Re: Shell - Emotional Lability

May 2, 2006

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try and

get a grip

but it doesn't always help. Some people with PLS and ALS take different meds to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 3, 2006

Dear Shellie and ;

I use the Dr. Strong (my neurologist) recommended desipramine, 25 - MG ,

daily at bedtime.

My symptoms were very much the same as you described.

Check with your doctor, then give them a try !

good luck,

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try and

get a grip

but it doesn't always help. Some people with PLS and ALS take different meds to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 3, 2006

Lkgentner@... wrote:

> Shellie,

>

> What I was referring to is the dreaded Emotional Lability --

> uncontrollable

> crying and laughing, even at inappropriate times. Not that the

> celebration

> would be an inappropriate occasion but the " uncontrollable " is what is

> so hard

> to deal with. The PLSers know what I'm talking about; I don't think the

> folks with HSP have to deal with that - hope not -and when I say

> " uncontrollable " ... I do mean uncontrollable. We try and do things to

> try and get a grip

> but it doesn't always help. Some people with PLS and ALS take

> different meds to

> control it but I don't. I remember someone on PLS-Friends saying she

> laughed at funerals... Zsolt recommeded to me some things to try and

> I'll always

> remember him for that....he is another Angel who is with and

> the others.

> I've had both -- but uncontrollable laughing bugs me the most.

>

> Didn't mean to go on and on and it may entice others to tell their

> " stories " .

>

> Kleenex stock? Good idea -- one thing I do is bite on a kleenex

> package and

> try to breath through my nose -- now that really is more than you

> wanted to

> know.

>

May 3, 2006

Just curious ..........you must be from Ontario as Dr. Strong is either

in Ottawa or down East I think. Am I right?

Jo.

Re: Shell - Emotional Lability

Dear Shellie and ;

I use the Dr. Strong (my neurologist) recommended desipramine, 25 - MG ,

daily at bedtime.

My symptoms were very much the same as you described.

Check with your doctor, then give them a try !

good luck,

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try

and get a grip

but it doesn't always help. Some people with PLS and ALS take different meds

to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the

others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 3, 2006

No worries! I have HSP and on prozac for the same reasons and prozac only goes

so far. Could you ever imagine me without it!!! I laughed when my dad died and

everyone was so mad at me. My brother won't even talk to me. I could not help

it. I struggle with all my emotions in addition to attention deficit. My husband

lets me know when to think more about my emotion stability. He helps ground me.

Sometimes I really explode and its either laughter or crying. Even more so

during those female times. Steve just gives me a cue by saying mama break glass.

LOL

You do whatever you need to good bad or indifferent we take the best of you

and ignore the rest. Good Gravies if I could keep my emotional self in check I

would have tact and be politically correct and never be offensive and bombastic

etc... Then I wouldn;t be me and I'd rather be dead then be someone I cant. My

most inappropriate moments create the greatest opportunities so I figure its all

good. I laugh when Im sad same as you so not to worry. Amoung friends you have

nothing to fear. I know your heart and that's all I need. Your awesome and that

will never change in my heart. NEVER!

Love and Admiration

Shell Fisch

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try and

get a grip

but it doesn't always help. Some people with PLS and ALS take different meds to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 3, 2006

No worries! I have HSP and on prozac for the same reasons and prozac only goes

so far. Could you ever imagine me without it!!! I laughed when my dad died and

everyone was so mad at me. My brother won't even talk to me. I could not help

it. I struggle with all my emotions in addition to attention deficit. My husband

lets me know when to think more about my emotion stability. He helps ground me.

Sometimes I really explode and its either laughter or crying. Even more so

during those female times. Steve just gives me a cue by saying mama break glass.

LOL

You do whatever you need to good bad or indifferent we take the best of you

and ignore the rest. Good Gravies if I could keep my emotional self in check I

would have tact and be politically correct and never be offensive and bombastic

etc... Then I wouldn;t be me and I'd rather be dead then be someone I cant. My

most inappropriate moments create the greatest opportunities so I figure its all

good. I laugh when Im sad same as you so not to worry. Amoung friends you have

nothing to fear. I know your heart and that's all I need. Your awesome and that

will never change in my heart. NEVER!

Love and Admiration

Shell Fisch

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try and

get a grip

but it doesn't always help. Some people with PLS and ALS take different meds to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 3, 2006

No worries! I have HSP and on prozac for the same reasons and prozac only goes

so far. Could you ever imagine me without it!!! I laughed when my dad died and

everyone was so mad at me. My brother won't even talk to me. I could not help

it. I struggle with all my emotions in addition to attention deficit. My husband

lets me know when to think more about my emotion stability. He helps ground me.

