Re: Update on

[Guest guest]

> Maybe it is just really hard for a child to gain once they have been

> terribly slow when they are little one's??

>

I think so, BJ can never seem to get over that 30 mark the doctors want him

to get, he bounces between 25 and 30.

Dawn, Loving mommy to 2 girls and a super strong little boy

[Guest guest]

Cathy,

How tall are you? I think I would just need to blow on you to tip you over!

LOL

Re: [eosinophilic gastroenteritis] Update on

> In a message dated 4/11/00 6:31:31 AM Pacific Daylight Time,

JMBWE123@...

> writes:

>

> <<

> << weighs 30 lbs. >>

> My weighs 29 lbs and he is 4.5 yrs. old. Is that super bad or

what?

> Di

>

> --- >>

> Ok, I am 35 and weigh 57lbs, now thars bad!! My friend has a 3.4 yr. old

> who weighs 25lbs.

> Cathy

>

> mom to 12, AS, EE, allergic to soy, nuts, peanuts, tomato, rice,

> carrot, string bean, kidney bean, orange, pear, onion, mustard seed, grape

>

> ------------------------------------------------------------------------

> eGroups + great entertaining = An Unforgettable Easter

> Click Below to see how

> http://click.egroups.com/1/3124/5/_/474479/_/955501352/

> ------------------------------------------------------------------------

>

[Guest guest]

So you are tall.......just very thin. How much does weigh? Does

pull the " I'm bigger and taller than you thing " ? Do you need to

wear a brace? My friends son has Scholiosis and they have a brace for him

but they are also doing another surgery. I believe putting in hooks. He

also had a dusting of bone put on his backbone to make it grow better. But

I think he is at around 50% curve.

Re: [eosinophilic gastroenteritis] Update on

> In a message dated 4/11/00 6:10:56 PM Pacific Daylight Time,

> andrea.allred@... writes:

>

> <<

> Cathy,

>

> How tall are you? I think I would just need to blow on you to tip you

over!

> LOL

> >>

>

> I'm 4' 10 " , but have 85degree scholiosis curve. If my back was straight,

I

> would be about 5' 6' " tall.

> Cathy

>

> ------------------------------------------------------------------------

> Avoid the lines and visit avis.com for quick and easy online

> reservations. Enjoy a compact car nationwide for only $29 a day!

> Click here for more details.

> http://click.egroups.com/1/3011/5/_/474479/_/955503115/

> ------------------------------------------------------------------------

>

[Guest guest]

In a message dated 04/11/2000 6:03:50 PM Pacific Daylight Time,

dcjatben@... writes:

<< Ok, I am 35 and weigh 57lbs >>

Is that a typo?

[Guest guest]

In a message dated 4/11/00 6:42:03 PM Pacific Daylight Time,

andrea.allred@... writes:

<< So you are tall.......just very thin. How much does weigh? Does

pull the " I'm bigger and taller than you thing " ? Do you need to

wear a brace? My friends son has Scholiosis and they have a brace for him

but they are also doing another surgery. >>

well. I'm really short, i'm 4' 10 " , weighs about 68lbs. He has lost

weight since his EE diagnosis. I had a brace when I was a teenager but my

curves are to high on my back and too low for the brace to work. Now because

of it, I have only 17% lung capacity.

Cathy

[Guest guest]

In a message dated 4/21/00 12:15:10 PM Pacific Daylight Time,

saherric@... writes:

<<

Hi,

We just got out of the hospital today. We went for an appt. with the GO

and got admitted. had a bad flare of her EG. She was on TPN, which

she was allergic to. We had a J tube placed yesterday in hopes of not

having to go back on TPN. We hope she will do OK >>

How is she feeling now? Better I hope. We'll keep her in our prayers that

she won't have to go back on TPN.

Cathy

mom to 12, AS, EE, allergic to soy, nuts, peanuts, tomato, rice,

carrot, string bean, kidney bean, orange, pear, onion, mustard seed, grape

[Guest guest]

,

glad to hear from you, was wondering what had happened. Glad

you are

back and starting to feel some better. You got my prayers

that the tube comes out as scheduled.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

[Guest guest]

,

I glad that things are finally looking up for you. Keep up the good work and I

say a prayer that you get your J-tube out May 8.

