Re: Intro from New Member

[Guest guest]

Welcome Storm! ( I love that name!)

Whew...you have had quite a history with these fibroids! Rest

assured you are in the right place here! These ladies will take care

of you and I would say almost no question goes unanswered!

Good luck with your second opinion....you might want to go to a

Reproductive Endocronoligist as they deal with fibroids and PCOS more

than your average OB/GYN does....also, they are more experienced at

surgical procedures!

Welcome again!

[Guest guest]

Hi! Sounds like the fibroids may be the cause of your

miscarrages. Don't know a whole lot about this, but from what I've

read, they can cause miscarrgages as a fetus and fibroid both fight

for the blood supply. The fibroid usually wins.

Lupron will not solve your fibroid problems. They will grow back

as soon as you stop and you can't stay on that stuff long term. In

fact, I thought it was used right before menopause, or before

surgery. (to shrink them) Why don't you look into Myoectomy, or

maybe you would qualify for another type of procedure since your

fibroids are small, you have more obtions. You should keep

researching but take some kind of action so you can get started on

having a baby!

Jen

> Hello all.

>

> I am so glad to have found this group.

>

> I wanted to introduce myself before I got to reading all the back

> posts I can.

>

> My name is Kristi, and you can call me either Kristi or Storm.

>

> I was diagnosed with fibroid tumors after my 2nd miscarriage, back

> in 1997.

>

> I kept on having horrible pain and I kept having to pee. My

cycles

> got out of line after going off birth control 2 years prior to

> fibroid

> symptoms. I took birth control for contraceptive purposes when I

> was dating my now husband.

>

> Well, I made the decision to " save myself " until my wedding night,

> so now I am kicking myself in the patootie for taking BCP. LOL

>

> I desire to keep my fertility. Even though doctors love to label

> me " infertile " , even though I've been pregnant twice, I do not

feel

> I am, as the 2 times we tried to get pregnant, we did.

>

> We have no living children as of this post.

>

> Even now, I have 30 day cycles, but we haven't been trying to get

> pregnant, because I'm concerned of a 3rd miscarriage.

>

> I have 2 intramural (I think that's the word, however, that sure

> sounds like a sports term...LOL) fibroids...they're in the wall of

> my uterus.

>

> One was about golf ball sized, the other was the size of a large

> marble.

>

> The doctors discovered my fibroids after doing exploratory surgery

> thinking I had endo, because I was, in their words, " WAY too young

> to have fibroids " .

>

> April 1st, I will turn 30. I have known I have had them since I

was

> 23.

>

> So, we've done the " wait and see " method with me now for 7 years.

> I'd like to have a baby, thank you. LOL

>

> I did have a round of Lupron, and it IMMEDIATELY corrected my

> cycles, shrank my fibroids, and I felt the best I had in years. I

> did not have any of the negative effects I've heard about with the

> medication. Even my mood swings were gone.

>

> From what I know from 2 years ago, my fibroids are back to the

size

> they were before the Lupron from 4 years ago.

>

> I also am supposed to have PCOS on top of everything else.

However,

> only 1 doctor has diagnosed this, so I'm going in for a second

> opinion.

>

> Current symptoms: HEAVY bloating when it's time for cycle. About

2

> weeks before cycle, I gain about 10 pounds in water weight. I

have

> horrible menstrual cramps during my cycle, the doctor says that's

> the fibroids.

>

> If so...I wonder how long I've had these? Even when I was bone

> skinny, I always had a little " pooch " belly. When I gained 80

> pounds in 6 months 9 years ago, it was blamed on hormonal

> imbalances, and then the PCOS and fibroids have been to blame, too.

>

> Now, one last " kicker " . I developed EXCEPTIONALLY early for my

> age. I wonder if that has anything to do with it? I got my

breasts

> at 5.5 years old and my cycles started at 7.5 years old. Hmmm...

>

> Anyway, there's my fibroid story in a nutshell. LOL I can't wait

> to get to know you all, and lend support when I can.

>

> Storm

[Guest guest]

Hiya Storm!

Have a look at the Yahoo site ttc myomectomy. I also read

something interesting in an Amazon review of a book about

natual birth control, fertility etc. that women who are really good at

understanding their cycle changes can realise the best days for

getting pregnant may be slightly different from what they were

told by their GP. It's something to look into.

< I kept on having horrible pain and I kept having to pee.>

Either could be the pressure the fibroids(If urinating ever

becomes really hard, don't delay in seeing a doctor.)

Fibroids can also muck up cycles and bleeding. Some women

have very heavy flooding bleeds and clots because of fibroids.

They can also cause back ache, pain with sex, a fat bloated

stomach and tiredness ( anaemia, for instance). But symptoms

vary from person to person.

Is your GP aware of the post birth control cycle problem? There

may be something they can do to help, or may say something

interesting and useful on this.

FIbroids can really make you question everything, when you're

there wondering if you'll be able to have kids or ever be

symptom-free, why you didn't study fibroids in University instead,

and why the girls who did everything 'wrong' in life have it all.

me " infertile " , even though I've been pregnant twice, I do not

feel I am, as the 2 times we tried to get pregnant, we did.>

It does seem odd they would call you infertile then. Ask loads of

questions about that.

That may be due to fibroids. Some women go through

pregnancies OK with fibroids and others don't. It's not down to

you, it's down the to type, size and location of your fibroids.

< I have 2 intramural (I think that's the word, however, that sure

> sounds like a sports term...LOL) fibroids...they're in the wall of

> my uterus. >

I have some little intra murals too. The surgeon left them in when

I had a myomectomy last year.

They should have been able to tell from a routine external

ultrasound, which is what we all generally have a variation on a

theme of.

You aren't the only person that age on the forum. It makes me

wonder if more women don't have them in their twenties but it's

not spotted because it takes that long for women to come

forward about embarrassing things. Also they may be fobbed off

with wrong diagnosis or maybe it's discovered during first evr

smear tests, when girls visit GP's going on contraception and

when they think they're or are pregnant. I'm just speculating.

< From what I know from 2 years ago, my fibroids are back to the

size they were before the Lupron from 4 years ago.>

Yes they will regrow after you stop taking the drugs like these

and they're usually used in the run up to an operation I think. I

wasn't prescribed any.

< I also am supposed to have PCOS on top of everything else.>

Go to 'Soul Cysters' message board. It is a terrific site. In the UK

you can get a couple of books on PCOS in igh street book

shops.

Do be a bit careful that your docs are informed about fibroids and

PCOS before agreeing to any surgeries or drugs for anything.

Sme gynaecologica conditions have a simiar set of potential

symptoms. Women's health books like Miriam Stoppards are

handy.

< If so...I wonder how long I've had these? Even when I was

bone skinny, I always had a little " pooch " belly.>

I am not obese, but I have a small bloated gut too

Not all PCOS sufferers are obese. On soul cysters there's a

special column for 'slim cysters'. However weight is a problem

associated with it.

Doctors will tell some patients to lose weight, but some of these

conditions cause a bloating anyway, as with large or sticking out

fibroids! Sensible healthy weight los is supposed to help ease

symptoms, helping the body balance.

Try and eat healthily as it may help symptoms and the body

coping, check out some of the excellent internet sites (Some are

in the links) and get a book or two on fibroids, if you haven't

already as they are invaluable.

All the best

Aztek

(Abdom myo UK last summer)