Re: 25 and in need of support

[Guest guest]

hi,

I read your post a couple of months ago and I wonder what your decision was.

I hope you feel better now...

myrtle9e6 myrtle9e6@...> wrote:

Okay, I'm new to the message board and I read that joining one would

help me feel better about having fibroids. I'm 25 and I have 3

fibroids. 2 of them which are 4cm and 1 which is 6 cm. They grew

rapidly. I went to GYN in May and I was fine then I returned in

August and she said my uterus was enlarged. I've been very emotional

since. I knew I would get fibroids b/my mother developed them in her

late 30's but I'm only 25. All the books I read say the avg age is

around 35 or so. I have no children, I'm not engaged, I don't have a

boyfriend. Yes, I do want children but its looking more and more

grim. My Dr told me in November that I had 18 months, so if I want

children I better make it happen now. I chose to go on depro to try

to slow down the growth or shrink the fibroids. I'm due for another

shot next month and I'm now debating if I want to do so because I've

read and spoke to many women on depro whom told me it took them

almost two yrs to get their period back. I guess I would be able to

deal with this better if I were 5 yrs older but I'm not. I always

ate healthy stayed away from caffiene was an NCAA track and field

athlete. I'm 5'7 and weight 135lbs now.. I normally weigh 128. I had

all the plans to go back to school and get my MBA but now that I have

waht is now a 16 month window in order to have a family I'm hesistant

to do anything. I'm now listening to healing music before I go to bed

and try to relax a little more. I picked up a part-time job at a

bookstore so I can keep my mind busy and not depress myself. I do

think that my regular 9-5 causes much stress. It's not the job, it's

more the people their, like the ignorant mgrs. When I was 20 my

family practice dr made me quit my jobs b/he said i was too stressed

and it was affecting my health. I guess right now I just need to

know what is out there to do, to reduce the fibroids or slow down the

growth. I'm not going into this blindly, I read about 4 books

already cover to cover but I'd like it if someone who was my age when

they were diagnosed and what they did and how they coped with it.

Any and all responses is welcome....please -S

[Guest guest]

> Okay, I'm new to the message board and I read that joining one

would

> help me feel better about having fibroids. I'm 25 and I have 3

> fibroids. 2 of them which are 4cm and 1 which is 6 cm. They grew

> rapidly. I went to GYN in May and I was fine then I returned in

> August and she said my uterus was enlarged. I've been very

emotional

> since. I knew I would get fibroids b/my mother developed them in

her

> late 30's but I'm only 25. All the books I read say the avg age is

> around 35 or so. I have no children, I'm not engaged, I don't have

a

> boyfriend. Yes, I do want children but its looking more and more

> grim. My Dr told me in November that I had 18 months, so if I want

> children I better make it happen now. I chose to go on depro to

try

> to slow down the growth or shrink the fibroids. I'm due for

another

> shot next month and I'm now debating if I want to do so because

I've

> read and spoke to many women on depro whom told me it took them

> almost two yrs to get their period back. I guess I would be able

to

> deal with this better if I were 5 yrs older but I'm not. I always

> ate healthy stayed away from caffiene was an NCAA track and field

> athlete. I'm 5'7 and weight 135lbs now.. I normally weigh 128. I

had

> all the plans to go back to school and get my MBA but now that I

have

> waht is now a 16 month window in order to have a family I'm

hesistant

> to do anything. I'm now listening to healing music before I go to

bed

> and try to relax a little more. I picked up a part-time job at a

> bookstore so I can keep my mind busy and not depress myself. I do

> think that my regular 9-5 causes much stress. It's not the job,

it's

> more the people their, like the ignorant mgrs. When I was 20 my

> family practice dr made me quit my jobs b/he said i was too

stressed

> and it was affecting my health. I guess right now I just need to

> know what is out there to do, to reduce the fibroids or slow down

the

> growth. I'm not going into this blindly, I read about 4 books

> already cover to cover but I'd like it if someone who was my age

when

> they were diagnosed and what they did and how they coped with it.