Take Care,

Louie in WV

Update on

Sweets

Hey everyone,

I know I haven't posted in over two months almost but I do have a real good

reason. I had major trouble after my ERCP on Feb. 4. It wasn't due to the

ERCP but because Oddi had completely closed up and cause major problems. I

stayed in the hospital the first time for two days. They let me go home

Feb. 6 with the stent still in me and told me to stay out of work until the

11. Well that didn't work because I winded back up in the ER on the 10th in

major pain that my pain med was not working. They did an X-ray and found

out the stent had already passed in 6 days. Dr. Hawes had told me that was

going to be my last ERCP because I have had too many and the next time they

were talking about surgery. Instead Dr. Hawes decided that they should go

in and find out what happen. Guess what. My duct was closed further up and

they didn't go that far the first time so that was why I was still having

the pain. I stayed in the hospital for a couple of weeks and got out on

Feb. 22 and was told to stay out of work for 3 weeks to give me a rest from

work and stress. During this time Dr. Hawes told me not to force myself to

eat solid foods but I could have low fat. Well by the time the three weeks

were up on March 13 I was only eating Popsicles and they weren't agreeing

with me. So when I went back for my follow up appointment, Dr. Hawes and I

talked and we decided the next step was complete pancreas rest which meant a

J-tube. Yay. hehe. I got it put in on March 15 and boy after surgery was

a doozy. MY PICC line wasn't taking the sleeping meds fast enough so when I

woke up I found a IV in my foot and they had disconnected my pump and I was

in really excruciating pain. UGH. By the time I got up to my room I was

crying really bad. Luckily I had a great nurse that shift and Dr. Hawes

associate had walked in the room and they got me hooked back up and gave me

a boost for pain. I spent another ten days in the hospital and came home on

the feeding tube. Just last week they let me start eating real food and if

everything continues to go well I will be getting the tube out on May 8. I

know that some of you may have been wondering about me because we do email

each other so I thought I would let you know what was going on and how I was

doing.

Terry I am glad that you are home and doing better as well as the other

people I talk to. I am glad that you are getting some help.

in Sumter, SC

[Guest guest]

,

My thoughts and prayers go out to you. I know how

stressed you must feel about all of this and I hoppe

that things will work out for you soon. Take care and

know that you are in my thoughts and prayers daily.

{{{HUGZ}}}

--- SNOBLES@...> wrote:

> Hello everyone,

> I wanted to let you know what has been going on with

> my life in the last

> month. I got the tube out May 8 and was very happy.

> On May 15th I had an

> appt. with my primary doctor and told her that the

> back pain they thought I

> was having wasn't caused from the pancreas this time

> since I had been

> keeping food down and not getting sick to my

> stomach. She decided to have

> an X-ray done and since I have a history of

> endometriosis that runs in my

> family she sent me to an OB-GYN. On the 16th I went

> to work and half way

> through the day I was hurting so bad I was crying.

> I called my boss to

> tell her I needed to go home and she said that was

> fine but from now on you

> must have a doctor's excuse. I made it through the

> weekend, majorly hurting

> but working and had got a doctor's excuse from my

> primary just in case. On

> Monday the 20th I went to work crying. My mom was

> upset and wanted me to go

> home. Well my boss was in a fowl mood that day and

> I called my doc to get

> the excuse but since she wouldn't be in the office

> all day I got a call back

> stating that the matter would be address in the

> morning. I didn't go home

> because of my boss's attitude and my mom was like I

> want you to go home and

> if she fires you then oh well. I did tell my boss

> that night that I

> couldn't stay until 8 when we close at 6 and she was

> fine with that. I got

> up the next morning and went to work. Half way

> through the day we got the

> doctor's excuse for the day before and the doc had

> wanted me to miss that

> day also. If I had known that I wouldn't have went

> to work that day either.

> Since we had to stay until 8 and the other girl was

> staying that night I

> went home early. It had been agreed upon earlier by

> the boss when we had

> the meeting about staying late. Well some things

> were said to my boss and

> don't know who said it because the next morning I

> came in and a couple of

> minutes later I had 3 write ups in my hand. Mind

> you before I got sick I

> never had been written up and was suppose to be an

> excellent worker. This

> from the president and vice president of the

> company. One of the write-ups

> were for living work early, one for gossiping, which

> everyone was doing, and

> the third for locking the door during business

> hours, which we all do from

> time to time if we have to fax something next door.

> My understanding is

> that 3 write ups you are fired. Well I left work

> that morning not knowing

> what would happen next. I just had an appt on the

> 30th with the OB and for

> the x-ray. I got a phone call from the pain clinic

> saying that my doc also

> wanted me to see them.

> My appts. on the 30th went all right. They

> found out that I have

> endrometis and have been given antibiotics for that.

> For the back pain we

> finally have found a cause somewhat. It seems that

> I have trigger spots in

> which the muscles tighten up and do not ease up. I

> winded up getting shots

> in my back and since the shots I have not had any

> back pain. YAY! Just a

> little sore from the shots. We haven't heard

> anything about the X-ray yet

> but am hoping the doc calls soon with the results.

> As for the job situation I am trying to find

> another job because I

> can't afford to stay out of work. I have filed for

> unemployment and hope

> that it comes through if I can't find a job right

> away. The financial aide

> person at MUSC told me to go ahead and file for

> Disability because it

> doesn't look like I am going to get any better. She

> told me that I didn't

> need to worry about the bills because they can't

> refuse me treatment. I am

> trying to pay them off but right now the only thing

> I can give them is my

> taxes every year. I almost had almost all the other

> ones paid off until

> this last hospital stay. Now as of right now I have

> $20000 in bills and I

> don't know how much the insurance is going to pay

> because they are hollering

> preexisting condition. I know I am getting more

> upset everyday because of

> what happened at work that I can't sleep and when I

> do get to sleep it is

> usually only a couple of hours. Right now I have

> enough pain meds to last

> for a while but I don't know what I am going to do

> when I run out of my

> Viokase because I can't pay the $100 a month to keep

> taking them.

