Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Rita, Vent all you want as we will listen. I fell 2 nights ago and was lucky as all I got was a big scrap burn on my elbo. I did put a hole in the sheet rock so it got the worse of it. I too do not like the falling and the feeling of not being able to do things. But I am stubborn and make myself go out and walk over rocks and things with the help of my wife to be. I have to use a cane all the time and will go to a walker soon but I am going to put a horn and a bell on the walker and for each holiday I am going to decorate it. You hang in there and vent when ever you want. dennis in Alabama --- Rita Diclemente mamadee1@...> wrote: > > Well I did it again, fell while walking down the > corridor of our > building, had to call the local fire department to > come pick me up, > this must be fall number cazillion. For you new > people who don't know > me, I am 70 and live in NH, and have had PLS for > over 30 years. I have > been very lucky with slow progression of this PLS, > having had my share > of falls, stitches, broken bones. Now it's my ribs, > and I have two > grandchildren graduating this upcoming weekend, one > in NH and one in RI, > I didn't need this to happen. I am usually pretty > upbeat and don't get > depressed to often and try to up and encourage > other's to hang in here > and do the best you can with what you have, and > thats how I have tried > to survive this stupid disease. But now I am having > a problem with > being sick of falling, being sick of HURTING, being > sick of being waited > on because I can't o for myself (as my PLS is > progressing on a downward > direction) I am just so sick of having this disease, > it has been such a > part of my life for so long, it's starting to effect > me mentally. I > just hope this is another of my hurdles, and that > once I stop hurting > that I can bounce back. I am writing this not > knowing if I will send > it, it just feels good to put my feelings into > words. My dear husband > doesn't understand, and when we talk about it, he > starts to " preach " to > me and that just makes matter's worse, and makes me > pull back even > further. I am not looking for sympathy, just need > to vent and what > better place to vent is with other's who are > experiencing some of the > same feelings. > > > Thanks for listening! > > Love & Hugs > Rita > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 It is and you will. 30 years, your an inspiration. I can relate. I fell 4 and half weeks ago and crack my tailbone. The first 2 weeks I felt just like you. Sick and tired of being sick and tired and having my sons wedding coming up. It is healing nicely and I have been praticing dancing to see how much I can do, with out that great pain in my...LOL Hang in there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Dennis and Rita, I decorated my walker (I call it my " wheels " ) for my son's wedding and it was a hit. Several times when I was not using it, I found someone else was!! Plus I think I had the biggest smile of anyone there and most importantly my son told me I was elegant!! This new disease did not hinder nor put a shadow on the wonderful memories we made at our child's happiest time. My best to both of you. Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Dear Rita: I am so sorry to hear you are having some DOWN TIME, in more ways than one. You are more than entitled to vent with us, as you have always been there for us and are usually the first one to try and pull our spirit's up (along with Flora and others) so consider yourself 'hugged' from Northern Ontario and find comfort in knowing we all understand what you are feeling. No preaching from this gal, just wanted to let you know you are in my thoughts Rita. Hope you are feeling a bit better. Take care. Jo. Falling Again Well I did it again, fell while walking down the corridor of our building, had to call the local fire department to come pick me up, this must be fall number cazillion. For you new people who don't know me, I am 70 and live in NH, and have had PLS for over 30 years. I have been very lucky with slow progression of this PLS, having had my share of falls, stitches, broken bones. Now it's my ribs, and I have two grandchildren graduating this upcoming weekend, one in NH and one in RI, I didn't need this to happen. I am usually pretty upbeat and don't get depressed to often and try to up and encourage other's to hang in here and do the best you can with what you have, and thats how I have tried to survive this stupid disease. But now I am having a problem with being sick of falling, being sick of HURTING, being sick of being waited on because I can't o for myself (as my PLS is progressing on a downward direction) I am just so sick of having this disease, it has been such a part of my life for so long, it's starting to effect me mentally. I just hope this is another of my hurdles, and that once I stop hurting that I can bounce back. I am writing this not knowing if I will send it, it just feels good to put my feelings into words. My dear husband doesn't understand, and when we talk about it, he starts to " preach " to me and that just makes matter's worse, and makes me pull back even further. I am not looking for sympathy, just need to vent and what better place to vent is with other's