Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Yes, I am extremely heat intolerant. Actually, humidity does the same to me--even if the weather is cool. Even with my central air conditioning in the summer, I have to supplement it with a dehumidifier. The weakness and pain last for several days at times if I stay overly warm for too long. I never go out in the sun, so can't speak to that. Dolores ----- Original Message ----- > anyone else experience similiar affects from spending time in > heat/sun? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 thanks Dolores for sharing. heat inside buildings will do the same. humidity the same inside or out. im not sure if its' the sun so much or more just being overheated, hot, or humidity. if i am in a building/rooom that is warm, i will feel horrible. weak, imbalance, blurry vision etc...... sets in quickly. but yeah if too warm/hot too long will last few days. best wishes to you marfla -- In PLS-FRIENDS , " Dolores Carron " wrote: > > Yes, I am extremely heat intolerant. Actually, humidity does the same to > me--even if the weather is cool. Even with my central air conditioning in > the summer, I have to supplement it with a dehumidifier. The weakness and > pain last for several days at times if I stay overly warm for too long. I > never go out in the sun, so can't speak to that. > Dolores > > ----- Original Message ----- > From: " marfla04 " > > anyone else experience similiar affects from spending time in > > heat/sun? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 thanks Dolores for sharing. heat inside buildings will do the same. humidity the same inside or out. im not sure if its' the sun so much or more just being overheated, hot, or humidity. if i am in a building/rooom that is warm, i will feel horrible. weak, imbalance, blurry vision etc...... sets in quickly. but yeah if too warm/hot too long will last few days. best wishes to you marfla -- In PLS-FRIENDS , " Dolores Carron " wrote: > > Yes, I am extremely heat intolerant. Actually, humidity does the same to > me--even if the weather is cool. Even with my central air conditioning in > the summer, I have to supplement it with a dehumidifier. The weakness and > pain last for several days at times if I stay overly warm for too long. I > never go out in the sun, so can't speak to that. > Dolores > > ----- Original Message ----- > From: " marfla04 " > > anyone else experience similiar affects from spending time in > > heat/sun? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 oh something else regarding the heat/sun. my friend i was with this weekend, mentioned my heat intolerance is close to like having heat exhaustion. and that when ppl exp heat exhaustion the body can't send out, keep track, or something like that of the necessary chemical (she didn't say chemicals but i can't remember the word she used) for the muscles to work properly. she suggested i look up heat exhaustion to see if my sx's look familiar to that. which they do. so now of course makes me wonder when i get hot whether inside or out, its something like experiencing heat exhaustion every time. and when i cool down i do feel better meaning i dont feel those immediate sx's one has, yet i will experience difficulties for few days if been out in the heat for hours or full day. if in a store, home, inside, and get hot, i get the immediate sx's similiar to heat exhaustion i.e. weakness, blurred vision, nausea, imbalance, faint like, etc... yet if cool down those seem to subside and im ok. i tried googling HSP and heat intolerance but didn't seem to find much on if related. marfla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 oh something else regarding the heat/sun. my friend i was with this weekend, mentioned my heat intolerance is close to like having heat exhaustion. and that when ppl exp heat exhaustion the body can't send out, keep track, or something like that of the necessary chemical (she didn't say chemicals but i can't remember the word she used) for the muscles to work properly. she suggested i look up heat exhaustion to see if my sx's look familiar to that. which they do. so now of course makes me wonder when i get hot whether inside or out, its something like experiencing heat exhaustion every time. and when i cool down i do feel better meaning i dont feel those immediate sx's one has, yet i will experience difficulties for few days if been out in the heat for hours or full day. if in a store, home, inside, and get hot, i get the immediate sx's similiar to heat exhaustion i.e. weakness, blurred vision, nausea, imbalance, faint like, etc... yet if cool down those seem to subside and im ok. i tried googling HSP and heat intolerance but didn't seem to find much on if related. marfla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 oh something else regarding the heat/sun. my friend i was with this weekend, mentioned my heat