> Sorry this is so long but I needed to get this off

> my chest. I started

> having pains in my side because of all of this and

> had a major pain in the

> sky the day everything went down. That is finally

> easing up some and now is

> just down to a dull pain. Sometimes I hate SOD and

> this disease so much I

> don't know what to do.

>

> in Sumter, SC

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Thanks .

It means so much to me. Take care of yourself also. I am just trying

to make it one day at a time.

in Sumter, SC

Re: Update on

,

My thoughts and prayers go out to you. I know how

stressed you must feel about all of this and I hoppe

that things will work out for you soon. Take care and

know that you are in my thoughts and prayers daily.

{{{HUGZ}}}

[Guest guest]

, sounds like you got some of them cults working against you to!

Good that the pancreatitis problems have slowed for you. It seems as

if management has turned itself on you. They need to learn about this

disease and show a little heart. I worked for this great company in

the upstate with major pancreatitis for years. They went overboard to

help me during the bad times. You need to find one of those kind of

place to work. They are hard to find. At least you do have your mom.

She will be there for you. My parents were behind me until they

passed away in 96-97. Now it is a empty void. Isn't SC a tripping

place to live? You never know what to expect next! Good luck and you

are in our prayers.

> Hello everyone,

> I wanted to let you know what has been going on with my life in the

last

> month. I got the tube out May 8 and was very happy. On May 15th I

had an

> appt. with my primary doctor and told her that the back pain they

thought I

> was having wasn't caused from the pancreas this time since I had

been

> keeping food down and not getting sick to my stomach. She decided

to have

> an X-ray done and since I have a history of endometriosis that runs

in my

> family she sent me to an OB-GYN. On the 16th I went to work and

half way

> through the day I was hurting so bad I was crying. I called my

boss to

> tell her I needed to go home and she said that was fine but from

now on you

> must have a doctor's excuse. I made it through the weekend,

majorly hurting

> but working and had got a doctor's excuse from my primary just in

case. On

> Monday the 20th I went to work crying. My mom was upset and wanted

me to go

> home. Well my boss was in a fowl mood that day and I called my doc

to get

> the excuse but since she wouldn't be in the office all day I got a

call back

> stating that the matter would be address in the morning. I didn't

go home

> because of my boss's attitude and my mom was like I want you to go

home and

> if she fires you then oh well. I did tell my boss that night that

I

> couldn't stay until 8 when we close at 6 and she was fine with

that. I got

> up the next morning and went to work. Half way through the day we

got the

> doctor's excuse for the day before and the doc had wanted me to

miss that

> day also. If I had known that I wouldn't have went to work that

day either.

> Since we had to stay until 8 and the other girl was staying that

night I

> went home early. It had been agreed upon earlier by the boss when

we had

> the meeting about staying late. Well some things were said to my

boss and

> don't know who said it because the next morning I came in and a

couple of

> minutes later I had 3 write ups in my hand. Mind you before I got

sick I

> never had been written up and was suppose to be an excellent

worker. This

> from the president and vice president of the company. One of the

write-ups

> were for living work early, one for gossiping, which everyone was

doing, and

> the third for locking the door during business hours, which we all

do from

> time to time if we have to fax something next door. My

understanding is

> that 3 write ups you are fired. Well I left work that morning not

knowing

> what would happen next. I just had an appt on the 30th with the OB

and for

> the x-ray. I got a phone call from the pain clinic saying that my

doc also

> wanted me to see them.

> My appts. on the 30th went all right. They found out that I

have

> endrometis and have been given antibiotics for that. For the back

pain we

> finally have found a cause somewhat. It seems that I have trigger

spots in

> which the muscles tighten up and do not ease up. I winded up

getting shots

> in my back and since the shots I have not had any back pain. YAY!

Just a

> little sore from the shots. We haven't heard anything about the X-

ray yet

> but am hoping the doc calls soon with the results.

> As for the job situation I am trying to find another job

because I

> can't afford to stay out of work. I have filed for unemployment

and hope

> that it comes through if I can't find a job right away. The

financial aide

> person at MUSC told me to go ahead and file for Disability because

it

> doesn't look like I am going to get any better. She told me that I

didn't

> need to worry about the bills because they can't refuse me

treatment. I am

> trying to pay them off but right now the only thing I can give them

is my

> taxes every year. I almost had almost all the other ones paid off

until

> this last hospital stay. Now as of right now I have $20000 in

bills and I

> don't know how much the insurance is going to pay because they are

hollering

> preexisting condition. I know I am getting more upset everyday

because of

> what happened at work that I can't sleep and when I do get to sleep

it is

> usually only a couple of hours. Right now I have enough pain meds

to last

> for a while but I don't know what I am going to do when I run out

of my

> Viokase because I can't pay the $100 a month to keep taking them.

