Re: JANET re NYC/NYU doctors

[Guest guest]

Dear Sunny: Thanks so much for the information. You are not going to believe

this, but I am extremely familiar with NYU as this is the hospital where I have

had a number of life altering surgeries, the first back in 1976 when I was

diagnosed with a uterine (Mullerian) anomaly - just makes everything a bit more

difficult to navigate down there and the fibroid issue becomes even more

difficult. Consequently when I became pregnant in 1991, I used a high risk OBGYN

at NYU. Additionally, my breast cancer surgery was done at NYU (1994 and holding

up just fine, thank you! - Timing is everything!) Basically, they ought to name

a wing after me, but alas, I'm no Tish or Rusk $$$$$!!! Though, come to think of

it, I've certainly spent enough $ there! ) Anyway, Dr. " Q " (so Bond,

don't you think?) was one of my doctors right before the pregnancy, so when you

mentioned his name, I just about gasped! Well, perhaps he will be the one who

will be brave enough to perform the myo on me. I was just at his office last

week visiting the high risk OBGYN who delivered my daughter, and found out that

they share the same suite. In fact, I saw Edie, his assistant and she remembered

me very well. So, between your suggestion/experience with Dr. " Q " and another

wonderful woman's dealings with Dr. West, I just may have some hope! I can't

thank all of you enough for your support and encouragement. At a time when you

feel most alone, the support is so amazing and is such a blessing! Sunny, your

name suits you - thanks for the ray of hope! I'll keep you posted on my

progress. ) Sincerely, Janet P.

JANET re NYC/NYU doctors

Hello Janet, heads up here!!

I am 48 years old and had myomectomy with Dr. Quagliarello at

NYU last December. He offered hysterectomy OR myo and was perfectly

happy to do the myo " at my age " etc. As he said, once it's gone you

can't get it back. He performs many myos, including on " older " women

because he is part of the IVF program there which has a " cut-off " of

age 55. However whether I wanted to get pregnant was never an issue.

He is known to be an excellent surgeon and two of my nurses told me

he is their doctor and a favorite among the nurses.

Before Dr. Q I was also told by several docs (including another gyne

at NYU) that hysterectomy was my only option.

Don't give up, Janet!! Your doctor is out there!!

Sunny

[Guest guest]

HI!

I am 46 and have a multi nodular womb due to fibroids, one fibroid is about 14

cms long. I look about 4 to 5 months pregnant. I had a fibroid removed in the

UK in Dec 2002 and the heavy bleeding went down to 1/3. Now I am on holiday

visiting my parents who live in S. America and I have been to see 3

gynaecologists and they all say that I have to get a total hysterectomy. (One

of the doctors has been a teacher at the medical school of one of the country's

leading univeristies for 27 years.)

I don't know whether hysterectomies are done more routinely here than in

Britain. But, I do not want to get operated on as I had the dream of still

being able to get pregnant. (My mother had to babies in her early 40's and I

have an aunt who had a child at 45.)

I was told yesterday that if I had been, say 30 years old they would not have

suggested a hysterectomy, but would only have removed the fibroids.

As you mentioned a clinic's IVF treatment cut-off age as 54, I am very

interested. Could you supply more information on this, please?

I am due back in the UK early June 2004, but was being pressurised into getting

this hysterectomy done next week here, before I return. (All of the doctors here

say I must get it done. I have not had an opinion regarding this in Britain,

where they tried to be as little invasive, as possible, when they operated on me

16 months ago.)

My elderly mother wants me to get operated on here before I return. (She wants

to pay for the operation which is very expensive, out of her scarce savings.)

The advantages of being operated on in the UK are that the doctors are almost

certainly better than they are here and I don't have to pay. The disadvantage

is that I would have no one to look after me after the operation and would be

living in a flat with 3 flights of stairs to go up and that my family here are

going to be worried sick.

I would appreciate your views.

Thanks a lot.

Currie

[Guest guest]

,

If National Health will pay for a myo for you then might it not be

possible for your mother to instead spend her savings for her or

another family member to come visit and take care of you in Britain

instead? Surely this is more economical and a better deal. I would

hate to think that you were going to lose your uterus if that is not

what you desire.

--Ann

> My elderly mother wants me to get operated on here before I

return. (She wants to pay for the operation which is very expensive,

out of her scarce savings.) The advantages of being operated on in

the UK are that the doctors are almost certainly better than they are

here and I don't have to pay. The disadvantage is that I would have

no one to look after me after the operation and would be living in a

flat with 3 flights of stairs to go up and that my family here are

going to be worried sick.

>

> Currie