Sometimes I really explode and its either laughter or crying. Even more so

during those female times. Steve just gives me a cue by saying mama break glass.

LOL

You do whatever you need to good bad or indifferent we take the best of you

and ignore the rest. Good Gravies if I could keep my emotional self in check I

would have tact and be politically correct and never be offensive and bombastic

etc... Then I wouldn;t be me and I'd rather be dead then be someone I cant. My

most inappropriate moments create the greatest opportunities so I figure its all

good. I laugh when Im sad same as you so not to worry. Amoung friends you have

nothing to fear. I know your heart and that's all I need. Your awesome and that

will never change in my heart. NEVER!

Love and Admiration

Shell Fisch

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try and

get a grip

but it doesn't always help. Some people with PLS and ALS take different meds to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 4, 2006

Well-behaved women don't make history!

Michele Fischer mudlupii@...> wrote: No worries! I have HSP and on

prozac for the same reasons and prozac only goes so far. Could you ever imagine

me without it!!! I laughed when my dad died and everyone was so mad at me. My

brother won't even talk to me. I could not help it. I struggle with all my

emotions in addition to attention deficit. My husband lets me know when to think

more about my emotion stability. He helps ground me. Sometimes I really explode

and its either laughter or crying. Even more so during those female times. Steve

just gives me a cue by saying mama break glass. LOL

You do whatever you need to good bad or indifferent we take the best of you

and ignore the rest. Good Gravies if I could keep my emotional self in check I

would have tact and be politically correct and never be offensive and bombastic

etc... Then I wouldn;t be me and I'd rather be dead then be someone I cant. My

most inappropriate moments create the greatest opportunities so I figure its all

good. I laugh when Im sad same as you so not to worry. Amoung friends you have

nothing to fear. I know your heart and that's all I need. Your awesome and that

will never change in my heart. NEVER!

Love and Admiration

Shell Fisch

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try and

get a grip

but it doesn't always help. Some people with PLS and ALS take different meds to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 4, 2006

Hello, Joanne:

Jo ----

I am from London, Ontario.

Dr. Strong is a teacher at the University of Western Ontario in London, as

well !

He is a well known researcher in Neuro - Diseases. I thank gawd I am so

blessed to be so well positioned. I moved from Windsor, Ontario in February ,

last year - met a caring woman and fell in love - married her and now she is my

care-giver as well as she is a terific home maker.

All the best,

Joanne Taniwa joannetaniwa@...> wrote:

Just curious ..........you must be from Ontario as Dr. Strong is either

in Ottawa or down East I think. Am I right?

Jo.

Re: Shell - Emotional Lability

Dear Shellie and ;

I use the Dr. Strong (my neurologist) recommended desipramine, 25 - MG ,

daily at bedtime.

My symptoms were very much the same as you described.

Check with your doctor, then give them a try !

good luck,

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try

and get a grip

but it doesn't always help. Some people with PLS and ALS take different meds

to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the

others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 4, 2006

Hello, Joanne:

Jo ----

I am from London, Ontario.

Dr. Strong is a teacher at the University of Western Ontario in London, as

well !

He is a well known researcher in Neuro - Diseases. I thank gawd I am so

blessed to be so well positioned. I moved from Windsor, Ontario in February ,

last year - met a caring woman and fell in love - married her and now she is my

care-giver as well as she is a terific home maker.

All the best,

Joanne Taniwa joannetaniwa@...> wrote:

Just curious ..........you must be from Ontario as Dr. Strong is either

in Ottawa or down East I think. Am I right?

Jo.

Re: Shell - Emotional Lability

Dear Shellie and ;

I use the Dr. Strong (my neurologist) recommended desipramine, 25 - MG ,

daily at bedtime.

My symptoms were very much the same as you described.

Check with your doctor, then give them a try !

good luck,

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try

and get a grip

but it doesn't always help. Some people with PLS and ALS take different meds

to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the

others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 4, 2006

Hello, Joanne:

Jo ----

I am from London, Ontario.

Dr. Strong is a teacher at the University of Western Ontario in London, as

well !

He is a well known researcher in Neuro - Diseases. I thank gawd I am so

blessed to be so well positioned. I moved from Windsor, Ontario in February ,

last year - met a caring woman and fell in love - married her and now she is my

care-giver as well as she is a terific home maker.