> Sorry this is so long but I needed to get this off my chest. I

started

> having pains in my side because of all of this and had a major pain

in the

> sky the day everything went down. That is finally easing up some

and now is

> just down to a dull pain. Sometimes I hate SOD and this disease so

much I

> don't know what to do.

>

> in Sumter, SC

>

>

>

[Guest guest]

,

Thanks so much for your prayers. Yeah SC is a trip and I was born and

raised here. It does sound like I have some cults working against me

because also my insurance company is fighting paying my hospital bills. In

other words they don't want to pay them and I am right now still out of work

and have no money coming in. UGH. Thanks for everything. My mom and I

have been very close all my life and I don't know what I would have done

these last couple of months without her. She is a savior. I am sorry about

your parents but I am sure that they are watching over you still. Take care

and talk to you soon.

in Sumter, SC

Re: Update on

, sounds like you got some of them cults working against you to!

Good that the pancreatitis problems have slowed for you. It seems as

if management has turned itself on you. They need to learn about this

disease and show a little heart. I worked for this great company in

the upstate with major pancreatitis for years. They went overboard to

help me during the bad times. You need to find one of those kind of

place to work. They are hard to find. At least you do have your mom.

She will be there for you. My parents were behind me until they

passed away in 96-97. Now it is a empty void. Isn't SC a tripping

place to live? You never know what to expect next! Good luck and you

are in our prayers.

[Guest guest]

hi georgie...

what other microtia site do you belong to??

-----Original Message-----From: Christie Weiss Sent: 16 June 2002 09:43To: AtresiaMicrotia Subject: RE: Update on

Hi Georgie, glad to know I'm not the only one with a "chunky monkey!" (yes, that's my nickname for him these days!). Isn't it great to hear that they are developing normally? The only thing isn't doing yet is rolling over, or playing with his feet. But I informed the occupational therapist that I didn't think he could reach his feet, that's why he wasn't playing with them! We haven't done a CT scan either, but I can tell you from my experience with sedation that it wasn't nearly as awful as I thought it would be. One of the nurses told me that babies tend to do much better with it than toddlers. But I agree, it is scary to think about it with them so young (although I know I will hate it everytime, no matter what age he is). That is great that you've met with and you both have such a great support team so close to you. The Health Department told me there are only two other cases is my county, one is a boy that is quite a bit older and they have since moved away, and I'm not sure what the age is of the other. We take tomorrow to get fitted with his bone conduction hearing aid.

Thanks for the hugs, and you do the same for Anson!

Christie

P.S. Just a reminder, but if Anson is in an infant carrier, you may want to check the weight limit. Most of them are 20-22 lbs. I am going today to get a convertible seat (Britax Roundabout).

-----Original Message-----From: A Collantes Sent: Sunday, June 16, 2002 2:09 AMTo: atresiamicrotia Subject: Re: Update on

Hi Christie, I hope everything is going well with you. I did take Anson to the doctor on Monday and he is 20 pounds. I couldn't believe it when the nurse said it. He will be 4 months on the 17th of this month. The doctor said Anson is developing like any baby should at his age. We have not yet had a CT scan on his microtia ear but the doctor wants to wait until he is older because they have to put him asleep. I told him that I will wait because they do have to sedate him. Actually the new member lives in the same city as me and we have met already. Both our boys were born at the same hospital only 5 weeks apart with microtia on the right side. I happen to go into another website on microtia and found that she had posted a message we started to email each other and after a few emails we realized we lived in the same city and only 10 minutes away from each other. It was pure luck that we found each other. I hope I didn't bore you to tears but it was nice to chat and I will talk to you soon.

P.S Give a hug from me and Anson

Take Care

Georgie

[Guest guest]

,

Can you see your doctor to get a new prescription? Or go to

the ER to get one? There are programs out there for people

who cannot afford their medications. I've got a list of them

if you need it. Just let me know and I'll email it to you. I

just don't like to see any of us in pain and I wish I could

do more to help you.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

,

Can you see your doctor to get a new prescription? Or go to

the ER to get one? There are programs out there for people

who cannot afford their medications. I've got a list of them

if you need it. Just let me know and I'll email it to you. I

just don't like to see any of us in pain and I wish I could

do more to help you.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

Hey ,

I am so sorry you are doing so bad. I haven't had my computer for a

while and I am trying to catch up. Let me know if you need anything.

