Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 e wrote: > Okay I am 6 months post myo > It has been three months since my period returned > Yes the first one was hellish > BUT shouldn't it have gone up by now? Yes and No. Some OTC pills are far better than others. You might want to switch brands. I personally brought my hemo up from 6.1 to 11.5 in 7 weeks by taking Slow FE, Floradix Iron + Herbs (nasty liquid - don't take it without a chaser of chocolate pudding or similar nearby!), and liquid liver extract (pills). I followed many of the recommendations in Nutrition for Natural Healing by Dr. Balch including, when it was very low, drinking 1 T of blackstrap molasses 2X a day. I feel much better despite very heavy periods with well over 1 pound of blood loss each month. I am still very dizzy and such for a week after each period - but my recovery time is much improved. I also don't get mosquito bites anymore because of all the B vitamins! LOL! (I am still searching for a hospital in my area that has a latex free surgery and ward... so my honeydew melon is still very much with me.) The other thing to consider, perhaps there is another cause? There are lots of things that can cause low iron levels. My PCP wants to give me an upper and lower GI because he has trouble understanding how my levels got so low in the first place. I'm glad my OB/GYN at least gets it. LOL! Kathy in Northern IL kwentz@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi, Your doc is right, it can take a year (sometimes longer) to get your counts back up. Once your counts are really down, diet alone won't work. You have to replenish your stores too, not just get your counts up. Until your counts are in the normal range, exercise could be more harmful than helpful. Your periods may not be heavy but you are still losing blood all the same. Many women with " normal " periods have anemia. I too still had problems with my anemia after my surgery. It's taken me 9 months to get back to exercising. I did walk after my surgery, but not power walking or for long distances. Just walking for healing. Anemia is a curse and it's dangerous. Listen to your body and give it the time it needs to heal and get over the anemia. And yes, drink lots of water (skip the caffine drinks and soda - they will only add to your problems). Take it easy until your body is ready. Ku e pchelkajustine@...> wrote: Okay I am 6 months post myo It has been three months since my period returned Yes the first one was hellish BUT shouldn't it have gone up by now? I went into the Drs last Wed because Tuesday night I passed out. I was trying to get on the floor to do my strengthening therapy exercises and the next thing I felt was pressure and I woke up on the computer keyboard on the floor. I had had a wobbly moment on Monday but I thought it was the flu. I was very concerned considering through hemo counts of six I didn't pass out. I don't get this. I eat well. Salads, meat, beans stuff with iron. I take pills too to help. It has been MONTHS! since I have had a major bleeding episode. No puddles no disasters so why am I down on my floor. Others here have suffered from long term bad anemia is anyone else having trouble recovering? I asked the Doc (my general practitioner) He said a hemo of 10 is good for me and it may take a year to get everything back. This doesn't sound right. People here are raising their hemos by whole points in months why not me? I have had abdominal cramps and have been running for the bathroom every hour if I eat or drink for over two weeks now but come on a few strength exercises and that shouldn't mean that I pass out. My back and legs still hurt a lot after work and they aren't strengthening up like I hoped I really had hoped to be riding a bike or lifting weights by now. I put on 60 lbs since my hemo dropped too low to exercise and I want that weight off but the exercises I am doing now are hard enough on my body, My back screams all night every night. The Doc had prescribed Bextra for the pain but it didn't help at all so I am back on Tylenol I have been told no swimming or running until things improve. He said to drink more fluids and stay out of the heat. He said to take the iron pills and wait IDEAS PLEASE I AM TIRED OF WAITING Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Maybe you should up your iron pills. My blood was down to " 20 " (hemocrit) at the time of my UFE. They put me on 65 mgs. of iron 3X's a day in the hospital. I was back up to normal in 4-5 weeks time. (35) On top of this, I ate a lot of red meat (which I don't normally do,) those green colored flat seeds (forgot the name but high in iron) and tons of green leafy vegys. Sounds like you've done a lot with diet and your not bleeding anymore. Maybe you need to up your intake of the pills. You can get that strength over the counter, but you should check with your doc 1st. That is a lot of iron to be taking without checking. Hope it helps. > Okay