Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Hi, Go to another doc, I'd run. Try a RE. This doc didn't do you any good. It's like he set you up for a second surgery. Yes, the fibroids that distort the uterus are causing your bleeding. Roma had 42 fibroids removed. Good question about why he didn't remove them all. Lupron... This drug will NOT always stop your bleeding. It did NOT stop mine. It will NOT always shrink your fibroid. It did NOT shrink mine. I wonder if it ever really does shrink fibroids. Ultrasounds are not the best measurment to really check this. Are they shrinking or simply turning to mush and " seem " shrunk? Some have few side effects from Lupron and others like me have terrible effects. I will not take this drug again. I'd research it if I was you. If your fibroid is distorting your uterus enough, my RE told me NOTHING will stop the bleeding. I flooded the day of my surgery. So research this drug and think hard on it. Anemia... You need to check this out if you haven't. It's important. Tell the ladies here where you are and they may be able to help you find a good doc. Like I say, try a RE who does LOTS of myos. Go out of state if you have to, I did. It's your body and health. I'm sorry to hear you are still suffering. Ku Becky Estes lilfish_24@...> wrote: I have an appointment with my doctor on Monday. I am very frustrated. I had a myo almost 2 months ago and I feel pretty good healthwise except nothing changed. I am still bleeding heavy and it will only be a matter of time before the flooding returns. They weren't able to remove all the fibroids. My question is aren't the ones within the uterine cavity causing my bleeding issues? At my post-op the doctor told me they didn't enter the uterine cavity??? Now he wants me to go on Lupron. I wanted a referral to a RE but instead he wanted to see me again to discuss the Lupron. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Congrats Becky you have joined the " my Doc gets a kickback on Lupron club " I am the founding member but looks like your doc wants you to join. I will tell you what the Doc that finally did take out the tumor told me. " After a point no amount of medication can help. It is a surgical situation " Do you have to have a recommendation to an RE to go to one? for insurance? What city are you in or near maybe someone here has an idea? e --- Becky Estes lilfish_24@...> wrote: > Is it true that you can only have 6 doses of Lupron in your > lifetime? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Here are a couple of websites that explain why you are bleeding and what to do about it. First the why: http://repmed.com/fibroids.html Second the what to do about it: http://www.gynalternatives.com/resectos.htm > I have an appointment with my doctor on Monday. I am > very frustrated. I had a myo almost 2 months ago and I > feel pretty good healthwise except nothing changed. I > am still bleeding heavy and it will only be a matter > of time before the flooding returns. They weren't able > to remove all the fibroids. My question is aren't the > ones within the uterine cavity causing my bleeding > issues? At my post-op the doctor told me they didn't > enter the uterine cavity??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Here are a couple of websites that explain why you are bleeding and what to do about it. First the why: http://repmed.com/fibroids.html Second the what to do about it: http://www.gynalternatives.com/resectos.htm > I have an appointment with my doctor on Monday. I am > very frustrated. I had a myo almost 2 months ago and I > feel pretty good healthwise except nothing changed. I > am still bleeding heavy and it will only be a matter > of time before the flooding returns. They weren't able > to remove all the fibroids. My question is aren't the > ones within the uterine cavity causing my bleeding > issues? At my post-op the doctor told me they didn't > enter the uterine cavity??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Here are a couple of websites that explain why you are bleeding and what to do about it. First the why: http://repmed.com/fibroids.html Second the what to do about it: http://www.gynalternatives.com/resectos.htm > I have an appointment with my doctor on Monday. I am > very frustrated. I had a myo almost 2 months ago and I > feel pretty good healthwise except nothing changed. I > am still bleeding heavy and it will only be a matter > of time before the flooding returns. They weren't able > to remove all the fibroids. My question is aren't the > ones within the uterine cavity causing my bleeding > issues? At my post-op the doctor told me they didn't > enter the uterine cavity??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 I'm not sure what to think, feel or do right now. I was diagnosed through HSG and told I had an arcuate uterus. Then through t/v ultrasound they said it looked more T-shaped. And THEN my RE said it could always be a septae uterus. He said he would not do a lap until I had a miscarriage and didn't seemed concerened, so neither did I. Now I am almost five weeks pregnant and very worried. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Congratulations on your pregnancy! My best advice - stay positive, try not to worry too much (I know, I know, easy to say, not easy to do, I've been there). You've come to the right place, most of us have gone through exactly what you are - this group is a great source of information. Most of us also have success stories, so please don't be too discouraged by the 'risk' factors associated with MAs. You cannot find out know exactly what type of MA you have until after the baby comes now, so assume the best, but be sure to demand the care you deserve. The general view around here with a first MA pregnancy (whether you know exactly what type of anomaly you have or not)is to: - after 12 weeks be followed by a Maternal Fetal Medicine (MFM) doctor, or perinatologist (high risk ob) - demand trans-vaginal ultra-sounds (at least) every two weeks from about 12 weeks until around 24 weeks (some MA women are at a higher risk of incompetent cervix - with the t/v u/s you monitor the length of your cervix and ensure it isn't shortening - if it does, action can be taken to help protect the pregnancy) - regular u/s to monitor fetal growth - be aware of the signs of pre-term labour and immediately get to a doctor if you have any symptoms Some MAs have a higher than normal miscarriage rate (mainly SU), others have more normal rates. There isn't much that can be done in the 1st trimester other than stay positive and inform yourself as much as possible! I'm not crazy about the fact that your doctor didn't want to do a lap until you had a miscarriage ... a lap is the only way to get a definitive dx ... waiting until you have a loss is too late if you ask me. You may want to consider switching docs ... . I hope you have a very uncomplicated, boring pregnancy All the best, a SU DD 13 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Hi again - one other thing I forgot to mention. Very often babies of MA women are breech or " malpresented " - in this case it usually means a C-section. Your ob or peri will have to routinely check that the baby is head down. That said, many of us have babies who do go head down - my dd was born at 40 weeks 1 day, vaginally! Take care, a -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 I second what a says. The only thing I would caution you about is that if you are a t-shape you should be followed closely in the first 8 weeks to make sure you do not have an ectopic pg. I would stay positive and a is right - many go onto have their babies vaginally. Kathleen t-shape ds 2.2001 angel 1.2004 ds 1.2005 Re: Confused Thanks again a! I am so happy that you were blessed! > Hi again - one other thing I forgot to mention. Very often babies of > MA women are breech or " malpresented " - in this case it usually means > a C-section. Your ob or peri will have to routinely check that the > baby is head down. That said, many of us have babies who do go head > down - my dd was born at 40 weeks 1 day, vaginally! > > Take care, > a > -- Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/http://groups.yahoo.com/\ group/MullerianAnomalies/links/> Share files: http://groups.yahoo.com/group/MullerianAnomalies/files/http://groups.yahoo.com/\ group/MullerianAnomalies/files/> The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/http://www.wegrokit.com/uterineanomali\ es/> es/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/http://www.wegrokit.com/uterineanomali\ es/> Quote Link to comment Share on other sites More sharing options...
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