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deception...

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Hello with all!

My present intervention does not want to be unfortunately quite merry. But I

make a point

of saying that I am very disappointed of this forum and its utility. We are if

little in the

world to have this disease that us let us can expect that all are given like

priority to

exchange on our symptoms and suggestions of relief, etc… But I have sometimes

the

impression that this forum is useful more like " social club " medical reference.

When it

there with the arrival of a new member, one can often read comments as " you are

with

the good place, here you will find of the assistance and of the exchange " …

However,

often, it of it is nothing… Two weeks ago for example, I asked all them

participants to

indicate to me if people had such and such symptom… How much answers I had? Two…

As far as the person who had problems with sound computer or its signature… …

And

yet was not to require much… One yes or not, two or three lines would have is

enough. It

was not the first time that I lived this disappointment… Previously for example,

a user who

described a quite precise and particular symptom… I answer him that I lived the

same

thing exactly… It forever condescended to answer me or put themselves at the

current

these steps… No continuation! I do not have anything against the use of this

forum as

leisures or social club, on the contrary. But perhaps that it would be necessary

to divide

into two this forum and to specify waitings and needs…

Without resentment

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