Re: Focused Ultrasound Surgery

[Guest guest]

I went through the screening process for this experimental treatment. The

focused ultrasound is like a pin point and zaps (destroys the tissue in that

area). It is guided to its destination using MRI. You are in the MRI tube face

down for about 4 hours while they zap the fibroid(s). Recovery is immediate.

Just some soreness for staying still in the tube. I believe the study is over

but the treatment should be available shortly. This was done at Brighams and

Women's Boston.

Polly

[Guest guest]

Hi Janie,

I had FUS on Jan. 20, 2004. Since the treatment I have had relief from back pain

and less frequent urination. I never had trouble with my periods.

I had one fibroid measuring 10 cm. I still feel the fibroid, esp. when my

bladder is full. I don't enjoy looking " just a little pregnant " ...but then

again, all my sisters seem to have that rounded belly look, with thin, strong

legs and arms. I feel really good and hope in time the fibroid will shrivel up

and shrink some more. I have 3 more follow up MRI's that will give me an idea if

shrinkage is happening. The first MRI will be this July.

~

[Guest guest]

Hi ,

Thanks for your response. So you will have three more identical procedures to

the one in January? So basically as you continue you're hoping the results of

each procedure will continue to shrink the fibroids? Do you live in the Boston

area? Is that how you were selected to participate? Are you involved in a trial

study? Is the recovery time minimal? Any side effects? If I'm interested in

this procedure is there any other way to have it done? (I've tried to contact

the hospital by phone call and email and no response). I'm sure they are

overwhelmed with the number of woman who are interested. Just wondering are

there any other options for me if I want to have this procedure done. Thanks.

Janie

[Guest guest]

Thanks Polly!

Is this the only hospital/Drs who are performing the FUS now? Are you just

going to go through the screening or will you have FUS done?

Thanks.

Janie

[Guest guest]

I was eliminated from the focused ultrasound study (not surgery). I have

fibroids but also have adenomoyosis. The adeno is focal (all in one spot) and

is bigger than the fibroids. This is causing me my problems. I'm in wait and

see for everything. I hope to be in menopause soon.

Re: Focused Ultrasound Surgery

Thanks Polly!

Is this the only hospital/Drs who are performing the FUS now? Are you just

going to go through the screening or will you have FUS done?

Thanks.

Janie

[Guest guest]

Hi Janie,

No, it's just one treatment date and then the follow up MRI's are to ck. for

shrinkage from the one treatment.

One day recovery involved, just feeling a little queasy from the pain meds. they

administered during the procedure. No incision, no pain, back to work the next

day.

This procedure is in the final stages of the clinical trial. It should become

available to the general population within a yr. or two at the most. ~

jbjax98@... wrote:

Hi ,

Thanks for your response. So you will have three more identical procedures to

the one in January? So basically as you continue you're hoping the results of

each procedure will continue to shrink the fibroids? Do you live in the Boston

area? Is that how you were selected to participate? Are you involved in a trial

study? Is the recovery time minimal? Any side effects? If I'm interested in

this procedure is there any other way to have it done? (I've tried to contact

the hospital by phone call and email and no response). I'm sure they are

overwhelmed with the number of woman who are interested. Just wondering are

there any other options for me if I want to have this procedure done. Thanks.

Janie

[Guest guest]

Hi !

I'm new with this group and apologize if this msg will end up posted wrong.

I just read a reply from to Janie regarding some kind of treatment to

shrink fibroids????

I would be very much interested in knowing what that is about as I have a long

history of fiborids (Myo in 1990).

For the past 14 years after my myo. my doctors just kept a watchful eye over

them (yearly exams and ultrasounds)

but now it seems that they have grown in size (about 10cm from about 8cm 2

years ago) Today my doctors suggested that I should consider a hysterectomy,

however I am not so willing to give up my uterus without a fight.( I'm 43 year

old and nowhere near menopause.)

I know that eventually I need to make a decision, I was thinking maybe I can get

some kind of treatment (Lupron or other) to have the fibroids shrink and then

having them removed by laparascopy.

I would appreciate if anyone that has had a laparoscopy removal of fibroids

could give me some advice.

Thanking you in advance.

Marisa

Re: Focused Ultrasound Surgery

> This procedure is in the final stages of the clinical trial. It should become

> available to the general population within a yr. or two at the most. ~

jbjax98@... wrote:

>Are you involved in a trial study? Is the recovery time minimal? Any side

>effects? If I'm interested in this procedure is there any other way to have

>it done?

[Guest guest]

Thanks and keep us posted on your follow up appts. and let us know if

their is shrinkage. It may be the next procedure that many of us want to

follow.

Also if you find out that this procedure can be done before one to two years

and any Drs you know who will perform it, many of us won't be able to wait that

long.

Janie