update

[Guest guest]

Hi everyone,

Not much to report here (thank god). We saw the GI and nutrionist on Friday.

is doing pretty good. He has gained some weight. He still is not

getting any taller but we are not going to worry about that right now. We are

going to add vitamins to his diet and have his diet analyzed. The nutrionist

feels he may not be getting enough zinc on his limited diet and that could

affect his height. Also the many burst of steriods he has been on in the past

year may have affected his linear growth. This really is not a big isuue

since he is still so young. Also, (my husband) and I are both short so

genetics could be playing a part in this.

I asked about having another scope done to see where we are and the GI said

that it really isn't necessary to put through that right now since he

is doing well. He said that if starts having problems again thenm we

would reconsider it.

I feel bad sometimes when I read all that you are going through and I see how

much is improving but I hope that his improvement gives you hope.

Last year at this time I was at wits end on how to get him better. It has

been a long and hard year but it is amazing how well he is doing currently.

He is still on a very restricted diet because of the milk and egg allergies

but I feel that is minor compared to how things have been in the past for him.

I do not believe he is cured of this disease (if there is really any way of

curing it) but he is definitely living comfortably with it.

Hopefully he will continue to improve.

Sorry for going on at length but I just wanted to share my thoughts.

Jen

( 11/7/95. eosinophilic esophagitis, food allergies, asthma)

[Guest guest]

:

I am glad that is improving - It does give me some hope.

Also are you going to be around Labor Day weekend? If so, is coming to

visit and maybe you can also come over so we can get together - also Phyliis

if you want to. Anyone else who lives in the SOuth Jersey area that wants to

come and get together let me know. I will e-mail you my phone number.

love,

sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophil gastroenteritis, food allergies, g-tube, Nissen and

possible latex allergy, some dd and undiagnosed neuro issues)

[Guest guest]

In a message dated 10/20/98, 12:23:37 AM, eosinophilic gastroenteritis (AT) onelist (DOT) com writes:

<< I don't think that I could

every go through what he has. He is the love of my life. My life line. I

hope and pray every day that he will stick it out and not every leave us.

What a trooper he is. >>

,

Spencer sounds like a wonderful child. Your family is in our thoughts and

prayers.

Jen (, 11/7/95, eosinophilic esophagitis, food allergies, asthma)

[Guest guest]

I will continue to keep in my thoughts and please tell him HAPPY

BIRTHDAY!!

Dawn-KS(who will never catch up with her mail), mommy to Dakota, 6 and

, 3 (eosinophilic gastroenteritis, fundo 10/96)

----------

>

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Cc: tpnsupport (AT) onelist (DOT) com; Guardian@...

> Subject: [eosinophilic gastroenteritis] update

> Date: Thursday, November 12, 1998 8:34 PM

>

>

>

> Hi everyone;

> Just a quick note to say that I did talk to 's surgeon today. We

> have decided to do surgery again to relieve the semi obstruction that has

> been complicating things since August. It looks like they are going to

have

> to remove another 15 cm of his small bowel, leaving him with only 60 cm

of

> small intestines. It breaks my heart to think about it. We are keeping

the

> 15 cm by looping it out seperately. I just can't completely close that

door

> on him. We are hoping that we can get it scheduled for the next three

> weeks. I don't know if I can keep him stable till January. As for now. he

> had a great birthday and I am happy he is six years old today. But also I

> wonder what kind of life he has ahead of him. He has gone through so much

> and it just doesn't seem to end. It sad to see so many kids having so

much

> trouble. I will keep you all in my prayers.

> Beatrix Mom to 6 TPN, g tube, HD, short bowel syndrome, and

> esiophilic gastroenteritis

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Bea.....

Do you go to Children's in Toronto???? I heard it was the best children's

hospital in the world.

----------

>

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Cc: tpnsupport (AT) onelist (DOT) com; Guardian@...

