Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 The only thing I can suggest is jumping up and down on the spot. Don't laugh, it does work. Or else breathing in as hard as possible, expanding your chest as much as you can and holding position for as long as you can creating the maximum space in your band. Or else going for a brisk walk around the garden. It has worked for me. Regards At 11:37 22/05/1999 +1000, you wrote: > From Lois Jervis loislane@... Hi everyone, I was a little >sick but I couldn't bring it up only saliva. I can't get in touch with >my doctor. I can still drink fluids. Lois from Brisbane, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 OK, Little Princesses too! Cut the s Rice Muffins into thirds..Then toast till brown...Its good! JB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Hello Cath, Thank you for replying to my email. I am finding this site really interesting, fun and helpful. Obviously the ozbanders in Brisbane are all keeping in touch and very supportive - that's great. Cath, why did you have the band completely removed and what further surgery is involved - prepare us for the future ? P.S. what are coke codes ?? ........ I don't drink fizzy drinks anymore.!!!!!!!!!!!!!!!!! > >Reply-To: ozband >To: ozband >Subject: Re: Help >Date: Mon, 30 Jul 2001 00:28:43 -0000 > >Hi , > >Sorry to hear that you are having some problems with maintenance and >willpower. I am sure you will find a few old timers here that are >having very similar woes to you. I have gone beyond the same >problems and have had my band removed in order to have further >surgery to no avail. > >It is always hard to get some weight loss and then go no where fast >with any more. I know I had got to my goal staring at an additional >20 kilos. > >I hope you find some inspiration here. > >Cath (Brissy) > > > > Obviously you are both in the early stages of your band... you will >adjust > > to it and it will become part of your everyday life. > > Anyone out there who has had their band put in for at least two >years - > > having trouble maintaining weight loss and willpower. > > SOS - need support !!!!!! > > > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 It's really hard to 'schedule' that breakdown we all need. One day, you'll just have one... then you'll move on and carry the world on your shoulders again for several months, until the next one occurs. At least that's how it is for me! Please give the PLAY project more time. The one thing I have learned since Jon was diagnosed in April 2002, is that EVERY child is different, EVERY 'form' of autism is different, and EVERY child will respond differently to different 'treatments'. We've decided to take one step at a time and not change too many things at one time. If you do, you never truly know what was working and what wasn't. Early intervention is very important. I don't know where you live, but I recommend finding a good 'preschool' program, PPI with AI support. Perrinville Early Childhood Center is very good. It is in Livonia School district. However, there may be a waiting list for their program. will make his 'gains' in fits and starts. He will remain 'dormant' for 6 wks or more, then all of a sudden, it's like a flower bud bursting open for the next few weeks. We have been with PLAY since Feb 2003. While we have not seen 'direct' improvement as a result of PLAY, we also realize that our hectic household has not leant to a lot of devoted time by us. We are making the effort to change this. Jon is becoming more 'social' and will start to seek us or his sister for fun, help, etc. Welcome to the often confusing and always frustrating world of autism. This is a great support group and you will find families participating in many if not all of the therapies you mentioned, and this group LOVES to help each other obtain 'Everyday Miracles'... Cindy Cindy L. Westland, Michigan Mom to age 4 1/2 yr (mildly/ high-functioning autistic) and age almost 6 yr going on 36 yr! (normal and extremely bright) Autism is like having a computer without a keyboard, there is nothing wrong with the computer but it is hard to communicate with it without the right tools. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Hi, Kim and welcome to the group. I have to agree that early, intense intervention is critical. I would love to say I was stealing Jagger's childhood, but the truth is, he had no childhood due to his all-too-consuming autism. Interacting is very important and so is the future of the child when they have to go on through life without anyone else to help. So, I would have to say I would rather give up a part of their childhood with intervention in order to have the child succeed in life in the future. You can still give a good mix of childhood activities and intervention, a lot of intervention is playing - just with an older person. Pfeiffer did wonders for Jagger. They seemed to get in there and at least straighten up the chemical imbalance and get us on the right track. I have to say though that it seems like he has plateaued on Pfeiffer - continued progress is very slow now, so he has been taking PCA on the days he does not do the Pfeiffer MTPII. PCA did some great things the first 2 weeks, and it too