We may have to go to MUSC soon, Jackie is doing so bad...just seem to

down quick. She was nauseas really bad for a while now, but now the

pain has been really bad for a few days. I am going to pushing for a

ctscan...I think something is wrong. Short version is the oncall doc

told me yesterday that her ctscan in 2001 showed the pancreas

shrinking...don't sound good to me. Would have been nice if they

told me what that meant..I thought it meant inflammation going down

but seems it might be something bad. Anyways, I know you are feeling

bad so I will hush...but I have my computer fixed and I am here if ya

need me...just write to my regular email address cuz I am behind on

the posts and am trying to get caught up. I want to be able to talk

with you if you need me. How is your mom? I am sure she is worried

about you. Talk to ya soon,

[Guest guest]

Hey ,

I am so sorry you are doing so bad. I haven't had my computer for a

while and I am trying to catch up. Let me know if you need anything.

We may have to go to MUSC soon, Jackie is doing so bad...just seem to

down quick. She was nauseas really bad for a while now, but now the

pain has been really bad for a few days. I am going to pushing for a

ctscan...I think something is wrong. Short version is the oncall doc

told me yesterday that her ctscan in 2001 showed the pancreas

shrinking...don't sound good to me. Would have been nice if they

told me what that meant..I thought it meant inflammation going down

but seems it might be something bad. Anyways, I know you are feeling

bad so I will hush...but I have my computer fixed and I am here if ya

need me...just write to my regular email address cuz I am behind on

the posts and am trying to get caught up. I want to be able to talk

with you if you need me. How is your mom? I am sure she is worried

about you. Talk to ya soon,

[Guest guest]

,

You have really been thru the mill. I sorry that you are having all these

problems and all the stress that you have gone thru since May isn't helping

the pancreatitis. I surely hope by giving you the TPN that your pancreas

can rest and it will settle down soon and you will be out of pain. I hope

that the patches are giving you the releif that you so well deserve.

Hopefully that the TPN you are on, won't take a long while to do it job.

Things are surely bound to get better. I keep you in my prayers, that

everything turn out for the best and that it happen very soon. Good luck

with filing your disability. From what you are going thru, you surely

deserve it. Just remember that tomorrow is another day, and hopefully the

pain will be less. Do keep us posted on how you are doing. We all care

about you.

Take Care,

Louie in Wheeling, WV

Update on

> Hello everyone,

> I have been a lurker the past couple of weeks because I have been going

> through a lot of stuff. Winded up in the local hospital on July 27 with

a

> bout. My lipase was 800. Amyalase was 155. Kept me in over the weekend

> and since Tuesday morning the doc says I was keeping my liqurds down he

was

> going to send me home. Mind you I went home on a morphine shot. My

brother

> and his new wife was home because he was fighting for custody of his kids

> plus I had been sick since I lost my job since May and was fighting going

to

> the hospital because of the bills. I have filed for disability and

everyone

> here knows how long that can take. Well I got out that Tuesday and come

> Thrusday was still in pain. Tried to get a hold of at MUSC and

> couldn't get a hold of her. Finally decided to go to the ER at MUSC and

> when we pulled up DR. Hawes was walking out to go home. He told me to go

to

> the ER and find out if my levels were up so I did. Well after sitting for

> about 3 hours (Longest wait I have ever had at MUSC) I get this doc that

> tells me that even though my levels might be up it doesn't mean that I am

> having a bout. Can we say I wanted to shoot him on the spot. He also

told

> me that since Dr. Hawes did not tell them that I was coming in that all

they

> could do was give me a pain shot and send me home because all the beds

were

> filled at MUSC. Well to make a long story short on that one, my levels

were

> a little high but not sky high. Lipase was 97. Amalayse was normal. Got

a

> shot of Dilulaid and phengan and went home with the instructions to get a

> hold of Dr. Hawes in the morning and follow up with him. As soon as the

> pain meds wore off I was back in pain. The next morning I called to speak

> with and was told she was in the office but was away from her desk.

I

> tried 3 times that morning to get a hold of her, each time told the same

> thing. My mom finally got on the phone and demanded to speak with .

> confirmed that they didn't have any hospital beds and she was going

to

> talk to DR. Hawes and see what he said. Well a little while later she

> called back and told me to go back to the local ER and let them know that

I

> was still in pain. I asked her to please call them and let them know that

I

> was on my way. She asked me did I want to be admitted and I told her that

I

> thought it was best because that was the only releif I could get right now

> since my pain meds at home were not working. Got to the ER and when we

> finally got back they took more bloodwork and found my lipase was up to

298.

> The doc was too concerned about that until I told him the night before it

> was only 97. They winded up admitting me again and before I even left the

> ER they had to stick me again because I lost the vein in my hand. Spent a

> week in there winded up with a porta cath and on TPN. I think I got stuck

> one day at least 20 times. That was when they decided to do the portacath

> and it took them 5 times to find a vein in my foot. I am now at home on

the

> TPN which I am having now to take insulin with because for the first time

my

> sugars went up. I have to take my blood sugar twice a day and the only

> thing I can have by mouth is ice chips. They didn't even want me to take

my

> pain meds and nausea meds by mouth but I am flat broke and the only thing

> they have me on for pain is the Durgesic patch. Luckily we were able to

> find a charity that helped me get my strips and my patches but I only have

> one more patch left and after that I don't know what to do. I have a home

> health nurse that comes out once a week to take blood and change my

bandage

> and needle on my portacath. I stay so tired and if it wasn't for the

> hospital and someone else donating the supplies and TPN I don't know what

I

> would be doing right now. Sorry to make this so long but I knew that I

> could vent to people here. and and Heidi thanks for being

> there for me. I am going to end this for now because I am getting sleepy

> again and I need to get my sleep while I can.

