reply to June

[Guest guest]

I don't drink sweet tea, just an occasional diet Snapple tea. I do not now nor

have I ever smoked.

Dolores

----- Original Message -----

From: JunePGray@...

PLS'ers please tell me if ya'll drink a lot of sweet decaffenated(?) iced tea

and do ya'll also smoke a lot of cigarettes (Salem 100's) too???? __

.

[Guest guest]

OMG it is so funny and so true. I related to nearly every item on the

list and kept laughing!! Loved it!!

Aussie Maureen

>

> I am one of the PLSers who has a lot of pain. My legs ache, my feet

burn

> and my low back is painful and has spasms. The discomfort in my

knees is

> most likely from being hyperextended. For relief, I just use over the

> counter medications as naproxen sodium or ibuprofen. Recently, I've

also

> been applying Lidoderm patches to my low back and knees. It is a

> prescription and is only a local anesthetic (much like what the dentist

> injects) so there is no problem with sleepiness, etc. Part of our

> spasticity results in " fixed joints " , such as shoulder or elbow being

> permanently contracted. That, too, is painful. The pain causes

increased

> spasticity and the more spastic we become, the more painful we are.

It is a

> vicious cycle. Both the pain and spasticity adversely affect our

walking

> ability.

> Dolores

> Re: Re: ALS-PLS?

>

>

> > My husband has been diagnosed with PLS from Shands Hospital in

> Gainesville.

> > Do any of ya'll out there ever have pain all the time in your legs

and not

> > being able to walk???? Does it affect your arms and legs???? Please

> write

> > back. June Gray in Tallahassee, FL

> >

> >

> >

> >

> >