Re: Panic Attacks/reply with balance info

[Guest guest]

I not only froze up without a wall, rail, or furniture to touch...I

fell. I have been doing a lot of research on postural balancing.

They are still finding new areas that affect balance but right now it

appears to be 5 functions: inner ear (vestibular), vision, feedback

from priopioreceptors (sp - these are located in the joints and

tendons throughout),awareness of body part positioning (includes how

you hold your jaw even), and quick push/real time recovery. Those

with cerebullum issues like PLS have problems with the last 3. We

can lose the signal from say a left ankle due to disease progression

OR pinched nerve fibers from severe spasticity. Our brain then

compensates by relying more on the receptors in our hands (Gee I've

even been known to put my forehead against the wall to maintain

balance in pulling on jeans.) If you have severe spasticity you will

also pinch off the signals about body part position which results in

placing the good leg out of balance with the PLS leg.

As far as quick time recovery....well...PLSers can forget about

that. Our signals are slowed on all motor responses to affected

parts. So even if the other 4 components to balance work we will

still fall as we call it " in slow motion " if anything abruptly

disturbs us. Examples : a sneeze, a dog pushing our leg.

Panic attack refers to a physiological reaction to an exaggerated

fear or unreal fear or stress. While deep breathing does relax rigid

muscles and facilitate balancing to a degree, your attack may be your

brain telling you it does not have enough data to assure postural

balance (real fear).

As Don laughes about we tend to move furniture around so we

can touch something any where in our homes...anything to put off

adaptive devices such as crutches or a walker needed to assure our

balance.

Now if I haven't bored you into a catnap, I hope this info is helpful.

Eva

[Guest guest]

Eva,

You have done a lot of research. Yes, it was helpful. Reminded of some

things I had forgotten. That's another one of the problems with PLS, no

matter what the neuros say. I have seen research that reports it but, unlike

Mark W., I don't always pass these things on.

Thanks again,

Mike

Re: Panic Attacks/reply with balance info

>I not only froze up without a wall, rail, or furniture to touch...I

> fell. I have been doing a lot of research on postural balancing.

> They are still finding new areas that affect balance but right now it

> appears to be 5 functions: inner ear (vestibular), vision, feedback

> from priopioreceptors (sp - these are located in the joints and

> tendons throughout),awareness of body part positioning (includes how

> you hold your jaw even), and quick push/real time recovery. Those

> with cerebullum issues like PLS have problems with the last 3. We

> can lose the signal from say a left ankle due to disease progression

> OR pinched nerve fibers from severe spasticity. Our brain then

> compensates by relying more on the receptors in our hands (Gee I've

> even been known to put my forehead against the wall to maintain

> balance in pulling on jeans.) If you have severe spasticity you will

> also pinch off the signals about body part position which results in

> placing the good leg out of balance with the PLS leg.

> As far as quick time recovery....well...PLSers can forget about

> that. Our signals are slowed on all motor responses to affected

> parts. So even if the other 4 components to balance work we will

> still fall as we call it " in slow motion " if anything abruptly

> disturbs us. Examples : a sneeze, a dog pushing our leg.

>

> Panic attack refers to a physiological reaction to an exaggerated

> fear or unreal fear or stress. While deep breathing does relax rigid

> muscles and facilitate balancing to a degree, your attack may be your

> brain telling you it does not have enough data to assure postural

> balance (real fear).

> As Don laughes about we tend to move furniture around so we

> can touch something any where in our homes...anything to put off

> adaptive devices such as crutches or a walker needed to assure our

> balance.

> Now if I haven't bored you into a catnap, I hope this info is helpful.

> Eva

>

>

>

>

>

>

>

>

>

[Guest guest]

Eva,

You have done a lot of research. Yes, it was helpful. Reminded of some

things I had forgotten. That's another one of the problems with PLS, no

matter what the neuros say. I have seen research that reports it but, unlike

Mark W., I don't always pass these things on.

Thanks again,

Mike

Re: Panic Attacks/reply with balance info

>I not only froze up without a wall, rail, or furniture to touch...I

> fell. I have been doing a lot of research on postural balancing.