now has slowed down on the progress, but he hasn't been on it very long, only since May. Last but not least, no breakdowns, that's why we're here. You will find that talking about it and asking questions to those in the same boat will make your life seem a lot easier. Take care! Lynn kimbamac@... wrote: Hello all. I am a new member and have a recently diagnosed 2 year old ("Autism"). Our family is devastated. Has anyone out there ever heard of the "Awakennutrition.com" website or used their PCA-rx do it yourself at home without a doctor chelation products? We are thinking of this option for our son. We started PLAY 6 weeks ago, but are not seeing great results. Entering HOPE ABA Center in September for 3 month ABA schooling and are hopeful that will work out well. Speech at Lepak is wonderful, but still looking for competant OT and PT;s, would love suggestions. We also are looking at Pfeifer Clinic and working with Pathways. Any info on either would be helpful to us. Also, when can I pencil in that nervous breakdown I so desperately need? Are there any others out there that feel the same? What is your outlet? When and how do you find time for yourselves? I need help. Thank you, Kim McMillan Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Kim, I am currently researching for a book on autism, and my research with The LIFE Center, run by Dr.Ivar Lovaas, originator of ABA, and the DIR Model, employed by Dr. Stanley Greenspan, all state that they are time intensive programs that take months and in many cases, a few years, for children to succeed, which is why both promote the vital importance of early intervention between the ages of two and six. Just remember to do what is best for your family. We have had much success with PLAY, for which exemplifies the model of Floortime, but it took one year to gain communication, and two years later, we have made great social behavior strides (my son is now five), but we flow with the ebb and tide of the ocean of autism, and sometimes we float, and sometimes we are sucked in with the undertow. With PLAY and ABA, repetition is the key, and the time must be put in for success. If you are struggling with PLAY, be honest with your consultant, and try attending the Watch and Learn Series Programs and Dr. Solomon's conferences (I go to them over and over, and with my research for my book, I am reviewing many things, and am still learning after three years of DIR). My son is now at a level six, but a start at barely level two, and we have been in PLAY for three years, and I am also the Outreach Coordinator for The PLAY Project. If you are truly doing PLAY / DIR by the book, and it is not working, please write Dr. Solomon and your PLAY consultant because, like all interventions, there are families this just does not work for, and for the scientific nature of the product, they need to hear from you in writing. When first started speech, at age two, I was ready to quit after one month, because I saw no change, and that was unfair on my part. Also, remember not to get involved in too many things--at one point we were PPI'ing, doing speech therapy both at U of M and at school, attending Sensory Integration Therapy and Music Therapy at Motts, and doing 30 hours a week of PLAY. This was overwhelming to me and . He began doing so much better, when our life began to only utilize PLAY and PPI, but we are fortunate in the fact that our PPI program utilizes DIR and teaches courses using Dr. Greenspan videos to the parents of the students, so that had consistency both at home, and in our Plymouth-Canton PPI program. Take care and good luck. Love, Dawn -----Original Message-----From: kimbamac@... Sent: Thursday, August 07, 2003 10:03 PMTo: EverydayMiraclesAutism Subject: helpHello all.I am a new member and have a recently diagnosed 2 year old ("Autism"). Our family is devastated. Has anyone out there ever heard of the "Awakennutrition.com" website or used their PCA-rx do it yourself at home without a doctor chelation products? We are thinking of this option for our son.We started PLAY 6 weeks ago, but are not seeing great results. Entering HOPE ABA Center in September for 3 month ABA schooling and are hopeful that will work out well. Speech at Lepak is wonderful, but still looking for competant OT and PT;s, would love suggestions.We also are looking at Pfeifer Clinic and working with Pathways. Any info on either would be helpful to us.Also, when can I pencil in that nervous breakdown I so desperately need? Are there any others out there that feel the same? What is your outlet? When and how do you find time for yourselves?I need help.Thank you, Kim McMillanSupport Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Welcome to the group. I don't have much to say at this time because I have a lot on my mind, but I will comment later. Really, you have to try and make time for yourself. We get Respite, from MORC, and it really helps. Take Care, Angie ---- Original Message ---- From: kimbamac@... To: EverydayMiraclesAutism Subject: RE: help Date: Thu, 7 Aug 2003 22:02:33 EDT > > > > >Hello all. > >I am a new member and have a recently diagnosed 2 year old >( " Autism " ). Our >family is devastated. > >Has anyone out there ever heard of the > " Awakennutrition.com " website or used >their PCA-rx do it yourself at home without a doctor chelation >products? We >are thinking of this option for our son. > >We started PLAY 6 weeks ago, but are not seeing great results. >Entering HOPE >ABA Center in September for 3 month ABA schooling and are hopeful >that will >work out well. Speech at Lepak is wonderful, but still looking >for competant >OT and PT;s, would love suggestions. > >We also are looking at Pfeifer Clinic and working with >Pathways. Any info on >either would be helpful to us. > >Also, when can I pencil in that nervous breakdown I so desperately >need? Are >there any others out there that feel the same? What is your >outlet? When >and how do you find time for yourselves? > >I need help. > >Thank you, Kim McMillan > > > > > > > > >Yahoo! Groups >Sponsor > > >href= " http://rd.yahoo.com/M=259395.3614674.4902533.1261774/D=egroupwe >b/S=1705061616:HM/A=1524963/R=0/SIG=12o885gmo/*http://hits.411web.com >/cgi-bin/autoredir?camp=556&lineid=3614674∝=egroupweb&pos=HM " > g >src= " http://us.a1.yimg.com/us.yimg.com/a/sl/sleepangel/sleep_300x250. >gif " alt= " " width= " 300 " height= " 250 " border= " 0 " > > >src= " http://us.adserver.yahoo.com/l?M=259395.3614674.4902533.1261774/ >D=egroupmail/S=:HM/A=1524963/rand=131353002 " > > > > > > > > >Support Everyday Miracles by shopping online at IGIVE.COM, where a >portion of every purchase is donated to this support network. >Proceeds received will be used for a variety of functions, such as >educational activities, therapy, famiy outings, etc. href= " http://www.igive.com/EDMhttp://www.igive.com/EDM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Penny, You are so right; we've narrowed 's regress to two things--his sudden interest in potty training--which is a huge triumph for us, and his needing new ear tubes, he can't hear from his birth defect ear at all, and his left ear is all clogged up, with guck and both tubes falling out, so auditory processing is way out of whack--gets 5th set of tubes Sept. 2, and he really is tired from camp--not a morning person, so he hated being out the door at 7:30, he took yesterday off, slept in, and is much happier--just came down stairs in his pjs wearing his dad's baseball cap :-) He is also really missing his great-grandma, who was his favorite buddy. We are headed to Tawas for R and R today--be back next weekend. Thanks Penny! Love, Dawn -----Original Message-----From: penelope_fam Sent: Friday, August 08, 2003 6:16 PMTo: EverydayMiraclesAutism Subject: Re: helpThe answer is "yes" but it's not as easy as that. Dawn has just watched her regress to where he was 8 months ago. Alyssa regresses before a big burst in development, so I'm guessing Dawn and Rich will see take a big leap in development soon. But, the gains "stick" as long as the child's body can continue to "right" itself on it's own. If it accumulates metals instead of detoxing, then you may see the return of some old behaviors.Now that I've said that, I believe that you really need more than biomedical, Kim. There are so many pieces that play a role in the development of neural pathways. Speech therapy, OT, PT, "whole brain" learning, movement ("Smart Moves" by Carla Hannaford PhD), and intense one-on-one time engaging the child is extremely important and assists the biomedical side of the puzzle.At a biomedical conference in Pontiac in 2002, I asked the panel of experts if a behavioral intervention could stimulate the body to begin to function on it's own. Could the neural pathway development of an intense ABA or Floortime program be enough to heal the gut, or re-start sulfation, or rid the body of yeast and bad bacteria? ( Maurice in "Let Me Hear Your Voice," did not do any biomedical with either of her children.) And the answer from Owens, the sulfation expert (you can chat with her on the Sulphurstories list and on the Autism-Mercury list), and from Dr. Hicks, a DAN! doctor, was an EMPHATIC "YES".*sigh* The hard part is figuring out the individual pieces of your own child's puzzle.Good luck,Penny> Question:> > Once you have plateued and slowed on the Pfeifer and or PCA programs, do the > children loose the great gains they initially received?> > Thanks!> > KimSupport Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Kim, PPI is our school district's pre-primary impaired classroom, which we transferred into after was three, and had completed Early-On, you need to contact your school district to get your child evaluated, and if it is like our Plymouth-Canton District, the results have been fantastic--we get one on one OT and speech, and possibly, also, PT this fall (all tax dollars paid, so free to us), and in our district, parents get grant sponsored evening classes, taught by the PPI instructors on behavioral and communication issues, taught from a Greenspan and Hanen perspective--if you take the Watch and Learn series with Dr. Solomon, these classes in our school are the same format--we set goals to work on with our children, and the teachers help us with them, along with in home visits and videotaping--like PLAY. We have never used ABA , but from what I've researched, ABA and PLAY work well together, its just a child's needs and a family's