4 Months post UFE - Bleeding for 43 days!!!!

February 27, 2004

I am doing all the right things, medically, but I would really

appreciate any info any of you have, or experience to share.

I am 46 years old, perimenopausal, and had a 12 cm. subserosal

fibroid embolized on Oct. 17, 2003. My only symptom was " can't pee "

at night, and I had no abnormal uterine bleeding before my UFE...or

until now. My " can't pee " problem did not return, and I can tell

from feeling my tummy when I lay on my back that the fibroid has

really shrunk.

But I have been bleeding since January 17!!!!!! That is 6 weeks,

with only a short reprieve with spotting, and even that was a month

ago.

Here is what I have done with my doctors so far:

My gyn put me on Megace for two weeks. Didn't work.

My gyn gave me a shot of Progesterone on Wed.(100 mg). Didn't work.

My gyn did a endo biopsy. I only talked with the nurse yesterday,

and I thought she said, " no significant tissue build up. " But I had

her fax me the report, and it actually said, " No significant tissue

obtained. " I am thinking that means that they didn't get any endo

tissue. It said, " Endo bx - hemmorrhagic and mucopurlent exudate.

No formed epithelial tissue fragments. " I need to talk with the

doctor about this. Does anyone have a clue if this means my bx is

OK????

Today I had an MRI with contrast. I am afraid that I might have to

wait till later next week to get the report, and I am on pins and

needles.

* What is causing this bleeding?

* Has anyone ever heard of this complication from UFE?

* Is it possible I " spouted " a new, submucosal fibroid since 10/03

(the bleeding variety?)

* What can we do to make it stop???????? (Hormone therapy hasn't

worked yet)

* Has anyone bled this LONG before? (43 days and counting!!!!)

* Obviously I want to avoid a hysterectomy, which is why I chose

UAE! Now I am pretty programed that I would never want one. Are

there truly legitimate reasons to get a hyster. that can't be solved

other ways? My gyn actually recommended UAE - and I do not consider

her " knife happy, " so there is a good trust relationship with her.

Sorry - maybe some responses will help get me through the weekend,

until I hear from the IR or GYN.

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