I am 6 months post myo > It has been three months since my period returned > Yes the first one was hellish > BUT shouldn't it have gone up by now? > > I went into the Drs last Wed because Tuesday night I > passed out. I was trying to get on the floor to do my > strengthening therapy exercises and the next thing I > felt was pressure and I woke up on the computer > keyboard on the floor. I had had a wobbly moment on > Monday but I thought it was the flu. I was very > concerned considering through hemo counts of six I > didn't pass out. > > I don't get this. I eat well. Salads, meat, beans > stuff with iron. I take pills too to help. It has > been MONTHS! since I have had a major bleeding > episode. No puddles no disasters so why am I down on > my floor. Others here have suffered from long term > bad anemia is anyone else having trouble recovering? > > I asked the Doc (my general practitioner) He said a > hemo of 10 is good for me and it may take a year to > get everything back. This doesn't sound right. > People here are raising their hemos by whole points in > months why not me? I have had abdominal cramps and > have been running for the bathroom every hour if I eat > or drink for over two weeks now but come on a few > strength exercises and that shouldn't mean that I pass > out. My back and legs still hurt a lot after work and > they aren't strengthening up like I hoped I really had > hoped to be riding a bike or lifting weights by now. > I put on 60 lbs since my hemo dropped too low to > exercise and I want that weight off but the exercises > I am doing now are hard enough on my body, My back > screams all night every night. The Doc had prescribed > Bextra for the pain but it didn't help at all so I am > back on Tylenol > I have been told no swimming or running until things > improve. He said to drink more fluids and stay out of > the heat. He said to take the iron pills and wait > IDEAS PLEASE I AM TIRED OF WAITING Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Oh, gee, e.... So sorry to hear about this fainting episode. Not sure we should necessarily chalk it up to anemia--maybe yes, maybe, no. I hope your docs are aware of this, because I think all fainting is a sign and should warrant concern, and medical investigation. I agree with Marsha--if you haven't done so already, you really should see a competent hematologist for a consult and a plan. I wonder whether it would be appropriate to have more sophisticated iron tests performed to monitor your iron storage. Could your problem not be iron intake per se, but iron absorption? Are you taking any stomach meds like Prilosec or antacids which decrease absorption? In e's case I don't think she need worry about her spleen, Marsh. The spleen produces red cells before we are born, but after birth, our bone marrow takes care over this function. However the spleen is responsible for the removal and subsequent recycling of approximately 90% of all our old red cells. Sometimes here too it can take out red cells more aggressively than normal. But iron deficiency is not a problem with red blood cell production or destruction........ Also wondering, e, whether your 60 pound weight GAIN might have increased your requirements for iron. Also, just wondering aloud here (at 1:00 AM...in my semiconscious state...) about your DIABETES. Could that have been a contributing factor? How controlled are your sugars? What about this latest bout with diarrhea? It's not hard to lose fluids and electrolytes rather quickly with diarrhea, which could have led to the fainting. e, I think you need to pursue this with all members of your health team--and maybe it's time for a thorough checkup to make sure they're not missing something. Take it easy, my friend. Keep us posted. -Roma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi e, I'm glad you saw your GP the very next day after the fainting episode last week. Have you also been doing alot of lifting/bending at work recently? Outdoors with your clients alot? And 2 weeks of abdominal cramps and diahrrea? I don't like the sound of that. Hmmm. Have you thought about a referral to a hematologist to make sure your spleen is producing the red blood cells / oxygen uptake? Let's hope this is just a little pothole in your rapid road to recovery. At age 35, you just want to go gangbusters by now...but your past history of severe/significant anemia, lupron, and 2 surgeries in one year.... whoa, young lady... and how many clients at work now? Concerned for you, hoping Roma might chime in on the spleen/rbc production, and of course, when you get woozy, get horizontal with the legs elevated, call that Mama of yours...is she living in the same town? Marsha > I went into the Drs last Wed because Tuesday night I > passed out. >> I asked the Doc (my general practitioner) He said a > hemo of 10 is good for me and it may take a year to > get everything back. This doesn't sound right. > People here are raising their hemos by whole points in > months why not me? I have had abdominal cramps and > have been running for the bathroom every hour if I eat > or drink for over two weeks now but come on a few > strength exercises and that shouldn't mean that I pass > out. > I have been told no swimming or running until things > improve. He said to drink more fluids and stay out of > the heat. He said to take the iron pills and wait > IDEAS PLEASE I AM TIRED OF WAITING Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Kathy Loyola does latex free You have to go first but I am also allergic and they were great Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 e wrote: > Kathy Loyola does latex free > You have to go first but I am also allergic and they > were great I called Dr. Z's office and they said no. He is Loyola, isn't he? Are you sure they have an actual latex free surgery? Maybe I got a new person on the phone who didn't know any better? Argh. Oh, What do you mean you have to go first? Maybe they don't tell you over the phone they can do it that way? Why? Loyola is quite a drive for me but would be worth it for Dr. Z latex free. I'll try again.... Kathy in Northern IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 yeth. I too second the Roma Emotion. gigi ARomaWithAView@... wrote: >Oh, gee, e.... >So sorry to hear about this fainting episode. Not sure we should necessarily >chalk it up to anemia--maybe yes, maybe, no. I hope your docs are aware of >this, because I think all fainting is a sign and should warrant concern, and >medical investigation. > >I agree with Marsha--if you haven't done so already, you really should see a >competent hematologist for a consult and a plan. I wonder whether it would be >appropriate to have more sophisticated iron tests performed to monitor your >iron storage. > >Could your problem not be iron intake per se, but iron absorption? Are you >taking any stomach meds like Prilosec or antacids which decrease absorption? > >In e's case I don't think she need worry about her spleen, Marsh. > >The spleen produces red cells before we are born, but after birth, our bone >marrow takes care over this function. However the spleen is responsible for >the removal and subsequent recycling of approximately 90% of all our old red >cells. Sometimes here too it can take >out red cells more aggressively than normal. But iron deficiency is not a >problem with red blood cell production or destruction........ > >Also wondering, e, whether your 60 pound weight GAIN might have >increased your requirements for iron. > >Also, just wondering aloud here (at 1:00 AM...in my semiconscious state...) >about your DIABETES. Could that have been a contributing factor? How controlled >are your sugars? > >What about this latest bout with diarrhea? It's not hard to lose fluids and >electrolytes rather quickly with diarrhea, which could have led to the fainting. > >e, I think you need to pursue this with all members of your health >team--and maybe it's time for a thorough checkup to make sure they're not missing >something. > >Take it easy, my friend. Keep us posted. > >-Roma > > > > > >MEETUP! with other local women who have Uterine Fibroids. http://uterinefibroids.meetup.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Hi Roma and Gigi well my OB GYN agrees with you guys. Today was my annual and it was amusing Let me say again He is good! He diagnosed me in seconds confirmed it with tests in days two years ago. I presented him with Loyola's surgical report and he asked me how long between surguries and he got this funny look. He began flipping through my chart to the picture he took of the submu fibroid then the first surgical report and finally to the one I just handed him. I responded with " Yes you had a picture of it and he still left it in " He answered back " I thought maybe it was a new one but not enough time had passed. ... I don't know why he didn't remove it " He was all about well what do we do now. Bloodwork, dietician and internist were his recommendations. I have a prescription for each and phone numbers for the last two. Good news... He says my uterus is SMALL He will see me in three months to see that I am getting healthy(he said now I am well time to get healthy) He changed my vitamin regimen to those easier to digest (pre natal) he told me to go find a husband (I had told him I needed to marry before trying to have a baby) and then I could start trying to concieve soon Bad news estrogen is still high and he is concerned I already have a hematologist. I had to see one at the height of all the blood lost because they couldn't operate without it. They searched for other reasons for bloodloss but found nothing. 14 vials of blood in one day. Maybe should see her again. Could call and ask or wait and see if new vitamins help the hemo level and see what internist(?) says Quote Link to comment Share on other sites More sharing options...
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