Re: Just been advised to have surgery

[Guest guest]

Hi,

I can only say from experience trust your doctor. Although many

women with fibroids have healthy full term pregnancies some do not.

I was told back in 2000 I had a fibroid. In 2002, I went to this

same doctor and talked to her about my husband and I wanting to start

a family. She told me to take vitamins and if I don't conceive

within a year to come back and then we will have to talk about

removing the fibroid. Well, I conceived within 3mos. Then switched

doctors to deliver at a nearby hospital. The new doctor on the first

exam said I have to consider you high risk because you have a

fibroid. He said I need to watch you, baby and fibroid very

carefully. I was shocked no one ever told me there could be

complications. Well, I ended up having a horrible pregnancy. I

cramped the entire time.

In August of 2002 on my birthday I remember like it was yesterday I

could barely move and felt lots of pressure between my legs. I was

23 weeks pregnant. I went to the ER they said the fibroid is breaking

down and it's going to be painful. That was on a Sunday. By

Wednesady I called my doctor and said I need to see you I can barely

move there has to be something you can give me that won't harm my

baby. So we made an appt. to meet on Friday when my regular

scheduled appt. was that Monday. I get to his office and he says " UH

OH " then goes out to his nurse says call her husband ASAP, get me a

wheel chair. His office is connected to the hospital. He then

wheels me to the hospital for an ultrasound to find out I'm

completely dilated. The baby was pushing on the fibroid, the fibroid

was growing and pushing on my cervix. Friday, at noon I went on

bedrest literally positioned with my feet above my head to keep all

weight off the pelvis. He wanted to keep the baby in as long as he

could. I was allowed to sit up 15min a day and had to stay on a

liquid diet. This lasted until Sunday night 24weeks pregnant I

started cramping again. This time he gave me something to relax my

uterus and I was able to sleep a few hours. When I woke up it was

worse. At that time I passed a huge blood clot and then was rushed

iin for an emergency c-section.

My daughter was born at 24 weeks weighing 1lb 7oz 13 inches

long. She fought long and hard to stay with us. She was on a

ventilator for 7 weeks and nasal oxygen for 5 more weeks. She spent

99 days in the Neonatal intensive care unit. When she came home she

had to go right back in for surgery after surgery because of

something common in preemies ROP (retinopathy of prematurity). My

daughter is permanently blind. She also after coming home

experienced some eating problems and at 18.5mos old she eats from a

feeding tube. We have therapies 5 days a week, GI doctor appts,

Pediatrician appts. for weight checks and eye doctor appts. to make

sure her eyes don't have infection or other problems she can't tell

us about. She is 18.5mos and functions at an 11 month old. She can

crawl usually in a circle and is learning to stand, but will not even

think about moving her legs while standing. The only word she says

is dada and has no idea what it means. They tell me there is a great

risk she will be labeled mentally retarded once she starts school.

I love my daughter to death, but if someone would have told me there

was a possibility of this you better believe I would have had surgery

to eliminate any risk. No one wants to see their child suffer that

much and fight that hard to survive.

My husband and I are meeting with out doctor on Friday to discuss

taking my fibroid out so we can try and have a healthy baby so

will have a sibling.

I wanted to share my story so that you knew it does happen and it can

be devastation. I hope and pray everyday that no other mother goes

through what I did and I hope no other parent has to hear the

words " your child is blind " .

Good Luck with your decision and sorry this was so long there was

just a lot of things I wanted to share with you.

Pam

> Dr. has today advised that due to the location of my fibroids

> (inside uterus) that he recommends I have them removed prior to

> getting pregnant. I have three (biggest one is about 5 cm). He

> said the chances are I would have a premature baby.

> I don't want to rush into this option. The dr. seemed very keen to

> go down the surgery route even before he had done the sonogram. I

> was wondering about the experiences of others with any other form

of

> treatment or, deciding not to have surgery. Any advice is

> appreciated.

>

> Caron

[Guest guest]

thanks pam for sharing your story

I had a miscarriage and was told by my doctor that i shouldnt try

again until the fibroids are removed. At first i thought that maybe

she was overreacting since many women on here had healthy babies

without one but now I know that there are real risks that I should

consider and that helps my peace of mind so much

Thanks again!!

Lola

[Guest guest]

Thankyou so much for sharing that. I'm still in shock really about

he potential problems of fibroids. I've recently moved from the UK

to the states and over there they seemed to think theres no problem

with fibroids and kind of told me just to keep trying to conceive. I

am thankful I have moved to a country which takes these things more

seriously and is more willing to help. The UK doctors told me I

would have to have a couple of miscarraiges before they would take

it seriously and treat the fibroids. Unbelievable!

I had a HSG scan today and all the tubes are fine but I could see

the big fibroid on the screen sticking out - very weird. Doctor said

there was only that one inside the uterus the other 2 must be

outside but he says the big one definately needs removing.

Caron

[Guest guest]

---Caron..i just thought I would tell you that I also have a large

fibroid inside my uterus that is measuring 8.6cm (mid-January) My ob-

gyn and also the RE that he referred me to have both stated that I

should have it removed before ttc. I have my myo scheduled for April

22nd as I am wanting to try to have children within the next year or

two. They are concerned with me carrying a child to term or even

the possibility of not being able to conceive if I leave it. Hope

that helps.

In uterinefibroids , " caron707 " wrote:

>I was wondering about the experiences of others with any other form

>of treatment or, deciding not to have surgery.

[Guest guest]

My largest was 3cm before getting pregnant, but my Dr. said not to

worry. Then it grew to 6 in less than 8 weeks after I got pregnant.

I had a miscarriage at 9weeks, and my Dr. is now saying I 'may' want

to look into having them removed before trying again, but won't say

anything definitive either way. I have a couple of months to decide,

and am trying to gather as much info as I can now. I am really

worried about getting the surgery though.

[Guest guest]

I discovered mine last year, and my doctor told me that it was the size of my

index finger. I now discovered that it has grown a bit more. Now my visit to

another doctor and I have been advised to do surgery. I am trying some herbal

treatment first and will check to see the results before I decide on surgery.

Because I really need a next child. I only have one.

juice01111 juice00000@...> wrote:

My largest was 3cm before getting pregnant, but my Dr. said not to

worry. Then it grew to 6 in less than 8 weeks after I got pregnant.

I had a miscarriage at 9weeks, and my Dr. is now saying I 'may' want

to look into having them removed before trying again, but won't say

anything definitive either way. I have a couple of months to decide,

and am trying to gather as much info as I can now. I am really

worried about getting the surgery though.