> Subject: [eosinophilic gastroenteritis] update

> Date: Thursday, November 12, 1998 9:34 PM

>

>

>

> Hi everyone;

> Just a quick note to say that I did talk to 's surgeon today. We

> have decided to do surgery again to relieve the semi obstruction that has

> been complicating things since August. It looks like they are going to

have

> to remove another 15 cm of his small bowel, leaving him with only 60 cm

of

> small intestines. It breaks my heart to think about it. We are keeping

the

> 15 cm by looping it out seperately. I just can't completely close that

door

> on him. We are hoping that we can get it scheduled for the next three

> weeks. I don't know if I can keep him stable till January. As for now. he

> had a great birthday and I am happy he is six years old today. But also I

> wonder what kind of life he has ahead of him. He has gone through so much

> and it just doesn't seem to end. It sad to see so many kids having so

much

> trouble. I will keep you all in my prayers.

> Beatrix Mom to 6 TPN, g tube, HD, short bowel syndrome, and

> esiophilic gastroenteritis

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Happy Birthday to you

Happy Birthday to you

Happy Birthday dear

Happy Birthday to you.

Happy 6th birthday.

I hope that all goes well with the surgery and please let us know when and

where it will be done.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen and possible latex allergy, some DD, undiagnosed neuro

issues and sensory integration disorder)

[Guest guest]

At 02:58 PM 13/11/98 -0500, you wrote:

>Bea.....

> I heard it was the best children's hospital in the world.

>

>

>

>----------

Yes ;

We do go to Sick Childrens in toronto. They are great with the TPN and such

I really can't complain at all. He has had only one infection in his

lifetime in his line and what ever happens is unfortunately due to the disease

Beatrix

>http://www.onelist.com/advert.html for more information.

[Guest guest]

Hi everyone - It's about time I update you on my infection. I met with an

infection specialist 2/23 and he really clarified what was happening.

Infections are a risk of any surgery and occur in one in a thousand,

whether it be an AGB, joint replacement, heart valve, etc. When a foreign

device is put into our bodies, our bodies tend to coat the device with a

slime like substance to make it part of us. The slime (for lack of a

better term) get firmer with time and eventually calcifies. If there is

any bacteria on the foreign device (in this case, the port of my band), it

lives or hybernates in the slime. When the bacteria becomes active and

starts to grow it causes inflamation, pain, infection, etc. Antibiotics

control the active growth of the bacteria, they do not kill it. Thus the

recommended removal of the foreign device; as the bacteria is in the slime

around the device, removal of the bacteria (infection, etc.)

My doctor is trying to give me options, but the only sure thing is that the

band must come out. I can continue to take antibiotics and hope the

bacteria doesn't mutate into something uncontrolable, loose my weight and

then have the band removed and risk putting the weight back on. I can have

them remove only the port, sealing the tube and band, hoping that the

bacteria is around any other parts of the band and hoping that I'm adjusted

properly for the rest of my life. I can have the band removed and hope

that the scarring is enough to continue weightloss and successful

maintenance for the rest of my life. I can have the band removed and

replaced at an even higher risk of bacteria growth. Or I can have the band

removed and the by-pass performed.

I research and considered the AGB for almost a year before I made the

choice that it was the right thing for me. I wanted my band so bad, that

none of the risks mattered. They still don't. I am very satisfied with

the success I have had and I'd do it all again even knowing what I've gone

through. NO REGRETS!

I meet again with my doctor to make the final decision on my next step on

March 22. In the meantime, I'll keep trying to remember all the words of

wisdom and support I preached at all of you during your choices and

difficulties. (o:

Hangin' in there

Debie Boyd

10/2/98 Monterrey Mexico at 302 pounds

2/23/99 official doctors scale 245 pounds

[Guest guest]

Jen-

AJ gets a rash on her face while on steroids. She ALWAYS has hives all her

her chest and back if she eats anything!

Phyllis--mom to

AJ (12/22/95) EG, GERD, Asthma, Allergies, Speech delay and hearing loss

Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, nut allergies

[Guest guest]

Jen --

Flonase is such a mild drug -- in terms of side effects --- why can't you

try it now WHILE on steroids.

It can't hurt anything, it's only topical and only works where it lands.

Not metabolized systemically so no harm there either!

steph

[eosinophilic gastroenteritis] update

>From: Jenericm@...

>

>Well, is still on the steroids. We have just started to taper

down.

>He has been doing pretty well. As always, I am still keeping his diet

>restricted but he has definitely gained weight (pretty soon we will be able

>to rub his belly for luck). He had some problems a few nights ago. He

>started gagging and said that he felt like something was kicking the inside

>of his throat. He felt like he was going to vomit for a while after the

>incident. I am supposed to speak with the GI tommorow so I will mention it

>to him.