intolerance is close to like having heat exhaustion. and that when ppl exp heat exhaustion the body can't send out, keep track, or something like that of the necessary chemical (she didn't say chemicals but i can't remember the word she used) for the muscles to work properly. she suggested i look up heat exhaustion to see if my sx's look familiar to that. which they do. so now of course makes me wonder when i get hot whether inside or out, its something like experiencing heat exhaustion every time. and when i cool down i do feel better meaning i dont feel those immediate sx's one has, yet i will experience difficulties for few days if been out in the heat for hours or full day. if in a store, home, inside, and get hot, i get the immediate sx's similiar to heat exhaustion i.e. weakness, blurred vision, nausea, imbalance, faint like, etc... yet if cool down those seem to subside and im ok. i tried googling HSP and heat intolerance but didn't seem to find much on if related. marfla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Yes, cooling down used to get rid of the symptoms immediately for me, too. In the early days of my PLS, the foot drop would resolve completely; now it doesn't, but I feel much weaker if I am too warm. Even a warm shower 'wipes me out' for awhile. As for the similarity of heat exhaustion, I have noticed that no matter how warm I get, I don't perspire. I just get red but remain dry. Of course, perspiration is nature's way of cooling us off. That just doesn't happen with me anymore. Dolores ----- Original Message ----- > when i cool down i do feel better meaning i dont feel those immediate > sx's one has, yet i will experience difficulties for few days if been > out in the heat for hours or full day. > > if in a store, home, inside, and get hot, i get the immediate sx's > similiar to heat exhaustion i.e. weakness, blurred vision, nausea, > imbalance, faint like, etc... yet if cool down those seem to subside > and im ok. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Yes, cooling down used to get rid of the symptoms immediately for me, too. In the early days of my PLS, the foot drop would resolve completely; now it doesn't, but I feel much weaker if I am too warm. Even a warm shower 'wipes me out' for awhile. As for the similarity of heat exhaustion, I have noticed that no matter how warm I get, I don't perspire. I just get red but remain dry. Of course, perspiration is nature's way of cooling us off. That just doesn't happen with me anymore. Dolores ----- Original Message ----- > when i cool down i do feel better meaning i dont feel those immediate > sx's one has, yet i will experience difficulties for few days if been > out in the heat for hours or full day. > > if in a store, home, inside, and get hot, i get the immediate sx's > similiar to heat exhaustion i.e. weakness, blurred vision, nausea, > imbalance, faint like, etc... yet if cool down those seem to subside > and im ok. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Yes, cooling down used to get rid of the symptoms immediately for me, too. In the early days of my PLS, the foot drop would resolve completely; now it doesn't, but I feel much weaker if I am too warm. Even a warm shower 'wipes me out' for awhile. As for the similarity of heat exhaustion, I have noticed that no matter how warm I get, I don't perspire. I just get red but remain dry. Of course, perspiration is nature's way of cooling us off. That just doesn't happen with me anymore. Dolores ----- Original Message ----- > when i cool down i do feel better meaning i dont feel those immediate > sx's one has, yet i will experience difficulties for few days if been > out in the heat for hours or full day. > > if in a store, home, inside, and get hot, i get the immediate sx's > similiar to heat exhaustion i.e. weakness, blurred vision, nausea, > imbalance, faint like, etc... yet if cool down those seem to subside > and im ok. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 I'm exactly the reverse. Oh, for sure I have to keep hydrated and stuff when it is hot, but heat is fine with me, it is the cold that makes me fold up. I start to whine when it gets in the 50s, and can't hardly function when it is down in the 30s. It isn't so much a matter of feeling weak when it is cold, I tend more to stiffen up and am unable to move freely. Cold weather used to be no big thing for me before, but since I got this Screaming Chicken Disease cold weather really gets to me. >Yes, cooling down used to get rid of the symptoms immediately for me, too. >In the early days of my PLS, the foot drop would resolve completely; now it >doesn't, but I feel much weaker if I am too warm. Even a warm shower 'wipes >me out' for awhile. > >As for the similarity of heat exhaustion, I have noticed that no matter how >warm I get, I don't perspire. I just get red but remain dry. Of course, >perspiration is nature's way of cooling us off. That just doesn't happen >with me anymore. > >Dolores > > >----- Original Message ----- > > >> when i cool down i do feel better meaning i dont feel those immediate >> sx's one has, yet i will experience difficulties for few days if been >> out in the heat for hours or full day. >> >> if in a store, home, inside, and get hot, i get the immediate sx's >> similiar to heat exhaustion i.e. weakness, blurred vision, nausea, >> imbalance, faint like, etc... yet if cool down those seem to subside >> and im ok. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 I'm exactly the reverse. Oh, for sure I have to keep hydrated and stuff when it is hot, but heat is fine with me, it is the cold that makes me fold up. I start to whine when it gets in the 50s, and can't hardly function when it is down in the 30s. It isn't so much a matter of feeling weak when it is cold, I tend more to stiffen up and am unable to move freely. Cold weather used to be no big thing for me before, but since I got this Screaming Chicken Disease cold weather really gets to me. >Yes, cooling down used to get rid of the symptoms immediately for me, too. >In the early days of my PLS, the foot drop would resolve completely; now it >doesn't, but I feel much weaker if I am too warm. Even a warm shower 'wipes >me out' for awhile. > >As for the similarity of heat exhaustion, I have noticed that no matter how >warm I get, I don't perspire. I just get red but remain dry. Of course, >perspiration is nature's way of cooling us off. That just doesn't happen >with me anymore. > >Dolores > > >----- Original Message ----- > > >> when i cool down i do feel better meaning i dont feel those immediate >> sx's one has, yet i will experience difficulties for few days if been >> out in the heat for hours or full day. >> >> if in a store, home, inside, and get hot, i get the immediate sx's >> similiar to heat exhaustion i.e. weakness, blurred vision, nausea, >> imbalance, faint like, etc... yet if cool down those seem to subside >> and im ok. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 I'm exactly the reverse. Oh, for sure I have to keep hydrated and stuff when it is hot, but heat is fine with me, it is the cold that makes me fold up. I start to whine when it gets in the 50s, and can't hardly function when it is down in the 30s. It isn't so much a matter of feeling weak when it is cold, I tend more to stiffen up and am unable to move freely. Cold weather used to be no big thing for me before, but since I got this Screaming Chicken Disease cold weather really gets to me. >Yes, cooling down used to get rid of the symptoms immediately for me, too. >In the early days of my PLS, the foot drop would resolve completely; now it >doesn't, but I feel much weaker if I am too warm. Even a warm shower 'wipes >me out' for awhile. > >As for the similarity of heat exhaustion, I have noticed that no matter how >warm I get, I don't perspire. I just get red but remain dry. Of course, >perspiration is nature's way of cooling us off. That just doesn't happen >with me anymore. > >Dolores > > >----- Original Message ----- > > >> when i cool down i do feel better meaning i dont feel those immediate >> sx's one has, yet i will experience difficulties for few days if been >> out in the heat for hours or full day. >> >> if in a store, home, inside, and get hot, i get the immediate sx's >> similiar to heat exhaustion i.e. weakness, blurred vision, nausea, >> imbalance, faint like, etc... yet if cool down those seem to subside >> and im ok. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 oh yeah no hot showers anymore. warm showers until i get cooled down i don't feel well. or even baths. i got stuck in a bathtub last year, as my legs wouldn't lift me out. i do heavily sweat most times. but can just have that clammy feeling skin with limited sweating. i kept googling heat intolerance. i have hashimoto thyroiditis and heat intolerance can be related. so maybe my heat issue isnt related to this other stuff and is more the thyroiditis. i really don't know. just hoping someone will put the pieces together. maybe going to shands the neuro will be smart enough to see i need other consults so all the pieces can be pulled together. wishing you the best. marfla Be Blessed Re: Re: Sun and heat effects? > Yes, cooling down used to get rid of the symptoms immediately for me, too. > In the early days of my PLS, the foot drop would resolve completely; now > it > doesn't, but I feel much weaker if I am too warm. Even a warm shower > 'wipes > me out' for awhile. > > As for the similarity of heat exhaustion, I have noticed that no matter > how > warm I get, I don't perspire. I just get red but remain dry. Of course, > perspiration is nature's way of cooling us off. That just doesn't happen > with me anymore. > > Dolores > > > ----- Original Message ----- > > >> when i cool down i do feel better meaning i dont feel those immediate >> sx's one has, yet i will experience difficulties for few days if been >> out in the heat for hours or full day. >> >> if in a store, home, inside, and get hot, i get the immediate sx's >> similiar to heat exhaustion i.e. weakness, blurred vision, nausea, >> imbalance, faint like, etc... yet if cool down those seem to subside >> and im ok. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 oh yeah no hot showers anymore. warm showers until i get cooled down i don't feel well. or even baths. i got stuck in a bathtub last year, as my legs wouldn't lift me out. i do heavily sweat most times. but can just have that clammy feeling skin with limited sweating. i kept googling heat intolerance. i have hashimoto thyroiditis and heat intolerance can be related. so maybe my heat issue isnt related to this other stuff and is more the thyroiditis. i really don't know. just hoping someone will put the pieces together. maybe going to shands the neuro will be smart enough to see i need other consults so all the pieces can be pulled together. wishing you the best. marfla Be Blessed Re: Re: Sun and heat effects? > Yes, cooling down used to get rid of the symptoms immediately for me, too. > In the early days of my PLS, the foot drop would resolve completely; now > it > doesn't, but I feel much weaker if I am too warm. Even a warm shower > 'wipes > me out' for awhile. > > As for the similarity of heat exhaustion, I have noticed that no matter > how > warm I get, I don't perspire. I just get red but remain dry. Of course, > perspiration is nature's way of cooling us off. That just doesn't happen > with me anymore. > > Dolores > > > ----- Original Message ----- > > >> when i cool down i do feel better meaning i dont feel those immediate >> sx's one has, yet i will experience difficulties for few days if been >> out in the heat for hours or full day. >> >> if in a store, home, inside, and get hot, i get the immediate sx's >> similiar to heat exhaustion i.e. weakness, blurred vision, nausea, >> imbalance, faint like, etc... yet if cool down those seem to subside >> and im ok. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 oh yeah no hot showers anymore. warm showers until i get cooled down i don't feel well. or even baths. i got stuck in a bathtub last year, as my legs wouldn't lift me out. i do heavily sweat most times. but can just have that clammy feeling skin with limited sweating. i kept googling heat intolerance. i have hashimoto thyroiditis and heat intolerance can be related. so maybe my heat issue isnt related to this other stuff and is more the thyroiditis. i really don't know. just hoping someone will put the pieces together. maybe going to shands the neuro will be smart enough to see i need other consults so all the pieces can be pulled together. wishing you the best. marfla Be Blessed Re: Re: Sun and heat effects? > Yes, cooling down used to get rid of the symptoms immediately for me, too. > In the early days of my PLS, the foot drop would resolve completely; now > it > doesn't, but I feel much weaker if I am too warm. Even a warm shower > 'wipes > me out' for awhile. > > As for the similarity of heat exhaustion, I have noticed that no matter > how > warm I get, I don't perspire. I just get red but remain dry. Of course, > perspiration is nature's way of cooling us off. That just doesn't happen > with me anymore. > > Dolores > > > ----- Original Message ----- > > >> when i cool down i do feel better meaning i dont feel those immediate >> sx's one has, yet i will experience difficulties for few days if been >> out in the heat for hours or full day. >> >> if in a store, home, inside, and get hot, i get the immediate sx's >> similiar to heat exhaustion i.e. weakness, blurred vision, nausea, >> imbalance, faint like, etc... yet if cool down those seem to subside >> and im ok. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Thats why they have an Immunologist he or she is suppose to know about the immune system . Mine gave me Prednisone for a week and i was going back to normal and then he said we cant keep you on that .at that i stated Jerry has been on it for years .I got no answer to that .Thats why Jerry is all puffed up . GEO > > maybe one of these days there will be a specialty of Autoimmun- ologists. > One doctor that can cover all autoimmune disorders rather than having to > rheum, endo, neuro, internal, gyn, etc.... > > what a concept, one doctor that can cover all of the patients health issues. > > > > marfla > Be Blessed > > Re: Re: Sun and heat effects? > > > > Marfla, I have also wondered about the connection. In 1989 I had what > > was > > called post viral syndrome which presented like rheumatoid arthritis and > > lasted for three years. > > -Norma > > > > > > Quote Link to comment Share on other sites More sharing options...
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