Re: fibroid growth, surgery, EDS

[Guest guest]

Hi Liz,

I had excessive bleeding for years until finally the fibroid acted up,

and I bled for one whole month. Nothing would slow down/stop it. I had

a doctor told me that I should have hyst because a myo means more blood

loss. I went to a third doctor - a skilled surgeon - who performed my

surgery with no problem. You should have no risk of extra blood loss if

you have a skilled surgeon rather than a mediocre surgeon performing

your surgery.

Jackie

fibroid growth, surgery, EDS

My fibroid seems to have grown from ~7cm last August to ~12cm this

month. That sounds pretty fast to me, but I'm wondering what other

people's experiences have been.

Due to excessive, inconvenient, and embarrassing bleeding problems

(BCPs seem to have outlived their usefulness), I'm looking at having

surgery this summer. I don't want any more kids, and have a history

of internal bleeding (though all my bloodwork came back negative-- does

one trust the tests, or past experience?), so am leaning toward

a hysterectomy rather than myo, since there will be less risk of

serious blood loss.

BTW, has anyone on the list been diagnosed with Ehlers-Danlos

syndrome? My hematologist thinks this might account for my bleeding

history. I'm finally seeing a connective-tissue specialist next week (2

months after the referral) to look into this possibility.

--Liz

[Guest guest]

Thanks Jackie. I should clarify that my concerns about blood loss

during surgery aren't related to menorrhagia but to postpartum

hemorrhaging and, more significantly, a postpartum haematoma (~2-3

units blood lost due to internal bleeding, a complication experienced

by ~1 in 2000 women). I'm willing to believe the hemorrhaging was a

side effect of the fibroid (then only ~4cm), but not the haematoma.

It's the excessive menstrual bleeding that's pushing me to surgery,

but not contributing to my approach to surgery.

--Liz

> Hi Liz,

>

> I had excessive bleeding for years until finally the fibroid acted

up,

> and I bled for one whole month. Nothing would slow down/stop it. I

had

> a doctor told me that I should have hyst because a myo means more

blood

> loss. I went to a third doctor - a skilled surgeon - who performed

my

> surgery with no problem. You should have no risk of extra blood

loss if

> you have a skilled surgeon rather than a mediocre surgeon performing

> your surgery.

>

> Jackie

[Guest guest]

Hi,

I would research ALL your options before just thinking a hyst will solve your

problems. You may get another set of problems to deal with. A hyst is surgery.

With a good doc you don't lose a lot of blood with a myo.

UAE may work, you have myo (worked for me-no heavy bleeding), FUS and trial

drugs. Consider them all.

Ku

[Guest guest]

Have you looked into UFE? It works wonders for bleeding problems.

I had mine in Janurary and am a new person. I had a 10 cm fibroid.

Watch out for hysto's. Have you looked into the after effects?

Jen

> My fibroid seems to have grown from ~7cm last August to ~12cm this

> month. That sounds pretty fast to me, but I'm wondering what other

> people's experiences have been.

>

> Due to excessive, inconvenient, and embarrassing bleeding problems

> (BCPs seem to have outlived their usefulness), I'm looking at

having

> surgery this summer. I don't want any more kids, and have a

history

> of internal bleeding (though all my bloodwork came back negative--

> does one trust the tests, or past experience?), so am leaning

toward

> a hysterectomy rather than myo, since there will be less risk of

> serious blood loss.

>

> BTW, has anyone on the list been diagnosed with Ehlers-Danlos

> syndrome? My hematologist thinks this might account for my

bleeding

> history. I'm finally seeing a connective-tissue specialist next

week

> (2 months after the referral) to look into this possibility.

>

> --Liz