Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 I personnaly (and this is not my doctor talking) would not want plastic particles in my body. I would be afraid the particles would travel to unwanted veines or arteries. > Hi all > I have asked this question twice before and no one ever replied. Most of the emails are bout MYOMECTOMY and any one hardly ever mention any other form of treatments such as EMBOLISATION. My question was what made any of you decide to choose myo. as oppose embo. did your doctor ever gave you an option. Someone please respond. > > Nola.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Hi Nola, For some people, embo is not an option, for me it was. But I decided on myo. I think it's all a matter of personal decision depending on our experience and knowledge. I had about a month of research while bleeding the whole time due to my fibroid. I looked at the embolization option first but after reading many posts in the embo group and understanding the successful rate from various websites, I decided to go ahead with myo. The one month experience and me ended up in ER once because of too much blood lost made me paranoid. So my decision was to choose a method that would ensure I never have to go through that again. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Sorry we didn't reply before. UAE research: * Carla Dionne's book *There are a lot of embolisation posts in the archives, even if it hasn't come up as much lately. *There's also a Yahoo embo group, but you may already know about it. *You'll find a radiologist called Nigel Hacking posts on Smartgroups UK *and there are some embo diaries in the archives and more recent posts at Smartgroups UK and The Fibroid Place. *A keyword search on UAE will produce a surprising number of sites. Many arre a sales pitch though and therefore biassed reporting of the merits of UAE over all other options. * Try Dr, Indman's pages on fibroids. _________________________________________________ Contraversy and bias: The subject of UAE can be contraversial. There are some very vigorous defenders and that's a good thing if there are real misconceptions and a bad thing if there are problems being glossed over. It would be a shame if other good treatment options were overlooked whilst the praises of UAE were being sung. One poster recently mentioned very effective treatment with a different one day procedure. As with other fibroid issues, there's a mass of contradictory information sources and it's hard to sort the wheat from the chaff. What do the experts know and what don't they? Where did our doctors get their information from originally? What are the sources of other posters? The treatment is approved, so why are some gynaecologists mistrustful? Are they mistrustful of many other approved treatments and drugs? It would be helpful if patients didn't get thee mixed messages, although it's good that we get to hear about the doctors reservations, to tip us off about their genuine beliefs, right or wrong. I think many women seize upon UAE as the easiest mildest option and get the idea that it's like a trip to the hairdressers. It is still a serious procedure and must be taken seriously. Just because you are not being cut with a knife, you are still having something unnatural done to your body's systems. Also patient experiences vary. In one account the doctor had said to the patient during the procedure " See if I'm still your friend in a moment. " (He was, but she experienced pain) I chose the abdominal myomectomy over UAE on this occasion, rightly or wrongly, because I want to have children in the future and I was concerned, having read about the risk of accidental embolisation possibly effecting fertility or causing other problems. It's very hard to get to any hard truths with fibroids because some information in books and on the internet is biassed or contradicts the last thing you read. Once I had ruled out the UAE for my case I stopped researching it any further. My gynaecologist wasn't keen and he mentioned someone having died in the UK after UAE. He did say we could explore that avenue if I wanted to. I wasn't only influenced by his bias against it. I had also picked up the idea last year from somewhere that UAE would be a painful experience. Maybe this is wrong - I don't know. I was prepared for the myomectomy recommendation and went with that. I thought it would be better to have the fibroids removed completely. I had read that the abdominal myomectomy lets a surgeon feel around to find all those smaller fibroids. I was therefore surprised that my big enough to locate smaller fibroids were left in. My myomectomy experience was better than I expected and I think I got off very lightly. Only time will tell how it all pans out and maybe if I get fibroids again I'll choose UAE. Aztek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Actually, the chances of the particles travelling beyond where they are intended to go is very, very slight. First of all, the IR injects dye into the arteries and follows the dye's path through the arteries and blood vessels to see where the particles will be going before he actually injects the particles. For instance, he/she confirms that the arteries are going to the uterus, and not branching off to the ovaries. Arteries merge into smaller arteries and later into capillaries (very, very small blood vessels) so the particles are trapped at some point as the blood vessels get smaller and smaller. They can't go beyond this point because they don't simply don't fit. Within a short time, the body responds to the prescence of the particles by building up scar tissue around the blood vessels where the particles are, and this locks them further in place. Leonie > I personnaly (and this is not my doctor talking) would not want > plastic particles in my body. I would be afraid the particles would > travel to unwanted veines or arteries. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Nola, I chose the embolization. My doctor really only hinted at hysterectomy. He didn't even know anything about the embolization procedure. I am not planning on any more children so I did not desire a myomectomy. I thought I would try the embolization and if it was not successful, I would decide to do something else. I had good success with the embo and am doing fine now 15 months later. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Hi Nola, I was interested in embolisation & discussed it with my Dr. I ended up having an abdominal myo, though, since my Dr. said that embolisation has not been proven safe in women who wish to have more children, and my main reason for wanting my fibroid removed was to have another baby. Hope this helps. ~Cindy > Hi all > I have asked this question twice before and no one ever replied. Most of the emails are bout MYOMECTOMY and any one hardly ever mention any other form of treatments such as EMBOLISATION. My question was what made any of you decide to choose myo. as oppose embo. did your doctor ever gave you an option. Someone please respond. > > Nola.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Nola, I think the percentage on the list between myo and embo fluctuates over time. But, many of the embo folks are over on the EMBO group. As for me, I chose EMBO for 3 reasons... 1- I couldn't find a doctor that I had enough confidence in locally on my insurance to do a myo, and couldn't afford it outside my plan. I was not concerned about possible " new " fibroids and needing more surgery in the future due to my age. If I were younger, the scales would have tipped towards myo on that point. 