whispering an update

[Guest guest]

I'm afraid to say this too loud for fear it will vanish in the air.

With the prednisone and anti-viral meds not only have I stepped out of

the coffin but it seems to me that I am much better than I was pre-

surgery. The swelling is even diminishing in my feet. Now I haven't

switched back to my walker simply because I'm so far behind ...3 sets

of taxes to do before Leaving for Mayo.

I have found some case studies that document Epstein barr cerebellitis

or Guillane barre or cranial nerve involvement produce an anti-neuronal

antibody of sorts. There is also documentation in rare cases where EBV

generates its own autoimmune stimulated response causing the infected

person to attack their own neurons. All this is rare but isn't PLS

rare as well.

Mainly I'm glad to be alive and will be grateful for that miracle and

anymore sent my way.

Hugs

Eva