All the best,

Joanne Taniwa joannetaniwa@...> wrote:

Just curious ..........you must be from Ontario as Dr. Strong is either

in Ottawa or down East I think. Am I right?

Jo.

Re: Shell - Emotional Lability

Dear Shellie and ;

I use the Dr. Strong (my neurologist) recommended desipramine, 25 - MG ,

daily at bedtime.

My symptoms were very much the same as you described.

Check with your doctor, then give them a try !

good luck,

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try

and get a grip

but it doesn't always help. Some people with PLS and ALS take different meds

to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the

others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their " stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package and

try to breath through my nose -- now that really is more than you wanted to

know.

May 4, 2006

Hi :

I know ALS patients who have seen Dr. Strong and he is highly recommended. I go

twice a year to see Dr. Turnbull in Hamilton, at McMaster and like him very much

also. He takes the time to listen (along with his medical team) and I also feel

I have been so fortunate to be in such good hands.

How wonderful that you fell in love and got married. She must be a very special

woman and am glad you have someone there to care for you.

I live in Thunder Bay (ever heard of it) and when I go for my appointments in

Hamilton I stay with my son, his wife and 5 month old twin grandson's.

Thank you for taking the time to let me know where you are from and I wish you

all the best.

Take care.

Jo

Re: Shell - Emotional Lability

Dear Shellie and ;

I use the Dr. Strong (my neurologist) recommended desipramine, 25 - MG ,

daily at bedtime.

My symptoms were very much the same as you described.

Check with your doctor, then give them a try !

good luck,

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so

hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try

and get a grip

but it doesn't always help. Some people with PLS and ALS take different

meds to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the

others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their

" stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package

and

try to breath through my nose -- now that really is more than you wanted to

know.

May 4, 2006

Hi Laughers & Criers,

I understand that some company that starts with an " A " . Can't remember

name, will release a drug for Emotional Liability by the end of the

year. It is the cough syrup drug t hat starts with a " D " that is about

ten letters long and Quinidine. They have been running trials on it on

the ALS group. It is not an anti-depressant.

Am awaiting it anxiously!!!

Tried Elavil and Namenda (Alzheimer's drug).The Namenda did indeed help

but my left hand start twitching and my usually mild (ha) temperment

became a little testy. Husband would be cooking something, ask me a

question and I replied , " I don't know, you're cooking, look it up

yourself " . Asked my Primary about it and he said he had found it made

the Alzheimer patients hard to manage sometimes.

Afraid to go around daughter-in-law. She had a new partial made and my

son said she looked like she had Bubba's teeth. I laugh out loud when I

think about it. Seeing her is going to be an experience.

I will pass the info on when I see the drug is on the market.

Arne

May 4, 2006

Hi Laughers & Criers,

I understand that some company that starts with an " A " . Can't remember

name, will release a drug for Emotional Liability by the end of the

year. It is the cough syrup drug t hat starts with a " D " that is about

ten letters long and Quinidine. They have been running trials on it on

the ALS group. It is not an anti-depressant.

Am awaiting it anxiously!!!

Tried Elavil and Namenda (Alzheimer's drug).The Namenda did indeed help

but my left hand start twitching and my usually mild (ha) temperment

became a little testy. Husband would be cooking something, ask me a

question and I replied , " I don't know, you're cooking, look it up

yourself " . Asked my Primary about it and he said he had found it made

the Alzheimer patients hard to manage sometimes.

Afraid to go around daughter-in-law. She had a new partial made and my

son said she looked like she had Bubba's teeth. I laugh out loud when I

think about it. Seeing her is going to be an experience.

I will pass the info on when I see the drug is on the market.

Arne

May 4, 2006

Hi Laughers & Criers,

I understand that some company that starts with an " A " . Can't remember

name, will release a drug for Emotional Liability by the end of the

year. It is the cough syrup drug t hat starts with a " D " that is about

ten letters long and Quinidine. They have been running trials on it on

the ALS group. It is not an anti-depressant.

Am awaiting it anxiously!!!

Tried Elavil and Namenda (Alzheimer's drug).The Namenda did indeed help

but my left hand start twitching and my usually mild (ha) temperment

became a little testy. Husband would be cooking something, ask me a

question and I replied , " I don't know, you're cooking, look it up

yourself " . Asked my Primary about it and he said he had found it made

the Alzheimer patients hard to manage sometimes.

