Fibroid Question

[Guest guest]

Hello,

I have a question about uterine fibroids. I was

recently told I have an intramural myoma the size of a

grapefruit in my uterus. I wasn't given too much

other information, other than that my treatment

options include a myomectomy or a hysterectomy. I am

31 and haven't had the opportunity to have children

yet. I still very much want some. Are there any

alternative treatment methods that have worked for

pre-menopausal women? I do NOT want surgery. Thanks!

[Guest guest]

UFE is a possibility since it's nonsurgical but they don't recommend

it to women who want children only becuase they haven't followed up

on pregnancies and births and it's overall safety. However, some

women have successful pregnancies after a UFE. I guess it's a

choice that we can make, there is no evidence that it can't work,

becuase it absolutely can. But they claim it as an " unknown " .

It seems that myo is recommended for women who want children but

yes, this is major abdominal surgery.

Jen

> I have a question about uterine fibroids. I was

> recently told I have an intramural myoma the size of a

> grapefruit in my uterus. I wasn't given too much

> other information, other than that my treatment

> options include a myomectomy or a hysterectomy. I am

> 31 and haven't had the opportunity to have children

> yet. I still very much want some. Are there any

> alternative treatment methods that have worked for

> pre-menopausal women? I do NOT want surgery.

[Guest guest]

UFE is a possibility since it's nonsurgical but they don't recommend

it to women who want children only becuase they haven't followed up

on pregnancies and births and it's overall safety. However, some

women have successful pregnancies after a UFE. I guess it's a

choice that we can make, there is no evidence that it can't work,

becuase it absolutely can. But they claim it as an " unknown " .

It seems that myo is recommended for women who want children but

yes, this is major abdominal surgery.

Jen

> I have a question about uterine fibroids. I was

> recently told I have an intramural myoma the size of a

> grapefruit in my uterus. I wasn't given too much

> other information, other than that my treatment

> options include a myomectomy or a hysterectomy. I am

> 31 and haven't had the opportunity to have children

> yet. I still very much want some. Are there any

> alternative treatment methods that have worked for

> pre-menopausal women? I do NOT want surgery.

[Guest guest]

Hi,

I am 30 and was diagnosed with 10 cm (grapefruit size) and 2,5 cm myomas 5

months ago. I didnt have the slightest idea I was carrying them. Because I had

no complaints like urgency to urinate, heavy or rather long periods, pain. I

consulted 4 or 5 doctors. One of them told me not to hurry for the operation.

The others said that it was big enough to deform the uterus, so it was to be

removed with myomectomy.

I dont have a baby, either but I want to. I am confused about the operation.

Some of the doctors said that myomectomy can turn into hysterectomy rarely. If

it is so, then I should try to get pregnant with these.

Then I found this group and heard about successful myomectomies of very big

fibroids. So I believe there are skillful surgeons who can do it.

But the question is, since I dont have major complaints why should I go through

such a major surgery? Or when should be the timing of the surgery?

After an abdominal removal of a grapefruit size fibroid you have to get a

c-section for your baby. As far as I know it takes 3 months to heal after

surgery. And rarely myomas can be bad tumors, can show malign degeneration, we

dont know what we are carrying. so you have to be careful if you want to watch

and wait. I think uterine embolization or temporary shrinking of tumors with

Gn-RH analogue hormones are not good options for premenapausal women.

If you are also asymptomatic I would like to hear your opinion.

Hysterectomy is definitely not your option at age 31.

These are some useful websites which were mailed to me by the members of this

wonderful group when I needed info, special thanks to Aztek once again.

Take care (I really had bad times since I learnt about them). I think surgical

technics have developed so much in the last 10 years,the fundemantals of

medicine have changed so much, too. Everyone in the group should be optimistic.

Bye…

The Fibroid Place http://login.prospero.com/

http://groups.yahoo.com/group/uterinefibroids

http://www.smartgroups.com/groups/fibroids (on which I am Cat)

Yahoo! Groups: embo at http://groups.yahoo.com/group/embo

Yahoo!Groups: Yahoo.com/group/ttcmyomectomy

Sex, Lies and the truth about uterine Fibroids:

http://www.uterinefibroids.com/h_home.htm

myomectomy an alternative to hysterectomy:

http://womenshealth.about.com/library/weekly/aa062398.htm

BMA-informationon specialists:

http://www.bma.org.uk/ap.nsf/Content/infospecialists

Questions to ask before you have surgery:

http://womenshealth.about.com/library/blsrggstindex.htm

Best practice and research clinical obstet.:

http://www.harcourt-international.com/journals/beog/

All about myomectomy for removal of ...:http://www.myomectomy.net/

Society of interventional

Radiology-Pat----http://www.sirweb.org/patPub/uterine.shtml.

