Re: New Member - Same Problems @Marsha...and anyone else...

[Guest guest]

I don't think the 9cm is degenerating. It was 5.3 cm in December and

is now about 9cm so it's definitely growing. But I do think they did

not get that one as well as the several other ones that were left

after the '02. I am in the process of gathering those medical records

so I can see for myself what happened. I do recall my mother saying

that my doctor brought out a picture of the biggest one, which was

the size of a softball, and said that they didn't want to get the

rest of them b/c they had already had me under for 4 hours just

trying to get the ONE...(?) That to me is interesting and would leave

me to believe that my dr did not have a lot of experience with

fibroids and more specifically dealing with African American patients

who are prone to have more..she used to just marvel at my sono work

stating that " I've only seen one other patient with fibroids like

this, and she was Black... "

Also, no one has mentioned an MRI for fibroids to me before. And yes,

both oncologists sent me for sonos and hysterosonos. I don't have a

previous hx of endo to my knowledge. Now, that doesn't necessarily

mean that I may not have had it, since the Kaiser dr's in particular

were very haphazard with even diagnosing me with fibroids PERIOD. I

will ask about that this week....that said, would it be worth it to

go forward with the third opinion and go deeper into mentioning the

MRIs or laperoscopy to look at the endo? What type of questions

should I be asking at this stage in the game?

Kim

[Guest guest]

Kim,

I'm glad your requesting

copies of the surgical notes

for your former surgery.

I sure hope they included a

description of the endometriosis

if found.

Dr. Bill , author of

A Gynecologist's 2nd Opinion,

Board of Directors Member of

the National Uterine Fibroids

Foundation (NUFF.org)provided

good infor on cancer and the

use of MRI in message #45365,

his response to Pat Boersma,

" RE: Cancer Scare Again/HystyvMyo/etc.

Read the message in its entirety.

Carla Dionne, moderator of this

group, author " Sex, Lies & the

Truth About Uterine Fibroids " describes

symptoms of endometriosis on page

129 which includes constant backache.

See also Nadine sen, BSN, RN

in her description of uterine fibroids:

http://nasw.org/users/nadinej/adv/fibroids.htm

Nadine is from the Washington,DC area.

Dr. Spies, Interventional Radiologist

at town Univ. has extensive experience

with MRI/UAE. You might want to contact him

also about MRI and surgical oncologists in

the DC metro area who are using MRI as

a diagnostic tool. MRI may also be helpful

in diagnosing ovarian problems, ie dermoid

cysts.

The key is good diagnostics and

good doctors...

Hoping other women post-myo and with

repeat problems will also respond &

with other Dr. recommendations in the

MD/DC/VA area.

Marsha

[Guest guest]

Kim,

I'm glad your requesting

copies of the surgical notes

for your former surgery.

I sure hope they included a

description of the endometriosis

if found.

Dr. Bill , author of

A Gynecologist's 2nd Opinion,

Board of Directors Member of

the National Uterine Fibroids

Foundation (NUFF.org)provided

good infor on cancer and the

use of MRI in message #45365,

his response to Pat Boersma,

" RE: Cancer Scare Again/HystyvMyo/etc.

Read the message in its entirety.

Carla Dionne, moderator of this

group, author " Sex, Lies & the

Truth About Uterine Fibroids " describes

symptoms of endometriosis on page

129 which includes constant backache.

See also Nadine sen, BSN, RN

in her description of uterine fibroids:

http://nasw.org/users/nadinej/adv/fibroids.htm

Nadine is from the Washington,DC area.

Dr. Spies, Interventional Radiologist

at town Univ. has extensive experience

with MRI/UAE. You might want to contact him

also about MRI and surgical oncologists in

the DC metro area who are using MRI as

a diagnostic tool. MRI may also be helpful

in diagnosing ovarian problems, ie dermoid

cysts.

The key is good diagnostics and

good doctors...

Hoping other women post-myo and with

repeat problems will also respond &

with other Dr. recommendations in the

MD/DC/VA area.

Marsha

[Guest guest]

Kim,

I'm glad your requesting

copies of the surgical notes

for your former surgery.

I sure hope they included a

description of the endometriosis

if found.

Dr. Bill , author of

A Gynecologist's 2nd Opinion,

Board of Directors Member of

the National Uterine Fibroids

Foundation (NUFF.org)provided

good infor on cancer and the

use of MRI in message #45365,

his response to Pat Boersma,

" RE: Cancer Scare Again/HystyvMyo/etc.

Read the message in its entirety.

Carla Dionne, moderator of this

group, author " Sex, Lies & the

Truth About Uterine Fibroids " describes

symptoms of endometriosis on page

129 which includes constant backache.

See also Nadine sen, BSN, RN

in her description of uterine fibroids:

http://nasw.org/users/nadinej/adv/fibroids.htm

Nadine is from the Washington,DC area.

Dr. Spies, Interventional Radiologist

at town Univ. has extensive experience

with MRI/UAE. You might want to contact him

also about MRI and surgical oncologists in

the DC metro area who are using MRI as

a diagnostic tool. MRI may also be helpful

in diagnosing ovarian problems, ie dermoid

cysts.

The key is good diagnostics and

good doctors...

Hoping other women post-myo and with

repeat problems will also respond &

with other Dr. recommendations in the

MD/DC/VA area.

Marsha