>

>Also, has anyone's kids ever had a rash from steroids. is covered

>with a rash (similar in appearance to prickly heat) on his arms, stomach,

>back and shoulders.

>

>After I speak with the GI tommorow, I hope to have some idea of our next

>step. If starts to have symptoms again we are going to have to try

>Flonase. recently overheard me talking to my Mom about feeding

tubes

>and promptly informed me in no uncertain terms that if I put one in him he

>would pull it out. Oh the terrible three's (the terrible two's were a myth

>in our house) and steroids make for a very pleasant child.

>

>Jen

>( 11/7/95, EE, food allergies, asthma)

>

>

>---------------------------

[Guest guest]

Jen,

BJ and are so close in age, BJ says the same thing about the feeding

tube, I will pull it out and throw it away MOM! BJ has been refusing to eat

for the past 3-4 days. Yesterday I finally got him to eat one piece of ham

and boom 5-10 minutes later got it back in his diaper. He is going back to

that

That makes my tummy hurt about every food we offer him so I think he is back

in pain all the time.

He never got any rashes while on the steroids.

Dawn-KS(who will never catch up with her mail), mommy to Dakota, 6(7 July

16th) and aka BJ, 3 (eosinophilic gastroenteritis, Nissen, and

dealing with the after effects of many years of steroid use, sigh!))

[eosinophilic gastroenteritis] update

> From: Jenericm@...

>

> Well, is still on the steroids. We have just started to taper

down.

> He has been doing pretty well. As always, I am still keeping his diet

> restricted but he has definitely gained weight (pretty soon we will be

able

> to rub his belly for luck). He had some problems a few nights ago. He

> started gagging and said that he felt like something was kicking the

inside

> of his throat. He felt like he was going to vomit for a while after the

> incident. I am supposed to speak with the GI tommorow so I will mention

it

> to him.

>

> Also, has anyone's kids ever had a rash from steroids. is covered

> with a rash (similar in appearance to prickly heat) on his arms, stomach,

> back and shoulders.

>

> After I speak with the GI tommorow, I hope to have some idea of our next

> step. If starts to have symptoms again we are going to have to

try

> Flonase. recently overheard me talking to my Mom about feeding

tubes

> and promptly informed me in no uncertain terms that if I put one in him he

> would pull it out. Oh the terrible three's (the terrible two's were a

myth

> in our house) and steroids make for a very pleasant child.

>

> Jen

> ( 11/7/95, EE, food allergies, asthma)

>

>

> ---------------------------

[Guest guest]

BJ started Flonase and Claritin for allergies. I am not really sure which

one has made the difference but the difference is amazing. He used to cough

and hold his throat every time he went outside. He never coughs anymore and

his asthma is under control for the first time in his life.

Dawn-KS(who will never catch up with her mail), mommy to Dakota, 6(7 July

16th) and aka BJ, 3 (eosinophilic gastroenteritis, Nissen, and

dealing with the after effects of many years of steroid use, sigh!))

[eosinophilic gastroenteritis] update

>

>

> >From: Jenericm@...

> >

> >Well, is still on the steroids. We have just started to taper

> down.

> >He has been doing pretty well. As always, I am still keeping his diet

> >restricted but he has definitely gained weight (pretty soon we will be

able

> >to rub his belly for luck). He had some problems a few nights ago. He

> >started gagging and said that he felt like something was kicking the

inside

> >of his throat. He felt like he was going to vomit for a while after the

> >incident. I am supposed to speak with the GI tommorow so I will mention

it

> >to him.

> >

> >Also, has anyone's kids ever had a rash from steroids. is

covered

> >with a rash (similar in appearance to prickly heat) on his arms, stomach,

> >back and shoulders.

> >

> >After I speak with the GI tommorow, I hope to have some idea of our next

> >step. If starts to have symptoms again we are going to have to

try

> >Flonase. recently overheard me talking to my Mom about feeding

> tubes

> >and promptly informed me in no uncertain terms that if I put one in him

he

> >would pull it out. Oh the terrible three's (the terrible two's were a

myth

> >in our house) and steroids make for a very pleasant child.