2- Fear of surgery. I am not sure which I would have chosen if I had found someone to do a myo. I suspect I might have still chosen UAE first, as a myo can be done afterwards if success is not acheived. - my situation is that the improvement post UAE is sufficient to keep me from a hysto, but not totally what I had hoped for. So, I would consider a myo at this point. 3- Recovery time. Which was part of the reason I fought against the initial recommendation of hysterectomy. THe recovery time for UAE was less, and in my case would have been a breeze if it hadn't been for a bad nursing experience resulting in a UTI from the Foley... So...anyone in West Central Florida/Tampa Bay that has had a successful myo, is over 40 and is happy with her surgeon??? I have no fear of the " PVA " particles traveling to unknown parts of my body. My IR had performed plenty of EMBOs and active in furthering the procedure and improving technique. I know that it is often given as a grave concern by some GYN's and by some web sites with an agenda, but I feel confident in the research I did about UAE. I have no regrets for chosing UAE as my first attack on the fibroids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Hi Cindy Every thing seems to be a fifty fifty there is a risk of hysterectomy with myo and possibility of new fibroids growing back and I dont want to lose the option to have more kids. So thats my little delima well not so little. Thanks for responding Nola littlepetuniablossom68 ldstevens@...> wrote: Hi Nola, I was interested in embolisation & discussed it with my Dr. I ended up having an abdominal myo, though, since my Dr. said that embolisation has not been proven safe in women who wish to have more children, and my main reason for wanting my fibroid removed was to have another baby. Hope this helps. ~Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Hi Cindy Every thing seems to be a fifty fifty there is a risk of hysterectomy with myo and possibility of new fibroids growing back and I dont want to lose the option to have more kids. So thats my little delima well not so little. Thanks for responding Nola littlepetuniablossom68 ldstevens@...> wrote: Hi Nola, I was interested in embolisation & discussed it with my Dr. I ended up having an abdominal myo, though, since my Dr. said that embolisation has not been proven safe in women who wish to have more children, and my main reason for wanting my fibroid removed was to have another baby. Hope this helps. ~Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Hi Cindy Every thing seems to be a fifty fifty there is a risk of hysterectomy with myo and possibility of new fibroids growing back and I dont want to lose the option to have more kids. So thats my little delima well not so little. Thanks for responding Nola littlepetuniablossom68 ldstevens@...> wrote: Hi Nola, I was interested in embolisation & discussed it with my Dr. I ended up having an abdominal myo, though, since my Dr. said that embolisation has not been proven safe in women who wish to have more children, and my main reason for wanting my fibroid removed was to have another baby. Hope this helps. ~Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Hello leonie I am familia with the procedure but my was concerned why more women showed more interest in mayomectomy whern the possibility of the new fibroids growing is so high or do they not know if other options exists. (sidebar) Do you know anything about ablasion? thank you again for responding Nola finkell98 finkel22@...> wrote: Actually, the chances of the particles travelling beyond where they are intended to go is very, very slight. First of all, the IR injects dye into the arteries and follows the dye's path through the arteries and blood vessels to see where the particles will be going before he actually injects the particles. For instance, he/she confirms that the arteries are going to the uterus, and not branching off to the ovaries. Arteries merge into smaller arteries and later into capillaries (very, very small blood vessels) so the particles are trapped at some point as the blood vessels get smaller and smaller. They can't go beyond this point because they don't simply don't fit. Within a short time, the body responds to the prescence of the particles by building up scar tissue around the blood vessels where the particles are, and this locks them further in place. Leonie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Nola, there are many skilled surgeons out there who have done hundreds of myos and never turn one into a hyst. I asked my doctor before the surgery, and he answered me just as he answered another member of this group: never. If the surgeon is just mediocre, then the chance goes up. I don't know which treatments are best for those who want more children, but they are there. My friend had her fibroid removed many years ago and just recently has a healthy boy. You may want to present your dilemma to your doctor and if not satisfied with the answer, search for an informed doctor for a second opinion. Jackie Re: Re: embolisation Every thing seems to be a fifty fifty there is a risk of hysterectomy with myo and possibility of new fibroids growing back and I dont want to lose the option to have more kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Nola, I had an embolization about 4 1/2 weeks ago and am feeling great!!! This was the best obtion for me since I've had my kids already and didn't want the fibroids to grow back!! I am only 43 and have a ways to go before menapause. If your interested in embolization, join the yahoo embo group to get lots of info. I dont' know what your symtoms are but ebolization is recommended for those who want to avoid major surgory and that arn't interested in having kids. Actually, there have been many successful pregnancies after embolization but they don't recommend it just becuase it's an unknown and hasn't been followed up. Jen > Hi all > I have asked this question twice before and no one ever replied. Most of the emails are bout MYOMECTOMY and any one hardly ever mention any other form of treatments such as EMBOLISATION. My question was what made any of you decide to choose myo. as oppose embo. did your doctor ever gave you an option. Someone please respond. > > Nola.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Nola, I had an embolization about 4 1/2 weeks ago and am feeling great!!! This was the best obtion for me since I've had my kids already and didn't want the fibroids to grow back!! I am only 43 and have a ways to go before menapause. If your interested in embolization, join the yahoo embo group to get lots of info. I dont' know what your symtoms are but ebolization is recommended for those who want to avoid major surgory and that arn't interested in having kids. Actually, there have been many successful pregnancies after embolization but they don't recommend it just becuase it's an unknown and hasn't been followed up. Jen > Hi all > I have asked this question twice before and no one ever replied. Most of the emails are bout MYOMECTOMY and any one hardly ever mention any other form of treatments such as EMBOLISATION. My question was what made any of you decide to choose myo. as oppose embo. did your doctor ever gave you an option. Someone please respond. > > Nola.. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.