Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 Do you go to OSU now Jimmy? Marie RE: Cleveland Clinic Hi Marcy,I am curious... When and who did you see @ Cleveland Clinic? Was it DrLee?Thanks!!!Pat ('s Dad)-----Original Message----- Sent: Saturday, March 01, 2003 12:16 PMTo: NF2_Crew Subject: Re: child care during recovery timeOlivia, I had my first neurosorgery when my daughter was just six weeks old. Luckily, my parents live near the Cleveland Clinic to be able to tkae care of us both. My husband went back to work in Columbus. I had a rough recovery with meningitis and then I had to have my gall bladder removed. didn't forget I was her mother. I do have a tendency to spoil her to try to make up for that time. It will all work out. Marcy-- In NF2_Crew , OKamador@a... wrote:> I just found out I have to have surgery sometime in the nearfuture on > several spinal tumours that are compressing the T and C- spine. IJUST found > a job, full time with benefits; Josh and I were talking aboutgetting our own > place. Now everything is going to just STOP. My biggest concern:What about > JT? Everyone in my family works like 60 hours a week, and his dadworks in > Vegas and is home on weekends. Their is seriously no one ot takecare of him. > I just can't stand the though of not being able to take care ofhim and hold > him. What if he forgets I'm his mom? He's only 4 months, a fewweeks is a > long time to him. Long enough to forget our bond. I can't be thefirst person > to have this problem? Anyone else have any experience with this?> > Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 Thanks for the feedback Jimmy! -----Original Message-----From: Jimmy Sent: Saturday, March 01, 2003 2:42 PMTo: NF2_Crew Subject: Re: Cleveland Clinic I had Dr Lee once.Hes a great guy,I love him:). I had to go to the CC ER for swollen optical nerves ,that was like 1995.Some old Quack was looking at me,told me I'd be going blind.Dr Lee stepped in.Removed 15 percent of the tumor,yes eyes got worse,but I can still see. Great Guy Dr.Lee I dont go to CC anymore,I got my first Death sentence from a Dr there,decided to move on. Jimmy RE: Cleveland Clinic Hi Marcy,I am curious... When and who did you see @ Cleveland Clinic? Was it DrLee?Thanks!!!Pat ('s Dad)-----Original Message----- Sent: Saturday, March 01, 2003 12:16 PMTo: NF2_Crew Subject: Re: child care during recovery timeOlivia, I had my first neurosorgery when my daughter was just six weeks old. Luckily, my parents live near the Cleveland Clinic to be able to tkae care of us both. My husband went back to work in Columbus. I had a rough recovery with meningitis and then I had to have my gall bladder removed. didn't forget I was her mother. I do have a tendency to spoil her to try to make up for that time. It will all work out. Marcy-- In NF2_Crew , OKamador@a... wrote:> I just found out I have to have surgery sometime in the nearfuture on > several spinal tumours that are compressing the T and C- spine. IJUST found > a job, full time with benefits; Josh and I were talking aboutgetting our own > place. Now everything is going to just STOP. My biggest concern:What about > JT? Everyone in my family works like 60 hours a week, and his dadworks in > Vegas and is home on weekends. Their is seriously no one ot takecare of him. > I just can't stand the though of not being able to take care ofhim and hold > him. What if he forgets I'm his mom? He's only 4 months, a fewweeks is a > long time to him. Long enough to forget our bond. I can't be thefirst person > to have this problem? Anyone else have any experience with this?> > Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 I had Dr. Lee too!! He removed my brain tumor. He was the first surgeon I saw that said he could do it and didn't sound as if I would die. He didn't play games either. I loved that. He actually got out all the tumor and from what I was told I was only in there for about 9 hours. Hope this helps!! Billie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 Thanks Billie. Was it an AN, how long ago and do you remember the size? Thanks Pat- -----Original Message-----From: rivkerivets@... Sent: Thursday, March 06, 2003 3:11 PMTo: NF2_Crew Subject: Re: Cleveland ClinicI had Dr. Lee too!! He removed my brain tumor. He was the first surgeon I saw that said he could do it and didn't sound as if I would die. He didn't play games either. I loved that. He actually got out all the tumor and from what I was told I was only in there for about 9 hours. Hope this helps!! Billie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 Hello Everyone, I am currently being treated for my RSD at St. Joesph Hosp. in , Tx. My employer is wanting to me go to the Cleveland Clinic in Ohio for further treatment. My question is, do you think it is worth the trip to travel that distance for treatment? Thanks... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 - I don't know anything about the Cleveland Clinic but I hope that someone else in the group might be able to help you out. Have you checked their website? Barbaracharleswhouston wrote: Hello Everyone,I am currently being treated for my RSD at St. Joesph Hosp. in , Tx. My employer is wanting to me go to the Cleveland Clinic in Ohio for further treatment. My question is, do you think it is worth the trip to travel that distance for treatment? Thanks... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 I do not have answer about the clinic but have question about where you live and where you might of worked....did you work at A & M ? My daughter graduated from there and I was born and raised in TX so always liked A & M and the fun rivalary with University of TX. Hope okay to ask this of you.. And one other thing, my daughter lives in Houston and has dealt with RSD for 8 years now and has great doctors. So you may want to go to Houston and not so far away. Think you would find great help in Houston and can give you some names, etc. Just let me know. Take care JoAnn s MommaBARBARA TORREY wrote: - I don't know anything about the Cleveland Clinic but I hope that someone else in the group might be able to help you out. Have you checked their website? Barbaracharleswhouston wrote: Hello Everyone,I am currently being treated for my RSD at St. Joesph Hosp. in , Tx. My employer is wanting to me go to the Cleveland Clinic in Ohio for further treatment. My question is, do you think it is worth the trip to travel that distance for treatment? Thanks... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Hi sorry I didn't see this post earlier. I have been to cleveland clinic. When I went there I was told because I was going through lidicatation there was nothing that they could do. I was put on 3 different medications and when I got the next refill I endup in the hosipital. I also had a hard time getting my med's filled. The only thing I could say is try it and see. It didn't work for me. Plan on spending a couple of days. They will evluate you one day and try to get you into the phycoligest the next couple of days. There are hotel's there but they can be expencive. I was there for 4 days and the first night I stayed at the guest house hotel right across from the hosipatil. I had to pay for parking. The food there is very expencive. Breakfest cost me $ 7.00 for 2 eggs 3 sasuage links toast and hashbrowns. Back home I pay $ 1.99 for the same thing. My soda cost $.99 for a 20oz bottle. Dont want to turn you off but just want to let you know What you are in for. There are cheeper hotel's but you will have to pay for transportation to the clinic that sits off from the hospital. I could look up the name of the site. If you do decide to go I would like to know if they could help you. Please let me know. My email address is usmiller@... Hope it helps Sheri -- In RSD-CRPSofAmerica , " charleswhouston " wrote: > > Hello Everyone, > I am currently being treated for my RSD at St. Joesph Hosp. in > , Tx. My employer is wanting to me go to the Cleveland Clinic > in Ohio for further treatment. My question is, do you think it is > worth the trip to travel that distance for treatment? > Thanks... Quote Link to comment Share on other sites More sharing options...
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