Re: Re: Sun and heat effects?

[Guest guest]

I do get stiff if cold esp if outside and its cold, and windy. Florida

doesn't really have cold maybe we get a day or two thats below 40. on those

type days i definitely get more stiffness in legs for sure. i really don't

know how i would do if lived somewhere that had real winter for months.

i like the name screaming chicken disease. LOL does feel that way

best wishes

marfla

Be Blessed

Re: Re: Sun and heat effects?

> I'm exactly the reverse. Oh, for sure I have to keep hydrated and stuff

> when it is hot, but heat is fine with me, it is the cold that makes me

> fold

> up. I start to whine when it gets in the 50s, and can't hardly function

> when it is down in the 30s. It isn't so much a matter of feeling weak

> when

> it is cold, I tend more to stiffen up and am unable to move freely. Cold

> weather used to be no big thing for me before, but since I got this

> Screaming Chicken Disease cold weather really gets to me.

>

>

>

>>Yes, cooling down used to get rid of the symptoms immediately for me, too.

>>In the early days of my PLS, the foot drop would resolve completely; now

>>it

>>doesn't, but I feel much weaker if I am too warm. Even a warm shower

>>'wipes

>>me out' for awhile.

>>

>>As for the similarity of heat exhaustion, I have noticed that no matter

>>how

>>warm I get, I don't perspire. I just get red but remain dry. Of course,

>>perspiration is nature's way of cooling us off. That just doesn't happen

>>with me anymore.

>>

>>Dolores

>>

>>

>>----- Original Message -----

>>

>>

>>> when i cool down i do feel better meaning i dont feel those immediate

>>> sx's one has, yet i will experience difficulties for few days if been

>>> out in the heat for hours or full day.

>>>

>>> if in a store, home, inside, and get hot, i get the immediate sx's

>>> similiar to heat exhaustion i.e. weakness, blurred vision, nausea,

>>> imbalance, faint like, etc... yet if cool down those seem to subside

>>> and im ok.

>>

>>

>>

>>

>>

>>

[Guest guest]

I live up in northern Florida, near Live Oak. When my Mom died a couple of

years ago I had to run up to land in February. There was ice on the

ground and everything. That was cold enough for me. I don't understand

how people in Canada and the northern states can handle it, I know I

couldn't.

>I do get stiff if cold esp if outside and its cold, and windy. Florida

>doesn't really have cold maybe we get a day or two thats below 40. on those

>type days i definitely get more stiffness in legs for sure. i really don't

>know how i would do if lived somewhere that had real winter for months.

>

>i like the name screaming chicken disease. LOL does feel that way

>

>best wishes

>marfla

>Be Blessed

Galen Hekhuis NpD, JFR, GWA ghekhuis@...

Illiterate? Write for FREE help

[Guest guest]

Oh yeah, In Nov 2003 I had to go to our Central office which is in Philly.

The few days I was there the wind chill was around 0, and temp around 25.

OMG. Now I don't have winter clothing. I took sweatshirts/jeans, had to

buy shoes more " wintery " , had a coat that is fine for Florida (thin lined).

I froze. However, i hadn't started having the problems I have now days.

Only thing happening back then was the cognitivie issues, some imbalance,

etc.... but not the spasms/stiffness.

I hate the heat but I prefer not to shovel snow either LOL

marfla

Be Blessed

Re: Re: Sun and heat effects?

>I live up in northern Florida, near Live Oak. When my Mom died a couple of

> years ago I had to run up to land in February. There was ice on the

> ground and everything. That was cold enough for me. I don't understand

> how people in Canada and the northern states can handle it, I know I

> couldn't.

>

>

>

>>I do get stiff if cold esp if outside and its cold, and windy. Florida

>>doesn't really have cold maybe we get a day or two thats below 40. on

>>those

>>type days i definitely get more stiffness in legs for sure. i really

>>don't

>>know how i would do if lived somewhere that had real winter for months.

>>

>>i like the name screaming chicken disease. LOL does feel that way

>>

>>best wishes

>>marfla

>>Be Blessed

>

> Galen Hekhuis NpD, JFR, GWA ghekhuis@...

> Illiterate? Write for FREE help

>

>

>

>

>

[Guest guest]

In a message dated 4/24/2006 4:02:27 P.M. Eastern Standard Time,

marfla04@... writes:

I have hashimoto thyroiditis also. -Norma

[Guest guest]

Marfla, I have also wondered about the connection. In 1989 I had what was

called post viral syndrome which presented like rheumatoid arthritis and

lasted for three years.

-Norma

[Guest guest]

Norma, I have been googling thyroiditis and heat intolerance. Came across

lots of info on how thyroid diseases can also be part of neuromuscular

disorders. seems mainly if go untreated, yet although i am on treatment,

have been for years, still makes one wonder what role this autoimmune

disorder plays in the overall picture of what is happening to ones body.

marfla

Be Blessed

Re: Re: Sun and heat effects?

>

> In a message dated 4/24/2006 4:02:27 P.M. Eastern Standard Time,

> marfla04@... writes:

>

> I have hashimoto thyroiditis also. -Norma

>

>

>

>

[Guest guest]

maybe one of these days there will be a specialty of Autoimmun-ologists.

One doctor that can cover all autoimmune disorders rather than having to

rheum, endo, neuro, internal, gyn, etc....

what a concept, one doctor that can cover all of the patients health issues.

marfla

Be Blessed

Re: Re: Sun and heat effects?

> Marfla, I have also wondered about the connection. In 1989 I had what

> was

> called post viral syndrome which presented like rheumatoid arthritis and

> lasted for three years.

> -Norma

>

>

>

[Guest guest]

Very common with MS.

marfla04 wrote:

> i tried googling HSP and heat intolerance but didn't seem to find

> much on if related.

>

> marfla

[Guest guest]

Me too - in fact I think that is much more typical for PLS.

Galen Hekhuis wrote:

> I'm exactly the reverse. Oh, for sure I have to keep hydrated and stuff

> when it is hot, but heat is fine with me, it is the cold that makes me

> fold

> up. I start to whine when it gets in the 50s, and can't hardly function

> when it is down in the 30s. It isn't so much a matter of feeling weak

> when

> it is cold, I tend more to stiffen up and am unable to move freely. Cold

> weather used to be no big thing for me before, but since I got this

> Screaming Chicken Disease cold weather really gets to me.

[Guest guest]

yeppers but MS has been ruled out.

marfla

Be Blessed

Re: Re: Sun and heat effects?

> Very common with MS.

>

> marfla04 wrote:

>

>> i tried googling HSP and heat intolerance but didn't seem to find

>> much on if related.

>>

>> marfla

>

>

>

>

>

>

[Guest guest]

Galen, et al,

We 'Canucks' come from a hearty stock - we just cope well, and get on with it,

or leave for the winter months to Florida and points South, LOL.

,

from London, Ontario, Canada.

ricturn@...

Galen Hekhuis ghekhuis@...> wrote:

I live up in northern Florida, near Live Oak. When my Mom died a couple of

years ago I had to run up to land in February. There was ice on the

ground and everything. That was cold enough for me. I don't understand

how people in Canada and the northern states can handle it, I know I

couldn't.

>I do get stiff if cold esp if outside and its cold, and windy. Florida

>doesn't really have cold maybe we get a day or two thats below 40. on those

>type days i definitely get more stiffness in legs for sure. i really don't

>know how i would do if lived somewhere that had real winter for months.

>

>i like the name screaming chicken disease. LOL does feel that way

>

>best wishes

>marfla

>Be Blessed

Galen Hekhuis NpD, JFR, GWA ghekhuis@...

Illiterate? Write for FREE help