ohio 173/157/130 Goal for Oct 31st-----155 !!!!!!!!Go Braves!!!!!!!!! List Co-Moderator---ICQ#51429926 http://members.xoom.com/Shadcat708/LC.html http://www.geocities.com/shadcat708/The__Home.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 Hi Shari, Hope this will be of some help. Normal sugar is 80 to 120 and I have been diabetic for a lot of years.. You are normal and be thankful. Don't think you have anything to worry about. Wish mine were that good. I take insulin twice a day. Good luck on this WOL. It will get better. May take a couple more days. Just hang in there. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 , Welcome. I posted my intro earlier today, hope you got it. My suggestion for you, to help with milk supply, is from your post itself. You said your son sleeps through the night and nurses 4-5 times per day. You really need for him to nurse 6+ times per day to keep your supply up at his current age. The how-to: Get him up and feed him one more time at night, wake up earlier and nurse one more time early in the morning, or both. Beyond that, oatmeal, mother's milk tea, fenugreek, are other things to increase your supply. Also, between 4.5 to 6 months of age is the next expected growth spurt. Glad to have you here, Amy Lynn mother to 1-25-98 and 2-10-00 Want great toys? Non-violent, educational, fun! check out www.discoverytoysinc.com, or e-mail me privately for a catalog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 I meant to write BPD/DS (I'll get it figured out some day). :-) Jacque > Hi, my name is Jacque, and I have an appointment Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the BPD... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 I meant to write BPD/DS (I'll get it figured out some day). :-) Jacque > Hi, my name is Jacque, and I have an appointment Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the BPD... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 I meant to write BPD/DS (I'll get it figured out some day). :-) Jacque > Hi, my name is Jacque, and I have an appointment Oct. 27th for my > initial consult with Dr. Sudan in Omaha, NE, for the BPD... Quote Link to comment Share on other sites More sharing options...
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