Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 In a message dated 2/8/04 6:28:15 PM Pacific Standard Time, uterinefibroids writes: > Years ago they automatically removed a breast if they found cancer. Now > they remove a lump only. I feel like FUS will be the non-invasive option for the > future. Someday our daughters won't have to be sliced open to rid themselves > of fibroids. At least that is my hope and one of the reasons I participated > in this study. ~ > , Congratulations! I am thrilled that you had such an excellent outcome! It takes courage to be a " pioneer " *Thank you* for participating in this study. God willing, the procedure will some day be perfected, and you will have been a part of saving future generations of women from what we're going through. Elana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Thanks so much for your support Elana, it seems a rare commodity on this board lately. I mean, seeing as it's a done deal for me...I wish some of these ladies would just cut me some slack and send good wishes! ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Hi , You did your homework and picked the solution that was right for you. That's the most important thing. Pat yourself on the back and forget the negative chatter. Gerri > Thanks so much for your support Elana, it seems a rare commodity on this board lately. I mean, seeing as it's a done deal for me...I wish some of these ladies would just cut me some slack and send good wishes! ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Hi I agree with Gerri. Each one of us makes decisions based on our situation and how we feel about the options. Please let us know how you progress. Barbara > > Thanks so much for your support Elana, it seems a rare commodity > on this board lately. I mean, seeing as it's a done deal for me...I > wish some of these ladies would just cut me some slack and send good > wishes! ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Hi I agree with Gerri. Each one of us makes decisions based on our situation and how we feel about the options. Please let us know how you progress. Barbara > > Thanks so much for your support Elana, it seems a rare commodity > on this board lately. I mean, seeing as it's a done deal for me...I > wish some of these ladies would just cut me some slack and send good > wishes! ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Hi I agree with Gerri. Each one of us makes decisions based on our situation and how we feel about the options. Please let us know how you progress. Barbara > > Thanks so much for your support Elana, it seems a rare commodity > on this board lately. I mean, seeing as it's a done deal for me...I > wish some of these ladies would just cut me some slack and send good > wishes! ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 > > Thanks so much for your support Elana, it seems a rare commodity > on this board lately. I mean, seeing as it's a done deal for me...I > wish some of these ladies would just cut me some slack and send > good > wishes! ~ , I have absolutely no doubts whatsoever that you truly do have the support of every single woman on this list group. Including me. To the best of my knowledge, we ALL wish you well and hope for tremendous success with your treatment choice. Critical discussion of the treatment options, clinical investigators, information published or media stories produced are par for the norm on this support group and should NOT be confused with the concept that contributing posters may/may not be " with you " or " against you " . As you know by now, I often find myself critically reviewing medical literature, clinical study protocols, media stories, etc. and my goal is truly quite simple: to keep everyone on their toes and doing " the right thing " on behalf of women with fibroids. Never have I posted my perspectives on HIFUS with even the remote thought of personally attacking you for making that choice. Whether the treatment is hysterectomy, myomectomy, embolization, HIFUS, or WHATEVER, it is simply my directive to probe, probe, probe. And that often means peeling back the layers of some awfully ugly stuff in order to get to the truth and figure out how to best impact change in the most positive direction that will benefit women for the long-term. To you and everyone on this board before you who sought out and received treatment, when negatives are highlighted that impact the choice you made, it may sometimes feel as though you need to take some sort of defensive position of your treatment choice. We ALL feel this way at some time though. I get asked about why I chose embolization all the time -- and whether or not I regret it now, based on my outcome and experience helping others. I also get asked about why I had a myomectomy instead of a hysterectomy " at my age " and find myself defending that choice all the time. It truly just doesn't end once we've made a choice and then taken those steps toward treatment -- there will always be those who ask questions, good or bad, and who have oppositive views of our chosen treatment choice, per se. In the end, individual choice based on appropriate informed consent of all the current treatment options is truly the only thing that INDIVIDUALLY matters. Your choice is precisely that: YOUR choice. The part that makes your position, , particularly difficult with all of this is truly the simple fact that there are so few women who have undergone FUS in this nation at this time. Truly makes it hard for us to gain a solid understanding of how it may be helping/hurting women who choose FUS when there are so few women to even share a few words about it online. I'm certain this must be adding to your own sense of isolation on choosing this option -- as well as the many other women who may also be currently finding themselves in lonely shoes with FUS. I wish there were a way to get more of these women online, as occurred with embolization not so very long ago....I'm quite certain that would make a world of difference to you . I'm simply certain of it. Together, it would also make sense to me that sharing your collective experiences could very well help to shape the future of HIFUS in a more positive direction. We ALL wish you well and send you support. Hang in there and please keep sharing your experience with us and please, please try to understand that no one is criticizing YOU for this choice -- we are simply doing what we've always done here on uterinefibroids -- critical analysis which might enhance our ability to gain fully informed consent. Carla Dionne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 > > Thanks so much for your support Elana, it seems a rare commodity > on this board lately. I mean, seeing as it's a done deal for me...I > wish some of these ladies would just cut me some slack and send > good > wishes! ~ , I have absolutely no doubts whatsoever that you truly do have the support of every single woman on this list group. Including me. To the best of my knowledge, we ALL wish you well and hope for tremendous success with your treatment choice. Critical discussion of the treatment options, clinical investigators, information published or media stories produced are par for the norm on this support group and should NOT be confused with the concept that contributing posters may/may not be " with you " or " against you " . As you know by now, I often find myself critically reviewing medical literature, clinical study protocols, media stories, etc. and my goal is truly quite simple: to keep everyone on their toes and doing " the right thing " on behalf of women with fibroids. Never have I posted my perspectives on HIFUS with even the remote thought of personally attacking you for making that choice. Whether the treatment is hysterectomy, myomectomy, embolization, HIFUS, or WHATEVER, it is simply my directive to probe, probe, probe. And that often means peeling back the layers of some awfully ugly stuff in order to get to the truth and figure out how to best impact change in the most positive direction that will benefit women for the long-term. To you and everyone on this board before you who sought out and received treatment, when negatives are highlighted that impact the choice you made, it may sometimes feel as though you need to take some sort of defensive position of your treatment choice. We ALL feel this way at some time though. I get asked about why I chose embolization all the time -- and whether or not I regret it now, based on my outcome and experience helping others. I also get asked about why I had a myomectomy instead of a hysterectomy " at my age " and find myself defending that choice all the time. It truly just doesn't end once we've made a choice and then taken those steps toward treatment -- there will always be those who ask questions, good or bad, and who have oppositive views of our chosen treatment choice, per se. In the end, individual choice based on appropriate informed consent of all the current treatment options is truly the only thing that INDIVIDUALLY matters. Your choice is precisely that: YOUR choice. The part that makes your position, , particularly difficult with all of this is truly the simple fact that there are so few women who have undergone FUS in this nation at this time. Truly makes it hard for us to gain a solid understanding of how it may be helping/hurting women who choose FUS when there are so few women to even share a few words about it online. I'm certain this must be adding to your own sense of isolation on choosing this option -- as well as the many other women who may also be currently finding themselves in lonely shoes with FUS. I wish there were a way to get more of these women online, as occurred with embolization not so very long ago....I'm quite certain that would make a world of difference to you . I'm simply certain of it. Together, it would also make sense to me that sharing your collective experiences could very well help to shape the future of HIFUS in a more positive direction. We ALL wish you well and send you support. Hang in there and please keep sharing your experience with us and please, please try to understand that no one is criticizing YOU for this choice -- we are simply doing what we've always done here on uterinefibroids -- critical analysis which might enhance our ability to gain fully informed consent. Carla Dionne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 > > Thanks so much for your support Elana, it seems a rare commodity > on this board lately. I mean, seeing as it's a done deal for me...I > wish some of these ladies would just cut me some slack and send > good > wishes! ~ , I have absolutely no doubts whatsoever that you truly do have the support of every single woman on this list group. Including me. To the best of my knowledge, we ALL wish you well and hope for tremendous success with your treatment choice. Critical discussion of the treatment options, clinical investigators, information published or media stories produced are par for the norm on this support group and should NOT be confused with the concept that contributing posters may/may not be " with you " or " against you " . As you know by now, I often find myself critically reviewing medical literature, clinical study protocols, media stories, etc. and my goal is truly quite simple: to keep everyone on their toes and doing " the right thing " on behalf of women with fibroids. Never have I posted my perspectives on HIFUS with even the remote thought of personally attacking you for making that choice. Whether the treatment is hysterectomy, myomectomy, embolization, HIFUS, or WHATEVER, it is simply my directive to probe, probe, probe. And that often means peeling back the layers of some awfully ugly stuff in order to get to the truth and figure out how to best impact change in the most positive direction that will benefit women for the long-term. To you and everyone on this board before you who sought out and received treatment, when negatives are highlighted that impact the choice you made, it may sometimes feel as though you need to take some sort of defensive position of your treatment choice. We ALL feel this way at some time though. I get asked about why I chose embolization all the time -- and whether or not I regret it now, based on my outcome and experience helping others. I also get asked about why I had a myomectomy instead of a hysterectomy " at my age " and find myself defending that choice all the time. It truly just doesn't end once we've made a choice and then taken those steps toward treatment -- there will always be those who ask questions, good or bad, and who have oppositive views of our chosen treatment choice, per se. In the end, individual choice based on appropriate informed consent of all the current treatment options is truly the only thing that INDIVIDUALLY matters. Your choice is precisely that: YOUR choice. The part that makes your position, , particularly difficult with all of this is truly the simple fact that there are so few women who have undergone FUS in this nation at this time. Truly makes it hard for us to gain a solid understanding of how it may be helping/hurting women who choose FUS when there are so few women to even share a few words about it online. I'm certain this must be adding to your own sense of isolation on choosing this option -- as well as the many other women who may also be currently finding themselves in lonely shoes with FUS. I wish there were a way to get more of these women online, as occurred with embolization not so very long ago....I'm quite certain that would make a world of difference to you . I'm simply certain of it. Together, it would also make sense to me that sharing your collective experiences could very well help to shape the future of HIFUS in a more positive direction. We ALL wish you well and send you support. Hang in there and please keep sharing your experience with us and please, please try to understand that no one is criticizing YOU for this choice -- we are simply doing what we've always done here on uterinefibroids -- critical analysis which might enhance our ability to gain fully informed consent. Carla Dionne Quote Link to comment Share on other sites More sharing options...
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