who are experiencing some of the same feelings. Thanks for listening! Love & Hugs Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 THANKS RITA, I HAVE HAD PLS FOR ALMOST 10 YEARS NOW WHICH STARTED IN MY TONGUE. I'M 66, AND HAVE A WONDERFUL CAREGIVER, " MY HUSBAND. " I USUALLY DON'T FOCUS ON MY DISEASE AND DO WHAT I CAN. I HAVE 2 CHILDREN, MICHELE, AGE 44, AND SCOTT, 42. I HAVE TWO GRANDDAUGHTERS, MELISSA, WHO WILL BE 20, AND JESSICA, 17, PLUS THREE GRAND-DOGS! MY SON IS SINGLE, NEVER MARRIED, AND IS CONTENT WITH HIS STATUS. I USE A DYNA WRITE TO COMMUNICATE WITH AND ALSO A WALKER, IF THERE IS ALOT OF WALKING, I'LL USE MY WHEELCHAIR. NEEDLESS TO SAY THERE IS NEVER A DULL MOMENT AROUND HERE! DENISE > > > Date: 2006/06/10 Sat PM 02:53:52 EDT > To: PLS-FRIENDS > Subject: Re: Falling Again > > Dear Rita: > > I am so sorry to hear you are having some DOWN TIME, in more ways than one. You are more than entitled to vent with us, as you have always been there for us and are usually the first one to try and pull our spirit's up (along with Flora and others) so consider yourself 'hugged' from Northern Ontario and find comfort in knowing we all understand what you are feeling. > > No preaching from this gal, just wanted to let you know you are in my thoughts Rita. > > Hope you are feeling a bit better. > > Take care. > > Jo. > > Falling Again > > > > Well I did it again, fell while walking down the corridor of our > building, had to call the local fire department to come pick me up, > this must be fall number cazillion. For you new people who don't know > me, I am 70 and live in NH, and have had PLS for over 30 years. I have > been very lucky with slow progression of this PLS, having had my share > of falls, stitches, broken bones. Now it's my ribs, and I have two > grandchildren graduating this upcoming weekend, one in NH and one in RI, > I didn't need this to happen. I am usually pretty upbeat and don't get > depressed to often and try to up and encourage other's to hang in here > and do the best you can with what you have, and thats how I have tried > to survive this stupid disease. But now I am having a problem with > being sick of falling, being sick of HURTING, being sick of being waited > on because I can't o for myself (as my PLS is progressing on a downward > direction) I am just so sick of having this disease, it has been such a > part of my life for so long, it's starting to effect me mentally. I > just hope this is another of my hurdles, and that once I stop hurting > that I can bounce back. I am writing this not knowing if I will send > it, it just feels good to put my feelings into words. My dear husband > doesn't understand, and when we talk about it, he starts to " preach " to > me and that just makes matter's worse, and makes me pull back even > further. I am not looking for sympathy, just need to vent and what > better place to vent is with other's who are experiencing some of the > same feelings. > > > Thanks for listening! > > Love & Hugs > Rita > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 I know what you mean Rita about getting discouraged (although I have only (only?)) had PLS for seven years. But I keeping hoping for a plateau and its not happening. I worry about what is going to happen to me and can't stand the thought of being totally incapacitated - and then I get depressed. My husband, who is wonderful to me, says " don't worry, we'll get thru it " but that doesn't help much (some because I thank God that I have him). So go ahead and vent, you are among friends who understand. Susieq Sent: Friday, June 9, 2006 1:45:39 PM Subject: Falling Again Well I did it again, fell while walking down the corridor of our building, had to call the local fire department to come pick me up, this must be fall number cazillion. For you new people who don't know me, I am 70 and live in NH, and have had PLS for over 30 years. I have been very lucky with slow progression of this PLS, having had my share of falls, stitches, broken bones. Now it's my ribs, and I have two grandchildren graduating this upcoming weekend, one in NH and one in RI, I didn't need this to happen. I am usually pretty upbeat and don't get depressed to often and try to up and encourage other's to hang in here and do the best you can with what you have, and thats how I have tried to survive this stupid disease. But now I am having a problem with being sick of falling, being sick of HURTING, being sick of being waited on because I can't o for myself (as my PLS is progressing on a downward direction) I am just so sick of having this disease, it has been such a part of my life for so long, it's starting to effect me mentally. I just hope this is another of my hurdles, and that once I stop hurting that I can bounce back. I am writing this not knowing if I will send it, it just feels good to put my feelings into words. My dear husband doesn't understand, and when we talk about it, he starts to " preach " to me and that just makes matter's worse, and makes me pull back even further. I am not looking for sympathy, just need to vent and what better place to vent is with other's who are experiencing some of the same feelings. Thanks for listening! Love & Hugs Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 SusieQ wrote: > > I know what you mean Rita about getting discouraged (although I