Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Hi Laurie, Just the presence of a fibroid can raise her CA-125 level, and as far as a complex cyst goes, at one point I was diagnosed with one too. What happened to it? Beats me, but a few ultrasounds later it was gone. (Lucikly my gyn didn't jump the gun!). Since the ultrasound is only as good as the skill of the tech who took it, another scan might be appropriate as well as a second opinion. I agree it sounds like she's being panicked into surgery that might not be needed, but convincing her of that might be difficult. You're a good friend for trying though. Good for her hubby too! Perhaps he will make sure she get's another scan, perferably at a different facility where they haven't " heard " of her cyst, and which hopefully comes back clean. My understanding is that what determines the diagnosis of a complex cyst is a very thin membrane, and if the quality of the film isn't great....well.... Hope this helps. Gerri > Hi > > I just heard from a colleague of mine that his wife was given the CA- > 125 test because they saw a small, complex cyst on her ovary (along > with a fibroid). The test results came back somewhat high and she > has now been told to have both her ovaries removed asap. From what I > can see, it looks to me like she is being panic'ed into a surgery > that she might not need. Lucky for her, her husband doesn't agree > that she is getting valid medical advice and knowing of my fibroid > history, asked me what I thought. > > Well, I am not a doctor but I do know a great group of knowledgeable > women who might help me give this woman some advice (including > encouraging her to join this group.) So I'm hoping some of you can > help me with some info to pass along to her. > > thanks in advance, > > laurie g. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 Hi, How about suggesting that she see a Gyn Oncologist and have them review her tests? Even it is determined that she needs to proceed with the surgery it might be a good idea to have such a surgeon do it anyway. Cheryl > Hi > > I just heard from a colleague of mine that his wife was given the CA- > 125 test because they saw a small, complex cyst on her ovary (along > with a fibroid). The test results came back somewhat high and she > has now been told to have both her ovaries removed asap. From what I > can see, it looks to me like she is being panic'ed into a surgery > that she might not need. Lucky for her, her husband doesn't agree > that she is getting valid medical advice and knowing of my fibroid > history, asked me what I thought. > > Well, I am not a doctor but I do know a great group of knowledgeable > women who might help me give this woman some advice (including > encouraging her to join this group.) So I'm hoping some of you can > help me with some info to pass along to her. > > thanks in advance, > > laurie g. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi First, thanks to anyone (there were a couple of people) who responded to my post. As luck or coincidence would have it, right when I was asking this question there was some very lively discussions on 'embo' because of some recent press on ovarian cancer which unfortunately lists, as symptoms, many of the same ones we fibroidians have experienced. My friend (and his wife) are definitely on the path now to see some specialists and to ask some piercing questions - the original blanket suggestion that she have her ovaries removed without so much as a biopsy created some panic but now they are starting to take a more structured approach. Most of us here have heard the " fibroids can be cancer " or the " fibroids can become cancer " scare and then went on to learn that this is not factual. But if someone has complex ovarian cyst, and -perhaps- some other indicators, what are the odds then? Because in this case, you COULD be dealing with something truly life-threatening. I'm hoping, of course, that this is all a false alarm for her; and now in addition she knows what to do about her fibroid if and when the time comes. best, laurie g. Date: Sun, 13 Jun 2004 10:11:20 -0000 Hi, How about suggesting that she see a Gyn Oncologist and have them review her tests? Even it is determined that she needs to proceed with the surgery it might be a good idea to have such a surgeon do it anyway. Cheryl Quote Link to comment Share on other sites More sharing options...
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