Re: Light Sensitivity Anyone ??

[Guest guest]

GEO,

Definitely I have trouble and even with depth perception. I've always had

" bad " eyesight so figured it was part of that.

[Guest guest]

Geo

I have been light sensitive since the late 80's. When I was dx'd with lupus

in 1991 I contributed this to that. It did not bother me as much for about

8 years after being treated for lupus which also seemed to have subsided for

most part those years. However, when my neuro issues started in 2003 the

light sensitivity increased.

I have to wear sunglasses outside even on cloudy days. Many times I wear

sunglasses that don't have too dark lenses inside esp when in a room with

fluroscent type lights.

Going from a bright place to darker I have a hard time adjusting.

At night I have night lights throughout the house so I don't have to turn

lights on if get up in middle of night.

If I am trying to walk in the dark esp a new place or one not as familiar as

home I am so lost, and even more ataxic.

I can't say if my light sensitivity has anything to do with my neuro issues

but I definitely have this as an constant issue.

marfla

Be Blessed

Light Sensitivity Anyone ??

> If anyone has noticed since your Symptoms first began that you have

> become more sensitive to Bright light .Let me know . Like when you go

> outside and you find that the sunlight causes some temporary

> disorientation or when getting up in the night and turning on the

> bathroom light. Im wandering if this goes with the territory ?

> GEO

>

>

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>

>

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>

[Guest guest]

Geo

I have been light sensitive since the late 80's. When I was dx'd with lupus

in 1991 I contributed this to that. It did not bother me as much for about

8 years after being treated for lupus which also seemed to have subsided for

most part those years. However, when my neuro issues started in 2003 the

light sensitivity increased.

I have to wear sunglasses outside even on cloudy days. Many times I wear

sunglasses that don't have too dark lenses inside esp when in a room with

fluroscent type lights.

Going from a bright place to darker I have a hard time adjusting.

At night I have night lights throughout the house so I don't have to turn

lights on if get up in middle of night.

If I am trying to walk in the dark esp a new place or one not as familiar as

home I am so lost, and even more ataxic.

I can't say if my light sensitivity has anything to do with my neuro issues

but I definitely have this as an constant issue.

marfla

Be Blessed

Light Sensitivity Anyone ??

> If anyone has noticed since your Symptoms first began that you have

> become more sensitive to Bright light .Let me know . Like when you go

> outside and you find that the sunlight causes some temporary

> disorientation or when getting up in the night and turning on the

> bathroom light. Im wandering if this goes with the territory ?

> GEO

>

>

>

>

>

>

>

>

>

[Guest guest]

hey geo,

didn't really have that until last fall when other new things came about. with

the new things came migraines and still i cannot be in bright light and wear my

goofy fishing hat that covers my eyes when i walk my dogs. i don't have a pair

of rx sunglasses so for a while i actually wore a pair of goofy 2 dollar

sunglasses over my glasses and the fishin' hat!!

i just avoid it and actually the darker it is in the house, the cooler it is, so

there is really no good light in the house except in the kitchen and bath.....i

don't look upward when those are on.

T

email from

Tawny Swain Castle, Florida

Light Sensitivity Anyone ??

If anyone has noticed since your Symptoms first began that you have

become more sensitive to Bright light .Let me know . Like when you go

outside and you find that the sunlight causes some temporary

disorientation or when getting up in the night and turning on the

bathroom light. Im wandering if this goes with the territory ?

GEO

[Guest guest]

hey geo,

didn't really have that until last fall when other new things came about. with

the new things came migraines and still i cannot be in bright light and wear my

goofy fishing hat that covers my eyes when i walk my dogs. i don't have a pair

of rx sunglasses so for a while i actually wore a pair of goofy 2 dollar

sunglasses over my glasses and the fishin' hat!!

i just avoid it and actually the darker it is in the house, the cooler it is, so

there is really no good light in the house except in the kitchen and bath.....i

don't look upward when those are on.

T

email from

Tawny Swain Castle, Florida

Light Sensitivity Anyone ??

If anyone has noticed since your Symptoms first began that you have

become more sensitive to Bright light .Let me know . Like when you go

outside and you find that the sunlight causes some temporary

disorientation or when getting up in the night and turning on the

bathroom light. Im wandering if this goes with the territory ?

GEO

[Guest guest]

I have'nt had this only since getting my Neurological problem and

moreso since. I find as time goes on it seems to get worse i

deffinitely need sunglasses when going outside . But no solution for

when i get up to go to the bathroom in the night . Only i could turn

the light on before entering the bathroom but i dont think that would

make Connie very happy . Also when i put our Flag up and look up to

see if its all the way i better grab the pole or im going over

backwards GEO

>

> GEO,

>

> Definitely I have trouble and even with depth perception. I've

always had

> " bad " eyesight so figured it was part of that.

>

>

>

>

>

[Guest guest]

HMMMM I wander if that qualifies us for a Presciption Pair of Sun

Glasses HMMMMM GEO

>

> hey geo,

> didn't really have that until last fall when other new things came

about. with the new things came migraines and still i cannot be in

bright light and wear my goofy fishing hat that covers my eyes when

i walk my dogs. i don't have a pair of rx sunglasses so for a while

i actually wore a pair of goofy 2 dollar sunglasses over my glasses

and the fishin' hat!!

