Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 We had discussed ways that the National Autism Association could help with this and I haven't forgotten. We've got so much going on with Autism One right now but as soon as that's over, we'll be able to concentrate on how to help. It's always going to be difficult to give money to some families and not others. Everyone is so deserving. I'm brainstorming here and would love to get some feedback. Maybe a way to make this happen would be if families could do a fundraiser for NAA. We could in turn pay for medical costs for their family member (based on what is raised). This way it encourages your community to help because they know it'll help someone locally and nationally, they get a tax write-off, NAA gets funding for autism research, and it appears everyone wins. There are tons of easy fundraisers anyone can do. Even a car wash can bring in enough money to help. Since we're not going to get help from anyone else, let's try to find a way to help ourselves. If anyone has ideas, please let us know. Jo Pike National Autism Association Phone: 877-NAA-AUTISM Email: Jo@... http://nationalautismassociation.org/ In a message dated 5/22/2004 6:09:11 PM Eastern Standard Time, DMHelmick1@... writes: Would Parents Wish to Raise money for their Children's Biomedical Treatments? Parents who have their children on biomedical treatments such as the Gluten Free/Casein Free (GFCF) and or Specific Carbohydrate Diet (SCD), Organic foods, and vitamin supplements are finding great expense at keeping the regimen going. For example, my son is on both the GFCF and SCD diets which are all organic and 9 different Vitamin supplements including digestive enzymes. None of these costs are covered by insurance or by county services. Initial lab testing recommended by the DAN protocol are also not covered as is the Doctor's visit for the diagnosis of autism. With the cost of the diet and vitamin supplementation most parents are living from paycheck to paycheck with little or none to save, I personally know a friend who had taken a second mortgage on her house because of the cost of dietary and other therapies. There are even some parents who can't even take the first steps because of the cost. What is a parent to do? I vote that there should be some sort of assistance for parents regarding the biomedical treatment therapies. Some sort of fund raiser that can be held for the purpose of helping parents with Biomedical Therapies. Are there any funds out there for this purpose? I haven't heard yet. I think that this should be an issue that is considered a legitimate fundraiser. What do you think? I may be pushing a button with this, but this is a real need. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Let's assume that we can smash the fraud-mongering dictatorship of the CDC, AAP, and IOM. (A hopeful notion indeed.) Assume a writer were hired to portray the usefulness of biomedical interventions. I haven't been able to get DAN-oriented clinicians or another other true-believers' discipleships' physicians to write articles for publication. We note that Derrick Lonsdale is a rare exception -- having published about TTFD, arsenic excretion (mechanism unknown), and child improvement. Overall, the lesson is that clinicians - regardless of their biomed religious-like faith (DAN!, Cutler, Kane, whatever) aren't writing such articles for publication. Alternative: hire one or several of the autism friendly, biomed respected news reporters to write a major article (investigative journalism at its best). Such an article might help turn the tide of public opinion away from the funds-lock enforced as " minimize environ concerns, preach the gospel of must be genetic " . If and as public opinion is shifted, the society might come to realize that iatrogenic autism is as much an epidemic as was pink disease. And let's be hopeful, the insights of Semmelweiss were suppressed for decades, but that enforcement of habit and doctrine (whereby hand washing was disparaged) occurred before the internet. Caution: we must be careful not to remain in the posture of sharing emails that amount to " preaching to the choir " . We are challenged to break the media/pharco/CDC/AAP/IOM lock on public consciousness. If we succeed, then tax moneys ought pay for healing the hundreds of thousands of iatrogenically injured children. JPiker@... wrote: >We had discussed ways that the National Autism Association could help with >this and I haven't forgotten. We've got so much going on with Autism One right >now but as soon as that's over, we'll be able to concentrate on how to help. > >It's always going to be difficult to give money to some families and not >others. Everyone is so deserving. > >I'm brainstorming here and would love to get some feedback. Maybe a way to >make this happen would be if families could do a fundraiser for NAA. We could in >turn pay for medical costs for their family member (based on what is raised). >This way it encourages your community to help because they know it'll help >someone locally and nationally, they get a tax write-off, NAA gets funding for >autism research, and it appears everyone wins. > >There are tons of easy fundraisers anyone can do. Even a car wash can bring >in enough money to help. Since we're not going to get help from anyone else, >let's try to find a way to help ourselves. If anyone has ideas, please let us >know. > >Jo Pike >National Autism Association >Phone: 877-NAA-AUTISM >Email: Jo@... >http://nationalautismassociation.org/ > >In a message dated 5/22/2004 6:09:11 PM Eastern Standard Time, >DMHelmick1@... writes: >Would Parents Wish to Raise money for their >Children's Biomedical Treatments? > > >Parents who have their children on biomedical treatments such as the Gluten >Free/Casein Free (GFCF) and or Specific Carbohydrate Diet (SCD), Organic foods, >and vitamin supplements are finding great expense at keeping the regimen >going. For example, my son is on both the GFCF and SCD diets which are all >organic and 9 different Vitamin supplements including digestive enzymes. None of >these costs are covered by insurance or by county services. Initial lab testing >recommended by the DAN protocol are also not covered as is the Doctor's visit >for the diagnosis of autism. > >With the cost of the diet and vitamin supplementation most parents are living >from paycheck to paycheck with little or none to save, I personally know a >friend who had taken a second mortgage on her house because of the cost of >dietary and other therapies. There are even some parents who can't even take the >first steps because of the cost. What is a parent to do? > >I vote that there should be some sort of assistance for parents regarding the >biomedical treatment therapies. Some sort of fund raiser that can be held >for the purpose of helping parents with Biomedical Therapies. > >Are there any funds out there for this purpose? I haven't heard yet. I >think that this should be an issue that is considered a legitimate fundraiser. >What do you think? >I may be pushing a button with this, but this is a real need. > > > Quote Link to comment Share on other sites More sharing options...
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