Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Back when I was doing PT, I had one who specialized in patients with neurological problems. They have a different approach than one who does everyone else. Mark --- dldl@... wrote: > howdy out there in plsers-land! i've read some > e-mails from plsers about physical therapy and had > the impression many felt better with having pt. so > i had my neuro refer a pt center for me. the pt was > out in my home yesterday and i wasn't too impressed. > one thing he had me do was not too use my recliner > lift chair in an upright position to get out of the > chair. he wanted me to get up while it was still in > a low position. i felt like telling him that was > the whole reason for the recliner, too save ware and > tare on my legs! what kind of pt did all of you > get? denise > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 what technique did he use, and was it helpful. i'm really having seconds thoughts on this. my gut feeling tells me they don't know what they are doing! plus, i'm not sure how much medi-care will cover. i am on disability. blue cross-blue shield won't cover anything to do with my pls......denise > > > Date: 2006/06/22 Thu PM 03:28:19 EDT > To: PLS-FRIENDS > Subject: Re: plsers > > Back when I was doing PT, I had one who specialized in > patients with neurological problems. They have a > different approach than one who does everyone else. > > Mark > > > --- dldl@... wrote: > > > howdy out there in plsers-land! i've read some > > e-mails from plsers about physical therapy and had > > the impression many felt better with having pt. so > > i had my neuro refer a pt center for me. the pt was > > out in my home yesterday and i wasn't too impressed. > > one thing he had me do was not too use my recliner > > lift chair in an upright position to get out of the > > chair. he wanted me to get up while it was still in > > a low position. i felt like telling him that was > > the whole reason for the recliner, too save ware and > > tare on my legs! what kind of pt did all of you > > get? denise > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Unlike a PT who helps people who have been injured, a PT who specializes on neuro patients does not attempt to strengthen every muscle to the same degree. Some of our muscles are becoming weak and spastic. Strengthening the opposing muscle and ignoring the progresssive weakness and spasticity in the other muscle may be counterproductive. I went to a rehab hospital for PT. Later I specifically asked for a PT who specialized in neuro patients. They both knew what they were doing and helped me. Mark --- dldl@... wrote: > what technique did he use, and was it helpful. > i'm really having seconds thoughts on this. > my gut feeling tells me they don't know what > they are doing! plus, i'm not sure how much > medi-care will cover. i am on disability. blue > cross-blue shield won't cover anything to do with > my pls......denise > > > > > > Date: 2006/06/22 Thu PM 03:28:19 EDT > > To: PLS-FRIENDS > > Subject: Re: plsers > > > > Back when I was doing PT, I had one who > specialized in > > patients with neurological problems. They have a > > different approach than one who does everyone > else. > > > > Mark > > > > > > --- dldl@... wrote: > > > > > howdy out there in plsers-land! i've read some > > > e-mails from plsers about physical therapy and > had > > > the impression many felt better with having pt. > so > > > i had my neuro refer a pt center for me. the pt > was > > > out in my home yesterday and i wasn't too > impressed. > > > one thing he had me do was not too use my > recliner > > > lift chair in an upright position to get out of > the > > > chair. he wanted me to get up while it was > still in > > > a low position. i felt like telling him that > was > > > the whole reason for the recliner, too save ware > and > > > tare on my legs! what kind of pt did all of you > > > get? denise > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 HI, I HAVE A QUESTION AGAIN. I HAVE HAD PLS FOR ALMOST 10 YRS. NOW, AND FOR THE PAST 6 MTHS OR SO I HAVE BEEN EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE EXPERIENCED THIS? DENISE FROM GA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 In a message dated 6/25/2006 10:34:48 P.M. Eastern Standard Time, dldl@... writes: BEEN EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE EXPERIENCED THIS? DENISE FROM GA. Yes, , I also have places that get numb. I think back....I had them before my PLS showed it's ugly face. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 In a message dated 6/25/2006 10:34:48 P.M. Eastern Standard Time, dldl@... writes: BEEN EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE EXPERIENCED THIS? DENISE FROM GA. Yes, , I also have places that get numb. I think back....I had them before my PLS showed it's ugly face. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 In a message dated 6/25/2006 10:34:48 P.M. Eastern Standard Time, dldl@... writes: BEEN EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE EXPERIENCED THIS? DENISE FROM GA. Yes, , I also have places that get numb. I think back....I had them before my PLS showed it's ugly face. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 I have it in my upper right thigh, my neuro says it's my nerves running amuck plsers To: pls-friends > HI, I HAVE A QUESTION AGAIN. I HAVE HAD PLS FOR ALMOST 10 YRS. > NOW, AND FOR THE PAST 6 MTHS OR SO I HAVE BEEN EXPERIENCING A > NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE EXPERIENCED > THIS? DENISE FROM GA. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Yes I have numbness in my legs on occasion. My neuro didn't seem to want to bother with it I guess, since he ignored I said they go numb. It will hit me at the most unusual times also like in a grocery store or wal mart and when I stand after sitting alittle longer than usual. It drives me crazy. If you get any information on this from your neuro let me know what he said. I've had PLS for 3 years already quit work got on disability and going CRAZY!!! I live in NC dldl@... wrote: HI, I HAVE A QUESTION AGAIN. I HAVE HAD PLS FOR ALMOST 10 YRS. NOW, AND FOR THE PAST 6 MTHS OR SO I HAVE BEEN EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE EXPERIENCED THIS? DENISE FROM GA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Yes I have numbness in my legs on occasion. My neuro didn't seem to want to bother with it I guess, since he ignored I said they go numb. It will hit me at the most unusual times also like in a grocery store or wal mart and when I stand after sitting alittle longer than usual. It drives me crazy. If you get any information on this from your neuro let me know what he said. I've had PLS for 3 years already quit work got on disability and going CRAZY!!! I live in NC dldl@... wrote: HI, I HAVE A QUESTION AGAIN. I HAVE HAD PLS FOR ALMOST 10 YRS. NOW, AND FOR THE PAST 6 MTHS OR SO I HAVE BEEN EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE EXPERIENCED THIS? DENISE FROM GA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Join the club . I did find a part time job, try security, you can make up to 830.00 a month, it's something to do, a chance to be around people and contribute to the household buget Re: plsers To: PLS-FRIENDS > Yes I have numbness in my legs on occasion. My neuro > didn't seem to want to bother with it I guess, since he ignored I > said they go numb. It will hit me at the most unusual times also > like in a grocery store or wal mart and when I stand after sitting > alittle longer than usual. It drives me crazy. If you get any > information on this from your neuro let me know what he said. I've > had PLS for 3 years already quit work got on disability and going > CRAZY!!! I live in NC > dldl@... wrote: > HI, I HAVE A QUESTION AGAIN. I HAVE HAD PLS FOR ALMOST > 10 YRS. NOW, AND FOR THE PAST 6 MTHS OR SO I HAVE BEEN > EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE > EXPERIENCED THIS? DENISE FROM GA. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Doesn't social security hound you to return full time if you can work part time? Anyways I don't think a security guard would be good for me since I can't run after anyone. It would be pretty hard to chase in my walker. HA Thanks for the tip though bthompson2@... wrote: Join the club . I did find a part time job, try security, you can make up to 830.00 a month, it's something to do, a chance to be around people and contribute to the household buget Re: plsers To: PLS-FRIENDS > Yes I have numbness in my legs on occasion. My neuro > didn't seem to want to bother with it I guess, since he ignored I > said they go numb. It will hit me at the most unusual times also > like in a grocery store or wal mart and when I stand after sitting > alittle longer than usual. It drives me crazy. If you get any > information on this from your neuro let me know what he said. I've > had PLS for 3 years already quit work got on disability and going > CRAZY!!! I live in NC > dldl@... wrote: > HI, I HAVE A QUESTION AGAIN. I HAVE HAD PLS FOR ALMOST > 10 YRS. NOW, AND FOR THE PAST 6 MTHS OR SO I HAVE BEEN > EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE > EXPERIENCED THIS? DENISE FROM GA. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Pretty funny . I was thinking the same thing; how the heck could I chase or wrestle with a bad guy when anybody could knock me over with one little push from their pinky finger. Maybe we (PLSers) could sit in a secure office (preferably locked and dead bolted) and monitor security cameras, then call 911 if something bad happens. gary duke wrote: > Doesn't social security hound you to return full time if you can work > part time? Anyways I don't think a security guard would be good for me > since I can't run after anyone. It would be pretty hard to chase in my > walker. HA Thanks for the tip though > > bthompson2@... > wrote: Join the club . I did find a part time job, try security, > you can make up to 830.00 a month, it's something to do, a chance to > be around people and contribute to the household buget > > Re: plsers > To: PLS-FRIENDS > > > Yes I have numbness in my legs on occasion. My neuro > > didn't seem to want to bother with it I guess, since he ignored I > > said they go numb. It will hit me at the most unusual times also > > like in a grocery store or wal mart and when I stand after sitting > > alittle longer than usual. It drives me crazy. If you get any > > information on this from your neuro let me know what he said. I've > > had PLS for 3 years already quit work got on disability and going > > CRAZY!!! I live in NC > > dldl@... wrote: > > HI, I HAVE A QUESTION AGAIN. I HAVE HAD PLS FOR ALMOST > > 10 YRS. NOW, AND FOR THE PAST 6 MTHS OR SO I HAVE BEEN > > EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE > > EXPERIENCED THIS? DENISE FROM GA. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 social security doesn't hound you unless you make over 810 dollars a month for 9 consecutive months as that is considered gainful employment. otherwise it doesn't effect a thing if you know about the services you are being provided. email from Tawny H. Swain Castle, MA Re: plsers > To: PLS-FRIENDS@ yahoogroups. com > > > Yes I have numbness in my legs on occasion. My neuro > > didn't seem to want to bother with it I guess, since he ignored > I > > said they go numb. It will hit me at the most unusual times also > > like in a grocery store or wal mart and when I stand after > sitting > > alittle longer than usual. It drives me crazy. If you get any > > information on this from your neuro let me know what he said. > I've > > had PLS for 3 years already quit work got on disability and > going > > CRAZY!!! I live in NC > > dldl (AT) bellsouth (DOT) net wrote: > > HI, I HAVE A QUESTION AGAIN. I HAVE HAD PLS FOR ALMOST > > 10 YRS. NOW, AND FOR THE PAST 6 MTHS OR SO I HAVE BEEN > > EXPERIENCING A NUMB FEELING IN MY LEGS AND ARMS. HAS ANYONE ELSE > > EXPERIENCED THIS? DENISE FROM GA. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 denise, that would definitely having me calling my neurologist office as soon as i saw it wasn't going away, cause that would scare me!! I don't have any answers for ya, but if your emg showed slight nerve damage to the face, I would give a buzz. T email from Tawny Swain Castle, Florida plsers Hi out there in PLS-land, I know this sounds like a silly question, but i'll go ahead and ask it anyways! When I was diagnosed in 2001 they did an EMG and said I had slight nerve damage to my face. This is my question...I discovered lately I can only blink with my left eye! " I can just see everyone trying to blink with each eye! " I did have cataract surgery on my right eye last fall, and thought maybe that could be the reason. Or could it be nerve damage to my face? Blinkin in Ga. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Hi, I have an appt. at the ALS clinic in Sept. i'll ask then. This seems so strange to me, i don't have a sense of nerve damage to my face even tho they said that i did. I'm not worried about it, but would like an answer. It could be a problem completly different from pls. How long have you had pls? > > > Date: 2006/07/10 Mon AM 08:49:18 EDT > To: PLS-FRIENDS > Subject: Re: plsers > > denise, > that would definitely having me calling my neurologist office as soon as i saw it wasn't going away, cause that would scare me!! I don't have any answers for ya, but if your emg showed slight nerve damage to the face, I would give a buzz. > T > > email from > Tawny Swain Castle, Florida > > > > plsers > > > Hi out there in PLS-land, I know this sounds like a silly question, but i'll go ahead and ask it anyways! When I was diagnosed in 2001 they did an EMG and said I had slight nerve damage to my face. This is my question...I discovered lately I can only blink with my left eye! " I can just see everyone trying to blink with each eye! " I did have cataract surgery on my right eye last fall, and thought maybe that could be the reason. Or could it be nerve damage to my face? Blinkin in Ga. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Yes as i think back before my pls started i owned an antique shop in Michigan ...I refinishied all my furniture by hand and in my garage in winters . So i was exposed thru breathing and skin contact for several years. and what makes this relly interesting is the gal who had an antique shop across the street from me and used the same stripping products as I did was also dxed with pls . is a very small town and in town itself there were only about 40 residents . so for 2 people to get such a rare disese in a population that small in my mind has to be chemically related.. Jerry plsers Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hi Jerry, I was raised in Wyandotte, Michigan. It's very interesting that both of you got PLS! I think some people are gentic pre-disposed to neuro diseases, and environmental exposure triggers it off. I also refinished furniture for years for my own use.............. > > > Date: 2006/07/12 Wed AM 09:50:28 EDT > To: PLS-FRIENDS > > Subject: Re: plsers > > Yes as i think back before my pls started i owned an antique shop in Michigan ...I refinishied all my furniture by hand and in my garage in winters . > So i was exposed thru breathing and skin