> Any and all responses is welcome....please -S

Hi,

I can relate to how you are feeling. I had my myo Sept 13, 2003. I

felt great afterwards. I lost a quick 15 lbs and was doing well. I

went back in February to see my Dr. and he could feel another one. I

am also concerned with them. I am 28 years old and no boyfriend. I do

want to have children and be a mom. The new fibroid is about 3 mm. My

Dr. is going to put me on the Pill. I hope this will help with my

heaving bleeding. Just try to keep positive. My mom had a hyster. at

age 45 because of her fibroids. My aunt had a myo at around age 35

and has them again( she is now 46). She says they are pretty big. If

anyone has any good advise please post.

Thanks to all. I just joined about 3 weeks ago and it is comforting

that we can relate to each other and learn from each other.

[Guest guest]

Hi there,

I'm sorry that I didn't respond sooner to your post. I honestly

missed it.

Now I'm 26, my ob/gyn put me on depro provera so I could stop having

my period for a little while, since I'm thin and had problems

w/anemia in the past prior to the tumors. I only took one shot b/I

was definately getting bigger. One of the side effects I experienced

was lactation, which I'm still doing right now even though the depro

is out of my system and my prolactin levels are normal.

As of February my fibroids are now 12.6cm, 10cm, etc etc there are

several more than 3 now. No kidney obstruction. One of them has some

necrosis, and that's due to some natural supplements I was taking to

deal w/a lot of the back pain.

I went to see an R.E. in March and I scheduled a myo for June 1st.

He was very direct and honest and straight to the point w/me. He was

very shocked b/they were so large and i'm young and it developed to

this size in less than 1 yr. My RE has been doing this for 30+ yrs

and has a great stellar educational background.

(My OB/Gyn suggested him, she thinks very highly of his work and sent

her own cousin to him.) My gyn could do the surgery but she said that

its my choice and b/i'm so young she rather have the best of the best

so I won't have regrets later on in life about it.

Last week I saw my gyn for a colposcopy and that was very painful,

which it normally isn't, but due to the obstruction of my cervix it

was not a pleasant experience. The speculum being inserted was just

horrible.

My family practice/pulmonary doctor feels that I'm making a good

decision b/I no longer have the energy to workout and be active as I

should be. He also gave me a prescription for predisone so the

inflammation won't be so bad from the tube during surgery.

I still work at the horrible job that I do, b/of the health

insurance. It's gotten so bad there that I'm anxious to have surgery

to not be there for 6 weeks. Now, I have to postpone grad school til

January.

That's the update

-Shaunah

> Okay, I'm new to the message board and I read that joining one

would

> help me feel better about having fibroids. I'm 25 and I have 3

> fibroids. 2 of them which are 4cm and 1 which is 6 cm. They grew

> rapidly. I went to GYN in May and I was fine then I returned in

> August and she said my uterus was enlarged. I've been very

emotional

> since. I knew I would get fibroids b/my mother developed them in

her

> late 30's but I'm only 25. All the books I read say the avg age is

> around 35 or so. I have no children, I'm not engaged, I don't have

a

> boyfriend. Yes, I do want children but its looking more and more

> grim. My Dr told me in November that I had 18 months, so if I want

> children I better make it happen now. I chose to go on depro to

try

> to slow down the growth or shrink the fibroids. I'm due for

another

> shot next month and I'm now debating if I want to do so because

I've

> read and spoke to many women on depro whom told me it took them

> almost two yrs to get their period back. I guess I would be able

to

> deal with this better if I were 5 yrs older but I'm not. I always

> ate healthy stayed away from caffiene was an NCAA track and field

> athlete. I'm 5'7 and weight 135lbs now.. I normally weigh 128. I

had

> all the plans to go back to school and get my MBA but now that I

have

> waht is now a 16 month window in order to have a family I'm

hesistant

> to do anything. I'm now listening to healing music before I go to

bed

> and try to relax a little more. I picked up a part-time job at a

> bookstore so I can keep my mind busy and not depress myself. I do

> think that my regular 9-5 causes much stress. It's not the job,

it's

> more the people their, like the ignorant mgrs. When I was 20 my

> family practice dr made me quit my jobs b/he said i was too

stressed

> and it was affecting my health. I guess right now I just need to

> know what is out there to do, to reduce the fibroids or slow down

the

> growth. I'm not going into this blindly, I read about 4 books

> already cover to cover but I'd like it if someone who was my age

when

> they were diagnosed and what they did and how they coped with it.