have > only (only?)) had PLS for seven years. But I keeping hoping for a > plateau and its not happening. I worry about what is going to happen > to me and can't stand the thought of being totally incapacitated - and > then I get depressed. My husband, who is wonderful to me, says " don't > worry, we'll get thru it " but that doesn't help much (some because I > thank God that I have him). So go ahead and vent, you are among > friends who understand. Susieq > > Sent: Friday, June 9, 2006 1:45:39 PM > Subject: Falling Again > > Well I did it again, fell while walking down the corridor of our > building, had to call the local fire department to come pick me up, > this must be fall number cazillion. For you new people who don't know > me, I am 70 and live in NH, and have had PLS for over 30 years. I have > been very lucky with slow progression of this PLS, having had my share > of falls, stitches, broken bones. Now it's my ribs, and I have two > grandchildren graduating this upcoming weekend, one in NH and one in RI, > I didn't need this to happen. I am usually pretty upbeat and don't get > depressed to often and try to up and encourage other's to hang in here > and do the best you can with what you have, and thats how I have tried > to survive this stupid disease. But now I am having a problem with > being sick of falling, being sick of HURTING, being sick of being waited > on because I can't o for myself (as my PLS is progressing on a downward > direction) I am just so sick of having this disease, it has been such a > part of my life for so long, it's starting to effect me mentally. I > just hope this is another of my hurdles, and that once I stop hurting > that I can bounce back. I am writing this not knowing if I will send > it, it just feels good to put my feelings into words. My dear husband > doesn't understand, and when we talk about it, he starts to " preach " to > me and that just makes matter's worse, and makes me pull back even > further. I am not looking for sympathy, just need to vent and what > better place to vent is with other's who are experiencing some of the > same feelings. > > Thanks for listening! > > Love & Hugs > Rita > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Rita: You are such a sweetheart! You are not alone in 'down days' time as I have been experiencing episodes myself lately. That being said..........we are tough old bird's and we flock together when the going get's tough. Life is not so lonely now that we have computers to stay in touch with people who care and know what we are going through. Better days are ahead, as I feel they will find a cure for these diseases. Take care Rita, and don't go doing any of that fancy dancing for awhile............OKAY! Hugs Jo. Falling Again > > Well I did it again, fell while walking down the corridor of our > building, had to call the local fire department to come pick me up, > this must be fall number cazillion. For you new people who don't know > me, I am 70 and live in NH, and have had PLS for over 30 years. I have > been very lucky with slow progression of this PLS, having had my share > of falls, stitches, broken bones. Now it's my ribs, and I have two > grandchildren graduating this upcoming weekend, one in NH and one in RI, > I didn't need this to happen. I am usually pretty upbeat and don't get > depressed to often and try to up and encourage other's to hang in here > and do the best you can with what you have, and thats how I have tried > to survive this stupid disease. But now I am having a problem with > being sick of falling, being sick of HURTING, being sick of being waited > on because I can't o for myself (as my PLS is progressing on a downward > direction) I am just so sick of having this disease, it has been such a > part of my life for so long, it's starting to effect me mentally. I > just hope this is another of my hurdles, and that once I stop hurting > that I can bounce back. I am writing this not knowing if I will send > it, it just feels good to put my feelings into words. My dear husband > doesn't understand, and when we talk about it, he starts to " preach " to > me and that just makes matter's worse, and makes me pull back even > further. I am not looking for sympathy, just need to vent and what > better place to vent is with other's who are experiencing some of the > same feelings. > > Thanks for listening! > > Love & Hugs > Rita > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Rita: You are such a sweetheart! You are not alone in 'down days' time as I have been experiencing episodes myself lately. That being said..........we are tough old bird's and we flock together when the going get's tough. Life is not so lonely now that we have computers to stay in touch with people who care and know what we are going through. Better days are ahead, as I feel they will find a cure for these diseases. Take care Rita, and don't go doing any of that fancy dancing for awhile............OKAY! Hugs Jo. Falling Again > > Well I did it again, fell while walking down the corridor of our > building, had to call the local fire department to come pick me up, > this must be fall number cazillion. For you new people who don't know > me, I am 70 and live in NH, and have had PLS for over 30 years. I have > been very lucky with slow progression of this PLS, having had my share > of falls, stitches, broken bones. Now it's my ribs, and I have two > grandchildren graduating this upcoming weekend, one in NH and one in RI, > I didn't need this to happen. I am usually pretty upbeat and don't get > depressed to often and try to up and encourage other's to hang in here > and do the best you can with what you have, and thats how I have tried > to survive this stupid disease. But now I am having a problem with > being sick of falling, being sick of HURTING, being sick of being waited > on because I can't o for myself (as my PLS is progressing on a downward > direction) I am just so sick of having this disease, it has been such a > part of my life for so long, it's starting to effect me mentally. I > just hope this is another of my hurdles, and that once I stop hurting > that I can bounce back. I am writing this not knowing if I will send > it, it just feels good to put my feelings into words. My dear husband > doesn't understand, and when we talk about it, he starts to " preach " to > me and that just makes matter's worse, and makes me pull back even > further. I am not looking for sympathy, just need to vent and what > better place to vent is with other's who are experiencing some of the > same feelings. > > Thanks for listening! > > Love & Hugs > Rita > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Rita: You are such a sweetheart! You are not alone in 'down days' time as I have been experiencing episodes myself lately. That being said..........we are tough old bird's and we flock together when the going get's tough. Life is not so lonely now that we have computers to stay in touch with people who care and know what we are going through. Better days are ahead, as I feel they will find a cure for these diseases. Take care Rita, and don't go doing any of that fancy dancing for awhile............OKAY! Hugs Jo. Falling Again > > Well I did it again, fell while walking down the corridor of our > building, had to call the local fire department to come pick me up, > this must be fall number cazillion. For you new people who don't know > me, I am 70 and live in NH, and have had PLS for over 30 years. I have > been very lucky with slow progression of this PLS, having had my share > of falls, stitches, broken bones. Now it's my ribs, and I have two > grandchildren graduating this upcoming weekend, one in NH and one in RI, > I didn't need this to happen. I am usually pretty upbeat and don't get > depressed to often and try to up and encourage other's to hang in here > and do the best you can with what you have, and thats how I have tried > to survive this stupid disease. But now I am having a problem with > being sick of falling, being sick of HURTING, being sick of being waited > on because I can't o for myself (as my PLS is progressing on a downward > direction) I am just so sick of having this disease, it has been such a > part of my life for so long, it's starting to effect me mentally. I > just hope this is another of my hurdles, and that once I stop hurting > that I can bounce back. I am writing this not knowing if I will send > it, it just feels good to put my feelings into words. My dear husband > doesn't understand, and when we talk about it, he starts to " preach " to > me and that just makes matter's worse, and makes me pull back even > further. I am not looking for sympathy, just need to vent and what > better place to vent is with other's who are experiencing some of the > same feelings. > > Thanks for listening! > > Love & Hugs > Rita > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Joanne Taniwa wrote: > > Rita: > > You are such a sweetheart! You are not alone in 'down days' time as I > have been experiencing episodes myself lately. That being > said..........we are tough old bird's and we flock together when the > going get's tough. > > Life is not so lonely now that we have computers to stay in touch with > people who care and know what we are going through. > > Better days are ahead, as I feel they will find a cure for these diseases. > > Take care Rita, and don't go doing any of that fancy dancing for > awhile............OKAY! > > Hugs > Jo. > > Falling Again > > > > Well I did it again, fell while walking down the corridor of our > > building, had to call the local fire department to come pick me up, > > this must be fall number cazillion. For you new people who don't know > > me, I am 70 and live in NH, and have had PLS for over 30 years. I have > > been very lucky with slow progression of this PLS, having had my share > > of falls, stitches, broken bones. Now it's my ribs, and I have two > > grandchildren graduating this upcoming weekend, one in NH and one in RI, > > I didn't need this to happen. I am usually pretty upbeat and don't get > > depressed to often and try to up and encourage other's to hang in here > > and do the best you can with what you have, and thats how I have tried > > to survive this stupid disease. But now I am having a problem with > > being sick of falling, being sick of HURTING, being sick of being waited > > on because I can't o for myself (as my PLS is progressing on a downward > > direction) I am just so sick of having this disease, it has been such a > > part of my life for so long, it's starting to effect me mentally. I > > just hope this is another of my hurdles, and that once I stop hurting > > that I can bounce back. I am writing this not knowing if I will send > > it, it just feels good to put my feelings into words. My dear husband > > doesn't understand, and when we talk about it, he starts to " preach " to > > me and that just makes matter's worse, and makes me pull back even > > further. I am not looking for sympathy, just need to vent and what > > better place to vent is with other's who are experiencing some of the > > same feelings. > > > > Thanks for listening! > > > > Love & Hugs > > Rita > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Joanne Taniwa wrote: > > Rita: > > You are such a sweetheart! You are not alone in 'down days' time as I > have been experiencing episodes myself lately. That being > said..........we are tough old bird's and we flock together when the > going get's tough. > > Life is not so lonely now that we have computers to stay in touch with > people who care and know what we are going through. > > Better days are ahead, as I feel they will find a cure for these diseases. > > Take care Rita, and don't go doing any of that fancy dancing for > awhile............OKAY! > > Hugs > Jo. > > Falling Again > > > > Well I did it again, fell while walking down the corridor of our > > building, had to call the local fire department to come pick me up, > > this must be fall number cazillion. For you new people who don't know > > me, I am 70 and live in NH, and have had PLS for over 30 years. I have > > been very lucky with slow progression of this PLS, having had my share > > of falls, stitches, broken bones. Now it's my ribs, and I have two > > grandchildren graduating this upcoming weekend, one in NH and one in RI, > > I didn't need this to happen. I am usually pretty upbeat and don't get > > depressed to often and try to up and encourage other's to hang in here > > and do the best you can with what you have, and thats how I have tried > > to survive this stupid disease. But now I am having a problem with > > being sick of falling, being sick of HURTING, being sick of being waited > > on because I can't o for myself (as my PLS is progressing on a downward > > direction) I am just so sick of having this disease, it has been such a > > part of my life for so long, it's starting to effect me mentally. I > > just hope this is another of my hurdles, and that once I stop hurting > > that I can bounce back. I am writing this not knowing if I will send > > it, it just feels good to put my feelings into words. My dear husband > > doesn't understand, and when we talk about it, he starts to " preach " to > > me and that just makes matter's worse, and makes me pull back even > > further. I am not looking for sympathy, just need to vent and what > > better place to vent is with other's who are experiencing some of the > > same feelings. > > > > Thanks for listening! > > > > Love & Hugs > > Rita > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Joanne Taniwa wrote: > > Rita: > > You are such a sweetheart! You are not alone in 'down days' time as I > have been experiencing episodes myself lately. That being > said..........we are tough old bird's and we flock together when the > going get's tough. > > Life is not so lonely now that we have computers to stay in touch with > people who care and know what we are going through. > > Better days are ahead, as I feel they will find a cure for these diseases. > > Take care Rita, and don't go doing any of that fancy dancing for > awhile............OKAY! > > Hugs > Jo. > > Falling Again > > > > Well I did it again, fell while walking down the corridor of our > > building, had to call the local fire department to come pick me up, > > this must be fall number cazillion. For you new people who don't know > > me, I am 70 and live in NH, and have had PLS for over 30 years. I have > > been very lucky with slow progression of this PLS, having had my share > > of falls, stitches, broken bones. Now it's my ribs, and I have two > > grandchildren graduating this upcoming weekend, one in NH and one in RI, > > I didn't need this to happen. I am usually pretty upbeat and don't get > > depressed to often and try to up and encourage other's to hang in here > > and do the best you can with what you have, and thats how I have tried > > to survive this stupid disease. But now I am having a problem with > > being sick of falling, being sick of HURTING, being sick of being waited > > on because I can't o for myself (as my PLS is progressing on a downward > > direction) I am just so sick of having this disease, it has been such a > > part of my life for so long, it's starting to effect me mentally. I > > just hope this is another of my hurdles, and that once I stop hurting > > that I can bounce back. I am writing this not knowing if I will send > > it, it just feels good to put my feelings into words. My dear husband > > doesn't understand, and when we talk about it, he starts to " preach " to > > me and that just makes matter's worse, and makes me pull back even > > further. I am not looking for sympathy, just need to vent and what > > better place to vent is with other's who are experiencing some of the > > same feelings. > > > > Thanks for listening! > > > > Love & Hugs > > Rita > > > > Quote Link to comment Share on other sites More sharing options...
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