Wish me Luck

[Guest guest]

Hi Group,

Sorry I haven't posted in while. My trip in February

went very well. Was tiring, but I did it, and all by

myself.

Family activities and helping my future daughter in

law planning their wedding for July has been keeping

me busy as well.

Tomorrow is my doctors appointment. My first one with

this doctor in 4 years. He is the one that found the

problem but until it progressed further he wouldn't

give a definate DX. He recommended, which we did, find

a doctor closer to home to monitor. Well that was

easier said then done. For 2 years we saw about 3-4

diferrent nuero's and all it helped was to aggrivate

me. I felt I knew more of what was happening then they

did and we just couldn't get on the same page. By

going back to this first doc, who was so

understanding, helpful, encouraging, I can't wait. The

DX, I have learned I can wait, but to be with someone

again that believes what is happening instead of the

others that, it wasn't their speciality, they don't

spend the time to understand. Just prescribe and go

though the revolving door every 2-4 weeks. No Thanks!

Well, I think he will see some progression.

Unfortunately my tumors have been going a route we

didn't expect and causing seconary troubles. I will

need surgery but am afraid. With this nueromuscular

thing, which came to light from the last time they

tried to remove 13, scares me, that either A) I won't

wake up or B)I will no longer be able to walk. By

going to UCSD, I will have the best and all in one

place. All will be on hand for any complications but

it does not ellimate the fear. Plus, having been

through this once and surviving, I can remember the

pain my family went through. It was so hard on all

them. Last time we didn't know what or why, this time

we know and it really causes some distress.

Wished my medical problems weren't so complicated. We

must watch what they want to do, research so much to

make the right choice. Then is it? How does one know?

Before I had no idea what was happening, this time...

Sorry, just wish me luck, say some prayers and we'll

let God pave this path.

Thaks