> >

> >Jen

> >( 11/7/95, EE, food allergies, asthma)

> >

> >

> >---------------------------

[Guest guest]

Mollie - It's too bad your insurance turned you down, so you don't

have that choice right now. A good friend of mine just had it done -

her insurance paid for it because she was getting so many back aches

from it and her dr said if she didn't, it would adversely affect her

in the future. She's very pleased with the results, although she does

have large scars too, she says. Ah well, maybe it's meant to be....

Zoe

>

>

>. my stinkin

>insurance turned me down, even though i met the criteria.. it would cost

>me $2000 out of pocket... and i just dont want to be spending that right

>now... dh just started his own business a year 1/2 ago and its going

>well, but we need to save as much as possible. So anyway... they stay

>the same.. actually, i'm not all that bummed.. my b friend showed me her

>scares when we went to FLA and to be honest.. i was shocked at how large

>they were (2 years after the surgery) and it started to make me

>nervous. just wanted to update ya.. if anyone knows about Bev let me

>know.

>--

>Smiles,

>Mollie, Co-Moderator

>177/161/135! ******* NEW NUMBER *********

Zoe Sodja

Document Publishing & Editing Center

UC Santa Cruz

[Guest guest]

I know.. the scares probably wouldnt have bothered me, i guess i'm

trying not to get down about it, i was really looking forward to having

it done, and now that its not in the card it kinda sucks. Oh well....

btw- my doc also sent a letter saying that it would only get worse for

me as i get older and especially if i become pregnant and they still

said.. NO... sorry. insurance can suck!

--

Smiles,

Mollie, Co-Moderator

177/161/135! ******* NEW NUMBER *********

Thanksgiving Goal--- 159!

[Guest guest]

In a message dated 3/18/00 8:13:35 AM Pacific Standard Time, garyarm@...

writes:

<<

Steph & l, I know you have tried the flovent, and

as I recall it wasn't succesful. Do you know why?

I there anyone who has tried the flovent with success?

>>

has EE and has tried the flovent, it heal his esophagas, but he

tested allergic to 13 foods which we are avoiding. He is currently slowly

being weaned off flovent onto cromolyn sodium. He is down to 2 puffs flovent

in the AM and two puffs cromolyn in AM and PM. He is doing ok. his symptoms

are getting beter, but he has been stuffy and AM coughing and various sore

throats since starting the cromolyn. Strange huh. He wasn't having this

problem while on only the flovent.

Cathy

mom to 12, AS, EE, allergic to soy, nuts, peanuts, tomato, rice,

carrot, string bean, kidney bean, orange, pear, onion, mustard seed, grape

[Guest guest]

Miriam is about 39 inches tall and weighs 36 pounds. Tehilla my healthy 8

year old weighs about 47-48 pounds.Height I am not sure.

Shana

[eosinophilic gastroenteritis] update

>

>

> For a comparison-

>

> AJ weights 42 pounds and is about 38 inches tall. She was 4 in December.

>

> Remi my healthier 2nd grader weighs in at 60 pounds and is 47 inches tall.

>

>

> ------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0%

> Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

> http://click.egroups.com/1/937/5/_/474479/_/953345648/

> ------------------------------------------------------------------------

>

>

[Guest guest]

When Miriam was little there was about a 3 month period that she also had

weekly fevers and it would also spike 1-2 days a week to 104-105.They never

knew why. The fevers all went away once we started the vivanex.

Shana

[eosinophilic gastroenteritis] update

>

>

> Hello everyone,

>

> Just to let you know what a productive week that we have

> had! I have been in communication with the doc's at Mt. Sinai Hospital

> in New York City! YEAHHHH! They are going to meet with in June.

> It is a long time away, so they are currently working with me on ways

> that I can try to keep Matt's spirits high and perhaps stabilize him or

> even gain some weight. NY's findings agree with our GI's diag. with the

> eos. entropothy. What is confusing for him is the low grade fevers that

> Matt will continually run, with the fevers spiking sometimes a couple of

> nights a week. He believes that there is something else inside of Matt

> causing complications. Duhh, it is why we are referred to NY in the

> first place. Currently, we are taking a 5 day diet, including labels and

> amounts. Mt. Sinai hopes to rule out anything that we may be

> accidentally giving Matt which has been restricted from his diet. After

> reviewing his diet, we may have to go to NY to meet in the clinic and

> meet with the dietitian. We are all hoping that any communication can be

> done through our GI.