contact for several years. > and what makes this relly interesting is the gal who had an antique shop across the street from me and used the same stripping products as I did was also dxed with pls . is a very small town and in town itself there were only about 40 residents . > so for 2 people to get such a rare disese in a population that small in my mind has to be chemically related.. > > Jerry > plsers > > > Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Hi I am now medically retired from Mich Dept of Corrections and in north west Fl a little town called Havana plsers > > > Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Boy, Don't you miss all that snow! This ole body could not take the cold now, even in Ga. in the winter, it can have an affect on my muscles! It's like throwing a frog into a bucket of ice water! So we are both thankful to be in a warmer climate. How do you like it in Havana? How long have you had PLS? I'm into my 10th year. > > > Date: 2006/07/12 Wed AM 10:57:20 EDT > To: PLS-FRIENDS > > Subject: Re: Re: plsers > > Hi I am now medically retired from Mich Dept of Corrections and in north west Fl a little town called Havana > plsers > > > > > > Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Well i was dxed in in 98 but had small syptoms staring at least 5 years prior the correct dx. I like here in havan we are on 2 acres in a subdivision outside of 5 miles south of town.we have a nice wooded area with a wide path that leads to a crystal clear creek. we actually get the the same same weather here as south ga.we are right next to the GA border plsers > > > > > > Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 I thought it would be a lot further down in Fl. It sounds like you have a tranqil setting, i'm sure you are enjoying your surroundings! My symptoms started in my tongue so my speech was the first to be affected. I use a walker at all times and also a small computer called a dyna write to communicate with. I can talk, but it's so hard to understand me! I like to write when so moved. But I do miss working out in the yard and taking myself to the stores etc. I have a great caregiver, " my husband! " he never complains about taking me places and caring for me! We have been married 46 yrs. now, time has sure flown! > > > Date: 2006/07/12 Wed PM 12:27:12 EDT > To: PLS-FRIENDS > > Subject: Re: Re: plsers > > Well i was dxed in in 98 but had small syptoms staring at least 5 years prior the correct dx. > I like here in havan we are on 2 acres in a subdivision outside of 5 miles south of town.we have a nice wooded area with a wide path that leads to a crystal clear creek. > we actually get the the same same weather here as south ga.we are right next to the GA border > plsers > > > > > > > > > Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 >DENISE- I worked in the airline industry for over 30 yrs (TWA) and was exposed to about every chemical and solvent there was including fumes from diesel fuel ,gas etc and on and on I too believe that this exposure has a lot to do with my PLS. JOHN B. > Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 yes i am lucky too .to have a very supportive and careing wife plsers > > > > > > > > > Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 , Yes I worked in a store also and when they remodeled it we still had to work and the smell would make you sick at your stomach. It really was bad on me. I often wondered if this contributed to my health problems. Jane Anne (Ga.) plsers Hello, My husband wanted me to ask everyone a question, but before i do, i want to give some background information. I was raised near three chemical factories, and two steel mills. I have a brother who has had Parkinson's for years, another brother with a rare disease called Poly Myalgia Rheumatica, and myself with PLS. We moved to Ga. almost 11 yrs. ago. About a year later i started working at a shoe store in a strip mall. Thats where my PLS started. I noticed whenever i entered the store i would get a strong sense of a chemical smell which no one else could smell! My speech was being affected about a month after working there. After hearing my complaints about the smell the owner called in specialist to see if indeed there was a odor. Well they discovered the air duct from the nail saloon next door was not sealed and all the fumes from their shop was coming over into our store! Needless to say everyone was surprised! I firmly belive the chemicals kicked off my PLS. One of my respiratory therp. also related a story to me. One of her patients has ALS, In this patient's neighborhood and another neighbor were using the same co. to spray their yards. They both got ALS, plus the man who was doing the spraying also got ALS! No one else in this neighborhood got ALS they were using a diferent co. We firmly believe that environmental chemicals has alot to do with PLS AND als. Now this is his question...Have any of you been exposed to chemicals over a long period of time? from Ga. Quote Link to comment Share on other sites More sharing options...
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