Re: Checking In/PLATEAU????

[Guest guest]

di,

just glad you are feeling stable.....i too am more stable and trying to live it

up as the longest so far i have had is 6 mo and that was last year, and i

enjoyed every minute of that too!! seize the day!

tawny

email from

Tawny H. Swain Castle, MA

Checking In/PLATEAU????

Hi Dear Friends,

I have found myself suddenly so busy that i have neglected my PLS

buddies. So sorry. I DO, however, pray for all of you every night. I

am hoping that now that things have slowed down, i will be able to

catch up on the site and get into it again.

A big fat WELCOME to any newbies over the last few weeks. THIS is

the place to be if you have PLS and are scared, concerned, lonely,

curious or need a good laugh and the feeling of a warm hug.

GLORYOSKI... ..it is hard to believe..... but I THINK I may have

actually PLATEAUED!!! !!!!!! First time in 3 years!! No new symptoms

for some time now....and my current symptoms seem pretty stable....I

am almost afraid to say this! But I have been through 3 years of

fairly rapid progression. ..and suddenly I do seem to be stable.

So.......... ..JOY!! I am using my ambu-bag regularly... doing my

stretches, sticking to my 'little and often' diet and being very

careful when i swallow. So.....YIPPEE!

Anyway friends..... ......... sending you all a huge hug.

Love Di........PLS. .....Canada

[Guest guest]

Hi Tawny,

Glad you are going thru a stable time too. YES! Enjoy every minute

of it! The longest stable I have had in the last 3 years ....since

things got really bad...is about a month. This has been 2 full weeks

now...REALLY RARE for me. Yes...I am enjoyng it tremenously. Have

fun Tawny! Enjoy!

Love Di.......Canada

>

> di,

> just glad you are feeling stable.....i too am more stable and

trying to live it up as the longest so far i have had is 6 mo and

that was last year, and i enjoyed every minute of that too!! seize

the day!

> tawny

>

> email from

> Tawny H. Swain Castle, MA

>

>

>

> Checking In/PLATEAU????

>

>

> Hi Dear Friends,

>

> I have found myself suddenly so busy that i have neglected my PLS

> buddies. So sorry. I DO, however, pray for all of you every night.

I

> am hoping that now that things have slowed down, i will be able to

> catch up on the site and get into it again.

>

> A big fat WELCOME to any newbies over the last few weeks. THIS is

> the place to be if you have PLS and are scared, concerned, lonely,

> curious or need a good laugh and the feeling of a warm hug.

>

> GLORYOSKI... ..it is hard to believe..... but I THINK I may have

> actually PLATEAUED!!! !!!!!! First time in 3 years!! No new

symptoms

> for some time now....and my current symptoms seem pretty

stable....I

> am almost afraid to say this! But I have been through 3 years of

> fairly rapid progression. ..and suddenly I do seem to be stable.

> So.......... ..JOY!! I am using my ambu-bag regularly... doing my

> stretches, sticking to my 'little and often' diet and being very

> careful when i swallow. So.....YIPPEE!

>

> Anyway friends..... ......... sending you all a huge hug.

>

> Love Di........PLS. .....Canada

>

>

>

>

>