> Phyllis, the NY doc wanted to know if Matt is on any supplemental

> formula. I let him know that we had questioned about using Elecare and

> he would like to wait until he reviews Matt's diet before he suggests

> using the Elecare. He said that it would be hard for an 8 year old to

> take it after eating for 8 years. He said that Matt would not be able to

> take solid food. (We were under the impression from earlier

> conversations, that you can mix the two) He also said that the Elecare

> tastes like battery acid, yummy.

> I see a lot of people mentioning weight in pounds. I was wondering

> if I give Matt's weight, if I could have some comparisons. I only have

> his age group and his brothers to compare him to but no one who also has

> experience with this illness. I want to make sure that I am not

> overreacting. 's DOB is 7-31-91. He is currently weighing in at

> 43.5 and 47 inches. Thanks for any input.

> Jacque.

>

>

> ------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0%

> Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

> http://click.egroups.com/1/937/5/_/474479/_/953299425/

> ------------------------------------------------------------------------

>

>

[Guest guest]

,

Several things. First of all, two of my kids have NO food allergies testing

positive. They were negative to everything we tested them for.

The only things that worked for us were high dose prednisone and elemental

diets. The Flovent does and has worked for many, many people. I would

suggest asking your doctor about switching to FLONASE, as it coats easier

and go way up on the dose They can't prove any direct link between true

food allergies and eos disease. They can only show that removing food

proteins eliminates the eos for some reason. Many kids have no proven food

allergies at all. It is so frustrating!

Definitely the fluticasone (flovent, flonase) FIRST, then elemental diet

SECOND (the diet is so much harder and so much longer term, etc). Let me

know if I can help any more, or provide any docs names and numbers for your

docs.

Steph.

[eosinophilic gastroenteritis] update

>From: garyarm@...

>

>Hi all, had his EGD yesterday. His esophagus

>is still inflamed (surprise surprise). We are now

>considering two options. trying the flovent puffs, or

>an elemental formula.

>

>Steph & l, I know you have tried the flovent, and

>as I recall it wasn't succesful. Do you know why?

>

>I there anyone who has tried the flovent with success?

>

>Also, since has never had any symptoms of food

>allergy (other than the inflamtion of esophagus) and has

>tested negative to all foods, how can we be sure it is

>truely food? That is why we may conisder a short course

>of formula wityh another egd to see if that clears him

>up. He did respond to a 3 week course of high dose

>prednisone, and that is the only time we ever saw

>any improvement.

>

>This is so frustrating because I hate to keep putting

>him through all the scopes (he's had 7 or 8).

>

>I feel like I just don't have anything to work with.

>If he would just test positive for food, or have some

>other symptoms we would know.

>

>Please let me know your opinions about the flovent, and

>idea of trial elemental diet.

>

>It's a beautiful day here in San Diego, and I am heading

>out the door with my boys to Little League.

>

>TIA,

>

>

>------------------------------------------------------------------------

>MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE!

>Get a NextCard Visa, in 30 seconds! Get rates as low as

>0.0% Intro or 9.9% Fixed APR and no hidden fees.

>Apply NOW!

>http://click.egroups.com/1/2122/5/_/474479/_/953395977/

>------------------------------------------------------------------------

>

>

__________________________________________________

[Guest guest]

,

What you describe here is clinical reflux esophagitis. Eosinophils from

acid reflux are NOT eosinophilic esophagitis. If the eos cleared up with

reflux therapy, then the diagnosis would be GERD, AND NOT EOSINOPHILIC

ESOPHAGITIS.

This is an EXTREMELY important point to make here, as eos in the biopsies of

children's esophaguses are most commonly related to reflux. I believe

does actually have a true diagnosis of IEE, and they have already

ruled out reflux as a cause.

Steph.

__________________________________________________

[Guest guest]

Steph -

Thank you for correcting that. I should have worded it differently, that

has esophagitis and eos present, not EE.

Sorry about that, and thanks again.