> in Sumter,SC

>

>

>

[Guest guest]

,

You have really been thru the mill. I sorry that you are having all these

problems and all the stress that you have gone thru since May isn't helping

the pancreatitis. I surely hope by giving you the TPN that your pancreas

can rest and it will settle down soon and you will be out of pain. I hope

that the patches are giving you the releif that you so well deserve.

Hopefully that the TPN you are on, won't take a long while to do it job.

Things are surely bound to get better. I keep you in my prayers, that

everything turn out for the best and that it happen very soon. Good luck

with filing your disability. From what you are going thru, you surely

deserve it. Just remember that tomorrow is another day, and hopefully the

pain will be less. Do keep us posted on how you are doing. We all care

about you.

Take Care,

Louie in Wheeling, WV

Update on

> Hello everyone,

> I have been a lurker the past couple of weeks because I have been going

> through a lot of stuff. Winded up in the local hospital on July 27 with

a

> bout. My lipase was 800. Amyalase was 155. Kept me in over the weekend

> and since Tuesday morning the doc says I was keeping my liqurds down he

was

> going to send me home. Mind you I went home on a morphine shot. My

brother

> and his new wife was home because he was fighting for custody of his kids

> plus I had been sick since I lost my job since May and was fighting going

to

> the hospital because of the bills. I have filed for disability and

everyone

> here knows how long that can take. Well I got out that Tuesday and come

> Thrusday was still in pain. Tried to get a hold of at MUSC and

> couldn't get a hold of her. Finally decided to go to the ER at MUSC and

> when we pulled up DR. Hawes was walking out to go home. He told me to go

to

> the ER and find out if my levels were up so I did. Well after sitting for

> about 3 hours (Longest wait I have ever had at MUSC) I get this doc that

> tells me that even though my levels might be up it doesn't mean that I am

> having a bout. Can we say I wanted to shoot him on the spot. He also

told

> me that since Dr. Hawes did not tell them that I was coming in that all

they

> could do was give me a pain shot and send me home because all the beds

were

> filled at MUSC. Well to make a long story short on that one, my levels

were

> a little high but not sky high. Lipase was 97. Amalayse was normal. Got

a

> shot of Dilulaid and phengan and went home with the instructions to get a

> hold of Dr. Hawes in the morning and follow up with him. As soon as the

> pain meds wore off I was back in pain. The next morning I called to speak

> with and was told she was in the office but was away from her desk.

I

> tried 3 times that morning to get a hold of her, each time told the same

> thing. My mom finally got on the phone and demanded to speak with .

> confirmed that they didn't have any hospital beds and she was going

to

> talk to DR. Hawes and see what he said. Well a little while later she

> called back and told me to go back to the local ER and let them know that

I

> was still in pain. I asked her to please call them and let them know that

I

> was on my way. She asked me did I want to be admitted and I told her that

I

> thought it was best because that was the only releif I could get right now

> since my pain meds at home were not working. Got to the ER and when we

> finally got back they took more bloodwork and found my lipase was up to

298.

> The doc was too concerned about that until I told him the night before it

> was only 97. They winded up admitting me again and before I even left the

> ER they had to stick me again because I lost the vein in my hand. Spent a

> week in there winded up with a porta cath and on TPN. I think I got stuck

> one day at least 20 times. That was when they decided to do the portacath

> and it took them 5 times to find a vein in my foot. I am now at home on

the

> TPN which I am having now to take insulin with because for the first time

my

> sugars went up. I have to take my blood sugar twice a day and the only

> thing I can have by mouth is ice chips. They didn't even want me to take

my

> pain meds and nausea meds by mouth but I am flat broke and the only thing

> they have me on for pain is the Durgesic patch. Luckily we were able to

> find a charity that helped me get my strips and my patches but I only have

> one more patch left and after that I don't know what to do. I have a home

> health nurse that comes out once a week to take blood and change my

bandage

> and needle on my portacath. I stay so tired and if it wasn't for the

> hospital and someone else donating the supplies and TPN I don't know what

I

> would be doing right now. Sorry to make this so long but I knew that I

> could vent to people here. and and Heidi thanks for being

> there for me. I am going to end this for now because I am getting sleepy

> again and I need to get my sleep while I can.

> in Sumter,SC

>

>

>

[Guest guest]

I am so very glad you have her starting to get back on track. Maybe the

cipro will do the trick. I hold you in all my best " get well " thoughts.