> Any and all responses is welcome....please -S

[Guest guest]

Hi and S,

I am 30, also no " steady " boyfriend, never married, no kids--4

fibroids giving me hell for the past year! Spent the last decade in

school, just finishing and hoping to start my career. I am scheduled

for UAE (uterine artery embolization) on May 7th, and praying it

works, and that I remain fertile. I feel for both of you...

,

although there is no definite medical conclusion regarding birth

control pills and fibroids, there is suspicion that BCP use, b/c of

the estrogen delivered to your body, may cause the fibroids to grow.

Again, the medical community has NOT concluded this definitively,

but it is info you might want in making your decision to take the

pill to relive the symptoms. I did a bunch of research on this, and

for me, I have decided I will NOT be going on the pill again. Also,

have you tried diet changes and/or acupuncture/chinese medicine in

conjunction w/ regular exercise/etc (especially yoga). While none of

these things are a cure, it seems they have helped many women with

the symptoms caused by fibroids. I am having UFE in one week, and

will begin acupuncture/chinese meds/etc ASAP after the procedure,

with the idea that I'll try everythiung possible to make this a

successful battle--both Eastern and Western medicine...

keep in touch and best of luck in your battle!!!stay strong.

[Guest guest]

Hi, I'm 28, have 2 large fibroids & no children yet. I'm just curious which dr.

told you you only had 18 mos. to have a baby. Who is he to put a time limit on

it? Do you plan on having these removed? If you have a skilled enough dr.

remove these, you shouldn't have any problem conceiving afterwards, or so I've

been told. Just wanted to put my two cents in

> myrtle9e6 wrote:

> Yes, I do want children but its looking more and more

> grim. My Dr told me in November that I had 18 months, so if I want

> children I better make it happen now.

[Guest guest]

Hi there, the dr that told me I only had 18 months to conceive was my

OB/GYN and that would be a SHE. Now I realize that she was

definately looking out for my best interest prior to having to go

through evasive procedures. So, I'm not upset w/her because in

actuality she was correct. It's less than a yr and I'm now schedule

for a myo on June 1st with a RE.

I'm not a big optimist, I'm more of a realist. Once an organ is

tampered with, it will never return to its original state nor perform

at the same potential. There are many women that have conceived

after a surgery and vice versa. My mom conceive me w/fibroids. My

friend's aunts have done it after surgery. Everyone's condition is

not the same nor does our bodies respond the same to these

procedures. I've always been a complicated patient b/my body does

not respond the same way to medication as the pharmaceutical

companies claims it should and my side effects have been extreme in

the past. (sorta sucks to be unique lol)

As I get closer to my surgery date I've been having doubts here and

there. What if I go through all of this and not be able to have my

own family? Or whose to say that 8 yrs down the line I won't still be

unwed, not dating, and hello my little fibroid friends return? One

of my friends said I'm not doing just to have children but I'm doing

it for my health,and b/people care about me.... honestly I don't care

too much about the people that care about me, they all have their

families, I'm the one leftover and I just want to have a family.

Thanks for listening

> > Yes, I do want children but its looking more and more

> > grim. My Dr told me in November that I had 18 months, so if I

want

> > children I better make it happen now.

[Guest guest]

I lke your realistic apprach to this surgery..Your right..I had my myo last yr

Sept and my biggest fear is not to be able to concieve as well..

GOd knows hs plan for all of us..so we are in his hands