[Guest guest]

Hi

I would try the Flonase mixed and swallowed but not the puffs. It had

minimal effect on Dan's upper esophagus but not the lower. I would guess it

just could not reach that full distance. It is difficult to be sure it is

being inhaled properly and the number of puffs have to be counted and

subtracted from the total puffs in the inhaler. Please let me know if the

eos are still present after the biospies are done. Was the inflammation just

as severe?

Sorry to hear things did not go better. Dan is not really well lately. We

are back at the Ped

GI on Monday. He was scoped in Jan after the Sampson/Sircherer elimination

diet and I don't want to put him through that again. I was hoping we could

get through the last few months of his senior year without doctors.

Mom to Dan 18yrs old EE

garyarm@... wrote:

> From: garyarm@...

>

> Hi all, had his EGD yesterday. His esophagus

> is still inflamed (surprise surprise). We are now

> considering two options. trying the flovent puffs, or

> an elemental formula.

>

> Steph & l, I know you have tried the flovent, and

> as I recall it wasn't succesful. Do you know why?

>

> I there anyone who has tried the flovent with success?

>

> Also, since has never had any symptoms of food

> allergy (other than the inflamtion of esophagus) and has

> tested negative to all foods, how can we be sure it is

> truely food? That is why we may conisder a short course

> of formula wityh another egd to see if that clears him

> up. He did respond to a 3 week course of high dose

> prednisone, and that is the only time we ever saw

> any improvement.

>

> This is so frustrating because I hate to keep putting

> him through all the scopes (he's had 7 or 8).

>

> I feel like I just don't have anything to work with.

> If he would just test positive for food, or have some

> other symptoms we would know.

>

> Please let me know your opinions about the flovent, and

> idea of trial elemental diet.

>

> It's a beautiful day here in San Diego, and I am heading

> out the door with my boys to Little League.

>

> TIA,

>

>

> ------------------------------------------------------------------------

> MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE!

> Get a NextCard Visa, in 30 seconds! Get rates as low as

> 0.0% Intro or 9.9% Fixed APR and no hidden fees.

> Apply NOW!

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> ------------------------------------------------------------------------

[Guest guest]

Dear Jodie, the runs could also be from a Gastro-graffin swallow they often do the day after surgery in x-ray dept. It's often a yellow syrup type stuff so they can see that the band is in place around the stomach nicely. I have heard that some people get this sort of re-action and some don't. I didn't and have been more clogged up in that dept than ever. Never had the runs.

Luv Karin Banded Aug 6th 2001Weight then 96kg Weight now 87.8kgWeight I want to be ?? (something to go with red shoes!)

[Guest guest]

Hi Jodie,

Glad to hear all went well and you are home again. I have to agree with Karin here, I had diarrhea shortly after my band surgery and was told it was my body reacting to the gastrogaffin swallow. It didnt take long to pass and I have had the opposite reaction after the other surgeries when a swallow wasnt required so maybe it is the yukky stuff that causes the problem. What did you think of Mr W?

If your diarrhea hasnt settled it might be a good idea to keep off dairy food until your digestive system gets back to normal.

Take it easy,

(Tas)

Dear Jodie, the runs could also be from a Gastro-graffin swallow they often do the day after surgery in x-ray dept. It's often a yellow syrup type stuff so they can see that the band is in place around the stomach nicely. I have heard that some people get this sort of re-action and some don't. I didn't and have been more clogged up in that dept than ever. Never had the runs.

Luv Karin

[Guest guest]

Thanks for sharing the great news! 's success is very encouraging.

Autumn

[Guest guest]

> It has been quite a while since I have written. For those who do

> not know me

> or my son, here's some info:

> is 6. He has bilateral microtia/atresia. He started

> surgeries last

> July with Dr Romo. We have one more to go at the end of this month. The

> results are incredible. He has one BAHA now, and will soon have a

> 2nd BAHA.

> His ears look so good, strangers are surprised when they learn he

> wasn't born

> with them. If anyone would like to know more about , feel free to

> respond.

Did he have the first Baha, and then the surgery with Dr. Romo? We are

booked for a BAHA in August (the first stage anyway). I know Dr, Brent

recommends rib graft before BAHA, but it sounds like you have done the BAHA

first.

Thanks

Steve