Keep us posted. Stay with that DOC. Insist!!

LOVE & HUGS, grandmomBEV

Update on

I posted 2 weeks ago that has had a cough for 2 months and for

most of that she has needed o2 at night. I pushed to get her into

clinic (they wanted to wait 2 months unless she started needing day

o2) and it was with one of the docs that I really like. I think in

the future I really need to find out who appointments are with and

make sure that it is with one of the docs that I really trust.

Anyway, this dr was quite concerned about what she was doing and did

a sputum, chest x-ray and started her on Cipro. The sputum came back

postive for psuedomonas which she hasn't grown in over a year. We

haven't gotten the chest x-ray results or the sensitivity tests on

the sputum yet. If she isn't doing better by next week we will

schedule her for a hospitalization. Right now she seems to be doing

better but she has been going through cycles of doing well for a few

days and then bad again. Hopefully, though, the cipro has started

helping her.

Georgianna, (4 wo cf) and (2.5 w/ cf)

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

--------------------------------------------------

[Guest guest]

Georgianna,

We always do Cipro. combined with colistin inhaled. My daughter was

agressively treated and after culturing it with broncoscopies every 3

months now hasnt cultured it for nearly 2 years. It pays to be

aggressive.

Update on

I posted 2 weeks ago that has had a cough for 2 months and for

most of that she has needed o2 at night. I pushed to get her into

clinic (they wanted to wait 2 months unless she started needing day

o2) and it was with one of the docs that I really like. I think in

the future I really need to find out who appointments are with and

make sure that it is with one of the docs that I really trust.

Anyway, this dr was quite concerned about what she was doing and did

a sputum, chest x-ray and started her on Cipro. The sputum came back

postive for psuedomonas which she hasn't grown in over a year. We

haven't gotten the chest x-ray results or the sensitivity tests on

the sputum yet. If she isn't doing better by next week we will

schedule her for a hospitalization. Right now she seems to be doing

better but she has been going through cycles of doing well for a few

days and then bad again. Hopefully, though, the cipro has started

helping her.

Georgianna, (4 wo cf) and (2.5 w/ cf)

[Guest guest]

Georgianna,

We always do Cipro. combined with colistin inhaled. My daughter was

agressively treated and after culturing it with broncoscopies every 3

months now hasnt cultured it for nearly 2 years. It pays to be

aggressive.

Update on

I posted 2 weeks ago that has had a cough for 2 months and for

most of that she has needed o2 at night. I pushed to get her into

clinic (they wanted to wait 2 months unless she started needing day

o2) and it was with one of the docs that I really like. I think in

the future I really need to find out who appointments are with and

make sure that it is with one of the docs that I really trust.

Anyway, this dr was quite concerned about what she was doing and did

a sputum, chest x-ray and started her on Cipro. The sputum came back

postive for psuedomonas which she hasn't grown in over a year. We

haven't gotten the chest x-ray results or the sensitivity tests on

the sputum yet. If she isn't doing better by next week we will

schedule her for a hospitalization. Right now she seems to be doing

better but she has been going through cycles of doing well for a few

days and then bad again. Hopefully, though, the cipro has started

helping her.

Georgianna, (4 wo cf) and (2.5 w/ cf)

[Guest guest]

Thanks for your concern, Zephyr. I'm home again today still with a

low-grade fever but I think I'm on the mend. Sorry to hear Skyman

has not been feeling well. Teething can be so hard on little ones

but I think sometimes it is harder on us big ones! Take care !

> Ok I can call back the national gaurd, I was really begining to

worry about you. Sorry you all have been sick. Glad to hear you are

right beside me in getting my rear in gear. Take it easy and be well.

> Zephyr

> Update on

>

>

> Hello all!!! I suppose you all thought I'd dropped off the face

of

> the earth. Well, I have managed to climb back most of the way!

> LOL Sorry I've been AWOL for a while but somebody in my family

has

> had the crud/bronchitis for the past week. The past few days, I

> have been down with it so I haven't had the energy to do much of

> anything but cough. OK, enough whining, already!

>

> I just wanted to pop in and say " Welcome " to all the

> newbies, " WooHoo " to all the losers, I'm hanging in there with

you

> to those of you struggling,and a BIG " Praise the Lord " that they

> caught the Beltway Sniper(s)!!

>

> I have been OP for the past two days (most of my points have

been in

> the form of juice) but I have decided to be serious and work the

> program the way it is supposed to be worked. I don't feel much

like

> exercising, but I do have a plan for when I feel better

(hopefully

> the next day or so!). I have also decided to start attending

the

> meetings again and go on Tuesday mornings when they have a

really

> great leader. I know, I'm supposed to be at work then, but I

will

> say I have an appointment on Tuesday mornings and go in late.

What

> are they going to do....fire me....again??! (FYI- our plant is

being

> closed on 11/27/02)

>

> I have really missed you guys! Well, it's almost bedtime and I

> really need some extra rest so I'll check in tomorrow!