National Uterine Fibroids Foundation:

http://www.nuff.org/links_patientinformation.htm

http://freespace.virgin.net/elena/fibroidsuk.html

http://www.fibroiduae.com/fibro2a.htm

Amazon Books: search Fibroids www.amazon.com

" (J.P.) " jpspartan94@...> wrote:

Are there any alternative treatment methods that have worked for

pre-menopausal women? I do NOT want surgery. Thanks!

[Guest guest]

Hi Silent Violet

I am 31 and also have a grapefruit-sized intramural

(mostly embedded) myoma that was discovered a month

ago. The only symptom I had was the frequent

urination, so I figured I just had a bladder

infection. Other than that and a little spotting, I

am virtually symptom-free.

I went to two fairly young doctors who both suggested

the wait-and-see approach. They did not seem to jump

at the surgery approach. I agree. We are too young

and still hope for babies, so unless it is hurting us

in some way, why take the risk? Is that how you feel?

Maybe if we can wait, there might be a better

alternative or cure somewhere down the road? Let's

hope!

JP

--- s v silentttviolet@...> wrote:

> I am 30 and was diagnosed with 10 cm (grapefruit

> size) and 2,5 cm myomas 5 months ago. I didnt have

> the slightest idea I was carrying them.

[Guest guest]

hi julie,

please read this mesage which Ter sent to me: 'I am in a similar situation, but

my fibroids are much bigger. I am 30 no

children would like to have at least one child. I have a 17cm fibroid. My

uterus is distorted. I have no symptoms either but the bigger they are the

more difficult the myo will be. If I were you I would get them removed

before they get bigger...you don't want to be in my siutation. I am having

a hard time finding a doctor who is skilled with very large fibroids.

Fibroids can get big enough to move organs (bladder, bowel).

Also, some wome have conceived with fibroids. It depends on the location.

Ask a lot of questions when speaking to your doctors. Every case is unique.

I am scheduled for a myo April 29th. I have a greater chance of it turning

into a hyster because of the size...not trying to scare you, but inform you.'

julie, actually only one doctor told me to wait and then get pregnant with it

within 1-2 years time. thats what kept me away from the operation room. but what

if it gets bigger (even 1 or 2 cms) and makes the operation a risky one? yours

and mine are really big. mine is also an intamural, 10 cm one. I have a very

slight bulkiness in my abdomen area, my preiod lasts 1 week and yes sometimes

spotting, just these symptoms.

well, I am really confused. but I dont have a good doctor who told me to watch

and see, most of them recommended operation. besides, if I get pregnant with

this, it will get bigger, maybe I ll have 20 cm fibroid which will most probably

cause pain, long bed rests,early labor, etc. I dont want this happen to me,

either.

but yes, operation has risks, too. adhesions that can give constant pain, cause

fertility problems.

We need to make the best decision which will not affect quality of life and

fertility as well. lately I have been infavour of the operation.

" (J.P.) " jpspartan94@...> wrote:

Hi Silent Violet

I am 31 and also have a grapefruit-sized intramural

(mostly embedded) myoma that was discovered a month

ago. The only symptom I had was the frequent

urination, so I figured I just had a bladder

infection. Other than that and a little spotting, I

am virtually symptom-free.

I went to two fairly young doctors who both suggested

the wait-and-see approach. They did not seem to jump

at the surgery approach. I agree. We are too young

and still hope for babies, so unless it is hurting us

in some way, why take the risk? Is that how you feel?

Maybe if we can wait, there might be a better

alternative or cure somewhere down the road? Let's

hope!

JP

--- s v silentttviolet@...> wrote:

> I am 30 and was diagnosed with 10 cm (grapefruit

> size) and 2,5 cm myomas 5 months ago. I didnt have

> the slightest idea I was carrying them.