preference. For us, PLAY was a much less expensive choice at $250 a month, and just awesome results-- was diagnosed with severe autism at two, and at five, he is now mild / high functioning. We personally don't chelate, for many reasons, and it is not supported by our team of docs for any reasons, and so for us, it is a personal choice, but for many in our group, it has been very helpful--once again, a family decision. There are no miracle cures to autism--ABA, PLAY, chelation, they just give our children greater opportunities to live and thrive, but we must accept that autism is who they are, part of our "everyday miracles." Love, Dawn -----Original Message-----From: joelijah Sent: Friday, August 08, 2003 1:58 PMTo: EverydayMiraclesAutism Subject: Re: helpPPI is Pre-primary impaired a class for children 3-5 who have impairments.Part of the public school system. Definitely check into it. Re: help> Hi Dawn.,> Thanks so much for your email.>> Do you find that a combo of ABA & Play work best?>> Also, what is PPI?>> Have you ever used chelation?>> Kim>>> Support Everyday Miracles by shopping online at IGIVE.COM, where a portionof every purchase is donated to this support network. Proceeds received willbe used for a variety of functions, such as educational activities, therapy,famiy outings, etc. http://www.igive.com/EDM>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Pennie, Sondra often mentions gasterointestinal issues that she'd like to have resolved. I also believe she'd welcome a lessening in some of her sensory issues. Neither of that is anti-cure, but is making a human being more healthy, more comfortable in her own body. Kassiane is on the Feingold diet because phenols and salicylates give her problems. We're all simply trying to help our children feel better, and many of us are having to do a lot of detective work. Penny We all want the best for our children, and we all do the > best that we and they are capable of. I hope that one day Kassiane or my > friend Sondra (both adults on the spectrum-both on differant ends I might add) > will be able to come to EDM one day and prove to everyone here that they DONT > WANT TO BE CURED, THEY WANT ACCEPTANCE, THEY WANT TO BE WHO THEY ARE AND NOT > BEING TOLD THAT THEY NEED TO CHANGE TO ACCOMIDATE NT PEOPLE! They are people > who have feelings just like you and me, rather they can express them or not. As The same with autism, take away GF/CF, > PLAY, Chelation, PPI, and all the other therapys, and you guessed it the > autism is still there. > > Pennie > Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Pennie, Will you be at the Ferndale group Monday night? I would love to hear more details about your visit with Kassaine. -----Original Message-----From: Harlan Sent: Saturday, August 09, 2003 1:37 AMTo: EverydayMiraclesAutism Subject: Re: help Pennie, as for Marjorie- I grew up with her; she lived down the street from me- she and my sister were best friends. as for the other stuff, I think we agree basically on not trying to make our kids something they are not; and I was really impressed by Kassaine's view of the world and of herself. It is a very different perspective. And with everything, there needs to be a balance: early intensive intervention and letting kids just be kids; biomedical interventions and acceptance/non-belief in medical txt; indistinguishable from peers/"cured" and autism as a culture/acceptance. I think these things can work together too/they are not always opposites. Balance is key. Okay you should really be asleep by now (!). I have no excuse since I'm at work!! :-) oh one more thing, have you heard of that Girls Empowered place? it used to be located in Berkley but I heard it just moved into the Beverly Hills Racquet club or something...I thought of you and Abby when I saw an advertisment the other day. Re: help I certainly wasent saying that you dont care about , I am sorry if that came across to be that way. I wouldnt want Abby to be ill either. With the seizures and all that Abby has gone threw over the last 6 years of her life I sympathize with you. Those comments were said not nessasarily to you. I just so sick of kids being forced to become NT. I love my daughter with all my heart and I can never force her to be something that she is not. When Kassiane was here I was so comforted by the way she spoke and carried herself. Although she is quirky I think she is one of the nicest people that I have ever met in my life. I am grateful for her input, it is nice to be able to get input from someone who lives sensory issues and autism everyday. She helps me get in Abby's head and for that I will always be indebited to her. By the way-its been a "full moon" week at my job to. I am bummed about the whole Marjorie thing, but perhaps in 3 years she will have her. We are trying to mainstream before then but if Abby is not ready by then she will be with Marjorie-she is a great lady. How do you know her again? Pennie Abby's Mom Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 Thanks for the link , I will look into that. I would like to find a gymnastics class or dance for Abby. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
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