>

>

>

>

>

[Guest guest]

lisa, i was worried about you. sorry to hear that you were sick. i found

out my grade for my class it was a c i am not happy because i wanted a

b. on the ww front, i lost a pound so down to 164.0. today i have the

worst headache and am hoping it will go away soon.

take care

glad you are going to be okay

erin

>>> lisa-c.smith.b@... 10/30/02 09:54AM >>>

Thanks for your concern, Zephyr. I'm home again today still with a

low-grade fever but I think I'm on the mend. Sorry to hear Skyman

has not been feeling well. Teething can be so hard on little ones

but I think sometimes it is harder on us big ones! Take care !

> Ok I can call back the national gaurd, I was really begining to

worry about you. Sorry you all have been sick. Glad to hear you are

right beside me in getting my rear in gear. Take it easy and be well.

> Zephyr

> Update on

>

>

> Hello all!!! I suppose you all thought I'd dropped off the face

of

> the earth. Well, I have managed to climb back most of the way!

> LOL Sorry I've been AWOL for a while but somebody in my family

has

> had the crud/bronchitis for the past week. The past few days, I

> have been down with it so I haven't had the energy to do much of

> anything but cough. OK, enough whining, already!

>

> I just wanted to pop in and say " Welcome " to all the

> newbies, " WooHoo " to all the losers, I'm hanging in there with

you

> to those of you struggling,and a BIG " Praise the Lord " that they

> caught the Beltway Sniper(s)!!

>

> I have been OP for the past two days (most of my points have

been in

> the form of juice) but I have decided to be serious and work the

> program the way it is supposed to be worked. I don't feel much

like

> exercising, but I do have a plan for when I feel better

(hopefully

> the next day or so!). I have also decided to start attending

the

> meetings again and go on Tuesday mornings when they have a

really

> great leader. I know, I'm supposed to be at work then, but I

will

> say I have an appointment on Tuesday mornings and go in late.

What

> are they going to do....fire me....again??! (FYI- our plant is

being

> closed on 11/27/02)

>

> I have really missed you guys! Well, it's almost bedtime and I

> really need some extra rest so I'll check in tomorrow!

>

>

>

>

>

[Guest guest]

I'm with Robin. You need to get back into working out to help with

the stress levels you have had lately. I am planning on using a

trial membership at 2 local gyms (2 weeks each) during the month of

December while I am off. (OK, it's kinda cheating, but it will be

free!) When I start school in January, there is a gym with Nautilus

machines and free-weights available for the students. I will also

have access to the university's lap-pool. Remember that exercise is

so important not only in weight loss, but also for our emotional

health. Hang in there, girlie, we're all right behind you!

> Hey !!

>

> Sorry to hear you have had the crud!!! I can definately relate to

that yucky stuff, we seem to get it a lot here. Glad that you are

starting to feel better!!

>

> YEAH for you for rejoining and committing to work the program!!!!

That is fantastic!!! LOL about going on Tuesday mornings and them

firinng you....wouldn't happen even if they weren't closing at the

end of November.

>

> I am going to the gym and the jazzercize class this morning, first

time in two weeks. I just haven't had the time with all the

classes I have taken and didn't really feel like it with all the

stress stuff going on. Robin told me yesterday that I really need

to go back, since I really enjoyed it. So, I am going to pay for

some more time...probablly still by the month. Oh, Robin is

talking about trying to get the foundation concrete for the exercise

room done in the next couple of weeks...we will see. I hope so! It

really will make things easier.

>

> Take care!!

> Maureen

>

>

> Update on

>

>

> Hello all!!! I suppose you all thought I'd dropped off the face

of

> the earth. Well, I have managed to climb back most of the way!

> LOL Sorry I've been AWOL for a while but somebody in my family

has

> had the crud/bronchitis for the past week. The past few days, I

> have been down with it so I haven't had the energy to do much of

> anything but cough. OK, enough whining, already!

>

> I just wanted to pop in and say " Welcome " to all the

> newbies, " WooHoo " to all the losers, I'm hanging in there with

you

> to those of you struggling,and a BIG " Praise the Lord " that they

> caught the Beltway Sniper(s)!!

>

> I have been OP for the past two days (most of my points have

been in

> the form of juice) but I have decided to be serious and work the

> program the way it is supposed to be worked. I don't feel much

like

> exercising, but I do have a plan for when I feel better

(hopefully

> the next day or so!). I have also decided to start attending

the

> meetings again and go on Tuesday mornings when they have a

really

> great leader. I know, I'm supposed to be at work then, but I

will

> say I have an appointment on Tuesday mornings and go in late.

What

> are they going to do....fire me....again??! (FYI- our plant is

being

> closed on 11/27/02)

>

> I have really missed you guys! Well, it's almost bedtime and I

> really need some extra rest so I'll check in tomorrow!

>

>

>

>

>