>

> i just avoid it and actually the darker it is in the house, the

cooler it is, so there is really no good light in the house except

in the kitchen and bath.....i don't look upward when those are on.

> T

>

> email from

> Tawny Swain Castle, Florida

>

>

>

> Light Sensitivity Anyone ??

>

>

> If anyone has noticed since your Symptoms first began that you

have

> become more sensitive to Bright light .Let me know . Like when you

go

> outside and you find that the sunlight causes some temporary

> disorientation or when getting up in the night and turning on the

> bathroom light. Im wandering if this goes with the territory ?

> GEO

>

>

>

>

>

[Guest guest]

Marfla:

Seems we have more in common than light sensitivity as I was diagnosed with

Lupus about 25 years ago. Mine has been in remission since having my spleen

removed about 15 years ago.

I have had a lot of trouble with light sensitivity over the last 3-4 years, in

fact when I went to the eye specialist he found that I had angle-narrowing

glaucoma and operated on me for that the following week. That was about 2 years

ago. I also have developed cataracts and am on a waiting list to have them

removed.

Like you, I don't know if any of this has anything to do with my neurological

condition or not.

Take care.

Jo

Light Sensitivity Anyone ??

> If anyone has noticed since your Symptoms first began that you have

> become more sensitive to Bright light .Let me know . Like when you go

> outside and you find that the sunlight causes some temporary

> disorientation or when getting up in the night and turning on the

> bathroom light. Im wandering if this goes with the territory ?

> GEO

>

>

>

>

>

>

>

>

>

[Guest guest]

Hey Jo

Guess we do have some things in common. I believe my lupus has been in

remission for many years. Although I have had some similar symptoms over

the years nothing that I ever needed to seek medical attention. Until the

neuro stuff started in 2003. Doesn't seem the lupus is main cause of all

the neuro stuff, but at least my neuro/PCP haven't ruled out lupus playing

some role in the nerve damage.

I have had eye exams by ophthalmologist and optometrist sp? several times

over last two years. so far nothing is showing wrong with eyes besides

sometimes dry. even my vision hasn't changed in the last 6 or so years.

but the light sensitivity has been an issue for me before the lupus dx.

some days are worse than others. sunlight is bad, and sometimes indoors i

must wear light shaded sunglasses. no one seems to know really why my eyes

are this way. so i guess for me nothing to be concerned about since vision

hasn't changed. just frustrating to cope with sometimes.

i think one day though it will be found related to neuro stuff as i can't

imagine it not. seems with all the nerves in our bodies, running around

everywhere, thru eyes etc.... if have some nerve damage, central/peripheral

nervous system problem, I don't see how its not somehow related. sorta like

nerves in other parts are so sensitive to things like touch/heat/cold, that

nerves in eyes sensitive to light, blowing air, etc... but who or what am I

to say this???? im no doctor and don't play one on TV LOL.

best wishes to you and gentle hugs

Marla

Florida

Be Blessed

Light Sensitivity Anyone ??

>

> > If anyone has noticed since your Symptoms first began that you have

> > become more sensitive to Bright light .Let me know . Like when you go

> > outside and you find that the sunlight causes some temporary

> > disorientation or when getting up in the night and turning on the

> > bathroom light. Im wandering if this goes with the territory ?

> > GEO

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hey Jo

Guess we do have some things in common. I believe my lupus has been in

remission for many years. Although I have had some similar symptoms over

the years nothing that I ever needed to seek medical attention. Until the

neuro stuff started in 2003. Doesn't seem the lupus is main cause of all

the neuro stuff, but at least my neuro/PCP haven't ruled out lupus playing

some role in the nerve damage.

I have had eye exams by ophthalmologist and optometrist sp? several times

over last two years. so far nothing is showing wrong with eyes besides

sometimes dry. even my vision hasn't changed in the last 6 or so years.

but the light sensitivity has been an issue for me before the lupus dx.

some days are worse than others. sunlight is bad, and sometimes indoors i

must wear light shaded sunglasses. no one seems to know really why my eyes

are this way. so i guess for me nothing to be concerned about since vision

hasn't changed. just frustrating to cope with sometimes.

i think one day though it will be found related to neuro stuff as i can't

imagine it not. seems with all the nerves in our bodies, running around

everywhere, thru eyes etc.... if have some nerve damage, central/peripheral

nervous system problem, I don't see how its not somehow related. sorta like

nerves in other parts are so sensitive to things like touch/heat/cold, that

nerves in eyes sensitive to light, blowing air, etc... but who or what am I

to say this???? im no doctor and don't play one on TV LOL.

best wishes to you and gentle hugs

Marla

Florida

Be Blessed

Light Sensitivity Anyone ??

>

> > If anyone has noticed since your Symptoms first began that you have

> > become more sensitive to Bright light .Let me know . Like when you go

> > outside and you find that the sunlight causes some temporary

> > disorientation or when getting up in the night and turning on the

> > bathroom light. Im wandering if this goes with the territory ?

> > GEO

> >

> >

> >

> >

> >

> >

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