Afraid to go around daughter-in-law. She had a new partial made and my

son said she looked like she had Bubba's teeth. I laugh out loud when I

think about it. Seeing her is going to be an experience.

I will pass the info on when I see the drug is on the market.

Arne

May 5, 2006

The drug is called NeuroDex. It is made by Avanir. It contains Dextromethorphan

and Quinidine. It works very well. I have been in the study for about 3 yrs. I

think it will be approved in the not too distant future. Danny

riddlea@... wrote: Hi Laughers & Criers,

I understand that some company that starts with an " A " . Can't remember

name, will release a drug for Emotional Liability by the end of the

year. It is the cough syrup drug t hat starts with a " D " that is about

ten letters long and Quinidine. They have been running trials on it on

the ALS group. It is not an anti-depressant.

Am awaiting it anxiously!!!

Tried Elavil and Namenda (Alzheimer's drug).The Namenda did indeed help

but my left hand start twitching and my usually mild (ha) temperment

became a little testy. Husband would be cooking something, ask me a

question and I replied , " I don't know, you're cooking, look it up

yourself " . Asked my Primary about it and he said he had found it made

the Alzheimer patients hard to manage sometimes.

Afraid to go around daughter-in-law. She had a new partial made and my

son said she looked like she had Bubba's teeth. I laugh out loud when I

think about it. Seeing her is going to be an experience.

I will pass the info on when I see the drug is on the market.

Arne

May 5, 2006

The drug is called NeuroDex. It is made by Avanir. It contains Dextromethorphan

and Quinidine. It works very well. I have been in the study for about 3 yrs. I

think it will be approved in the not too distant future. Danny

riddlea@... wrote: Hi Laughers & Criers,

I understand that some company that starts with an " A " . Can't remember

name, will release a drug for Emotional Liability by the end of the

year. It is the cough syrup drug t hat starts with a " D " that is about

ten letters long and Quinidine. They have been running trials on it on

the ALS group. It is not an anti-depressant.

Am awaiting it anxiously!!!

Tried Elavil and Namenda (Alzheimer's drug).The Namenda did indeed help

but my left hand start twitching and my usually mild (ha) temperment

became a little testy. Husband would be cooking something, ask me a

question and I replied , " I don't know, you're cooking, look it up

yourself " . Asked my Primary about it and he said he had found it made

the Alzheimer patients hard to manage sometimes.

Afraid to go around daughter-in-law. She had a new partial made and my

son said she looked like she had Bubba's teeth. I laugh out loud when I

think about it. Seeing her is going to be an experience.

I will pass the info on when I see the drug is on the market.

Arne

May 5, 2006

The drug is called NeuroDex. It is made by Avanir. It contains Dextromethorphan

and Quinidine. It works very well. I have been in the study for about 3 yrs. I

think it will be approved in the not too distant future. Danny

riddlea@... wrote: Hi Laughers & Criers,

I understand that some company that starts with an " A " . Can't remember

name, will release a drug for Emotional Liability by the end of the

year. It is the cough syrup drug t hat starts with a " D " that is about

ten letters long and Quinidine. They have been running trials on it on

the ALS group. It is not an anti-depressant.

Am awaiting it anxiously!!!

Tried Elavil and Namenda (Alzheimer's drug).The Namenda did indeed help

but my left hand start twitching and my usually mild (ha) temperment

became a little testy. Husband would be cooking something, ask me a

question and I replied , " I don't know, you're cooking, look it up

yourself " . Asked my Primary about it and he said he had found it made

the Alzheimer patients hard to manage sometimes.

Afraid to go around daughter-in-law. She had a new partial made and my

son said she looked like she had Bubba's teeth. I laugh out loud when I

think about it. Seeing her is going to be an experience.

I will pass the info on when I see the drug is on the market.

Arne

May 5, 2006

Hey, Joanne : ;

Of course I have heard of " Thunder Bay " - I used to be a Geography teacher

(once upon a time).

I'm glad that you have heard about Dr. Strong - what do they think of him at

McMaster? " Google " his name; you will get about a dozen hits.

Can't you go closer to home ?

Yes, my wife *is* a very special woman - she didn't realize what she was

taking on when she agreed to marry me. lol

Thanks for getting back to me,

ricturn@...

Joanne Taniwa joannetaniwa@...> wrote:

Hi :

I know ALS patients who have seen Dr. Strong and he is highly recommended. I go

twice a year to see Dr. Turnbull in Hamilton, at McMaster and like him very much

also. He takes the time to listen (along with his medical team) and I also feel

I have been so fortunate to be in such good hands.

