Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 I hope you are right . Blessings to you! Maureein in Oz > > > Lyndal thats ok I knew what you meant. LOL. Living in ski country, > > you obviously have skiing on your mind. I wish I was there right now > > as it is way too hot in Sydney for me. We are in the middle of a > > terrible heatwave. > > > > I know that you mention that Zsolt never said what he had but then it > > sounds like he was never diagnosed. I also have not been officially > > diagnosed as yet and thats after 9 years of seeing many > > neurologists. They also appear to have the wait and see approach. > > Which now in view of Zsolts situation makes me feel scared. I was > > given a working diagnosis of recessive HSP with startle myoclonus but > > the neuro now doubts that and is talking PLS. > > > > Fortunately my progression has been very slow and apart my speech > > deteriorating a little 3 years ago, I believe I have been stable for > > 6 years now. Knock on wood, it stays like this. > > > > Thanks Lyndal for taking the time to write to me. > > > > Maureen in Oz > Quote Link to comment Share on other sites More sharing options...
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