> They are still finding new areas that affect balance but right now it

> appears to be 5 functions: inner ear (vestibular), vision, feedback

> from priopioreceptors (sp - these are located in the joints and

> tendons throughout),awareness of body part positioning (includes how

> you hold your jaw even), and quick push/real time recovery. Those

> with cerebullum issues like PLS have problems with the last 3. We

> can lose the signal from say a left ankle due to disease progression

> OR pinched nerve fibers from severe spasticity. Our brain then

> compensates by relying more on the receptors in our hands (Gee I've

> even been known to put my forehead against the wall to maintain

> balance in pulling on jeans.) If you have severe spasticity you will

> also pinch off the signals about body part position which results in

> placing the good leg out of balance with the PLS leg.

> As far as quick time recovery....well...PLSers can forget about

> that. Our signals are slowed on all motor responses to affected

> parts. So even if the other 4 components to balance work we will

> still fall as we call it " in slow motion " if anything abruptly

> disturbs us. Examples : a sneeze, a dog pushing our leg.

>

> Panic attack refers to a physiological reaction to an exaggerated

> fear or unreal fear or stress. While deep breathing does relax rigid

> muscles and facilitate balancing to a degree, your attack may be your

> brain telling you it does not have enough data to assure postural

> balance (real fear).

> As Don laughes about we tend to move furniture around so we

> can touch something any where in our homes...anything to put off

> adaptive devices such as crutches or a walker needed to assure our

> balance.

> Now if I haven't bored you into a catnap, I hope this info is helpful.

> Eva

>

>

>

>

>

>

>

>

>

[Guest guest]

Eva,

You have done a lot of research. Yes, it was helpful. Reminded of some

things I had forgotten. That's another one of the problems with PLS, no

matter what the neuros say. I have seen research that reports it but, unlike

Mark W., I don't always pass these things on.

Thanks again,

Mike

Re: Panic Attacks/reply with balance info

>I not only froze up without a wall, rail, or furniture to touch...I

> fell. I have been doing a lot of research on postural balancing.

> They are still finding new areas that affect balance but right now it

> appears to be 5 functions: inner ear (vestibular), vision, feedback

> from priopioreceptors (sp - these are located in the joints and

> tendons throughout),awareness of body part positioning (includes how

> you hold your jaw even), and quick push/real time recovery. Those

> with cerebullum issues like PLS have problems with the last 3. We

> can lose the signal from say a left ankle due to disease progression

> OR pinched nerve fibers from severe spasticity. Our brain then

> compensates by relying more on the receptors in our hands (Gee I've

> even been known to put my forehead against the wall to maintain

> balance in pulling on jeans.) If you have severe spasticity you will

> also pinch off the signals about body part position which results in

> placing the good leg out of balance with the PLS leg.

> As far as quick time recovery....well...PLSers can forget about

> that. Our signals are slowed on all motor responses to affected

> parts. So even if the other 4 components to balance work we will

> still fall as we call it " in slow motion " if anything abruptly

> disturbs us. Examples : a sneeze, a dog pushing our leg.

>

> Panic attack refers to a physiological reaction to an exaggerated

> fear or unreal fear or stress. While deep breathing does relax rigid

> muscles and facilitate balancing to a degree, your attack may be your

> brain telling you it does not have enough data to assure postural

> balance (real fear).

> As Don laughes about we tend to move furniture around so we

> can touch something any where in our homes...anything to put off

> adaptive devices such as crutches or a walker needed to assure our

> balance.

> Now if I haven't bored you into a catnap, I hope this info is helpful.

> Eva

>

>

>

>

>

>

>

>

>

[Guest guest]

Wow Eva! I sure found that informative. You have really got me

thinking. I guess i need to remember that panic attacks associated

with illness will often have a very different root cause than those

associated with a phobic response.

As a counselor who has worked with panic attack clients (including

myself), I sure do appreciate this info about PLS!!!!

Take good care Eva.

Di..........Canada

>

> I not only froze up without a wall, rail, or furniture to

touch...I

> fell. I have been doing a lot of research on postural balancing.

> They are still finding new areas that affect balance but right now

it

> appears to be 5 functions: inner ear (vestibular), vision,

feedback

> from priopioreceptors (sp - these are located in the joints and

> tendons throughout),awareness of body part positioning (includes

how

> you hold your jaw even), and quick push/real time recovery. Those

> with cerebullum issues like PLS have problems with the last 3. We

> can lose the signal from say a left ankle due to disease

progression

> OR pinched nerve fibers from severe spasticity. Our brain then

> compensates by relying more on the receptors in our hands (Gee

I've

> even been known to put my forehead against the wall to maintain

> balance in pulling on jeans.) If you have severe spasticity you

will

> also pinch off the signals about body part position which results

in

> placing the good leg out of balance with the PLS leg.

> As far as quick time recovery....well...PLSers can forget about

> that. Our signals are slowed on all motor responses to affected

> parts. So even if the other 4 components to balance work we will

> still fall as we call it " in slow motion " if anything abruptly

> disturbs us. Examples : a sneeze, a dog pushing our leg.

>

> Panic attack refers to a physiological reaction to an exaggerated

> fear or unreal fear or stress. While deep breathing does relax

rigid

> muscles and facilitate balancing to a degree, your attack may be

your

> brain telling you it does not have enough data to assure postural

> balance (real fear).

> As Don laughes about we tend to move furniture around so we

> can touch something any where in our homes...anything to put off

> adaptive devices such as crutches or a walker needed to assure our

> balance.

> Now if I haven't bored you into a catnap, I hope this info is

helpful.

> Eva

>

[Guest guest]

Hi

Thank you all so much for such an informative discussion about

balancing, touching walls and falling etc - I am oh so familair with

that panic freeze when I try to psych myself up to walk across a

short open space in the house.

My ederly father bought me a walker for Christmas - I was depressed

but grateful. It turned very cold and snowy when I was in Edinburgh,

and I immerdiately found I was relying on it to get from the house

to the car.

Am finding it difficult to look forward into this New Year. This

illness is oh so slowly progressing. When do I tell myself it's time

to stop walking? How many falls does it take? It's been a whole year

since I nearly dislocated my shoulder, and despite exercise and

physio, it still hurts at night.

On a brighter note, my son and I saw in New Year at a friend's

house - with the sheer delight (to me at least, with my ish

genes) of a bagpipe player - what an awesome, eardrum shattering

sound!

Best wishes to everyone

Barbara

>

> I not only froze up without a wall, rail, or furniture to

touch...I

> fell. I have been doing a lot of research on postural balancing.

> They are still finding new areas that affect balance but right now

it

> appears to be 5 functions: inner ear (vestibular), vision,

feedback

> from priopioreceptors (sp - these are located in the joints and

> tendons throughout),awareness of body part positioning (includes

how

> you hold your jaw even), and quick push/real time recovery. Those

> with cerebullum issues like PLS have problems with the last 3. We

> can lose the signal from say a left ankle due to disease

progression

> OR pinched nerve fibers from severe spasticity. Our brain then

> compensates by relying more on the receptors in our hands (Gee

I've

> even been known to put my forehead against the wall to maintain

> balance in pulling on jeans.) If you have severe spasticity you

will

> also pinch off the signals about body part position which results

in

> placing the good leg out of balance with the PLS leg.

> As far as quick time recovery....well...PLSers can forget about

> that. Our signals are slowed on all motor responses to affected

> parts. So even if the other 4 components to balance work we will

> still fall as we call it " in slow motion " if anything abruptly

> disturbs us. Examples : a sneeze, a dog pushing our leg.

>

> Panic attack refers to a physiological reaction to an exaggerated

> fear or unreal fear or stress. While deep breathing does relax

rigid

> muscles and facilitate balancing to a degree, your attack may be

your

> brain telling you it does not have enough data to assure postural

> balance (real fear).

> As Don laughes about we tend to move furniture around so we

> can touch something any where in our homes...anything to put off

> adaptive devices such as crutches or a walker needed to assure our

> balance.

> Now if I haven't bored you into a catnap, I hope this info is

helpful.

> Eva

>