How wonderful that you fell in love and got married. She must be a very special

woman and am glad you have someone there to care for you.

I live in Thunder Bay (ever heard of it) and when I go for my appointments in

Hamilton I stay with my son, his wife and 5 month old twin grandson's.

Thank you for taking the time to let me know where you are from and I wish you

all the best.

Take care.

Jo

Re: Shell - Emotional Lability

Dear Shellie and ;

I use the Dr. Strong (my neurologist) recommended desipramine, 25 - MG ,

daily at bedtime.

My symptoms were very much the same as you described.

Check with your doctor, then give them a try !

good luck,

Lkgentner@... wrote:

Shellie,

What I was referring to is the dreaded Emotional Lability -- uncontrollable

crying and laughing, even at inappropriate times. Not that the celebration

would be an inappropriate occasion but the " uncontrollable " is what is so

hard

to deal with. The PLSers know what I'm talking about; I don't think the

folks with HSP have to deal with that - hope not -and when I say

" uncontrollable " ... I do mean uncontrollable. We try and do things to try

and get a grip

but it doesn't always help. Some people with PLS and ALS take different

meds to

control it but I don't. I remember someone on PLS-Friends saying she

laughed at funerals... Zsolt recommeded to me some things to try and I'll

always

remember him for that....he is another Angel who is with and the

others.

I've had both -- but uncontrollable laughing bugs me the most.

Didn't mean to go on and on and it may entice others to tell their

" stories " .

Kleenex stock? Good idea -- one thing I do is bite on a kleenex package

and

try to breath through my nose -- now that really is more than you wanted to

know.

May 5, 2006

I had been on Laxapro for 3 years and was very happy with it no side

affects. When I went to sign up for part D with Medicare it wasn't

even on the list. My insurance

agent suggested I ask my neuro to switch to Citalopram HBR. I have

been on Citalopram HBR for 3 month now and can't tell any difference

from Lexapro.

Lexapro is $76.76 a month, Citalopram is $40.00 a month and through

Medicare part D I only pay $7.31 a month.

Before Laxapro I had to be careful what I watched on TV I would

either cry or laugh. Now I can watch most anything I want to. It's

not a complete cure but I would say 90% I wouldn't go with out it for

any thing except for a cure of PLS.

L. PLS, OH

May 6, 2006

Ok ive had this also it is what i understand, the Palatal muscles

weakening ,opening the mouth can cause it . The soft palate is weak

and tends to hang more lazily in the roof of the mouth .Opening the

mouth makes it bounce alot causing the snort sound also sometimes when

laughing.or when tilting the head back and opening the mouth . GEO (

try this purposely ) i cant do it, only unintentionaly, not

purposely,

>

> Arlene, I call it the snort ..kinda like a pig noise. Happened many

a time

> and yes it is embarrassing.........have no answer for you but just

top let

> you know you're not alone.......................Flora

>

May 7, 2006

Even tho my husband had an extremley bad reaction to Prozac I think I

might have to give it a try as my uncontrollable crying drives me

nuts. I only cry when its appropriate but I have always been a sucker

for a Lassie movie or a sad/happy real life story and used to cry back

then when I was normal and now when I am in those situations I

absolutely howl!! I went to a funeral a few months ago and I knew the

elderly woman who died but not close enough to almost let out a sort

of howl. That almost happened when they played the song " you raise me

up " . That song gets me every time.

Luckily,I dont have a problem with the laughing.

I also have a problem with severe anxiety and did a search on the

internet and found Prozac was the best for that.

Aussie Maureen

> I know exactly what you mean. I have been on Prozac for years. Prior

> to that I use to cry over nothing, and it would continue, it seemed

> forever, and was quite embarrassing. Now it only happens when I am in

> under uncontrolled stress, like somebody hurting my feelings which does

> happen on occasion, I am so sensitive!!! LOL!!!!!

>

> Rita

>

May 8, 2006

Maureen,

I cry at commercials. That gets me a commercial! It is the ones with the

little kids and the train about how they need food. They don't really show much

but it makes me cry like you would not believe. Several of them make me do that

but I cannot think of them at the moment. When I take the prozac it helps but I

still have that.

Music forget about it. I don't care I think its good to have passion and feel

things intently and I let the prozac take the edge off and try to deal with the

rest. What else can I do?

Shell Fisch

Maureen mazzie20022000@...> wrote: